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foundationforpn.bsky.social
the Foundation for Peripheral Neuropathy
@foundationforpn.bsky.social
75 followers 55 following 150 posts
Through research funding, patient education and advocacy, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerate the development of treatments, and one day, cures https://linktr.ee/tffpn
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foundationforpn.bsky.social
All in the family: Update on hereditary neuropathies and treatments
Sponsored by Alnylam

https://event.on24.com/wcc/r/5208110/C917660E597C4885550CCE5D458F5196?utm_source=bluesky&utm_medium=social&utm_campaign=2026_02_allinfam

Can't attend? Register for recording
#neuropathy#neuropathywebinar
January 20, 2026 at 8:01 PM
foundationforpn.bsky.social
It’s hard to learn you have neuropathy. It’s overwhelming, scary, confusing. These resources can help you manage your symptoms and overall health: https://www.foundationforpn.org/newly-diagnosed/

#neuropathy #peripheralneuropathy #foundationforpn
January 14, 2026 at 12:00 AM
foundationforpn.bsky.social
New year: same impactful mission and work.
We are educating patients, advancing PN research and advocating for a better future for all neuropathy sufferers.

Learn more at https://www.foundationforpn.org/
#neuropathy #foundationforPN #research #fundmoreresearch
January 7, 2026 at 12:05 AM
foundationforpn.bsky.social
Hoping your 2026 is filled with hope, joy and more symptom free days. Happy New Year!
#happynewyear
January 1, 2026 at 6:01 AM
foundationforpn.bsky.social
Neuropathy affects millions. There's still time to make a difference this year!
Give today: https://www.foundationforpn.org/donate/
#HopeThroughResearch #EndNeuropathy #Neuropathy #supportFPN
December 31, 2025 at 12:00 AM
foundationforpn.bsky.social
As we’re wrapping up 2025, we want to highlight some of our most popular content.

In case you missed it, here are some of our top items:
https://www.foundationforpn.org/2025-content-recap/

#neuropathy #neuropathyeducation #wrapup #2025warpup
December 26, 2025 at 5:04 PM
foundationforpn.bsky.social
Wishing you and yours peace and joy this holiday season
December 25, 2025 at 12:01 AM
foundationforpn.bsky.social
The holidays are here! While we all love festive treats, let’s keep our health in mind, especially if you’re managing neuropathy.

https://www.foundationforpn.org/healthy-eating-for-pn-with-chef-bill-nolan/
#neuropathy #healthyliving
December 24, 2025 at 12:00 AM
foundationforpn.bsky.social
It's the time of year when lots of people travel. All travel can be stressful, but traveling with neuropathy can be a real challenge.

Craig shares helpful tips on how to make the most out of your travel: https://www.youtube.com/watch?v=uZjWZlNx09U

#neuropathy #neuropathytravel #travelmore
December 20, 2025 at 4:17 PM
foundationforpn.bsky.social
Here in the midwest this time of year brings icy walkways and slippery streets.

Maintaining good balance can be hard with neuropathy. This webinar can help you learn how balance works and why it matters
https://www.foundationforpn.org/events/exercise-physical-therapy-with-pn/

#neuropathy #balance
December 18, 2025 at 12:00 AM
foundationforpn.bsky.social
Make an impact all year! A monthly gift keeps research and education going strong. Even a small amount adds up to big progress: https://www.foundationforpn.org/donate/
#HopeAllYear #Neuropathy #EndNeuropathy
December 16, 2025 at 8:01 PM
foundationforpn.bsky.social
Our biobank is advancing neuropathy research. Dr. Ahmet Höke and patient advocate Adam Halper explain its purpose and patient impact.

Watch now https://www.foundationforpn.org/events/inside-fpns-peripheral-neuropathy-research-registry-pnrr/

#neuropathy #neuropathyresearch #PNRR #FoundationForPN
December 13, 2025 at 4:00 PM
foundationforpn.bsky.social
Holidays can be joyful, and stressful. For those with neuropathy, stress, changes to routine can amplify symptoms.

Author Will Schwalbe talks about the importance of your support network. Leaning on your community can make a real difference.

Watch now: https://www.youtube.com/watch?v=mosJ8r-iI0M
December 13, 2025 at 12:00 AM
foundationforpn.bsky.social
Our latest newsletter is available online: https://www.foundationforpn.org/neuropathy-news-dec-2025/
#neuropathy #neuropathynews
Neuropathy News Dec. 2025 | The Foundation for Peripheral Neuropathy
The Foundation for Peripheral Neuropathy’s June 2025 eNews brings you the newest research developments, inspiring patien
www.foundationforpn.org
December 10, 2025 at 12:00 AM
foundationforpn.bsky.social
TOMORROW DEC 10!
Inside our biobank: the Peripheral Neuropathy Research Registry
Learn how patients play a key role and how the biobank supports neuropathy research
https://register.gotowebinar.com/register/4324838179405547607

#neuropathy #neuropathyresearch #foundationforPN
December 9, 2025 at 2:11 PM
foundationforpn.bsky.social
Meet Susan, who’s been living with peripheral neuropathy for over 15 years. In our latest video, she shares what’s helped her stay positive, manage symptoms, and stay hopeful for the future.
Watch here: https://www.youtube.com/watch?v=EabLJHapmMA
☝️LINK IN BIO☝️

#neuropathy
December 6, 2025 at 12:00 AM
foundationforpn.bsky.social
Thanks for joining the battle against neuropathy and making Giving Tuesday a success! Every dollar makes our community stronger, and brings us closer to cures.

#GivingTuesday #FightNeuropathy
December 3, 2025 at 4:00 PM
foundationforpn.bsky.social
For many people living with peripheral neuropathy, every day is a battle against pain, numbness, imbalance or digestive issues. This Giving Tuesday join the fight against neuropathy.

Donate now: https://www.foundationforpn.org/donate/

#neuropathy #GivingTuesday #FightNeuropathy
December 3, 2025 at 12:00 AM
foundationforpn.bsky.social
Give your story a voice
• Share this post
• Talk about your condition and what gives you HOPE
• Share your story with us! Fill out this form: https://www.foundationforpn.org/share-your-story/
• Make a donation today to help give other neuropathy suffers hope: https://www.foundationforpn.org/donate/
December 2, 2025 at 8:00 PM
foundationforpn.bsky.social
Today is Giving Tuesday!
Empower the neuropathy community. Your gift improves the lives of the 190 million people with peripheral neuropathy. Every dollar counts.
👉 Give, or start your recurring gift, today: https://www.foundationforpn.org/donate/

#GivingTuesday #EndNeuropathy #Neuropathy
December 2, 2025 at 2:00 PM
foundationforpn.bsky.social
Diabetes is the main cause of peripheral neuropathy. We’re supporting diabetes awareness month by promoting diabetes education.

Learn about the risks, and how to prevent it or manage it better: https://www.foundationforpn.org/november-is-diabetes-awareness-month-2/

#diabetesawareness #neuropathy
November 28, 2025 at 8:00 PM
foundationforpn.bsky.social
This Thanksgiving, we’re grateful for the strength, support and shared stories within the neuropathy community. Together, we remind each other that no one walks this path alone. Wishing you comfort, connection and hope today and always. 🧡

#ThankfulTogether #NeuropathyAwareness #Neuropathy
November 27, 2025 at 4:00 PM
foundationforpn.bsky.social
In Nov we honor American Thanksgiving. It's also National Family Caregivers Month.

We're highlighting 53 million family care partners providing unpaid care for loved ones. Caregiving matters:
https://www.foundationforpn.org/national-family-caregivers-month-peripheral-neuropathy/

#caregivers
November 25, 2025 at 10:42 PM
foundationforpn.bsky.social
You made 2025 amazing!
Webinars, research, advocacy—all thanks to you.
Let’s do more in 2026: www.foundationforpn.org/donate/
#EndNeuropathy #Neuropathy
November 20, 2025 at 8:50 PM
Reposted by the Foundation for Peripheral Neuropathy
abfbrain.bsky.social
Researchers at @upenn.edu have identified that Y1 receptor-expressing #neurons in the brainstem’s lateral parabrachial nucleus are associated with #chronicpain. This suggests possibilities for future biomarkers and treatments. #Brainsky
Research discovery: Certain cells in the brainstem are responsible for transmitting signals of chronic pain. They could potentially serve as biomarkers for chronic pain or even an “off switch.” Diseases affected: chronic pain
November 18, 2025 at 8:01 PM