I Am Charlene
banner
iamcharleneyoung.bsky.social
I Am Charlene
@iamcharleneyoung.bsky.social
💎Inspirational Mother of the Year Award Winner 2023
💎Nominated Patient Advocate 2021
💎Advisory Board Member
💎Workshop Facilitator

Interests: #PublicInvolvement #PPI #PPIContributors #HealthResearch #ClinicalTrials #Patients #Engagement #EDI #Diversity
Pinned
Hey BlueSkyers!

Happy New Year...🥳🎉2️⃣0️⃣2️⃣5️⃣

Here is my Life of a Rare Gem 💎 'End of Year Highlights' 2024 Winter Newsletter❄️📧😇🤎🙏🏾⭐️💃🏾

🔗 mailchi.mp/7b61f842530d...

Sending Love + Gratitude Always,

Charlene xxx

🤎
Life of a Rare Gem💎2024 Winter Newsletter❄️📧
mailchi.mp
🗣 Join me on Thursday at YOU GOT THIS!—an intimate gathering for women creating success on our own terms.

Come and connect, recharge & be celebrated!🥳

📅 Date: Thur 25th Sept 2025
⏰️ Time: 10am - 3pm
📍Location: 65-69 East Road, London, N1 6AH

🔗 tinyurl.com/3n28j9p2
September 23, 2025 at 10:42 AM
🗣️ Join me as I'm hosting an EDI Table Talk at the South East London Cancer Research Panel (SELCRP) Patient Involvement Event!

A space for open, honest conversations about Equity, Diversity, and Inclusion (EDI) in healthcare and research.
August 26, 2025 at 11:27 AM
Although it's the last day of Sarcoma Awareness Month I continue to advocate for myself, those still fighting, for those we’ve lost, and for those who might not know what signs to look for. Early detection can save lives.

Advocacy can change outcomes and awareness matters.

🧡
July 31, 2025 at 4:07 PM
I'm so proud to have been featured in this Patient Advocacy Special Issue for E-Cancer on addressing health disparities and equitable representation in cancer research.

Read the article here: 👇🏾

ecancer.org/en/journal/a...
Addressing health disparities and equitable representation in cancer research through the initiative, ‘The Patient and Public Involvement Cancer Research Group
Addressing health disparities and equitable representation in cancer research through the initiative, ‘The Patient and Public Involvement Cancer Research Grou
ecancer.org
June 13, 2025 at 5:41 PM
Reposted by I Am Charlene
👋 Meet The People’s Review Steering Group!

Our steering group is made up of people like you and me from around the world. 🌍
They’ve been part of this journey since the very beginning - way back in November 2022. Time flies when you're having fun 😉
June 9, 2025 at 3:41 PM
✨ Declutter - Clear out your space, delete old files.

✨ Reconnect - With friends, family, or even to yourself.

✨ Set New Intentions - List your top three priorities for the next few months.

How will you reset this month❓️
June 2, 2025 at 11:44 AM
🌿 June Reset: A Mid-Year Fresh Start 🌿

June marks the halfway point of the year — a perfect time to pause, reflect, and realign your goals.

Here’s how you can reset:

✨ Reflect - Take a look back at the past six months.
June 2, 2025 at 11:43 AM
⭐️Thank You for the Feedback⭐️

I’m incredibly thankful for the amazing feedback shared and knowing that the workshop made a real impact is the best reward of all..😇

📆 If you're interested in bringing this workshop to your Organisation or Patient Involvement Event, I’d love to hear from you!
May 30, 2025 at 11:27 AM
The NIHR guidance payment rates for involvement activities often comes up at @Diverse_PPI and other meetings.

Discussions around 'the rates not matching up' to the level of involvement, sharing lived experiences/re-living trauma after these meetings have taken place... The list goes on...
www.nihr.ac.uk
May 29, 2025 at 1:41 PM
It's been two years and I'm still honoured to receive this award...🏆

#TBT
#ThrowBackThursday
#InspirationalMother
#BionicWarrior
#IAmCharlene
May 29, 2025 at 12:40 PM
📣Calling all Chinese Family Carers in the UK and Ireland📣

Share your experiences to help shape better support services 👥

📧: Contact Wenji Tang - wenji.tang@ul.ie

‼️Please share to your networks‼️
May 28, 2025 at 12:57 PM
Living with multiple long-term conditions isn't the easiest when nagivating a NHS system that has no co-ordinated clinical care, plus more...

I shared my lived experience with The Kings Fund 🗣

🔗Read here to find out how patient care can be improved 👉🏾 www.kingsfund.org.uk/insight-and-...
Improving Clinical Coordination Of Multiple Long-Term Conditions | The King's Fund
More people have multiple long-term conditions, but care pathways focus on single conditions. What do clinicians and commissioners need to improve the experiences of those with multiple long-term cond...
www.kingsfund.org.uk
May 28, 2025 at 12:24 PM
What does a social prescriber do?
youtu.be
May 27, 2025 at 11:19 AM
✅️ Personalised Plan: A plan will be created to support your needs. This includes activities, groups and services.
 
✅️ Ongoing Support: You will receive continued support to work towards your goals.
May 27, 2025 at 11:18 AM
How to access your local social prescriber❓️

✅️ Talk to your GP: Discuss your situation and how they are impacting your health or wellbeing.

✅️ Referral: Ask to be referred to a social prescribing link worker.

✅️ Initial Meeting: You meet with a link worker to discuss your needs and goals
May 27, 2025 at 11:17 AM
🌿 Who Are Social Prescribers? 🌿

Social prescribers are connectors, listeners, and supporters 💬💙

They help people find non-medical support to improve their health and well-being, from community groups and exercise classes to housing advice and mental health support.
May 27, 2025 at 11:16 AM
Reposted by I Am Charlene
The list of 21 questions that made it through to this stage are...

🔗 Cast your vote here: buff.ly/E87QLDx
May 24, 2025 at 7:02 AM
Reposted by I Am Charlene
Yesterday, we were honoured to view the Children with Cancer Garden at the Chelsea Flower Show 🌺

The space is a beautiful tribute to children and families affected by cancer, and we were proud to stand alongside our friends at @skcuk.bsky.social and Alice's Arc.

#UntilTheresACure
May 23, 2025 at 1:19 PM
📢Stage 2 is now open...💃🏾💃🏾

It's not too late to get involved...🏃🏾‍♀️

#ThePeoplesReview
🎉 Stage 2 is LIVE - where YOU get to decide the People's favourite question!

➡️ If you're joining The People's Review for the first time sign-up here: buff.ly/kAuYITA

➡️ If joined us for Stage 1 you can login in directly to Cochrane Crowd here: buff.ly/q0WudTM
May 21, 2025 at 1:32 PM
This year, let’s all commit to raising our efforts for equity in research.. 👥

Inclusive trials for all...🫱🏻‍🫲🏾

📷: Me visiting the lab at Glasgow University

#ClinicalTrialsDay #InclusiveResearch #DiversityInTrials #EDI #HealthEquity #MedicalResearch #PatientAdvocacy #IAmCharlene
May 20, 2025 at 5:24 PM
💡Questions for clinicians to consider:

❓️How are you recruiting under-represented groups?

❓️Is your recruitment strategy sensitively tailored for under-represented groups?

❓️How are you evaluating these practices and how often?

❓️Are you actively consulting with patients for all of the above?
May 20, 2025 at 5:23 PM
🔬 Today is International Clinical Trials Day!

We celebrate the incredible progress made through clinical research and recognise the patients, researchers, and healthcare teams who make it possible.

This year's theme is 'Rethinking Clinical Trials: Inclusivity in Practice'.
May 20, 2025 at 5:21 PM
Congrats on the nomination Saran...❤️🙌🏾🙌🏾🙌🏾
Shout out to our Coordinator, Saran Green, for bagging herself a nomination & being shortlisted for a King's SHINE Award, 'Community Connector,' in recognition of her outstanding contribution in bringing people together & encouraging teamwork & collaboration while ensuring everyone's voice is heard👏
May 20, 2025 at 2:44 PM
May 19, 2025 at 11:45 AM