I'm so sorry about your diagnosis, but I'm glad you've created a newsletter & post about it. I'm doing a similar thing with my blog, fiveandahalfyears.net My posts are about my sister's experiences (& mine as her caregiver) with early onset Alzheimer's and FTD. The more we speak out the better.

Alzheimer’s disease develops slowly and discovering you have it is gradual too. #alzheimers #alzheimersdisease #alzheimersawareness open.substack.com/pub/sredfern...

Here's the first chapter of the blog about my sister's journey with Alzheimer's and FTD - chapters all run one to two pages, so not too long. fiveandahalfyears.net/chapter-1-th... #Alzheimers #FTD #dementia

I'm finally ready to launch my blog - fiveandahalfyears.net This blog chronicles my five and a half years of care giving for my younger sister who lived with early-onset Alzheimer's and FTD. I'm hoping it will be useful for people who are in a similar situation as we were. #Alzheimers #dementia

Okay! This is my first post. It might take me a little bit of time to get the hang of things here.