Cystic Fibrosis Ireland
@cfireland.bsky.social
Cystic Fibrosis Ireland is the national charity advocating for people with Cystic Fibrosis in Ireland.
Registered Charity Number 20011376
Registered Charity Number 20011376
Are you coming to the CFI Community Conference 2026?
Joining us is Barry Mooney, Certified Financial Planner.
Barry will host a dedicated members Lunch & Learn event on Financial Planning.
To join us at the conference, register today!
www.cfireland.ie/support-resources/cfi-annual-conference
Joining us is Barry Mooney, Certified Financial Planner.
Barry will host a dedicated members Lunch & Learn event on Financial Planning.
To join us at the conference, register today!
www.cfireland.ie/support-resources/cfi-annual-conference
January 22, 2026 at 10:33 AM
Are you coming to the CFI Community Conference 2026?
Joining us is Barry Mooney, Certified Financial Planner.
Barry will host a dedicated members Lunch & Learn event on Financial Planning.
To join us at the conference, register today!
www.cfireland.ie/support-resources/cfi-annual-conference
Joining us is Barry Mooney, Certified Financial Planner.
Barry will host a dedicated members Lunch & Learn event on Financial Planning.
To join us at the conference, register today!
www.cfireland.ie/support-resources/cfi-annual-conference
Cystic Fibrosis Ireland’s exercise grant funds access to sports, recreational play supports and physio related activities for children with CF in Ireland.
Apply today by visiting www.cfireland.ie/support-reso...
Apply today by visiting www.cfireland.ie/support-reso...
January 21, 2026 at 8:00 PM
Cystic Fibrosis Ireland’s exercise grant funds access to sports, recreational play supports and physio related activities for children with CF in Ireland.
Apply today by visiting www.cfireland.ie/support-reso...
Apply today by visiting www.cfireland.ie/support-reso...
The CFI Community Conference is just 3 weeks away! If you can’t join in person, join us online by registering at www.cfireland.ie/support-resources/cfi-annual-conference
The agenda is available too so take a look and get in touch!
The agenda is available too so take a look and get in touch!
January 20, 2026 at 6:17 PM
The CFI Community Conference is just 3 weeks away! If you can’t join in person, join us online by registering at www.cfireland.ie/support-resources/cfi-annual-conference
The agenda is available too so take a look and get in touch!
The agenda is available too so take a look and get in touch!
The PSAG (Pregnancy Support and Advocacy Group) is back for 2026 - with the first meeting taking place on Thursday 22nd January at 8pm. If you are a women with CF on any stage of your fertility journey, please get in touch to join. Details available at buff.ly/qB7uvoW
January 19, 2026 at 4:40 PM
The PSAG (Pregnancy Support and Advocacy Group) is back for 2026 - with the first meeting taking place on Thursday 22nd January at 8pm. If you are a women with CF on any stage of your fertility journey, please get in touch to join. Details available at buff.ly/qB7uvoW
🌟𝘾𝙖𝙡𝙡𝙞𝙣𝙜 𝙖𝙡𝙡 𝙮𝙤𝙪𝙣𝙜 𝙘𝙧𝙚𝙖𝙩𝙞𝙫𝙚𝙨 🌟
What will you be when you grow up? Let’s find your doodle and draw your dreams!
As part of 65 Roses Day 2026 CFI and Bob_Narrow are bringing our younger members a Doodle workshop 28 Jan@4pm
Register www.cfireland.ie/support-reso...
What will you be when you grow up? Let’s find your doodle and draw your dreams!
As part of 65 Roses Day 2026 CFI and Bob_Narrow are bringing our younger members a Doodle workshop 28 Jan@4pm
Register www.cfireland.ie/support-reso...
January 15, 2026 at 6:00 PM
🌟𝘾𝙖𝙡𝙡𝙞𝙣𝙜 𝙖𝙡𝙡 𝙮𝙤𝙪𝙣𝙜 𝙘𝙧𝙚𝙖𝙩𝙞𝙫𝙚𝙨 🌟
What will you be when you grow up? Let’s find your doodle and draw your dreams!
As part of 65 Roses Day 2026 CFI and Bob_Narrow are bringing our younger members a Doodle workshop 28 Jan@4pm
Register www.cfireland.ie/support-reso...
What will you be when you grow up? Let’s find your doodle and draw your dreams!
As part of 65 Roses Day 2026 CFI and Bob_Narrow are bringing our younger members a Doodle workshop 28 Jan@4pm
Register www.cfireland.ie/support-reso...
🌟 𝙒𝙚’𝙧𝙚 𝙡𝙤𝙤𝙠𝙞𝙣𝙜 𝙛𝙤𝙧 𝙖𝙢𝙗𝙖𝙨𝙨𝙖𝙙𝙤𝙧𝙨 𝙬𝙞𝙩𝙝 𝙖 𝙨𝙩𝙤𝙧𝙮 𝙩𝙤 𝙨𝙝𝙖𝙧𝙚 🌟
Your voice has power — real power — and every year CFI work with a community of people who want to use their experiences to spark awareness, connection, and change.
Your voice has power — real power — and every year CFI work with a community of people who want to use their experiences to spark awareness, connection, and change.
January 10, 2026 at 6:00 PM
🌟 𝙒𝙚’𝙧𝙚 𝙡𝙤𝙤𝙠𝙞𝙣𝙜 𝙛𝙤𝙧 𝙖𝙢𝙗𝙖𝙨𝙨𝙖𝙙𝙤𝙧𝙨 𝙬𝙞𝙩𝙝 𝙖 𝙨𝙩𝙤𝙧𝙮 𝙩𝙤 𝙨𝙝𝙖𝙧𝙚 🌟
Your voice has power — real power — and every year CFI work with a community of people who want to use their experiences to spark awareness, connection, and change.
Your voice has power — real power — and every year CFI work with a community of people who want to use their experiences to spark awareness, connection, and change.
The CFI Community Conference is happening in just one month!
For an insightful event with workshops, dinner, dancing and community awards, don't miss your chance to go! Book now at www.cfireland.ie/support-reso...
For an insightful event with workshops, dinner, dancing and community awards, don't miss your chance to go! Book now at www.cfireland.ie/support-reso...
January 7, 2026 at 1:02 PM
The CFI Community Conference is happening in just one month!
For an insightful event with workshops, dinner, dancing and community awards, don't miss your chance to go! Book now at www.cfireland.ie/support-reso...
For an insightful event with workshops, dinner, dancing and community awards, don't miss your chance to go! Book now at www.cfireland.ie/support-reso...
‼️𝘊𝘢𝘭𝘭𝘪𝘯𝘨 𝘢𝘭𝘭 𝘊𝘍𝘐 𝘔𝘦𝘮𝘣𝘦𝘳𝘴‼️
The early bird accommodation rate for the CFI Community Conference ends today ‼️
Don't miss out - click this link to book.
www.cfireland.ie/support-reso...
The early bird accommodation rate for the CFI Community Conference ends today ‼️
Don't miss out - click this link to book.
www.cfireland.ie/support-reso...
January 5, 2026 at 3:07 PM
‼️𝘊𝘢𝘭𝘭𝘪𝘯𝘨 𝘢𝘭𝘭 𝘊𝘍𝘐 𝘔𝘦𝘮𝘣𝘦𝘳𝘴‼️
The early bird accommodation rate for the CFI Community Conference ends today ‼️
Don't miss out - click this link to book.
www.cfireland.ie/support-reso...
The early bird accommodation rate for the CFI Community Conference ends today ‼️
Don't miss out - click this link to book.
www.cfireland.ie/support-reso...
Have you booked your place for the CFI Community Conference yet?
Don't delay - book today!
Visit www.cfireland.ie/support-reso...
Don't delay - book today!
Visit www.cfireland.ie/support-reso...
January 3, 2026 at 12:01 PM
Have you booked your place for the CFI Community Conference yet?
Don't delay - book today!
Visit www.cfireland.ie/support-reso...
Don't delay - book today!
Visit www.cfireland.ie/support-reso...
New year, new you?
New year, new grants.
Get in touch now to apply for a CFI Exercise Grant - member applications for 2026 now open 🎉
www.cfireland.ie/support-reso...
New year, new grants.
Get in touch now to apply for a CFI Exercise Grant - member applications for 2026 now open 🎉
www.cfireland.ie/support-reso...
January 2, 2026 at 12:01 PM
New year, new you?
New year, new grants.
Get in touch now to apply for a CFI Exercise Grant - member applications for 2026 now open 🎉
www.cfireland.ie/support-reso...
New year, new grants.
Get in touch now to apply for a CFI Exercise Grant - member applications for 2026 now open 🎉
www.cfireland.ie/support-reso...
𝙎𝙥𝙚𝙘𝙩𝙧𝙪𝙢 𝙝𝙖𝙨 𝙡𝙖𝙣𝙙𝙚𝙙!
If you have already signed up to receive Spectrum, it will be in your inbox, ready to read 🎉
If not, you can find it here: www.cfireland.ie//support-res...
Grab a cuppa, settle in and enjoy the read!
If you have already signed up to receive Spectrum, it will be in your inbox, ready to read 🎉
If not, you can find it here: www.cfireland.ie//support-res...
Grab a cuppa, settle in and enjoy the read!
December 30, 2025 at 4:01 PM
𝙎𝙥𝙚𝙘𝙩𝙧𝙪𝙢 𝙝𝙖𝙨 𝙡𝙖𝙣𝙙𝙚𝙙!
If you have already signed up to receive Spectrum, it will be in your inbox, ready to read 🎉
If not, you can find it here: www.cfireland.ie//support-res...
Grab a cuppa, settle in and enjoy the read!
If you have already signed up to receive Spectrum, it will be in your inbox, ready to read 🎉
If not, you can find it here: www.cfireland.ie//support-res...
Grab a cuppa, settle in and enjoy the read!
At the end of 2025, CFI are proud to have supported our members and their families in many different ways. We look forward to 2026 and another productive year working with, and providing valuable services to, the CF Community in Ireland. To find out more www.cfireland.ie
December 28, 2025 at 12:00 PM
At the end of 2025, CFI are proud to have supported our members and their families in many different ways. We look forward to 2026 and another productive year working with, and providing valuable services to, the CF Community in Ireland. To find out more www.cfireland.ie
‼️ 𝑯𝒖𝒓𝒓𝒚 ‼️
Just four days left to book your discounted accommodation for the 2026 Community Conference.
Don't miss out! Book today* by visiting www.cfireland.ie
*Limited rooms available. Cross Infection guidelines apply.
Just four days left to book your discounted accommodation for the 2026 Community Conference.
Don't miss out! Book today* by visiting www.cfireland.ie
*Limited rooms available. Cross Infection guidelines apply.
December 27, 2025 at 12:00 PM
‼️ 𝑯𝒖𝒓𝒓𝒚 ‼️
Just four days left to book your discounted accommodation for the 2026 Community Conference.
Don't miss out! Book today* by visiting www.cfireland.ie
*Limited rooms available. Cross Infection guidelines apply.
Just four days left to book your discounted accommodation for the 2026 Community Conference.
Don't miss out! Book today* by visiting www.cfireland.ie
*Limited rooms available. Cross Infection guidelines apply.
Wishing every in the CF Community, a very happy Christmas and a peaceful New Year.
December 24, 2025 at 12:02 PM
Wishing every in the CF Community, a very happy Christmas and a peaceful New Year.
Have you registered for the CFI Community Conference yet?
We have an interesting, insightful and inspiring line up for you! The agenda is coming soon but book your accommodation before the end of December to get the accommodation discount! Visit buff.ly/Sm9bDAc
We have an interesting, insightful and inspiring line up for you! The agenda is coming soon but book your accommodation before the end of December to get the accommodation discount! Visit buff.ly/Sm9bDAc
December 16, 2025 at 12:02 PM
Have you registered for the CFI Community Conference yet?
We have an interesting, insightful and inspiring line up for you! The agenda is coming soon but book your accommodation before the end of December to get the accommodation discount! Visit buff.ly/Sm9bDAc
We have an interesting, insightful and inspiring line up for you! The agenda is coming soon but book your accommodation before the end of December to get the accommodation discount! Visit buff.ly/Sm9bDAc
The Cost of Breathing is a powerful visual representation of the challenges of living with CF. Told through the medium of photography, this exhibition is brought to you by Trevor O'Donoghue of Focus On Happiness.
December 15, 2025 at 9:40 AM
The Cost of Breathing is a powerful visual representation of the challenges of living with CF. Told through the medium of photography, this exhibition is brought to you by Trevor O'Donoghue of Focus On Happiness.
The CFI Community Conference is back on the 7th Feb and we can't wait to see you! With guest speakers, workshops, dinner and more, it is sure to be the highlight of your calendar! Reserve your spot and access the early bird accommodation discount buff.ly/f9U9m7L today!
December 11, 2025 at 2:14 PM
The CFI Community Conference is back on the 7th Feb and we can't wait to see you! With guest speakers, workshops, dinner and more, it is sure to be the highlight of your calendar! Reserve your spot and access the early bird accommodation discount buff.ly/f9U9m7L today!
𝑷𝒔𝒔𝒕!! There are just three weeks left to get the accommodation discount for the CFI Community Conference!
With Christmas just around the corner, you might miss out if you don't book your place soon! Visit www.cfireland.ie/support-reso...
With Christmas just around the corner, you might miss out if you don't book your place soon! Visit www.cfireland.ie/support-reso...
December 10, 2025 at 10:01 AM
𝑷𝒔𝒔𝒕!! There are just three weeks left to get the accommodation discount for the CFI Community Conference!
With Christmas just around the corner, you might miss out if you don't book your place soon! Visit www.cfireland.ie/support-reso...
With Christmas just around the corner, you might miss out if you don't book your place soon! Visit www.cfireland.ie/support-reso...
The CFI Community Conference is back on the 7th February 2026. With international guest speakers, workshops and social events,, not to mention an early bird accommodation rate, there is something for everyone. Visit buff.ly/Sm9bDAc to register today!
December 9, 2025 at 6:44 PM
The CFI Community Conference is back on the 7th February 2026. With international guest speakers, workshops and social events,, not to mention an early bird accommodation rate, there is something for everyone. Visit buff.ly/Sm9bDAc to register today!
𝐃𝐨𝐧'𝐭 𝐟𝐨𝐫𝐠𝐞𝐭 𝐲𝐨𝐮𝐫 𝐏𝐚𝐫𝐞𝐧𝐭 𝐂𝐨𝐧𝐧𝐞𝐜𝐭 𝐆𝐫𝐨𝐮𝐩 𝐭𝐡𝐢𝐬 𝐰𝐞𝐞𝐤!
11am on the 9th Dec (tomorrow) or
730pm on the 10th December!
Come chat, listen, question to other parents of children with CF in this online support group.
Visit www.cfireland.ie/support-reso... for more info. We'd love to see you there!
11am on the 9th Dec (tomorrow) or
730pm on the 10th December!
Come chat, listen, question to other parents of children with CF in this online support group.
Visit www.cfireland.ie/support-reso... for more info. We'd love to see you there!
December 8, 2025 at 10:01 AM
𝐃𝐨𝐧'𝐭 𝐟𝐨𝐫𝐠𝐞𝐭 𝐲𝐨𝐮𝐫 𝐏𝐚𝐫𝐞𝐧𝐭 𝐂𝐨𝐧𝐧𝐞𝐜𝐭 𝐆𝐫𝐨𝐮𝐩 𝐭𝐡𝐢𝐬 𝐰𝐞𝐞𝐤!
11am on the 9th Dec (tomorrow) or
730pm on the 10th December!
Come chat, listen, question to other parents of children with CF in this online support group.
Visit www.cfireland.ie/support-reso... for more info. We'd love to see you there!
11am on the 9th Dec (tomorrow) or
730pm on the 10th December!
Come chat, listen, question to other parents of children with CF in this online support group.
Visit www.cfireland.ie/support-reso... for more info. We'd love to see you there!
𝐈𝐭'𝐬 𝐧𝐞𝐚𝐫𝐥𝐲 𝐂𝐡𝐫𝐢𝐬𝐭𝐦𝐚𝐬!!!! 🎄
What gift are you thinking? 🎁 Gym gear? GAA membership? Threadmill?
If your gift idea for that special someone(with CF) in your life is exercise related, get in touch and apply before the 10th December. Visit www.cfireland.ie/support-reso...
What gift are you thinking? 🎁 Gym gear? GAA membership? Threadmill?
If your gift idea for that special someone(with CF) in your life is exercise related, get in touch and apply before the 10th December. Visit www.cfireland.ie/support-reso...
December 7, 2025 at 7:02 PM
𝐈𝐭'𝐬 𝐧𝐞𝐚𝐫𝐥𝐲 𝐂𝐡𝐫𝐢𝐬𝐭𝐦𝐚𝐬!!!! 🎄
What gift are you thinking? 🎁 Gym gear? GAA membership? Threadmill?
If your gift idea for that special someone(with CF) in your life is exercise related, get in touch and apply before the 10th December. Visit www.cfireland.ie/support-reso...
What gift are you thinking? 🎁 Gym gear? GAA membership? Threadmill?
If your gift idea for that special someone(with CF) in your life is exercise related, get in touch and apply before the 10th December. Visit www.cfireland.ie/support-reso...
The Flu vaccine is available annually from your GP surgery or pharmacy. CF is a health condition that puts you at higher risk of Flu. The vaccine takes 2 weeks to work and should protect you through the whole flu season. Visit the HSE's website buff.ly/fkJ1CK3
December 6, 2025 at 10:00 AM
The Flu vaccine is available annually from your GP surgery or pharmacy. CF is a health condition that puts you at higher risk of Flu. The vaccine takes 2 weeks to work and should protect you through the whole flu season. Visit the HSE's website buff.ly/fkJ1CK3
A sneak peak of what is in store for you at the CFI Community conference on the 7th February!
With discount accommodation rates (before the end of Dec) and interesting and interactive workshops - this is an event not to miss! Visit www.cfireland.ie/support-reso... to register today!
With discount accommodation rates (before the end of Dec) and interesting and interactive workshops - this is an event not to miss! Visit www.cfireland.ie/support-reso... to register today!
December 5, 2025 at 7:03 PM
A sneak peak of what is in store for you at the CFI Community conference on the 7th February!
With discount accommodation rates (before the end of Dec) and interesting and interactive workshops - this is an event not to miss! Visit www.cfireland.ie/support-reso... to register today!
With discount accommodation rates (before the end of Dec) and interesting and interactive workshops - this is an event not to miss! Visit www.cfireland.ie/support-reso... to register today!
Today is #InternationalVolunteersDay.
We want to send a huge thank all of our volunteers for all your hard work and kindness. You’ve helped us provide support and raise vital funds and awareness for those with Cystic Fibrosis and we couldn't do the work we do without you. #EveryContributionMatters
We want to send a huge thank all of our volunteers for all your hard work and kindness. You’ve helped us provide support and raise vital funds and awareness for those with Cystic Fibrosis and we couldn't do the work we do without you. #EveryContributionMatters
December 5, 2025 at 2:00 PM
Today is #InternationalVolunteersDay.
We want to send a huge thank all of our volunteers for all your hard work and kindness. You’ve helped us provide support and raise vital funds and awareness for those with Cystic Fibrosis and we couldn't do the work we do without you. #EveryContributionMatters
We want to send a huge thank all of our volunteers for all your hard work and kindness. You’ve helped us provide support and raise vital funds and awareness for those with Cystic Fibrosis and we couldn't do the work we do without you. #EveryContributionMatters
The last Parent Connect support groups for the year, take place next week online. If you are aa parent of a child with CF and would like to see out the year by meeting others who can chat and listen, visit www.cfireland.ie/support-reso... to find out more.
December 3, 2025 at 2:01 PM
The last Parent Connect support groups for the year, take place next week online. If you are aa parent of a child with CF and would like to see out the year by meeting others who can chat and listen, visit www.cfireland.ie/support-reso... to find out more.