🚀 WP15 Updates

✅ Defined 8 assessment dimensions for cohort access & secondary data use.
✅ Assessed governance in 3 cohorts (clinical, population, European).
✅Proposed first recommendations for harmonised data access & protection policies.

🔗 www.integratelmc.eu/news/latest-...

📊 WP4 highlights

🔹 Surveyed 25 organisations supporting large medical cohorts
🔹 5 service clusters mapped
🔹 Gaps: operational support, harmonisation, staff & funding
🔹 Users report fragmented use & regulatory hurdles

🔗 www.integratelmc.eu/news/wp4-the...

🚀 WP9 highlights

🔹 Identified sustainable IT for medical data
🔹 Built secure access procedures
🔹 Explored federated analysis

🔗 www.integratelmc.eu/news/wp9-dat...

🌍 On #WorldHealthDay BBMRI-ERIC highlighted, among other initiatives, the #IntegrateLMedC project's efforts to address unmet medical needs, especially for conditions like endometriosis.

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🔗 Learn more about WP3: buff.ly/08VXAPP

📣 WP3 – Large Medical Cohorts is complete

Over 12 months, WP3 conducted a gap analysis, a Delphi study with 73 experts, and a Scoping Review, mapping cohorts for depression, Alzheimer’s, and endometriosis.

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🚨📣 #IntegrateLMedC 12-month update

🔬 Identifying unmet medical needs (depression, Alzheimer’s, endometriosis)
🤝 Enhancing researcher & participant engagement
📊 Expanding the FAIR medical cohorts catalogue

🔗 integratelmc.eu/news/integra...

📣 Progress Update from WP6

📄 In 6 months, WP6 delivered D6.1: Established Assessment Regime, outlining guidelines for evaluating large medical cohorts (LMedC) for a future research infrastructure.

🔑 Key focuses:

1️⃣ ELSI
2️⃣ FAIR Data Management
3️⃣ Data Sharing & Protection

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