Compassion in Dying
@compassionindying.bsky.social
We want people to be in control of their end-of-life decisions because there is no-one better to make them.
Reposted by Compassion in Dying
**
New blog post - 90-year-old woman and her advance decision to refuse treatment
openjusticecourtofprotection.org/2025/11/05/p...
New blog post - 90-year-old woman and her advance decision to refuse treatment
openjusticecourtofprotection.org/2025/11/05/p...
P’s Advance Decision to Refuse Treatment is not valid, not applicable, and not a reflection of her past or present wishes
It seems to me that the judge was entitled to make the decision that P’s ADRT was invalid. That causes me concern because of what it means not just for P but for everyone else with ADRTs. Do our A…
openjusticecourtofprotection.org
November 6, 2025 at 8:04 AM
**
New blog post - 90-year-old woman and her advance decision to refuse treatment
openjusticecourtofprotection.org/2025/11/05/p...
New blog post - 90-year-old woman and her advance decision to refuse treatment
openjusticecourtofprotection.org/2025/11/05/p...
We're delighted to be at the @helplinesuk.bsky.social Annual Conference & Helpline Awards today.
We're thrilled to be nominated for Helpline of the Year 2025 alongside AgeUK Nacoa UK Safeline UK Self Injury Support SWGfL.
We're thrilled to be nominated for Helpline of the Year 2025 alongside AgeUK Nacoa UK Safeline UK Self Injury Support SWGfL.
November 6, 2025 at 1:40 PM
We're delighted to be at the @helplinesuk.bsky.social Annual Conference & Helpline Awards today.
We're thrilled to be nominated for Helpline of the Year 2025 alongside AgeUK Nacoa UK Safeline UK Self Injury Support SWGfL.
We're thrilled to be nominated for Helpline of the Year 2025 alongside AgeUK Nacoa UK Safeline UK Self Injury Support SWGfL.
Reposted by Compassion in Dying
At @compassionindying.bsky.social we decided to FOI NHS Trusts to see their advance decision / MCA policies.
Here's our thinking about why that might help us diagnose some problems and help the people we support when they have trouble at hospitals.
Here's our thinking about why that might help us diagnose some problems and help the people we support when they have trouble at hospitals.
Why (and how) we decided to submit an freedom of information request to NHS Trusts・Some thoughts
In May this year I went along to observe a hearing at the Court of Protection. It’s something we at Compassion in Dying do sometimes as the
zachmoss.co.uk
October 27, 2025 at 2:40 PM
At @compassionindying.bsky.social we decided to FOI NHS Trusts to see their advance decision / MCA policies.
Here's our thinking about why that might help us diagnose some problems and help the people we support when they have trouble at hospitals.
Here's our thinking about why that might help us diagnose some problems and help the people we support when they have trouble at hospitals.
Reposted by Compassion in Dying
Thank you to the @nursingstandard.bsky.social for having me to write this piece. Happy to connect with any fellow nurses thinking about transitioning to work within the charity sector.
“We provide a human connection in a disconnected system”
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
Helpline nursing: could you make the shift to a phone support role?
Helpline nursing may not involve direct patient care, but upholds the Nursing and Midwifery Council code by providing compassionate support, helping people navigate complex healthcare systems and clarifying confusing information about treatment options. A former NHS nurse and midwife who works as a helpline specialist nurse at the charity Compassion in Dying explains the difference between her former and new roles, and what nurses can expect in helpline roles, from crucial skills and the experience required to pay and work-life balance. She sees her role as ‘providing connection in a disconnected system’, helping people maintain dignity and control, even in a healthcare system under pressure. Includes practical tips for nurses who want to pursue a career in helpline nursing.
rcni.com
October 2, 2025 at 9:02 AM
Thank you to the @nursingstandard.bsky.social for having me to write this piece. Happy to connect with any fellow nurses thinking about transitioning to work within the charity sector.
“We provide a human connection in a disconnected system”
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
Helpline nursing: could you make the shift to a phone support role?
Helpline nursing may not involve direct patient care, but upholds the Nursing and Midwifery Council code by providing compassionate support, helping people navigate complex healthcare systems and clarifying confusing information about treatment options. A former NHS nurse and midwife who works as a helpline specialist nurse at the charity Compassion in Dying explains the difference between her former and new roles, and what nurses can expect in helpline roles, from crucial skills and the experience required to pay and work-life balance. She sees her role as ‘providing connection in a disconnected system’, helping people maintain dignity and control, even in a healthcare system under pressure. Includes practical tips for nurses who want to pursue a career in helpline nursing.
rcni.com
September 25, 2025 at 11:19 AM
“We provide a human connection in a disconnected system”
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-stan...
Last month @nationalvoices.bsky.social published a blog where we explored what information and support people need in order to understand assisted dying laws that are currently being considered across the British Isles.
compassionindying.org.uk/blog-post/as...
compassionindying.org.uk/blog-post/as...
Assisted dying: how do we meet people’s needs and why the third sector should lead the way
As assisted dying laws are being debated in Parliaments across the British Isles, we asked the people we support what information and support they need to understand the law and have conversations wit...
compassionindying.org.uk
September 2, 2025 at 11:01 AM
Last month @nationalvoices.bsky.social published a blog where we explored what information and support people need in order to understand assisted dying laws that are currently being considered across the British Isles.
compassionindying.org.uk/blog-post/as...
compassionindying.org.uk/blog-post/as...
Thanks @nationalvoices.bsky.social
As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.
As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.
🚀 New to the blog!
Over 2300 people told @compassionindying.bsky.social what they need to make informed choices about assisted dying. Jemma Woodley shares their findings, and why the third sector must lead the way with clear information and supportive conversations.
👉 tinyurl.com/yhum8eyn
Over 2300 people told @compassionindying.bsky.social what they need to make informed choices about assisted dying. Jemma Woodley shares their findings, and why the third sector must lead the way with clear information and supportive conversations.
👉 tinyurl.com/yhum8eyn
August 20, 2025 at 10:16 AM
Thanks @nationalvoices.bsky.social
As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.
As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.
A very happy birthday to the Open Justice Project team 🎉🎉🎉
An incredible initiative backed up by selfless, tireless volunteers. Long may it continue!
An incredible initiative backed up by selfless, tireless volunteers. Long may it continue!
It's our birthday - 5 years old today!
Who are we and what have we achieved in the last five years?
And what's next?
#openjustice #notsecretcourt
openjusticecourtofprotection.org/2025/06/15/o...
Who are we and what have we achieved in the last five years?
And what's next?
#openjustice #notsecretcourt
openjusticecourtofprotection.org/2025/06/15/o...
Open Justice Court of Protection Project is five years old today
By the Core Team of the Open Justice COP Project (Celia Kitzinger, Gill Loomes-Quinn, Daniel Clark, Amanda Hill and Claire Martin), 15th June 2025 It was launched – with no funding and no clear pla…
openjusticecourtofprotection.org
June 16, 2025 at 10:23 AM
A very happy birthday to the Open Justice Project team 🎉🎉🎉
An incredible initiative backed up by selfless, tireless volunteers. Long may it continue!
An incredible initiative backed up by selfless, tireless volunteers. Long may it continue!
These conversation will continue and we will be reaching out to all webinar attendees so we can capture their insight as we move forward with the idea of a public health campaign to help people make the end-of-life decisions that are right for them. Thanks for joining us today.
June 2, 2025 at 12:04 PM
These conversation will continue and we will be reaching out to all webinar attendees so we can capture their insight as we move forward with the idea of a public health campaign to help people make the end-of-life decisions that are right for them. Thanks for joining us today.
Mandy reflects on changes she has made to her clinical practice, informed by the experience of her mother's death.
These conversation are having an impact on patients on her unit, and helping people end their life in a way that is in line with their wishes.
These conversation are having an impact on patients on her unit, and helping people end their life in a way that is in line with their wishes.
June 2, 2025 at 12:01 PM
Mandy reflects on changes she has made to her clinical practice, informed by the experience of her mother's death.
These conversation are having an impact on patients on her unit, and helping people end their life in a way that is in line with their wishes.
These conversation are having an impact on patients on her unit, and helping people end their life in a way that is in line with their wishes.
Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.
June 2, 2025 at 11:57 AM
Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.
Q. What support do people in communicates need to make this work and is there a risk this process is an "anglophone" one?
June 2, 2025 at 11:56 AM
Q. What support do people in communicates need to make this work and is there a risk this process is an "anglophone" one?
Tom: Clinicians are often worried about bringing up the subject. So they need tools to support that conversation ; to ask questions and be ready to listen .
June 2, 2025 at 11:54 AM
Tom: Clinicians are often worried about bringing up the subject. So they need tools to support that conversation ; to ask questions and be ready to listen .
A key theme for theme from the questions: that people record their wishes do not always trust that they will prevail.
What can we do to ensure they are?
What can we do to ensure they are?
June 2, 2025 at 11:52 AM
A key theme for theme from the questions: that people record their wishes do not always trust that they will prevail.
What can we do to ensure they are?
What can we do to ensure they are?
The challenge is for the public to have these conversations, and the challenge for clinicians to listen and relinquish a little control.
June 2, 2025 at 11:51 AM
The challenge is for the public to have these conversations, and the challenge for clinicians to listen and relinquish a little control.
At its most raw, when CPR cannot reverse the dying process it can be a distressing for everyone involved. The goal is "appropriate CPR" being available to all. With emphasis on "appropriate "
June 2, 2025 at 11:49 AM
At its most raw, when CPR cannot reverse the dying process it can be a distressing for everyone involved. The goal is "appropriate CPR" being available to all. With emphasis on "appropriate "
The appropriateness of CPR is something that often comes up in conversations at the end of life. But Tom has also seen when people have received CPR that was not right for the person.
June 2, 2025 at 11:47 AM
The appropriateness of CPR is something that often comes up in conversations at the end of life. But Tom has also seen when people have received CPR that was not right for the person.
Now we are hearing from Tom Wood, Tom is a nurse and clinical lead for the Resuscitation Council. Tom will be talking about what the resuscitation council have learnt through developing and delivering the RESPECT process
June 2, 2025 at 11:46 AM
Now we are hearing from Tom Wood, Tom is a nurse and clinical lead for the Resuscitation Council. Tom will be talking about what the resuscitation council have learnt through developing and delivering the RESPECT process
Professor Kellahear makes the comparison with the health and social care system at the beginning of life - its not one size fits all.
Over the past 10 years we have been building a system for the end of life.
Over the past 10 years we have been building a system for the end of life.
June 2, 2025 at 11:42 AM
Professor Kellahear makes the comparison with the health and social care system at the beginning of life - its not one size fits all.
Over the past 10 years we have been building a system for the end of life.
Over the past 10 years we have been building a system for the end of life.
"we like to be where people are" - a public health approach to the end of life care recognises the reality of how people experience dying and bereavement .
June 2, 2025 at 11:40 AM
"we like to be where people are" - a public health approach to the end of life care recognises the reality of how people experience dying and bereavement .
Now Professor Allan Kellahear is speaking, Allan is the Professor of End-of-Life Care at Northumbria University and the founder of the international public health movement in palliative care.
June 2, 2025 at 11:38 AM
Now Professor Allan Kellahear is speaking, Allan is the Professor of End-of-Life Care at Northumbria University and the founder of the international public health movement in palliative care.
"lived experience has to be at the centre and forefront of your campaign, ‘like the writing in a stick of seaside rock’."
June 2, 2025 at 11:37 AM
"lived experience has to be at the centre and forefront of your campaign, ‘like the writing in a stick of seaside rock’."
"Audiences will be at different starting points – some nearer to change than others, some with many complex barriers"
June 2, 2025 at 11:34 AM
"Audiences will be at different starting points – some nearer to change than others, some with many complex barriers"
"So what are some key learnings which could be relevant to any ‘campaign’ you might want to run?
"Any ‘campaign’ should not be a one-off endeavour, but a take a long term approach.
"Any ‘campaign’ should not be a one-off endeavour, but a take a long term approach.
June 2, 2025 at 11:34 AM
"So what are some key learnings which could be relevant to any ‘campaign’ you might want to run?
"Any ‘campaign’ should not be a one-off endeavour, but a take a long term approach.
"Any ‘campaign’ should not be a one-off endeavour, but a take a long term approach.
This resulted in:
- A 15% reduction in average levels of mental health discrimination
- The public who were campaign-aware were more comfortable disclosing mental health issues to their families and friends, at work and seeking help from a GP.
- A 15% reduction in average levels of mental health discrimination
- The public who were campaign-aware were more comfortable disclosing mental health issues to their families and friends, at work and seeking help from a GP.
June 2, 2025 at 11:33 AM
This resulted in:
- A 15% reduction in average levels of mental health discrimination
- The public who were campaign-aware were more comfortable disclosing mental health issues to their families and friends, at work and seeking help from a GP.
- A 15% reduction in average levels of mental health discrimination
- The public who were campaign-aware were more comfortable disclosing mental health issues to their families and friends, at work and seeking help from a GP.