Become a CGD Champion & support us monthly. By giving a monthly donation to CGD Society, you're helping us continue funding our specialist nursing support at Great Ormond Street - a lifeline for those living with CGD.
Your monthly gift helps us be there every step of the way.
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"Thank you for the grant you gave us. It helped during our 2 month hospital stay. Before my son had his BMT, my husband worked full time. 3 days before, they let him go. We were left with nothing except savings. Without your grant, we would got into debt with household bills. So thank you again."

Happy #NationalNursesDay.
Today, we’re celebrating the dedication, compassion, and expertise of nurses everywhere — and especially our incredible Clinical Nurse Specialist, Helen. 🩷
Helen plays a vital role in supporting individuals and families affected by Chronic Granulomatous Disorder (CGD).

How does our support fund help?

The CGD Society’s Family Support Fund is a lifeline for individuals and families affected by Chronic Granulomatous Disorder (CGD), a rare and life-threatening condition that can severely impact daily life.

Read William's story >> cgdsociety.org/our-support-...

Tuesday’s poem & Rare Disease Day 2025 ✨
In Tuesday’s poem, we are reminded of the power of recognition. #RareDiseaseDay is about shining a light on people worldwide navigating conditions that are often misunderstood, misdiagnosed, or overlooked. Let’s amplify their voices. buff.ly/4gNVJKi

Adam had a BMT in 2016. Yet, he recently found out that his donor's cells have died off & he facing another BMT. His mum said: "We're so grateful for all the love, support, & donations. The money is needed to cover essentials expenses when he has treatment." buff.ly/40WbIA2

Meet Remi. Diagnosed with CGD at 18 months old, Remi’s journey wasn't easy. In March 2024, he made history as the first person to undergo gene therapy for p47 CGD. The results have being life-changing. Now, Remi's chasing his dreams of becoming a corporate lawyer. Story here> tinyurl.com/4va7ynrp

We are so grateful for Becca, who shares her fundraising story in the video below. She has raised an amazing £3000 for the CGD Society through two challenge runs. 🏃‍♀️

A huge thank you to Becca for her resilience, strength, and generosity. 🙌🌟

#CGDSociety#FundraisingHero#raredisease#cgd

Do you know how CGD is diagnosed? 2 key tests help pinpoint a diagnosis: DHR & NBT. Both tests are highly effective but require expert interpretation to ensure accurate results. These tools give medical experts the insights they need to help individuals get the right care.

A new study, developed by our friends at the CGDAA confirmed that many X-linked CGD carriers can experience symptoms. This research highlights the importance of monitoring & supporting carriers. Learn more about the study & its implications > tinyurl.com/bddedzux

Our Giving Christmas Tree – thank you for your generosity🎄
A huge THANK YOU to everyone who has already donated. Your kindness & support mean the world. You can help us to provide resources, raise awareness, & make a real difference to those living with CGD. tinyurl.com/4p288v96
Thank you 🩷

Huge thanks to Hogsback Chapter, Surrey, for their dedicated support over 2024. By running events for their own & other Chapters' members to fundraise throughout the year, they raised an incredible total of £3,250. These funds will make a real impact to our vital support for the CGD community.