UniquelySarc
geegeequeen.bsky.social
UniquelySarc
@geegeequeen.bsky.social
Author, Business Owner, Human Library Book, Patient Advocate, Moderator for a National Support Group, Mother, Grandmother who is living her best life despite the fact she lives with a rare disease! 💜💜
Pinned
Hear part of my story on Heart, Spotify, and Apple Music. #chronicillness #sarcoidosis
I swapped books with another self-published author at a recent event. Sharing our stories and how we got to where we are was one of the highlights of that day!
July 13, 2025 at 2:31 PM
Today, I am saddened. A friend who has sarcoidosis passed away. She needed a double lung 🫁 transplant. We were childhood friends. 😢 💔💜😔🙏🏽
July 13, 2025 at 12:17 PM
It's been a while since I posted anything. I'm feeling much better now. Finally, doctors are now listening to me about my sinuses. I last posted about chronic maxillary sinusitis. Getting checked for the massive headaches, a CT of my sinuses, & allergy tested. I learned wire wrapping while sick.
June 5, 2025 at 1:41 PM
Hello!
fanbase.app.link
February 3, 2025 at 9:55 PM
I make Jewelry to sell. It's how I spend my days since I retired. It how I also pay my medical bills! #sarcoidosis #raredisease #chronicillness #infusion
January 27, 2025 at 10:00 PM
I now have chronic maxillary sinusitis. There is nothing that can be done. They gave me a muscle relaxer that helps. I take Tylenol constantly. #chronicpain sucks and so does insomnia from the pain 😭
January 27, 2025 at 3:10 AM
A much better video than the previous posted! #chronicillness #sarcoidosis #poetry #writing
Solo Arts Heal ANCAN ft. Regina Gordon January 22, 2025
YouTube video by The MarshStream
youtu.be
January 26, 2025 at 8:15 PM
Hear part of my story on Heart, Spotify, and Apple Music. #chronicillness #sarcoidosis
January 13, 2025 at 3:15 AM
My book I wrote! It can be found on Amazon. It's interactive and anyone with an illness can use it. It's like a journal/workbook. #chronicillness #writers #poetry
December 29, 2024 at 10:52 PM
December 3, 2024 at 5:26 AM
Hey all I am new here!
November 15, 2024 at 7:04 PM