Ian
@ipilko.bsky.social
Disability rights activist, talking hard to hear truth to power & holding them accountable. Warm polite nag, better w/caffeine. Vale octogenarian 4ever stubborn
December 25, 2025 at 7:08 AM
December 25, 2025 at 2:46 AM
I’ll be quiet here for a bit. Had something happen in the past week. Seeking professional support assistance.
I put myself out there as a Justice of the Peace (JP) for a number of communities. I’m human and it’s not without significant personal impact on me.
I put myself out there as a Justice of the Peace (JP) for a number of communities. I’m human and it’s not without significant personal impact on me.
December 1, 2025 at 10:54 AM
I’ll be quiet here for a bit. Had something happen in the past week. Seeking professional support assistance.
I put myself out there as a Justice of the Peace (JP) for a number of communities. I’m human and it’s not without significant personal impact on me.
I put myself out there as a Justice of the Peace (JP) for a number of communities. I’m human and it’s not without significant personal impact on me.
Happy “whamageggen” to all those who celebrate.
November 30, 2025 at 9:54 PM
Happy “whamageggen” to all those who celebrate.
I'm human, I volunteer as a justice of the peace (JP), something happened this morning, and I'm hoping the council I was volunteering for has a volunteer equivalent EAP.
November 29, 2025 at 9:03 AM
I'm human, I volunteer as a justice of the peace (JP), something happened this morning, and I'm hoping the council I was volunteering for has a volunteer equivalent EAP.
Struggling to manage my pain, utter complete exhaustion layered with extreme fatigue. Well beyond tears on the pain scale.
This is a multi day flare up.
This is a multi day flare up.
November 7, 2025 at 2:12 AM
Struggling to manage my pain, utter complete exhaustion layered with extreme fatigue. Well beyond tears on the pain scale.
This is a multi day flare up.
This is a multi day flare up.
My body is being a jerk, it’s freaking out my medical team and I.
November 5, 2025 at 8:52 AM
My body is being a jerk, it’s freaking out my medical team and I.
Looking like I need to move here from
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
October 6, 2025 at 8:15 AM
Looking like I need to move here from
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
on my soapbox again, "Before sending this feedback, I have read your Community Engagement Plan 2025/26 and remind you of your action plan item of inclusion."
October 3, 2025 at 9:52 PM
on my soapbox again, "Before sending this feedback, I have read your Community Engagement Plan 2025/26 and remind you of your action plan item of inclusion."
Well well well!
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
October 3, 2025 at 10:40 AM
Well well well!
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
I’ve been asked if I’m media trained….. well now I actually am!
(Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!)
Watch this space…
So I've finally been able to download my first ever #NDIS forplan from myndisportal.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
September 11, 2025 at 12:18 PM
So I've finally been able to download my first ever #NDIS forplan from myndisportal.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
The plan has been written and funded as per the meeting.
I am lost of words, that and I can't see from the tears of relief streaming downn my face.
Absolutely life changingg.
I have a complicated few days ahead. I’m already having unhelpful trauma/ptsd flash backs. Critical (crunch point) is Saturday afternoon/night. I may or may not post/share, focused on pure survival…
August 14, 2025 at 8:05 AM
I have a complicated few days ahead. I’m already having unhelpful trauma/ptsd flash backs. Critical (crunch point) is Saturday afternoon/night. I may or may not post/share, focused on pure survival…
Heading home in tears from the absolute disaster of an evening. Worst accessibility cumulative personal experience anywhere in the world.
August 1, 2025 at 10:44 AM
Heading home in tears from the absolute disaster of an evening. Worst accessibility cumulative personal experience anywhere in the world.
You know you've online shopped hard, when Startrack send you a truck with a powered tailgate and the truck reverses in!
July 22, 2025 at 4:31 AM
You know you've online shopped hard, when Startrack send you a truck with a powered tailgate and the truck reverses in!
I'm trying to find a new #GP in the North Eastern Suburbs of #Adelaide I'm a disability support pensioner with a unique history/case mix. Multiple doctors/specialists say I'm a career standout patient (probably not a good thing) The cost to "interview" to check compatibility...
July 17, 2025 at 12:56 PM
Only ever had HFC/FTTN @NBN_Australia until a few days ago when I upgraded to "full fibre" #FTTP the low latency of fibre is amazing, the additional speed to handy, but the responsiveness of #EVERYTHING# is impressive. Finally giving my full @Ubiquiti #UNIFI #UDMPRO a solid workout!
July 12, 2025 at 11:01 AM
Only ever had HFC/FTTN @NBN_Australia until a few days ago when I upgraded to "full fibre" #FTTP the low latency of fibre is amazing, the additional speed to handy, but the responsiveness of #EVERYTHING# is impressive. Finally giving my full @Ubiquiti #UNIFI #UDMPRO a solid workout!
Massive day ahead tomorrow going to “suit up” with a neck tie,‘I’ve narrowed it down to these….
July 5, 2025 at 11:53 PM
Massive day ahead tomorrow going to “suit up” with a neck tie,‘I’ve narrowed it down to these….
How on earth am I so time poor?
June 16, 2025 at 2:37 AM
How on earth am I so time poor?
"Desserts, Sewing, Business, Management" Did you set this up @liangrhea.bsky.social spotted in @rundlemall #Adelaide #Library #CityOfAdelaide
June 7, 2025 at 10:25 AM
"Desserts, Sewing, Business, Management" Did you set this up @liangrhea.bsky.social spotted in @rundlemall #Adelaide #Library #CityOfAdelaide
Got myself stuck in a shopping centre/area I’m not familiar with. Managed to get some over the counter support from a pharmacy but yikes…
June 7, 2025 at 5:47 AM
Got myself stuck in a shopping centre/area I’m not familiar with. Managed to get some over the counter support from a pharmacy but yikes…
Had someone recently mention in relation to personal energy/capacity “I’m running on fumes” my only thought of what comes next? I’m not running on fumes I’m looonnnggggg past that!
June 4, 2025 at 7:48 AM
Had someone recently mention in relation to personal energy/capacity “I’m running on fumes” my only thought of what comes next? I’m not running on fumes I’m looonnnggggg past that!
Took a decent tumble in the early hours of yesterday morning, I've got to find a better way of falling if that's what I'm going to keep doing. I can't sit right now due to pain, it's a pain in the arse! (literally!)
May 26, 2025 at 4:33 AM
Took a decent tumble in the early hours of yesterday morning, I've got to find a better way of falling if that's what I'm going to keep doing. I can't sit right now due to pain, it's a pain in the arse! (literally!)
There are many elements where there are some things I really need to try and do myself or with (physical) assistance.
That said many hands "make light work" apparently! 3/3
That said many hands "make light work" apparently! 3/3
May 22, 2025 at 11:55 AM
There are many elements where there are some things I really need to try and do myself or with (physical) assistance.
That said many hands "make light work" apparently! 3/3
That said many hands "make light work" apparently! 3/3
My thanks to those who have helped in a multitude of ways, a fair bit has been done already, still a fair bit to go.
The further I get into the process, the more complicated it can get for reasons I won't go into. 2/
The further I get into the process, the more complicated it can get for reasons I won't go into. 2/
May 22, 2025 at 11:55 AM
My thanks to those who have helped in a multitude of ways, a fair bit has been done already, still a fair bit to go.
The further I get into the process, the more complicated it can get for reasons I won't go into. 2/
The further I get into the process, the more complicated it can get for reasons I won't go into. 2/