Sign up today — The Bear Town Paddle Battles are back! 🛶

📅 Saturday, June 13, 2026
📍 Beautiful New Bern, NC

Whether you're a paddle sport enthusiast or a seasoned racer, this is your chance to race, have fun, and support a meaningful cause. 💙

👉 Register now: www.hdreach.org/community/pa...

This Tuesday Feb 10th at 8pm ET, we will be LIVE on Twitch/Youtube/Facebook with HDYO playing #golfwithfriends . This is going to be hilarious....but informational for our #huntingtonsdisease community! Especially ages 16-25...

Apply for camp:
www.hdyo.org/a/881-hdyo-c...

Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬
Doxy.me/HDgenetics
#HDreach

Give with heart this Valentine’s season 💖 Join us for a Kendra Scott Give Back Fundraiser benefiting HD Reach because love looks even better when it gives back.

Your Valentine’s sparkle can help fund hope, awareness, and support for families impacted by Huntington’s disease.

#HDReach

TONIGHT: We are delighted to have the author, Dr. Benjamin Gilmer, join our call! If you've read the book on your own and would like to join to chat with the author, we would love to have you.

📚 Any questions please reach out to Erika at eboulavsky@hdreach.org www.hdreach.org/community/ev...

Check out our summary of both in person events and virtual events for the month of February. We can't wait to see you there! 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

Registration is now open! Education Day 2026 will be held April 17–18 at The Kirk of Kildaire in Cary, NC. This year’s theme, Bridging Connections, focuses on bringing our community together through learning, collaboration, and shared experiences.

Learn more:
www.hdreach.org/conference/2...

Living with or caring for someone with #HuntingtonsDisease can feel isolating—but you’re not alone. Actor Will Forte and his brother-in-law Doug share their family’s HD Story of Hope with Honestly HD. Watch at honestlyhd.com/stories-of-hope for support, tools, and inspiration.

NEXT WEEK: We are delighted to have the author, Dr. Benjamin Gilmer, join our call! If you've read the book on your own and would like to join to chat with the author, we would love to have you.

📚 Any questions please reach out to Erika at eboulavsky@hdreach.org www.hdreach.org/community/ev...

2026! It's a New Year which means new dates to save for our yearly events! Check out the summary here and be sure to save them in your calendar.

Interested in volunteering or joining the committee? Send an email info@hdreach.org.
Check out hdreach.org for more details. #HDreach #ReachForHope

Bluesky! We are excited to be here. Say hello the the staff of HD Reach! We would love to share a bit about ourselves with y'all and can't wait to continue to grow with you. #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons

On the road with big news ahead 👀 Stay tuned around 1 PM. NC ➡️ VA
#HopeOnHold #HDAdvocates #ActForHD #SpeakUpForHD #StandUpSpeakUpHD #HuntingtonsDisease

We are so grateful to look back on 2025!

Thank you to the Huntington's disease community, our sponsors, our volunteers, and all who support us in person and virtually.

#hdreach #endofyear #youtube #curehd #curejhd #reachforhope #family #huntingtonsdisease #advocacy

youtu.be/q3F9WMMmtbk?...

There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS Sunday, January 18th to ensure you are included before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.

Sign today - www.change.org/p/bring-hope...

Education Day 2026 will be held April 17–18 at The Kirk of Kildaire in Cary, NC. Registration opens January 19th. This year’s theme, Bridging Connections, focuses on bringing our community together through learning, collaboration, and shared experiences.

Learn more:
www.hdreach.org/conference/2...

uniQure has scheduled a Type A meeting with the FDA to discuss data supporting accelerated approval of AMT-130, an investigational gene therapy for Huntington’s disease. uniqure.gcs-web.com/node/12416/pdf

Hi 👋 We’re HD Reach, a nonprofit supporting families impacted by Huntington’s disease, established in 2009. We’re excited to be here to connect, learn, and support one another. Follow along to stay up to date on events, resources, and what’s happening in our community.

 #HDReach #ReachForHope