Flavia Galletti
@flaviagalletti.bsky.social
Advocacy #ADPKD #ARPKD
PKD International 🌷 AIRP 🌷ePAG/ERKNET
(Views are my own, rtw ≠ endorsement) http//pkdinternational.org http//renepolicistico.it 📍Zürich 📍Siena
PKD International 🌷 AIRP 🌷ePAG/ERKNET
(Views are my own, rtw ≠ endorsement) http//pkdinternational.org http//renepolicistico.it 📍Zürich 📍Siena
It warms my heart to see how Tess is still supporting patients and researchers in so many ways... she would be very happy about it . Thanks PKD Charity UK to enable this 🫶🏽
We are immensely pleased to share that PKD Charity UK has established the Tess Harris Fellowship Fund, created to support researchers and accelerate meaningful progress in the treatment of #PKD.
🔗 To support the fellowship, you can donate here:
cafdonate.cafonline.org/29607#!/Dona...
🔗 To support the fellowship, you can donate here:
cafdonate.cafonline.org/29607#!/Dona...
January 31, 2026 at 1:11 PM
It warms my heart to see how Tess is still supporting patients and researchers in so many ways... she would be very happy about it . Thanks PKD Charity UK to enable this 🫶🏽
I m very happy to see the family slowly growing in new areas and I’m looking forward working with Bill! 🎊
💛 We are pleased to share that the PKD International Board is expanding.
Please join us in welcoming Mr Bill Wang from Hong Kong.
We are honoured to have his voice and leadership, and look forward to working together to advance our mission worldwide.
#PKDInternational
Please join us in welcoming Mr Bill Wang from Hong Kong.
We are honoured to have his voice and leadership, and look forward to working together to advance our mission worldwide.
#PKDInternational
January 17, 2026 at 2:20 PM
I m very happy to see the family slowly growing in new areas and I’m looking forward working with Bill! 🎊
Reposted by Flavia Galletti
✨ As the year comes to a close, we would like to send our heartfelt wishes to the global PKD community.
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
December 31, 2025 at 9:50 AM
✨ As the year comes to a close, we would like to send our heartfelt wishes to the global PKD community.
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
💙 May 2026 bring meaningful progress and confidence in the future for everyone.
🎆 Wishing you all a peaceful and hopeful New Year.
#PKDInternational #NewYear
💛 I am truly grateful for this opportunity. Thanks @theracilproject.bsky.social for ensuring that the patient perspective is included in the consortium’s work.
Flashback to our great Annual Meeting in Strasbourg 🥨 and the amazing welcome by Prof. Hélène Dollfus & team at the CRBS @inserm.fr @unistra.fr 🙏 to advisors Prof. Ronald Perrone & patient advocates @flaviagalletti.bsky.social, Kerry Leeson & Sandra Lawton 🙏 theracil.eu/events/secon...
Second TheRaCil Annual Meeting in Strasbourg - TheRaCil
Our second Annual Meeting took place on September 22nd-23rd, 2025 in Strasbourg. We received a very warm welcome from Prof. Hélène Dollfus and her team at
theracil.eu
December 9, 2025 at 8:52 AM
💛 I am truly grateful for this opportunity. Thanks @theracilproject.bsky.social for ensuring that the patient perspective is included in the consortium’s work.
Reposted by Flavia Galletti
A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings.
#PKDInternational #ERASciencemeetings
#PKDInternational #ERASciencemeetings
December 4, 2025 at 1:25 PM
A heartfelt thank you to the ERA Board for recognising the essential role of the patient perspective and for including PKD International in the first edition of the ERA Science Meetings.
#PKDInternational #ERASciencemeetings
#PKDInternational #ERASciencemeetings
Reposted by Flavia Galletti
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
December 2, 2025 at 9:13 AM
📊 An interesting new report from @kidneyresearchuk.org reveals the hidden burden of rare kidney diseases
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
The publication sets out 14 key recommendations to drive change in health policy and research → www.kidneyresearchuk.org/about-us/pol...
#PKDInternational #KidneyResearchUK
Reposted by Flavia Galletti
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
November 14, 2025 at 8:38 AM
✨ Useful PKD resource alert 💛
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
We’re happy to share this clear, practical guide from PKD Foundation of Canada on food safety and nutrition for people living with #PKD 👉 www.endpkd.ca/food_safety_...
#ADPKD #ARPKD #KidneyHealth #FoodSafety #Nutrition #PatientEmpowerment #PKDCanada
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
November 13, 2025 at 9:43 AM
Reposted by Flavia Galletti
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
November 12, 2025 at 2:58 PM
#PKDInternational Board Update — November 2025
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
At our recent Board meeting we reviewed progress and agreed key priorities for the year ahead 👇
Reposted by Flavia Galletti
🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits!
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
Register Now!
Email from PKD Foundation of Canada 2025 PKD Summit - November 5 & 6, 2025 Make a Donation Registration for our FREE virtual 2025 PKD Summit is now open! 2025 PKD Summit The PKD Summit is our annual o
myemail.constantcontact.com
October 31, 2025 at 8:25 AM
🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits!
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
Perché la sanità non funziona più
Wilson - Perché la sanità non funziona più
ilpost.link
October 23, 2025 at 11:48 AM
Reposted by Flavia Galletti
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
October 17, 2025 at 7:43 AM
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
¡Bienvenidos, pacientes mexicanos! 💛 I'm very happy for this new addition to the PKD Global Family 🌎
🌍 Welcome to our global PKD family!
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
September 29, 2025 at 11:16 AM
¡Bienvenidos, pacientes mexicanos! 💛 I'm very happy for this new addition to the PKD Global Family 🌎
In the last few years we’ve seen remarkable progress in diagnostic and care for #ARPKD patients. I m looking forward to see where this acceleration will take! 💛🌷
Diagnosing #ARPKD in children is challenging.
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
Urinary peptide signature distinguishes autosomal recessive polycystic kidney disease from other causes of chronic kidney disease - TheRaCil
Burgmaier et al, Clinical Kidney Journal, May 2025.
theracil.eu
September 26, 2025 at 12:46 PM
In the last few years we’ve seen remarkable progress in diagnostic and care for #ARPKD patients. I m looking forward to see where this acceleration will take! 💛🌷
Reposted by Flavia Galletti
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
September 23, 2025 at 12:49 PM
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
Reposted by Flavia Galletti
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
September 16, 2025 at 8:23 AM
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
🫶🏽🌷
❤️ Today we celebrate 20 years of AIRP in Milan!
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
September 20, 2025 at 10:53 AM
🫶🏽🌷
Reposted by Flavia Galletti
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
September 19, 2025 at 7:37 AM
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
Reposted by Flavia Galletti
In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.
September 12, 2025 at 6:32 AM
In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.
Reposted by Flavia Galletti
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
#PKDInternational
September 8, 2025 at 7:36 AM
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
#PKDInternational
Yesterday was such a busy day with patients meeting, planning, dreaming and slowly shaping the future.. the best way to spend #PKDAwareness day! And now we are looking forward to the rest of the month packed with amazing events and activities for #ADPKD and #ARPKD
🌍 Today is #PKDAwarenessDay !
The global community comes together to raise awareness, share knowledge, and support one another.
Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease.
#PKDInternational
The global community comes together to raise awareness, share knowledge, and support one another.
Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease.
#PKDInternational
September 5, 2025 at 7:45 AM
Yesterday was such a busy day with patients meeting, planning, dreaming and slowly shaping the future.. the best way to spend #PKDAwareness day! And now we are looking forward to the rest of the month packed with amazing events and activities for #ADPKD and #ARPKD
Reposted by Flavia Galletti
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
#PKDInternational #EndPKD #ADPKD #PKDResearch
September 1, 2025 at 7:41 AM
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
#PKDInternational #EndPKD #ADPKD #PKDResearch
Reposted by Flavia Galletti
💛 Why Are Kidneys So Important?
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
August 1, 2025 at 7:35 AM
💛 Why Are Kidneys So Important?
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
#PKDInternational
Reposted by Flavia Galletti
KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
July 29, 2025 at 8:13 AM
KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇
Reposted by Flavia Galletti
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties.
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
July 25, 2025 at 7:48 AM
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties.
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD
Every contribution moves us closer to improved care and a brighter future for the PKD community.
pkdinternational.org/donate
#PKDInternational #DonateForPKD