Chloe (she/her)
@chloeapter.bsky.social
Autistic ADHDer, mental/physical illness, iatrogenic harm, co-production, SEND, uoppald.bsky.social student, charity trustee. Views own, personal account.
Pinned
Chloe (she/her)
@chloeapter.bsky.social
· Nov 20
SEND Co Production
YouTube video by NHS London
m.youtube.com
I'm so pleased to be featured in an NHS England co-produced short film about strategic co-production in the design of services for children and young people with special educational needs and disabilities.
Please do have a watch!
m.youtube.com/watch?v=a4pZ...
Please do have a watch!
m.youtube.com/watch?v=a4pZ...
Reposted by Chloe (she/her)
Great to see our first paper from this study out now!
Hopefully more coming on this…
“A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts”
onlinelibrary.wiley.com/doi/10.1002/...
Hopefully more coming on this…
“A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts”
onlinelibrary.wiley.com/doi/10.1002/...
A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts
Aim We aimed to co-produce a tool for evaluating co-production within evidence syntheses. Background Participatory approaches are recommended to enhance the salience and quality of evidence synthe...
onlinelibrary.wiley.com
January 9, 2026 at 6:04 PM
Great to see our first paper from this study out now!
Hopefully more coming on this…
“A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts”
onlinelibrary.wiley.com/doi/10.1002/...
Hopefully more coming on this…
“A Co‐production Evaluation Tool Informed by Co‐production Workshops for Use in Evidence Synthesis Contexts”
onlinelibrary.wiley.com/doi/10.1002/...
Next week, I'm starting NHS therapy for Avoidant/Restrictive Food Intake Disorder (ARFID).
The Counselling Psychologist who I'll be seen by has been proactive in understanding how she can reduce the likelihood of replicating iatrogenic harm I've experienced - how refreshing!
The Counselling Psychologist who I'll be seen by has been proactive in understanding how she can reduce the likelihood of replicating iatrogenic harm I've experienced - how refreshing!
December 9, 2025 at 6:00 PM
Next week, I'm starting NHS therapy for Avoidant/Restrictive Food Intake Disorder (ARFID).
The Counselling Psychologist who I'll be seen by has been proactive in understanding how she can reduce the likelihood of replicating iatrogenic harm I've experienced - how refreshing!
The Counselling Psychologist who I'll be seen by has been proactive in understanding how she can reduce the likelihood of replicating iatrogenic harm I've experienced - how refreshing!
It's been a joy to deliver co-production & safeguarding training to PhD Mental Health Science students over the past few years.
The latest (last!) cohort are looking for folks with relevant lived/living experience to join their thesis committees: www.coproductioncollective.co.uk/news/our-fin...
The latest (last!) cohort are looking for folks with relevant lived/living experience to join their thesis committees: www.coproductioncollective.co.uk/news/our-fin...
December 6, 2025 at 8:43 PM
It's been a joy to deliver co-production & safeguarding training to PhD Mental Health Science students over the past few years.
The latest (last!) cohort are looking for folks with relevant lived/living experience to join their thesis committees: www.coproductioncollective.co.uk/news/our-fin...
The latest (last!) cohort are looking for folks with relevant lived/living experience to join their thesis committees: www.coproductioncollective.co.uk/news/our-fin...
I've been working with Vocal Collective CIC to make sure that people with lived/living experience of suicidality & self-harm/self-injury get a genuine say in what research in this area is funded by the @medresfdn.bsky.social.
Do check it out! www.vocalcollective.org.uk/new-project
Do check it out! www.vocalcollective.org.uk/new-project
December 6, 2025 at 8:33 PM
I've been working with Vocal Collective CIC to make sure that people with lived/living experience of suicidality & self-harm/self-injury get a genuine say in what research in this area is funded by the @medresfdn.bsky.social.
Do check it out! www.vocalcollective.org.uk/new-project
Do check it out! www.vocalcollective.org.uk/new-project
It's #crohnsandcolitisawarenessweek.
I have an ulcerative colitis diagnosis.
I go to the hospital every 4 weeks for an infusion, but I have yet to find a treatment that has put my disease into remission.
We need greater awareness of inflammatory bowel disease & its impact.
I have an ulcerative colitis diagnosis.
I go to the hospital every 4 weeks for an infusion, but I have yet to find a treatment that has put my disease into remission.
We need greater awareness of inflammatory bowel disease & its impact.
December 2, 2025 at 7:00 PM
It's #crohnsandcolitisawarenessweek.
I have an ulcerative colitis diagnosis.
I go to the hospital every 4 weeks for an infusion, but I have yet to find a treatment that has put my disease into remission.
We need greater awareness of inflammatory bowel disease & its impact.
I have an ulcerative colitis diagnosis.
I go to the hospital every 4 weeks for an infusion, but I have yet to find a treatment that has put my disease into remission.
We need greater awareness of inflammatory bowel disease & its impact.
Reposted by Chloe (she/her)
EXTENDED DEADLINE - 8th DECEMBER
Apologies for being quieter online than planned over the past few days - I’m a full-time carer, and things have been particularly intensive recently. I’ve been incredibly moved by the support for the study and by the surge of last-minute responses. 1/2
Apologies for being quieter online than planned over the past few days - I’m a full-time carer, and things have been particularly intensive recently. I’ve been incredibly moved by the support for the study and by the surge of last-minute responses. 1/2
Hi, I'm v new to bsky. I'm a PhD student focusing on harm in UK mental health services, & I would like to hear about your experiences of harm in services between 2010-2025. (Mental health services includes NHS, charities, companies, private therapists & other orgs) 1/7 tinyurl.com/yt2ydvxx
December 1, 2025 at 10:00 PM
EXTENDED DEADLINE - 8th DECEMBER
Apologies for being quieter online than planned over the past few days - I’m a full-time carer, and things have been particularly intensive recently. I’ve been incredibly moved by the support for the study and by the surge of last-minute responses. 1/2
Apologies for being quieter online than planned over the past few days - I’m a full-time carer, and things have been particularly intensive recently. I’ve been incredibly moved by the support for the study and by the surge of last-minute responses. 1/2
My individual funding request for specialist therapy was rejected.
As a commissioner myself, I am privileged to have the knowledge to navigate "the system".
I will fight to get specialist therapy to set the precedent for other patients, even if it progresses to a legal battle.
As a commissioner myself, I am privileged to have the knowledge to navigate "the system".
I will fight to get specialist therapy to set the precedent for other patients, even if it progresses to a legal battle.
November 15, 2025 at 7:19 PM
My individual funding request for specialist therapy was rejected.
As a commissioner myself, I am privileged to have the knowledge to navigate "the system".
I will fight to get specialist therapy to set the precedent for other patients, even if it progresses to a legal battle.
As a commissioner myself, I am privileged to have the knowledge to navigate "the system".
I will fight to get specialist therapy to set the precedent for other patients, even if it progresses to a legal battle.
Reposted by Chloe (she/her)
We are recruiting a fully-funded 3.5yr PhD student to examine the potential genetic relationships between autism and hypermobility. Full details of the project and how to apply here ⬇️
usher.ed.ac.uk/precision-me...
Deadline Jan 12th! Within the Precision Medicine DTC at Edinburgh.
usher.ed.ac.uk/precision-me...
Deadline Jan 12th! Within the Precision Medicine DTC at Edinburgh.
Understanding the relationship between autism and hypermobility | Precision Medicine Doctoral Training Programme | Usher Institute
Precision Medicine Project - Understanding the relationship between autism and hypermobility
usher.ed.ac.uk
November 12, 2025 at 3:06 PM
We are recruiting a fully-funded 3.5yr PhD student to examine the potential genetic relationships between autism and hypermobility. Full details of the project and how to apply here ⬇️
usher.ed.ac.uk/precision-me...
Deadline Jan 12th! Within the Precision Medicine DTC at Edinburgh.
usher.ed.ac.uk/precision-me...
Deadline Jan 12th! Within the Precision Medicine DTC at Edinburgh.
I've had trichotillomania (pulling my own hair out) since I was 15.
Today, I shaved my head for the 6th time in 7.5 years due to it.
I've accepted that it's quite possible that I'll always have trichotillomania.
I'm genuinely at the point of believing that "it's just hair".
Today, I shaved my head for the 6th time in 7.5 years due to it.
I've accepted that it's quite possible that I'll always have trichotillomania.
I'm genuinely at the point of believing that "it's just hair".
November 10, 2025 at 9:03 PM
I've had trichotillomania (pulling my own hair out) since I was 15.
Today, I shaved my head for the 6th time in 7.5 years due to it.
I've accepted that it's quite possible that I'll always have trichotillomania.
I'm genuinely at the point of believing that "it's just hair".
Today, I shaved my head for the 6th time in 7.5 years due to it.
I've accepted that it's quite possible that I'll always have trichotillomania.
I'm genuinely at the point of believing that "it's just hair".
Reposted by Chloe (she/her)
Hi, I'm v new to bsky. I'm a PhD student focusing on harm in UK mental health services, & I would like to hear about your experiences of harm in services between 2010-2025. (Mental health services includes NHS, charities, companies, private therapists & other orgs) 1/7 tinyurl.com/yt2ydvxx
October 29, 2025 at 6:48 PM
Hi, I'm v new to bsky. I'm a PhD student focusing on harm in UK mental health services, & I would like to hear about your experiences of harm in services between 2010-2025. (Mental health services includes NHS, charities, companies, private therapists & other orgs) 1/7 tinyurl.com/yt2ydvxx
Reposted by Chloe (she/her)
💡Job Opportunity!💡
We're looking for a Research Fellow to join the #DiscoveringLiveability team on a full-time and fixed-term basis for 30 months 🔎
For more information, follow the link below:
We're looking for a Research Fellow to join the #DiscoveringLiveability team on a full-time and fixed-term basis for 30 months 🔎
For more information, follow the link below:
Research Fellow (Discovering Liveability)
Research Fellow (qualitative methods) to join the Discovering Liveability: Co-producing alternatives to suicide prevention project, contributing to innovative suicide research that centres liveability...
elxw.fa.em3.oraclecloud.com
October 29, 2025 at 12:33 PM
💡Job Opportunity!💡
We're looking for a Research Fellow to join the #DiscoveringLiveability team on a full-time and fixed-term basis for 30 months 🔎
For more information, follow the link below:
We're looking for a Research Fellow to join the #DiscoveringLiveability team on a full-time and fixed-term basis for 30 months 🔎
For more information, follow the link below:
Reposted by Chloe (she/her)
Hi! We are a part-time (can work alongside) online ("live" *options*; costs the same in/outside the UK, can study from everywhere) MSc course on learning/intellectual disability, autism, and neurodiversity. Students have own tutor. We are recruiting for this term:
www.port.ac.uk/study/course...
www.port.ac.uk/study/course...
September 18, 2025 at 7:39 PM
Hi! We are a part-time (can work alongside) online ("live" *options*; costs the same in/outside the UK, can study from everywhere) MSc course on learning/intellectual disability, autism, and neurodiversity. Students have own tutor. We are recruiting for this term:
www.port.ac.uk/study/course...
www.port.ac.uk/study/course...
I shared some thoughts over on LinkedIn for today's World Patient Safety Day 2025.
www.linkedin.com/posts/chloea...
www.linkedin.com/posts/chloea...
#worldpatientsafetyday2025 #patientsafety #iatrogenicharm #trauma | Chloe Apter
I spent today's World Patient Safety Day 2025 co-delivering safeguarding training to PhD Mental Health Science students at UCL, funded by Wellcome Trust.
I spoke about how "being safeguarded" has cau...
www.linkedin.com
September 17, 2025 at 8:13 PM
I shared some thoughts over on LinkedIn for today's World Patient Safety Day 2025.
www.linkedin.com/posts/chloea...
www.linkedin.com/posts/chloea...
Reposted by Chloe (she/her)
New blog post: Words that make me go hmmm: Professional
#RewritingSocialCare
rewritingsocialcare.blog/professional/
#RewritingSocialCare
rewritingsocialcare.blog/professional/
Words that make me go hmmm: Professional
‘Professional’ is yet another of the ‘us and them’ words that dominate our narrative. It’s a blanket term used to distinguish the people who work in organisations (regardless of any professional qu…
rewritingsocialcare.blog
September 14, 2025 at 7:15 AM
New blog post: Words that make me go hmmm: Professional
#RewritingSocialCare
rewritingsocialcare.blog/professional/
#RewritingSocialCare
rewritingsocialcare.blog/professional/
Reposted by Chloe (she/her)
Professor Sara Ryan's new book 'Critical Health and Learning Disabilities: An Exploration of Erasure and Social Murder' is out today. There's a Plain English summary on our website: learningmet.mmu.ac.uk/resources/
Resources - Learning Disability and Autism Research Group
People with learning disabilities, erasure and social murder This resource explains more about Professor Sara Ryan’s book, ‘Critical Health and Learning Disabilities: An Exploration of Erasure and Soc...
learningmet.mmu.ac.uk
August 8, 2025 at 8:53 AM
Professor Sara Ryan's new book 'Critical Health and Learning Disabilities: An Exploration of Erasure and Social Murder' is out today. There's a Plain English summary on our website: learningmet.mmu.ac.uk/resources/
This sheds light on a childhood experience I have had to make sense of as a later dx autistic adult:
Aged ~5, I was told I was lip-reading so had a hearing test (my hearing was fine).
I couldn't understand this "accusation" of lip-reading as I was just processing the only way I knew how.
Aged ~5, I was told I was lip-reading so had a hearing test (my hearing was fine).
I couldn't understand this "accusation" of lip-reading as I was just processing the only way I knew how.
Auditory hypersensitivity helps to explain avoidance of eye contact and lifelong benefits from lip-reading (which provides audiovisual integration: it combines speech speeds & lip motion) among autistic ppl, who often have a monotropic processing style favoring processing one modality at a time. 10/
July 28, 2025 at 8:30 PM
This sheds light on a childhood experience I have had to make sense of as a later dx autistic adult:
Aged ~5, I was told I was lip-reading so had a hearing test (my hearing was fine).
I couldn't understand this "accusation" of lip-reading as I was just processing the only way I knew how.
Aged ~5, I was told I was lip-reading so had a hearing test (my hearing was fine).
I couldn't understand this "accusation" of lip-reading as I was just processing the only way I knew how.
As someone with a dissociative identity disorder diagnosis, I used to consume a lot of media related to this condition.
In recent years, I haven't been able to. It's just too painful to bear witness to the consequences of trauma that is often perpetrated by other people.
It hurts.
In recent years, I haven't been able to. It's just too painful to bear witness to the consequences of trauma that is often perpetrated by other people.
It hurts.
July 28, 2025 at 8:03 PM
As someone with a dissociative identity disorder diagnosis, I used to consume a lot of media related to this condition.
In recent years, I haven't been able to. It's just too painful to bear witness to the consequences of trauma that is often perpetrated by other people.
It hurts.
In recent years, I haven't been able to. It's just too painful to bear witness to the consequences of trauma that is often perpetrated by other people.
It hurts.
TW: suicide
When I was assessed for PIP in 2022, I was asked why I hadn't "successfully" managed to kill myself.
I received zero points. I was too distressed to go to mandatory reconsideration or tribunal.
The assessment (& report) is utterly dehumanising.
#TakingThePIP
When I was assessed for PIP in 2022, I was asked why I hadn't "successfully" managed to kill myself.
I received zero points. I was too distressed to go to mandatory reconsideration or tribunal.
The assessment (& report) is utterly dehumanising.
#TakingThePIP
June 30, 2025 at 6:08 PM
TW: suicide
When I was assessed for PIP in 2022, I was asked why I hadn't "successfully" managed to kill myself.
I received zero points. I was too distressed to go to mandatory reconsideration or tribunal.
The assessment (& report) is utterly dehumanising.
#TakingThePIP
When I was assessed for PIP in 2022, I was asked why I hadn't "successfully" managed to kill myself.
I received zero points. I was too distressed to go to mandatory reconsideration or tribunal.
The assessment (& report) is utterly dehumanising.
#TakingThePIP
I had to let occupational health send a copy of my report to my line manager.
This is all well & good but it contained *a little too much* information for my liking, including specifying how many times a day I go to the loo.
Oh, the indignity of chronic illness & disability.
This is all well & good but it contained *a little too much* information for my liking, including specifying how many times a day I go to the loo.
Oh, the indignity of chronic illness & disability.
June 30, 2025 at 5:14 PM
I had to let occupational health send a copy of my report to my line manager.
This is all well & good but it contained *a little too much* information for my liking, including specifying how many times a day I go to the loo.
Oh, the indignity of chronic illness & disability.
This is all well & good but it contained *a little too much* information for my liking, including specifying how many times a day I go to the loo.
Oh, the indignity of chronic illness & disability.
I'm all for amplifying the importance of co-production.
But does having a "Co-Production Week" encourage tokenistic attempts at it which inevitably fall short?
Genuine co-production shouldn't just happen during a designated week, it should happen all year round.
But does having a "Co-Production Week" encourage tokenistic attempts at it which inevitably fall short?
Genuine co-production shouldn't just happen during a designated week, it should happen all year round.
June 30, 2025 at 5:06 PM
I'm all for amplifying the importance of co-production.
But does having a "Co-Production Week" encourage tokenistic attempts at it which inevitably fall short?
Genuine co-production shouldn't just happen during a designated week, it should happen all year round.
But does having a "Co-Production Week" encourage tokenistic attempts at it which inevitably fall short?
Genuine co-production shouldn't just happen during a designated week, it should happen all year round.
Reposted by Chloe (she/her)
Thanks for positive feedback, @chloeapter.bsky.social! The MSc in Psychology and Learning Disability is free, online and part-time, so you can complete it alongside work etc. anywhere. "Live" sessions are optional, in the UK early evening. Same cost in/outside the UK. www.port.ac.uk/study/course...
June 30, 2025 at 5:03 PM
Thanks for positive feedback, @chloeapter.bsky.social! The MSc in Psychology and Learning Disability is free, online and part-time, so you can complete it alongside work etc. anywhere. "Live" sessions are optional, in the UK early evening. Same cost in/outside the UK. www.port.ac.uk/study/course...
Am I proud of being autistic?
Yes.
Was I always proud of being autistic?
No.
Being proud of being autistic does not mean existing in an allistic world is easy, it just means that I am no longer ashamed of the associated struggles.
#AutisticPrideDay
Yes.
Was I always proud of being autistic?
No.
Being proud of being autistic does not mean existing in an allistic world is easy, it just means that I am no longer ashamed of the associated struggles.
#AutisticPrideDay
June 18, 2025 at 12:26 PM
Am I proud of being autistic?
Yes.
Was I always proud of being autistic?
No.
Being proud of being autistic does not mean existing in an allistic world is easy, it just means that I am no longer ashamed of the associated struggles.
#AutisticPrideDay
Yes.
Was I always proud of being autistic?
No.
Being proud of being autistic does not mean existing in an allistic world is easy, it just means that I am no longer ashamed of the associated struggles.
#AutisticPrideDay
As someone with ARFID, the most stressful part of going from living alone to living with family is what I eat now being constantly scrutinised (& inevitably criticised) by others.
I just want to be able to eat what I am able to eat in peace.
I just want to be able to eat what I am able to eat in peace.
June 18, 2025 at 12:20 PM
As someone with ARFID, the most stressful part of going from living alone to living with family is what I eat now being constantly scrutinised (& inevitably criticised) by others.
I just want to be able to eat what I am able to eat in peace.
I just want to be able to eat what I am able to eat in peace.
Medical professional: "Is your autism well controlled?".
Me: ...
Me: ...
June 5, 2025 at 11:11 AM
Medical professional: "Is your autism well controlled?".
Me: ...
Me: ...
I have officially finished the first year of my MSc despite chronic illness flare-ups around *practically every deadline*.
For anyone interested in learning disability, autism, & neurodivergence, @uoppald.bsky.social is utterly wonderful with the most supportive tutors - do check the course out!
For anyone interested in learning disability, autism, & neurodivergence, @uoppald.bsky.social is utterly wonderful with the most supportive tutors - do check the course out!
May 31, 2025 at 3:01 PM
I have officially finished the first year of my MSc despite chronic illness flare-ups around *practically every deadline*.
For anyone interested in learning disability, autism, & neurodivergence, @uoppald.bsky.social is utterly wonderful with the most supportive tutors - do check the course out!
For anyone interested in learning disability, autism, & neurodivergence, @uoppald.bsky.social is utterly wonderful with the most supportive tutors - do check the course out!