Cystic Fibrosis Trust
@cysticfibrosis.org.uk
We're dedicated to uniting for a life unlimited for those living with cystic fibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
cysticfibrosis.org.uk
cysticfibrosis.org.uk
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Cystic Fibrosis Trust Homepage | CF Trust
www.cysticfibrosis.org.uk
Hi! 👋🏻 We’re Cystic Fibrosis Trust, working to make sure everyone with CF can live a life unlimited.
We're new to Bluesky but you can expect stories, updates and ways to get involved 💛
To find out more head to our website or feel free to say hi!
➡️ www.cysticfibrosis.org.uk
We're new to Bluesky but you can expect stories, updates and ways to get involved 💛
To find out more head to our website or feel free to say hi!
➡️ www.cysticfibrosis.org.uk
Did you know we have an online forum? 💬
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
January 22, 2026 at 1:12 PM
Did you know we have an online forum? 💬
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis.
Whatever you're going through, we've got you. 💛
➡️ forum.cysticfibrosis.org.uk
Want to learn more tips and ideas about #earlycareerresearch?
Join our next Coffee and Careers webinar series on 28 January, where ECRs can hear insights from more senior researchers who reflect on their careers and what they've learnt along the way.
➡️ https://ow.ly/n3s450XXhs9
#cysticfibrosis
Join our next Coffee and Careers webinar series on 28 January, where ECRs can hear insights from more senior researchers who reflect on their careers and what they've learnt along the way.
➡️ https://ow.ly/n3s450XXhs9
#cysticfibrosis
Microsoft Virtual Events Powered by Teams
Microsoft Virtual Events Powered by Teams
ow.ly
January 21, 2026 at 3:00 PM
Want to learn more tips and ideas about #earlycareerresearch?
Join our next Coffee and Careers webinar series on 28 January, where ECRs can hear insights from more senior researchers who reflect on their careers and what they've learnt along the way.
➡️ https://ow.ly/n3s450XXhs9
#cysticfibrosis
Join our next Coffee and Careers webinar series on 28 January, where ECRs can hear insights from more senior researchers who reflect on their careers and what they've learnt along the way.
➡️ https://ow.ly/n3s450XXhs9
#cysticfibrosis
It's #ResearchWednesday – and this week is all about supporting early career researchers (ECRs).
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
January 21, 2026 at 11:01 AM
It's #ResearchWednesday – and this week is all about supporting early career researchers (ECRs).
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
Last year at #UKCFC Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings.
Click the link to read more about what we discussed.
➡️ https://ow.ly/pw0S50XXhsa
What do you think about your child’s CF care? Together with CF teams across the UK, we are looking at experiences of CF care in paediatric settings.
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
January 20, 2026 at 4:05 PM
What do you think about your child’s CF care? Together with CF teams across the UK, we are looking at experiences of CF care in paediatric settings.
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
Take the survey today!
➡️ www.surveymonkey.co.uk/r/ParentCarer25
#cysticfibrosis #CFcare
The new season of our podcast, CForYourself, is here! 🎙️
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
January 19, 2026 at 4:02 PM
The new season of our podcast, CForYourself, is here! 🎙️
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges.
➡️ https://ow.ly/Vbnr50XZzOv
On Friday 16 January, Labour MP for Cambridge, Daniel Zeichner, visited Professor Martin Welch’s lab at the University of Cambridge to learn more about research improving treatment options for lung infections in people with cystic fibrosis.
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
January 19, 2026 at 11:16 AM
On Friday 16 January, Labour MP for Cambridge, Daniel Zeichner, visited Professor Martin Welch’s lab at the University of Cambridge to learn more about research improving treatment options for lung infections in people with cystic fibrosis.
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Read more on our website now!
➡️ https://ow.ly/XMyp50XZz1Q
Could 2026 be the year you take part in a CF research study? (1/4)
➡️ cysticfibrosis.org.uk/trialstracker
➡️ cysticfibrosis.org.uk/trialstracker
January 14, 2026 at 12:01 PM
Could 2026 be the year you take part in a CF research study? (1/4)
➡️ cysticfibrosis.org.uk/trialstracker
➡️ cysticfibrosis.org.uk/trialstracker
"Should I go somewhere else for my post-doc? I wonder if anyone has any tips?" 🤔🔬
Calling all early career researchers! Join us for our Coffee and Careers webinar on 28 January and hear from researchers as they share advice about following a career in research.
➡️ https://ow.ly/SE0h50XT12P
Calling all early career researchers! Join us for our Coffee and Careers webinar on 28 January and hear from researchers as they share advice about following a career in research.
➡️ https://ow.ly/SE0h50XT12P
Microsoft Virtual Events Powered by Teams
Microsoft Virtual Events Powered by Teams
ow.ly
January 7, 2026 at 4:39 PM
"Should I go somewhere else for my post-doc? I wonder if anyone has any tips?" 🤔🔬
Calling all early career researchers! Join us for our Coffee and Careers webinar on 28 January and hear from researchers as they share advice about following a career in research.
➡️ https://ow.ly/SE0h50XT12P
Calling all early career researchers! Join us for our Coffee and Careers webinar on 28 January and hear from researchers as they share advice about following a career in research.
➡️ https://ow.ly/SE0h50XT12P
Aaaand we're back! 👋🏻
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
January 2, 2026 at 10:00 AM
Aaaand we're back! 👋🏻
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries.
If you have contacted us over the festive period we will get back to you as soon as possible.
The helpline will close today, Tues 23 December, at 12pm, and reopen on Fri 2 January at 10am. If you get in touch with us between these dates, we'll get back to you as possible on our return.
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
December 23, 2025 at 9:00 AM
The helpline will close today, Tues 23 December, at 12pm, and reopen on Fri 2 January at 10am. If you get in touch with us between these dates, we'll get back to you as possible on our return.
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐
After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round. 💛
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
December 18, 2025 at 8:00 AM
After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round. 💛
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
Head to our website to read Emma's story.
❄️ https://ow.ly/IkEF50XKLZ3
Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF have now been released.
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
December 16, 2025 at 2:37 PM
Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF have now been released.
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far.
➡️ https://ow.ly/bJmZ50XKj1L
Last month, over 200 scientists and clinical teams joined us to hear the latest news on lab-based and clinical research. From cutting edge research in the lab, to using UK CF Registry data in clinical trials, it was a packed two days. At the heart of the conference were your research priorities. 1/2
December 3, 2025 at 10:42 AM
Last month, over 200 scientists and clinical teams joined us to hear the latest news on lab-based and clinical research. From cutting edge research in the lab, to using UK CF Registry data in clinical trials, it was a packed two days. At the heart of the conference were your research priorities. 1/2
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
November 27, 2025 at 1:47 PM
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
The Exercise as an Airway Clearance Technique in people with cystic fibrosis preliminary study looked at whether exercise can safely replace traditional chest physiotherapy in people with CF as an airway clearance method.
Visit the ExACT-CF post on our Trials Tracker.
➡️ ow.ly/tKkm50Xy2JI
Visit the ExACT-CF post on our Trials Tracker.
➡️ ow.ly/tKkm50Xy2JI
ExACT-CF: A trial investigating whether exercise can replace chest physiotherapy for airway clearance in people with CF
ow.ly
November 26, 2025 at 11:33 AM
The Exercise as an Airway Clearance Technique in people with cystic fibrosis preliminary study looked at whether exercise can safely replace traditional chest physiotherapy in people with CF as an airway clearance method.
Visit the ExACT-CF post on our Trials Tracker.
➡️ ow.ly/tKkm50Xy2JI
Visit the ExACT-CF post on our Trials Tracker.
➡️ ow.ly/tKkm50Xy2JI
Today, Lilian Greenwood, Labour MP for Nottingham South, visited Dr Rian Griffiths at the University of Nottingham, to find out more about her work in infection detection for people with CF during world AMR awareness week. 🔬
Read more ➡️ https://ow.ly/lVQ250XvXoJ
Read more ➡️ https://ow.ly/lVQ250XvXoJ
November 21, 2025 at 6:15 PM
Today, Lilian Greenwood, Labour MP for Nottingham South, visited Dr Rian Griffiths at the University of Nottingham, to find out more about her work in infection detection for people with CF during world AMR awareness week. 🔬
Read more ➡️ https://ow.ly/lVQ250XvXoJ
Read more ➡️ https://ow.ly/lVQ250XvXoJ
Thanks for having us! @youthvoice.ncb.org.uk
Ellie Mindel & Tilly Green from @cftrust showed how their Youth Advisory Group (YAG) empowers young people with CF to shape research, create resources & balance fun with meaningful involvement.
How have you seen youth voice make a difference?
#CysticFibrosis #YouthVoice #MPWPractitionersCoP
How have you seen youth voice make a difference?
#CysticFibrosis #YouthVoice #MPWPractitionersCoP
November 19, 2025 at 12:48 PM
Thanks for having us! @youthvoice.ncb.org.uk
This week is World Antimicrobial Resistance Awareness Week and this #ResearchWednesday we wanted to explain why preventing and tackling antimicrobial resistance is so important to people with #cysticfibrosis.
➡️ www.cysticfibrosis.org.uk/news/improvi...
➡️ www.cysticfibrosis.org.uk/news/improvi...
November 19, 2025 at 10:27 AM
This week is World Antimicrobial Resistance Awareness Week and this #ResearchWednesday we wanted to explain why preventing and tackling antimicrobial resistance is so important to people with #cysticfibrosis.
➡️ www.cysticfibrosis.org.uk/news/improvi...
➡️ www.cysticfibrosis.org.uk/news/improvi...
Reposted by Cystic Fibrosis Trust
Patient voices have been involved at every stage of establishing a UK-wide network of research hubs improving how lung infections are managed. Read more about how we work with patients: https://www.lifearc.org/work-with-us/patients-community/
@cysticfibrosis.org.uk
@cysticfibrosis.org.uk
November 13, 2025 at 9:15 AM
Patient voices have been involved at every stage of establishing a UK-wide network of research hubs improving how lung infections are managed. Read more about how we work with patients: https://www.lifearc.org/work-with-us/patients-community/
@cysticfibrosis.org.uk
@cysticfibrosis.org.uk
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
November 16, 2025 at 6:00 AM
Have you got your tickets yet? ❄️
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Play our Christmas Raffle today for the chance to win up to £2,000!
Every £1 ticket helps fund life-changing research and provides vital support. 💛
✨ Tickets are just £1 and the closing date is 12 January 2026.
🎟️ https://ow.ly/oWVc50WVJuZ
Through the research we fund, we want to prevent #cysticfibrosis complications from developing and improve how they are treated and managed.
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
November 5, 2025 at 12:00 PM
Through the research we fund, we want to prevent #cysticfibrosis complications from developing and improve how they are treated and managed.
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
Visit our website to find out more #ResearchWednesdays
➡️ ow.ly/kNa950Xmn2V
This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health.
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
November 3, 2025 at 12:28 PM
This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health.
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
➡️ ow.ly/HW7g50XlCJQ
#cysticfibrosis #cftrust #notjustlungs
Following approval for its use in England, Alyftrek (vanza triple) is now available in Northern Ireland and Wales
Head to our website to find out more about this news, as well as FAQs about Alyftrek.
➡️ https://ow.ly/Mfym50XlBoM
#cysticfibrosis #alyftrek
Head to our website to find out more about this news, as well as FAQs about Alyftrek.
➡️ https://ow.ly/Mfym50XlBoM
#cysticfibrosis #alyftrek
November 3, 2025 at 9:25 AM
Following approval for its use in England, Alyftrek (vanza triple) is now available in Northern Ireland and Wales
Head to our website to find out more about this news, as well as FAQs about Alyftrek.
➡️ https://ow.ly/Mfym50XlBoM
#cysticfibrosis #alyftrek
Head to our website to find out more about this news, as well as FAQs about Alyftrek.
➡️ https://ow.ly/Mfym50XlBoM
#cysticfibrosis #alyftrek
Scientists in our MAGNIFY SRC are exploring how new types of lung MRI scans might be used in CF research and for CF care in the future. It involves researchers around the country coming together to apply their different expertise.
➡️ ow.ly/6ZvL50XjCCu
➡️ ow.ly/6ZvL50XjCCu
October 29, 2025 at 9:57 PM
Scientists in our MAGNIFY SRC are exploring how new types of lung MRI scans might be used in CF research and for CF care in the future. It involves researchers around the country coming together to apply their different expertise.
➡️ ow.ly/6ZvL50XjCCu
➡️ ow.ly/6ZvL50XjCCu
Have you used the Trust's Clinical Trials Tracker to find information about trials you or your child could take part in?
Would you be willing to share your experiences to help others learn more about CF clinical trials?
If you’re interested please email at stories@cysticfibrosis.org.uk
Would you be willing to share your experiences to help others learn more about CF clinical trials?
If you’re interested please email at stories@cysticfibrosis.org.uk
October 27, 2025 at 2:55 PM
Have you used the Trust's Clinical Trials Tracker to find information about trials you or your child could take part in?
Would you be willing to share your experiences to help others learn more about CF clinical trials?
If you’re interested please email at stories@cysticfibrosis.org.uk
Would you be willing to share your experiences to help others learn more about CF clinical trials?
If you’re interested please email at stories@cysticfibrosis.org.uk