Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
Habeus papum canuckus?
Habeus papum canuckus?
[Arnold, Brown, Edwards, McDonnell, and Sherbaniuk (1986) 34:5 Canadian Tax Journal 989-1094.
taxfind.ca#/document/19... if you have TaxFind access - I think universities do?
[Arnold, Brown, Edwards, McDonnell, and Sherbaniuk (1986) 34:5 Canadian Tax Journal 989-1094.
taxfind.ca#/document/19... if you have TaxFind access - I think universities do?
www.linkedin.com/posts/adamfr...
www.linkedin.com/posts/adamfr...