DEBRA UK
@charitydebra.bsky.social
DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB).
Find out more: https://bit.ly/4jaRfQG
Find out more: https://bit.ly/4jaRfQG
Pinned
DEBRA UK - The butterfly skin charity
We are a national charity and patient support organisation for people living with Epidermolysis Bullosa (EB).
debra.org.uk
🦋 DEBRA UK supports people living with epidermolysis bullosa (EB), a rare and painful skin condition.
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: debra.org.uk
#EB #RareDisease #DEBRAUK
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: debra.org.uk
#EB #RareDisease #DEBRAUK
🦋 DEBRA UK supports people living with epidermolysis bullosa (EB), a rare and painful skin condition.
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: debra.org.uk
#EB #RareDisease #DEBRAUK
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: debra.org.uk
#EB #RareDisease #DEBRAUK
DEBRA UK - The butterfly skin charity
We are a national charity and patient support organisation for people living with Epidermolysis Bullosa (EB).
debra.org.uk
November 25, 2025 at 3:54 PM
🦋 DEBRA UK supports people living with epidermolysis bullosa (EB), a rare and painful skin condition.
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: debra.org.uk
#EB #RareDisease #DEBRAUK
We provide care, fund research for treatments & cures, and work with the NHS to deliver specialist support.
Learn more: debra.org.uk
#EB #RareDisease #DEBRAUK
Our Q3 Update is live!
July to September has been an incredible quarter for DEBRA, filled with progress, community support, and steps forward in our mission to improve life for people living with EB. 🦋
Read the full update and see how together we’re making a difference: https://bit.ly/4nW4Igi
July to September has been an incredible quarter for DEBRA, filled with progress, community support, and steps forward in our mission to improve life for people living with EB. 🦋
Read the full update and see how together we’re making a difference: https://bit.ly/4nW4Igi
DEBRA Quarterly Update 2025 Q3
Stay informed with the DEBRA Quarterly Update 2025 Q3, featuring the latest insights and developments you need to know.
www.debra.org.uk
November 13, 2025 at 5:14 PM
Our Q3 Update is live!
July to September has been an incredible quarter for DEBRA, filled with progress, community support, and steps forward in our mission to improve life for people living with EB. 🦋
Read the full update and see how together we’re making a difference: https://bit.ly/4nW4Igi
July to September has been an incredible quarter for DEBRA, filled with progress, community support, and steps forward in our mission to improve life for people living with EB. 🦋
Read the full update and see how together we’re making a difference: https://bit.ly/4nW4Igi
📍 Last night, we were proud to host a special reception at Scottish Parliament to share the latest global EB research priorities and highlight the urgent need for improved access to specialist EB healthcare in Scotland.
📖 Read the full story: https://bit.ly/47TdZQd
#EBawareness #DEBRAUK
📖 Read the full story: https://bit.ly/47TdZQd
#EBawareness #DEBRAUK
November 13, 2025 at 4:45 PM
📍 Last night, we were proud to host a special reception at Scottish Parliament to share the latest global EB research priorities and highlight the urgent need for improved access to specialist EB healthcare in Scotland.
📖 Read the full story: https://bit.ly/47TdZQd
#EBawareness #DEBRAUK
📖 Read the full story: https://bit.ly/47TdZQd
#EBawareness #DEBRAUK
🧬 Join us for our next Research & Health Webinar on Wednesday 5th November, 8pm
Dr. Cory Simpson will talk about creating human tissue models of epidermolysis bullosa simplex to discover new therapeutic strategies.
👉 Register or catch up here: https://bit.ly/45SbKNi
Dr. Cory Simpson will talk about creating human tissue models of epidermolysis bullosa simplex to discover new therapeutic strategies.
👉 Register or catch up here: https://bit.ly/45SbKNi
November 2, 2025 at 5:31 PM
🧬 Join us for our next Research & Health Webinar on Wednesday 5th November, 8pm
Dr. Cory Simpson will talk about creating human tissue models of epidermolysis bullosa simplex to discover new therapeutic strategies.
👉 Register or catch up here: https://bit.ly/45SbKNi
Dr. Cory Simpson will talk about creating human tissue models of epidermolysis bullosa simplex to discover new therapeutic strategies.
👉 Register or catch up here: https://bit.ly/45SbKNi
This #EBAwarenessWeek, we want to say a huge thank you for your support to help us #FightEB and work towards our vision of a world where no one suffers with EB. 🦋
Reshare this post & find out how you can get involved and support the EB community here: https://bit.ly/4grgP1S
#EBAW #EBAW2025
Reshare this post & find out how you can get involved and support the EB community here: https://bit.ly/4grgP1S
#EBAW #EBAW2025
October 31, 2025 at 3:53 PM
This #EBAwarenessWeek, we want to say a huge thank you for your support to help us #FightEB and work towards our vision of a world where no one suffers with EB. 🦋
Reshare this post & find out how you can get involved and support the EB community here: https://bit.ly/4grgP1S
#EBAW #EBAW2025
Reshare this post & find out how you can get involved and support the EB community here: https://bit.ly/4grgP1S
#EBAW #EBAW2025
In 40 years, DEBRA UK has invested £22m in pioneering research 🧬
We have undertaken 164 projects, worked with 127 researchers in 63 research sites across 16 countries.
Read more in our latest research round-up: https://bit.ly/4njcikI
#EBAwarenessWeek2025 #FightEB #EBResearch #DEBRAUK
We have undertaken 164 projects, worked with 127 researchers in 63 research sites across 16 countries.
Read more in our latest research round-up: https://bit.ly/4njcikI
#EBAwarenessWeek2025 #FightEB #EBResearch #DEBRAUK
October 29, 2025 at 7:23 PM
In 40 years, DEBRA UK has invested £22m in pioneering research 🧬
We have undertaken 164 projects, worked with 127 researchers in 63 research sites across 16 countries.
Read more in our latest research round-up: https://bit.ly/4njcikI
#EBAwarenessWeek2025 #FightEB #EBResearch #DEBRAUK
We have undertaken 164 projects, worked with 127 researchers in 63 research sites across 16 countries.
Read more in our latest research round-up: https://bit.ly/4njcikI
#EBAwarenessWeek2025 #FightEB #EBResearch #DEBRAUK
DEBRA UK and @lifearc.bsky.social have provisionally agreed to fund ART-EB - a multi-million-pound, 5-year drug repurposing trial, and the largest single investment in global EB research to date. 🧬
Learn more about the project & what it means for the EB community: https://bit.ly/42VRRD8
Learn more about the project & what it means for the EB community: https://bit.ly/42VRRD8
LifeArc and DEBRA UK to partner in multi-million drug repurposing trial
This project, known as the ART (Advancing Repurposed Therapeutics) EB trial, will be the single largest investment yet in global EB research.
www.debra.org.uk
October 27, 2025 at 12:00 PM
DEBRA UK and @lifearc.bsky.social have provisionally agreed to fund ART-EB - a multi-million-pound, 5-year drug repurposing trial, and the largest single investment in global EB research to date. 🧬
Learn more about the project & what it means for the EB community: https://bit.ly/42VRRD8
Learn more about the project & what it means for the EB community: https://bit.ly/42VRRD8
🧵 Flip your clothes Inside Out for EB!
Even seams can cause pain for those with EB - wearing clothes inside out helps protect fragile skin.
👚 Join us, DEBRA International & DEBRA Ireland for #EBAwarenessWeek2025
📅 Wear on any day that works
💻 Fundraise: https://bit.ly/437XHkQ
#InsideOutForEB
Even seams can cause pain for those with EB - wearing clothes inside out helps protect fragile skin.
👚 Join us, DEBRA International & DEBRA Ireland for #EBAwarenessWeek2025
📅 Wear on any day that works
💻 Fundraise: https://bit.ly/437XHkQ
#InsideOutForEB
October 16, 2025 at 3:49 PM
🧵 Flip your clothes Inside Out for EB!
Even seams can cause pain for those with EB - wearing clothes inside out helps protect fragile skin.
👚 Join us, DEBRA International & DEBRA Ireland for #EBAwarenessWeek2025
📅 Wear on any day that works
💻 Fundraise: https://bit.ly/437XHkQ
#InsideOutForEB
Even seams can cause pain for those with EB - wearing clothes inside out helps protect fragile skin.
👚 Join us, DEBRA International & DEBRA Ireland for #EBAwarenessWeek2025
📅 Wear on any day that works
💻 Fundraise: https://bit.ly/437XHkQ
#InsideOutForEB
🔬 Research blog: Could a psoriasis drug ease symptoms of EBS?🔬
With support from DEBRA UK, Christine's team is working to repurpose apremilast (an approved psoriasis drug) bringing hope for a faster, accessible treatment for those living with EBS. Read more now 👇
https://bit.ly/4gglYdW
With support from DEBRA UK, Christine's team is working to repurpose apremilast (an approved psoriasis drug) bringing hope for a faster, accessible treatment for those living with EBS. Read more now 👇
https://bit.ly/4gglYdW
Clinical trial to repurpose an approved psoriasis drug for EBS
Dr Rob Hynds shares her research
www.debra.org.uk
October 12, 2025 at 2:50 PM
🔬 Research blog: Could a psoriasis drug ease symptoms of EBS?🔬
With support from DEBRA UK, Christine's team is working to repurpose apremilast (an approved psoriasis drug) bringing hope for a faster, accessible treatment for those living with EBS. Read more now 👇
https://bit.ly/4gglYdW
With support from DEBRA UK, Christine's team is working to repurpose apremilast (an approved psoriasis drug) bringing hope for a faster, accessible treatment for those living with EBS. Read more now 👇
https://bit.ly/4gglYdW
Today is #WorldMentalHealthDay2025 🩵
A reminder that mental wellbeing matters just as much as physical health - especially for those living with or caring for someone with EB.
🦋 You’re never alone in this journey.
Find out how we can support you: https://bit.ly/46Hzap0
A reminder that mental wellbeing matters just as much as physical health - especially for those living with or caring for someone with EB.
🦋 You’re never alone in this journey.
Find out how we can support you: https://bit.ly/46Hzap0
October 10, 2025 at 9:00 AM
Today is #WorldMentalHealthDay2025 🩵
A reminder that mental wellbeing matters just as much as physical health - especially for those living with or caring for someone with EB.
🦋 You’re never alone in this journey.
Find out how we can support you: https://bit.ly/46Hzap0
A reminder that mental wellbeing matters just as much as physical health - especially for those living with or caring for someone with EB.
🦋 You’re never alone in this journey.
Find out how we can support you: https://bit.ly/46Hzap0
In 2024, you raised just over £92,500 through gift-aided donations! ✅
Gift aid increases the value of your donation by 25%, at no extra cost to you.
If you’re a UK tax player, please #TickTheBox this #GiftAidAwarenessDay & complete our gift aid sign-up form if you haven’t already: bit.ly/3XOxlkr
Gift aid increases the value of your donation by 25%, at no extra cost to you.
If you’re a UK tax player, please #TickTheBox this #GiftAidAwarenessDay & complete our gift aid sign-up form if you haven’t already: bit.ly/3XOxlkr
October 9, 2025 at 4:08 PM
In 2024, you raised just over £92,500 through gift-aided donations! ✅
Gift aid increases the value of your donation by 25%, at no extra cost to you.
If you’re a UK tax player, please #TickTheBox this #GiftAidAwarenessDay & complete our gift aid sign-up form if you haven’t already: bit.ly/3XOxlkr
Gift aid increases the value of your donation by 25%, at no extra cost to you.
If you’re a UK tax player, please #TickTheBox this #GiftAidAwarenessDay & complete our gift aid sign-up form if you haven’t already: bit.ly/3XOxlkr
This #WorldSightDay, we're highlighting an incredible research project seeking to transfer an eye-drop technology that was developed almost ten years ago to benefit EB patients. 🔬
Read more on Prof Grover's blog now 👉 https://bit.ly/4m5yWfC
Read more on Prof Grover's blog now 👉 https://bit.ly/4m5yWfC
October 9, 2025 at 11:50 AM
This #WorldSightDay, we're highlighting an incredible research project seeking to transfer an eye-drop technology that was developed almost ten years ago to benefit EB patients. 🔬
Read more on Prof Grover's blog now 👉 https://bit.ly/4m5yWfC
Read more on Prof Grover's blog now 👉 https://bit.ly/4m5yWfC
🛍️ Did you know you can support DEBRA UK every time you shop online - at no extra cost to you?
Every donation helps us continue providing vital support to the EB community. 💙
It only takes a minute to get started - and makes a lasting impact.
Sign up today: https://bit.ly/4mlbTOb
Every donation helps us continue providing vital support to the EB community. 💙
It only takes a minute to get started - and makes a lasting impact.
Sign up today: https://bit.ly/4mlbTOb
October 8, 2025 at 7:19 PM
🛍️ Did you know you can support DEBRA UK every time you shop online - at no extra cost to you?
Every donation helps us continue providing vital support to the EB community. 💙
It only takes a minute to get started - and makes a lasting impact.
Sign up today: https://bit.ly/4mlbTOb
Every donation helps us continue providing vital support to the EB community. 💙
It only takes a minute to get started - and makes a lasting impact.
Sign up today: https://bit.ly/4mlbTOb
🦋 Unlock the full power of your DEBRA membership in this exclusive webinar
Whether you're new to DEBRA or a long-time member, this is your chance to ask questions, explore resources & make the most of your membership.
📅 Wednesday 29th October, 12:30pm: https://bit.ly/4nZn14m
Whether you're new to DEBRA or a long-time member, this is your chance to ask questions, explore resources & make the most of your membership.
📅 Wednesday 29th October, 12:30pm: https://bit.ly/4nZn14m
October 7, 2025 at 3:54 PM
🦋 Unlock the full power of your DEBRA membership in this exclusive webinar
Whether you're new to DEBRA or a long-time member, this is your chance to ask questions, explore resources & make the most of your membership.
📅 Wednesday 29th October, 12:30pm: https://bit.ly/4nZn14m
Whether you're new to DEBRA or a long-time member, this is your chance to ask questions, explore resources & make the most of your membership.
📅 Wednesday 29th October, 12:30pm: https://bit.ly/4nZn14m
🔬 Research highlight: Screening drugs to target RDEB cancer 🔬
Over 3,000 approved drugs will be screened to identify which kill skin cancer cells & could be repurposed to treat the aggressive form of skin cancer which frequently affects people with RDEB.
Read more now! 👇https://bit.ly/4nmzw9R
Over 3,000 approved drugs will be screened to identify which kill skin cancer cells & could be repurposed to treat the aggressive form of skin cancer which frequently affects people with RDEB.
Read more now! 👇https://bit.ly/4nmzw9R
Screening drugs to target RDEB cancer
Identifying effective treatments for skin cancer in patients with RDEB. Learn about the promising findings that could lead to rapid clinical trials for safer, repurposed therapies.
www.debra.org.uk
October 5, 2025 at 2:50 PM
🔬 Research highlight: Screening drugs to target RDEB cancer 🔬
Over 3,000 approved drugs will be screened to identify which kill skin cancer cells & could be repurposed to treat the aggressive form of skin cancer which frequently affects people with RDEB.
Read more now! 👇https://bit.ly/4nmzw9R
Over 3,000 approved drugs will be screened to identify which kill skin cancer cells & could be repurposed to treat the aggressive form of skin cancer which frequently affects people with RDEB.
Read more now! 👇https://bit.ly/4nmzw9R
🦷 Gentle hands for fragile smiles
Dental care can be especially challenging for children living with EB. This blog, penned by GOSH nurse Jennifer, explores the importance of compassionate, informed care & how small changes can make a big difference.
👉 Read the full story: https://bit.ly/46xHdEO
Dental care can be especially challenging for children living with EB. This blog, penned by GOSH nurse Jennifer, explores the importance of compassionate, informed care & how small changes can make a big difference.
👉 Read the full story: https://bit.ly/46xHdEO
Gentle hands for fragile smiles: dental care for children with EB
Discover how specialist dental nurse Jennifer Wood provides compassionate, tailored dental care for children with epidermolysis bullosa (EB).
www.debra.org.uk
October 3, 2025 at 3:55 PM
🦷 Gentle hands for fragile smiles
Dental care can be especially challenging for children living with EB. This blog, penned by GOSH nurse Jennifer, explores the importance of compassionate, informed care & how small changes can make a big difference.
👉 Read the full story: https://bit.ly/46xHdEO
Dental care can be especially challenging for children living with EB. This blog, penned by GOSH nurse Jennifer, explores the importance of compassionate, informed care & how small changes can make a big difference.
👉 Read the full story: https://bit.ly/46xHdEO
DEBRA member Anna Ritchie and her daughter Jasmine will be on your screen's tomorrow! 📺
Catch them on Good Morning Britain tomorrow (Thursday 2nd October) at 8:15am,
Remember to tune in, and help us spread the word by sharing this post with your friends and family. 🦋
Catch them on Good Morning Britain tomorrow (Thursday 2nd October) at 8:15am,
Remember to tune in, and help us spread the word by sharing this post with your friends and family. 🦋
October 1, 2025 at 6:14 PM
DEBRA member Anna Ritchie and her daughter Jasmine will be on your screen's tomorrow! 📺
Catch them on Good Morning Britain tomorrow (Thursday 2nd October) at 8:15am,
Remember to tune in, and help us spread the word by sharing this post with your friends and family. 🦋
Catch them on Good Morning Britain tomorrow (Thursday 2nd October) at 8:15am,
Remember to tune in, and help us spread the word by sharing this post with your friends and family. 🦋
We’re thrilled to welcome Carly Fields as new Chair of Trustees!
Carly brings lived experience, passion & leadership to the role, having been part of the DEBRA community since 2014 when her daughter was first diagnosed with EB.
👉 Read more about Carly’s appointment & vision: https://bit.ly/48GIn23
Carly brings lived experience, passion & leadership to the role, having been part of the DEBRA community since 2014 when her daughter was first diagnosed with EB.
👉 Read more about Carly’s appointment & vision: https://bit.ly/48GIn23
October 1, 2025 at 10:20 AM
We’re thrilled to welcome Carly Fields as new Chair of Trustees!
Carly brings lived experience, passion & leadership to the role, having been part of the DEBRA community since 2014 when her daughter was first diagnosed with EB.
👉 Read more about Carly’s appointment & vision: https://bit.ly/48GIn23
Carly brings lived experience, passion & leadership to the role, having been part of the DEBRA community since 2014 when her daughter was first diagnosed with EB.
👉 Read more about Carly’s appointment & vision: https://bit.ly/48GIn23
📢 EB Clinical Practice Guidelines - now updated!
Did you know we have a dedicated page for EB Clinical Practice Guidelines (CPGs) - covering everything from wound care to psychosocial care?
🔍 Explore all professional and patient guidelines now: https://bit.ly/3K1hLhY
Did you know we have a dedicated page for EB Clinical Practice Guidelines (CPGs) - covering everything from wound care to psychosocial care?
🔍 Explore all professional and patient guidelines now: https://bit.ly/3K1hLhY
EB Clinical Practice Guidelines
These Clinical Practice Guidelines (CPGs) for epidermolysis bullosa (EB) offer evidence-based guidance on how to treat someone with EB.
www.debra.org.uk
September 30, 2025 at 3:54 PM
📢 EB Clinical Practice Guidelines - now updated!
Did you know we have a dedicated page for EB Clinical Practice Guidelines (CPGs) - covering everything from wound care to psychosocial care?
🔍 Explore all professional and patient guidelines now: https://bit.ly/3K1hLhY
Did you know we have a dedicated page for EB Clinical Practice Guidelines (CPGs) - covering everything from wound care to psychosocial care?
🔍 Explore all professional and patient guidelines now: https://bit.ly/3K1hLhY
💙 A few of our amazing DEBRA ambassadors and members were delighted to attend The 3rd Brothers Trust and Tom Holland Posh Pub Quiz last weekend - a heartfelt evening in support of DEBRA UK and other incredible causes.
Thank you so much for having us! 🦋
Thank you so much for having us! 🦋
September 27, 2025 at 3:10 PM
💙 A few of our amazing DEBRA ambassadors and members were delighted to attend The 3rd Brothers Trust and Tom Holland Posh Pub Quiz last weekend - a heartfelt evening in support of DEBRA UK and other incredible causes.
Thank you so much for having us! 🦋
Thank you so much for having us! 🦋
DEBRA UK Members, you're invited to our virtual Christmas party!
Join us for a night of festive fun at our Virtual Christmas Party, hosted by the brilliant team at AVVA 🎁✨
Let’s celebrate the season together - wherever you are! 👉 Find out more and book your place today: https://bit.ly/4nE2wKp
Join us for a night of festive fun at our Virtual Christmas Party, hosted by the brilliant team at AVVA 🎁✨
Let’s celebrate the season together - wherever you are! 👉 Find out more and book your place today: https://bit.ly/4nE2wKp
September 25, 2025 at 3:49 PM
DEBRA UK Members, you're invited to our virtual Christmas party!
Join us for a night of festive fun at our Virtual Christmas Party, hosted by the brilliant team at AVVA 🎁✨
Let’s celebrate the season together - wherever you are! 👉 Find out more and book your place today: https://bit.ly/4nE2wKp
Join us for a night of festive fun at our Virtual Christmas Party, hosted by the brilliant team at AVVA 🎁✨
Let’s celebrate the season together - wherever you are! 👉 Find out more and book your place today: https://bit.ly/4nE2wKp
Your online shopping could raise DOUBLE the normal donation thanks to our friends at @giveasyoulive.
Every penny helps to support those living, day in day out, with epidermolysis bullosa. 🩵
It's completely free to use - just click, shop and raise: https://bit.ly/46wo98J
Every penny helps to support those living, day in day out, with epidermolysis bullosa. 🩵
It's completely free to use - just click, shop and raise: https://bit.ly/46wo98J
September 25, 2025 at 7:34 AM
Your online shopping could raise DOUBLE the normal donation thanks to our friends at @giveasyoulive.
Every penny helps to support those living, day in day out, with epidermolysis bullosa. 🩵
It's completely free to use - just click, shop and raise: https://bit.ly/46wo98J
Every penny helps to support those living, day in day out, with epidermolysis bullosa. 🩵
It's completely free to use - just click, shop and raise: https://bit.ly/46wo98J
We’re proud to share that NoriZite™, a new mouth spray developed with funding from DEBRA UK and DEBRA Ireland, is now available to purchase.
It shows promising potential to relieve oral EB symptoms - helping improve everyday comfort for EB 💙
Learn more: debra.org.uk/fighting-eb-pain-mouth-spray
It shows promising potential to relieve oral EB symptoms - helping improve everyday comfort for EB 💙
Learn more: debra.org.uk/fighting-eb-pain-mouth-spray
September 21, 2025 at 2:55 PM
We’re proud to share that NoriZite™, a new mouth spray developed with funding from DEBRA UK and DEBRA Ireland, is now available to purchase.
It shows promising potential to relieve oral EB symptoms - helping improve everyday comfort for EB 💙
Learn more: debra.org.uk/fighting-eb-pain-mouth-spray
It shows promising potential to relieve oral EB symptoms - helping improve everyday comfort for EB 💙
Learn more: debra.org.uk/fighting-eb-pain-mouth-spray
🧬 Join us for our next Research & Health Webinar!
📅 Wednesday 17th September, 1pm (BST)
This month, we're joined by Dr Josefine Hirschfeld and Dr Dario Balacco who will share their latest research & insights into microbiomes in EB, followed by a Q&A.
https://bit.ly/45SbKNi
#DEBRAUK #EBResearch
📅 Wednesday 17th September, 1pm (BST)
This month, we're joined by Dr Josefine Hirschfeld and Dr Dario Balacco who will share their latest research & insights into microbiomes in EB, followed by a Q&A.
https://bit.ly/45SbKNi
#DEBRAUK #EBResearch
Research and Health webinars
Our Research and Health webinar series feature a variety guests speaking live about their expertise in EB research and healthcare.
bit.ly
September 14, 2025 at 2:51 PM
🧬 Join us for our next Research & Health Webinar!
📅 Wednesday 17th September, 1pm (BST)
This month, we're joined by Dr Josefine Hirschfeld and Dr Dario Balacco who will share their latest research & insights into microbiomes in EB, followed by a Q&A.
https://bit.ly/45SbKNi
#DEBRAUK #EBResearch
📅 Wednesday 17th September, 1pm (BST)
This month, we're joined by Dr Josefine Hirschfeld and Dr Dario Balacco who will share their latest research & insights into microbiomes in EB, followed by a Q&A.
https://bit.ly/45SbKNi
#DEBRAUK #EBResearch
🏑 From blisters to bronze: Laverne’s hockey journey
Born with EB Simplex, Laverne has faced painful blistering since childhood.. but her love for sport never faded. Her story is one of resilience, community & the life-changing support she received from DEBRA 💙
📖 Read more: https://bit.ly/4m5yWfC
Born with EB Simplex, Laverne has faced painful blistering since childhood.. but her love for sport never faded. Her story is one of resilience, community & the life-changing support she received from DEBRA 💙
📖 Read more: https://bit.ly/4m5yWfC
From blisters to bronze: Laverne’s international hockey journey
Laverne’s inspiring journey with EB Simplex shows how determination, support from DEBRA UK, and a love of sport can break barriers at any age
www.debra.org.uk
September 12, 2025 at 4:01 PM
🏑 From blisters to bronze: Laverne’s hockey journey
Born with EB Simplex, Laverne has faced painful blistering since childhood.. but her love for sport never faded. Her story is one of resilience, community & the life-changing support she received from DEBRA 💙
📖 Read more: https://bit.ly/4m5yWfC
Born with EB Simplex, Laverne has faced painful blistering since childhood.. but her love for sport never faded. Her story is one of resilience, community & the life-changing support she received from DEBRA 💙
📖 Read more: https://bit.ly/4m5yWfC