Caroline Barry
drcarolinebarry.bsky.social
Caroline Barry
@drcarolinebarry.bsky.social
Palliative Medicine Consultant and MND Specialist. Interests: Mental capacity & human rights towards the end of life. Views own.
Reposted by Caroline Barry
My rapid response in @bmj.com on research funders' joint statement calling for better inclusion of older people in research highlights the key role of #TrialsMethodology research e.g CONSULT www.capacityconsentresearch.com @ctrcardiffuni.bsky.social

#InclusiveResearch

www.bmj.com/content/390/...
August 18, 2025 at 7:26 AM
Reposted by Caroline Barry
📢Registration now open: Building Inclusive Practices around Mental Capacity & Consent in Palliative Care Research

✅Hear research findings
✅Identify research gaps & priorities
✅Opportunities to collaborate & contribute

📆 17th Oct
📍 RCP, London
🔗 www.capacityconsentresearch.com/palliative-c...

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August 13, 2025 at 7:20 AM
Reposted by Caroline Barry
📢 OPTIMISE workshop - developing recommendations for inclusive consent processes for trials

Keen to include researchers working with different populations with communication &/or capacity needs e.g care homes, learning disability, emergency

📅 8th July
📌 Cardiff, in person

Please get in touch!
June 9, 2025 at 6:53 AM
Reposted by Caroline Barry
This day in social work history ⏳

7th April 2005: Mental Capacity Bill receives Royal Assent and becomes the Mental Capacity Act 2005. It would not come into force until 2007, when it was gradually introduced (fully introduced October 1st, 2007).
April 7, 2025 at 8:15 AM
Reposted by Caroline Barry
UK clinicians - do you support unpaid/family carers of patients with breathlessness in advanced disease? This resource could help: supporting-breathlessness.org.uk. Plus we have a new batch of "mock prescription pads" in to help you signpost carers to it - just message me with your postal address!
March 18, 2025 at 9:33 AM
spcare.bmj.com/content/earl...

Local DNACPR policies can place patients and healthcare professionals at risk - results of a survey of resuscitation policies across England. Open access
Divergence in DNACPR and resuscitation policies: institutional survey in England
Objectives Our objective was to analyse the policies of hospitals and care homes in England as regards the use of do not attempt cardiopulmonary resuscitation (DNACPR) recommendations. We sought to id...
spcare.bmj.com
March 6, 2025 at 6:34 PM
Now available Open Access as editors’ choice in the latest issue of BMJ supportive & palliative care
March 6, 2025 at 6:31 PM
Reposted by Caroline Barry
Want to learn more about trials involving adults lacking capacity to consent?

1) Access our free CONSULT e-learning modules with links to resources & a downloadable certificate of completion

2) Complete the evaluation survey to let us know what you think!

www.capacityconsentresearch.com/training
February 13, 2025 at 8:18 AM
Reposted by Caroline Barry
Great to see the 1st annual report from Cardiff's Centre for Adult Social Care Research showcasing the breadth of work already achieved, including from my Churchill Fellowship visits last year exploring advance research planning

careresearchwales.org/wp-content/u...

#InclusiveResearch #SocialCare
January 16, 2025 at 8:06 AM
pubmed.ncbi.nlm.nih.gov/39805678/ First paper on the important topic of how pharmacogenomics might affect symptom management in palliative care - looking forward to exploring this further in studies in the coming year
Pharmacogenomics and symptom management in palliative and supportive care: A scoping review - PubMed
It is both feasible and acceptable to conduct PGx testing in a supportive and palliative care setting. Many supportive care medications are amenable to PGx. Clinician adherence to recommendations is v...
pubmed.ncbi.nlm.nih.gov
January 15, 2025 at 9:35 AM