Emma Cole 'Positive Voice' HIV+
@emmacolehiv.bsky.social
HIV+ 33 years.
'Positive Voice' talk for schools and businesses; TEDx speaker. ❤️QPR; LAMDA & Springsteen. London Marathon 2017.
Loved by and in love with B.
'Positive Voice' talk for schools and businesses; TEDx speaker. ❤️QPR; LAMDA & Springsteen. London Marathon 2017.
Loved by and in love with B.
Pinned
Positive Voice – Raising awareness of HIV | Emma Cole | TEDxGuildford
YouTube video by TEDx Talks
youtu.be
For those who dont know me, here is my TEDx talk...15 minutes to try and share what was then 27 years of living with HIV, now up to 33 years
Hopefully gives an overview of the past and a look at the present.
#HIV #longtermsurvivor #UequalsU
youtu.be/mIwVBagbxMQ?...
Hopefully gives an overview of the past and a look at the present.
#HIV #longtermsurvivor #UequalsU
youtu.be/mIwVBagbxMQ?...
Currently travelling back from Edinburgh in 1st class (thanks to B for upgrade) with @lner.co.uk and just wanted to acknowledge the wonderful service provided by Ksanti on the drinks trolley. What an asset to the company, polite, friendly and fully focused on delivering the best customer service.
November 19, 2025 at 5:07 PM
Currently travelling back from Edinburgh in 1st class (thanks to B for upgrade) with @lner.co.uk and just wanted to acknowledge the wonderful service provided by Ksanti on the drinks trolley. What an asset to the company, polite, friendly and fully focused on delivering the best customer service.
First 4 Positive Voice talks in November delivered at
1) Sir Robert Woodard Academy
2) Oxford High School
3) The Grange School
4) New Hall School
Over 500 young people hearing up to date information about #HIV including the #UequalsU message. Sharing my experiences from 34 years living with #HIV.
1) Sir Robert Woodard Academy
2) Oxford High School
3) The Grange School
4) New Hall School
Over 500 young people hearing up to date information about #HIV including the #UequalsU message. Sharing my experiences from 34 years living with #HIV.
November 13, 2025 at 10:05 PM
Yesterday I returned to speak at Notting Hill and Ealing High School for the 29th year. I first spoke here in 1993, just a couple of years after my #HIV diagnosis. One of the pupils from those early years hearing me speak is now a teacher here and still remembers the impact my talk had.
September 23, 2025 at 11:28 PM
Yesterday I returned to speak at Notting Hill and Ealing High School for the 29th year. I first spoke here in 1993, just a couple of years after my #HIV diagnosis. One of the pupils from those early years hearing me speak is now a teacher here and still remembers the impact my talk had.
Forgot to tag @adaywithhiv.bsky.social
13.32pm, Windsor Great Park #adaywithhiv
During my 34 years of living with #HIV, it is taking time out in nature where I have been my happiest. Today's walk with my husband B to photograph fungi in Windsor Great Park.
#adaywithhiv
#hivpositive
#hivlongtermsurvivor
During my 34 years of living with #HIV, it is taking time out in nature where I have been my happiest. Today's walk with my husband B to photograph fungi in Windsor Great Park.
#adaywithhiv
#hivpositive
#hivlongtermsurvivor
September 22, 2025 at 3:41 PM
Forgot to tag @adaywithhiv.bsky.social
13.32pm, Windsor Great Park #adaywithhiv
During my 34 years of living with #HIV, it is taking time out in nature where I have been my happiest. Today's walk with my husband B to photograph fungi in Windsor Great Park.
#adaywithhiv
#hivpositive
#hivlongtermsurvivor
During my 34 years of living with #HIV, it is taking time out in nature where I have been my happiest. Today's walk with my husband B to photograph fungi in Windsor Great Park.
#adaywithhiv
#hivpositive
#hivlongtermsurvivor
September 22, 2025 at 12:38 PM
13.32pm, Windsor Great Park #adaywithhiv
During my 34 years of living with #HIV, it is taking time out in nature where I have been my happiest. Today's walk with my husband B to photograph fungi in Windsor Great Park.
#adaywithhiv
#hivpositive
#hivlongtermsurvivor
During my 34 years of living with #HIV, it is taking time out in nature where I have been my happiest. Today's walk with my husband B to photograph fungi in Windsor Great Park.
#adaywithhiv
#hivpositive
#hivlongtermsurvivor
Marking 34 years ago today that I received my #HIVpositive diagnosis by heading off to deliver a Positive Voice talk to pupils in High Wycombe. Eternally grateful to everyone in my life who has contributed to my survival since 1991. #longtermsurvivor #HIV
September 11, 2025 at 12:49 PM
Marking 34 years ago today that I received my #HIVpositive diagnosis by heading off to deliver a Positive Voice talk to pupils in High Wycombe. Eternally grateful to everyone in my life who has contributed to my survival since 1991. #longtermsurvivor #HIV
A week into the new academic year, two school visits to Harrogate and Sedbergh done, and 41 more talks booked in before the end of this year.
Love each opportunity I'm given to share my Positive Voice talk to educate a new generation of young people about #HIV.
Love each opportunity I'm given to share my Positive Voice talk to educate a new generation of young people about #HIV.
September 10, 2025 at 6:53 PM
A week into the new academic year, two school visits to Harrogate and Sedbergh done, and 41 more talks booked in before the end of this year.
Love each opportunity I'm given to share my Positive Voice talk to educate a new generation of young people about #HIV.
Love each opportunity I'm given to share my Positive Voice talk to educate a new generation of young people about #HIV.
Day trip to Paris yesterday to see the David Hockney exhibition at Fondation Louis Vuitton, one of my favourite buildings. A joy to see over 400 pieces of work on display, lots of inspiration for my current creative burst. #davidhockney
August 14, 2025 at 9:29 AM
Day trip to Paris yesterday to see the David Hockney exhibition at Fondation Louis Vuitton, one of my favourite buildings. A joy to see over 400 pieces of work on display, lots of inspiration for my current creative burst. #davidhockney
With my school talks on summer break I get to fill my days with creative endeavours. Just finished this painting to sell at my friend's open studio later this month. It's mindfulness set loose with paints. Really enjoyed this one, mostly listening to @brucespringsteen.net while I worked.
August 6, 2025 at 9:44 PM
With my school talks on summer break I get to fill my days with creative endeavours. Just finished this painting to sell at my friend's open studio later this month. It's mindfulness set loose with paints. Really enjoyed this one, mostly listening to @brucespringsteen.net while I worked.
I cannot speak highly enough of all the wonderful NHS staff at Chelsea & Westminster Hospital who are currently treating B on the AAU. Triaged within 5 minutes of arriving at 4am Thursday, straight through to Resus, emergency endoscopy, CT scan all within 12 hours. Staying in until he's stable.
July 25, 2025 at 6:15 PM
I cannot speak highly enough of all the wonderful NHS staff at Chelsea & Westminster Hospital who are currently treating B on the AAU. Triaged within 5 minutes of arriving at 4am Thursday, straight through to Resus, emergency endoscopy, CT scan all within 12 hours. Staying in until he's stable.
Took advantage of the Members Early Morning @painshill.bsky.social, arrived just after 8am to enjoy nearly 3 hours of walking through the landscape before the rain. Some much needed time-out from caring for my partner who is in the midst of another mental health crisis.
#painshill #natureheals
#painshill #natureheals
July 22, 2025 at 6:05 PM
Took advantage of the Members Early Morning @painshill.bsky.social, arrived just after 8am to enjoy nearly 3 hours of walking through the landscape before the rain. Some much needed time-out from caring for my partner who is in the midst of another mental health crisis.
#painshill #natureheals
#painshill #natureheals
Today marks #ZeroHIVStigmaDay. I chose to live openly as a woman with #HIV within weeks of my diagnosis in 1991 and have continued to educate about HIV for over 30 years to help tackle stigma, raise awareness and challenge stereotypes.
#hivpositive
#zerohivstigmaday
#hivstigma
#tacklinghivstigma
#hivpositive
#zerohivstigmaday
#hivstigma
#tacklinghivstigma
July 21, 2025 at 11:44 AM
Today marks #ZeroHIVStigmaDay. I chose to live openly as a woman with #HIV within weeks of my diagnosis in 1991 and have continued to educate about HIV for over 30 years to help tackle stigma, raise awareness and challenge stereotypes.
#hivpositive
#zerohivstigmaday
#hivstigma
#tacklinghivstigma
#hivpositive
#zerohivstigmaday
#hivstigma
#tacklinghivstigma
Honoured to have been interviewed for Poz Planet.
It's July 1st and the new issue of @pozplanetmagazine.bsky.social is here!!! This month we get UP CLOSE & PERSONAL with @emmacolehiv.bsky.social, protests at the AIDS Vigil in Toronto and more.
Free download here:
mega.nz/file/gnknkBI...
Or just browse online here:
issuu.com/pozplanetmag...
Free download here:
mega.nz/file/gnknkBI...
Or just browse online here:
issuu.com/pozplanetmag...
July 1, 2025 at 9:32 PM
Honoured to have been interviewed for Poz Planet.
56th birthday. Never expected to be here when diagnosed #HIVpositive in 1991 aged 22. Originally told 8-10 years to live, so every extra birthday is testament to the amazing NHS care, HIV meds and most importantly the love of my inner circle, including B and my sisters. #birthday #longtermsurvivor
June 20, 2025 at 11:28 AM
56th birthday. Never expected to be here when diagnosed #HIVpositive in 1991 aged 22. Originally told 8-10 years to live, so every extra birthday is testament to the amazing NHS care, HIV meds and most importantly the love of my inner circle, including B and my sisters. #birthday #longtermsurvivor
Participated in the priority setting workshop led by @richard-ma.bsky.social yesterday. Looking at research ideas for older people with HIV. Very interesting to see the variety of topics suggested. Grateful that as a long-term survivor I am facing older age, never expected to when diagnosed in 1991.
June 20, 2025 at 7:28 AM
Participated in the priority setting workshop led by @richard-ma.bsky.social yesterday. Looking at research ideas for older people with HIV. Very interesting to see the variety of topics suggested. Grateful that as a long-term survivor I am facing older age, never expected to when diagnosed in 1991.
Very poignant to see the #aidsquiltuk this afternoon at Tate Modern. Seeing names of people I knew from the early years of my diagnosis remembered in their quilts. We must never forget the past and all those people we lost to AIDS.
June 14, 2025 at 10:07 PM
Very poignant to see the #aidsquiltuk this afternoon at Tate Modern. Seeing names of people I knew from the early years of my diagnosis remembered in their quilts. We must never forget the past and all those people we lost to AIDS.
Reposted by Emma Cole 'Positive Voice' HIV+
" Roughly $12 million worth of #HIV-prevention drugs and contraceptives purchased by the U.S. Agency for International Development will likely be destroyed after President Donald Trump dismantled the organization"
Trump team set to destroy $12m worth of HIV drugs and contraceptives bought by USAID
The life-saving drugs and contraceptives have been sitting in warehouses since January
www.independent.co.uk
June 7, 2025 at 11:34 AM
" Roughly $12 million worth of #HIV-prevention drugs and contraceptives purchased by the U.S. Agency for International Development will likely be destroyed after President Donald Trump dismantled the organization"
Today, June 5th, is HIV Long-term Survivors Awareness Day, largely a US event but I want to acknowledge all of us in the UK who've been living with HIV for decades and live with the battle scars of life before treatment. 34 years since my diagnosis, living a life I never expected to have. #HLTSAD
June 5, 2025 at 3:28 PM
Today, June 5th, is HIV Long-term Survivors Awareness Day, largely a US event but I want to acknowledge all of us in the UK who've been living with HIV for decades and live with the battle scars of life before treatment. 34 years since my diagnosis, living a life I never expected to have. #HLTSAD
B and I attended the Governor's Review at the Royal Hospital this morning. Wearing my late father's military medals for the occasion. Wonderful to see the #ChelseaPensioners parade and hear the military band perform.
June 3, 2025 at 6:07 PM
B and I attended the Governor's Review at the Royal Hospital this morning. Wearing my late father's military medals for the occasion. Wonderful to see the #ChelseaPensioners parade and hear the military band perform.
At Highgate cemetery to visit Ian's grave, 32 years ago today he died from an #AIDS related illness at Patrick House hospice in Hammersmith. Place a yellow rose on his grave so his spirit knows he is still remembered with love. #whatisrememberedlives
May 22, 2025 at 12:19 PM
At Highgate cemetery to visit Ian's grave, 32 years ago today he died from an #AIDS related illness at Patrick House hospice in Hammersmith. Place a yellow rose on his grave so his spirit knows he is still remembered with love. #whatisrememberedlives
A day of self care yesterday as I took a train out to spend the afternoon @rspb.bsky.social Rye Meads before walking back along the canal for a couple of miles to Broxbourne. A day for quiet contemplation in nature, just listening to birdsong for a few hours.
May 3, 2025 at 4:30 PM
A day of self care yesterday as I took a train out to spend the afternoon @rspb.bsky.social Rye Meads before walking back along the canal for a couple of miles to Broxbourne. A day for quiet contemplation in nature, just listening to birdsong for a few hours.
Reposted by Emma Cole 'Positive Voice' HIV+
Are you living with #HIV & aged over 50 in the UK or a carer for someone who is?
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
Have your say to improve the care of people aged over 50 living with HIV in the UK
app.onlinesurveys.jisc.ac.uk
April 30, 2025 at 2:18 PM
Are you living with #HIV & aged over 50 in the UK or a carer for someone who is?
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
23rd April 2017...8 years ago today I was running the London Marathon, marking what was then my 26th year of living with #HIV, hence 26 Red Ribbons sewn onto my running vest. Finished in under 6 hours which was my target time, having only done 150 miles in training runs!
April 23, 2025 at 5:58 PM
23rd April 2017...8 years ago today I was running the London Marathon, marking what was then my 26th year of living with #HIV, hence 26 Red Ribbons sewn onto my running vest. Finished in under 6 hours which was my target time, having only done 150 miles in training runs!
Day trip to Hastings with B today, beautifully sunny day to explore the seafront and castle, enjoyed best fish 'n' chips at Maggie's. Enjoyed visiting the Fishermen's and Shipwrecks Museums, and discovering the unique Net Stores.
March 18, 2025 at 8:50 PM
Day trip to Hastings with B today, beautifully sunny day to explore the seafront and castle, enjoyed best fish 'n' chips at Maggie's. Enjoyed visiting the Fishermen's and Shipwrecks Museums, and discovering the unique Net Stores.
In 1993, the late Sr Dorothy Bell took me with her to #Woldingham School to speak to pupils about living with #HIV. It was the start of more than 3 decades of visits to educate pupils.
Today I returned for my 31st visit to speak with a fantastic Year 11 audience as part of their Thrive programme.
Today I returned for my 31st visit to speak with a fantastic Year 11 audience as part of their Thrive programme.
March 4, 2025 at 6:52 PM
In 1993, the late Sr Dorothy Bell took me with her to #Woldingham School to speak to pupils about living with #HIV. It was the start of more than 3 decades of visits to educate pupils.
Today I returned for my 31st visit to speak with a fantastic Year 11 audience as part of their Thrive programme.
Today I returned for my 31st visit to speak with a fantastic Year 11 audience as part of their Thrive programme.