Childhood Dystonia Awareness Uk and Europe
cdauke.bsky.social
Childhood Dystonia Awareness Uk and Europe
@cdauke.bsky.social
Welcome to Childhood Dystonia Awareness UK and Europe

We are dedicated to raising awareness about childhood dystonia and providing unwavering support to children and families affected by this condition.
A child with both Epilepsy and Dystonia can be challenging. Parents often have to differentiate the differences between what is a seizure and what is Dystonia this can often take years and over time our children like to throw a curve ball.

We recognise November as Epilepsy awareness month 💜💙.
November 10, 2025 at 8:06 AM
Did you know ?? 💙 lets share this post best way to educate others about Dystonia is teaching them about something they already know.

#FocalDystonia #writerscramp #dystonia #dystoniaawareness
September 10, 2025 at 1:19 PM
💙Dystonia Awareness month post💙

👉 whats is generalised Dystonia

#Dystonia #childhooddystonia
#Dam2025 #Dystoniaawarenessmonth #dystoniaawareness
September 10, 2025 at 6:05 AM
Join our Childhood Dystonia Support Group – open to children with dystonia, parents & close family across the UK & Europe. 💙
A safe space to share, connect & support each others.

please share!

👉 Join here: facebook.com/share/g/1FURiL…#Dystoniai#Dystoniaawarenesss#Dystoniasupportrt
September 8, 2025 at 9:23 AM
Dystonia Awareness month post 💙

Highlighting Respiratory Dystonia 💙💙
#dystonia #dystoniaawareness #dystoniawarrior #dam2025
September 8, 2025 at 6:24 AM
A Proverb with such an important meaning behind it. Raising a complex child takes a village.
♥️💙💜💚💛

#epilepsy #dystonia #cerebralpalsy #rettssyndrome #ittakesavillage
#strongertogether
September 7, 2025 at 2:24 PM
Dystonia Awareness month post 💙.

Today we share HemiDystonia awareness. What is Hemidystonia and what causes it 💙.

#Dystonia #Dystoniaawareness #dystoniawarrior #childhooddystonia
September 7, 2025 at 7:06 AM
Reposted by Childhood Dystonia Awareness Uk and Europe
thank you Hannah we will give it a reshare 💙
September 6, 2025 at 9:51 AM
Dystonia Awareness month post today we are highlighting a fairly newer type of Dystonia GI Dystonia/Gut Dystonia.

#Dystonia #gutdystonia #gidystonia #dystoniaawareness
September 6, 2025 at 5:54 AM
Dystonia in Epilepsy syndromes is a very real thing and can make both extremely hard to treat.

#Dystonia #Epilepsy #Dystoniaawareness #Epilepsyawareness #Dam2025
September 5, 2025 at 6:47 AM
Dystonia Awareness month post!!

Today we highlight Spastic and Dystonic CP 💙💙

#Dystonia #DystonicCP #Spasticcp #Cerebralpalsy
September 4, 2025 at 6:04 AM
September 2, 2025 at 7:08 AM
Dystonia is a condition in its own right and should be considered as such. 💙

#Dam2025 #dystonia #dystoniaawareness #cerebralpalsy #Epilepsy #adhd #autism
September 1, 2025 at 6:17 AM
Tomorrow is the start of Dystonia Awareness month

What a better time to share our Parents guide to Dystonia.

The full guide can be viewed or downloaded at cdauk.org

#Dystonia #childhooddystonia #dystoniaawareness #dam2025 #cerebralpalsy #lifelimiting #complexcare
August 31, 2025 at 8:39 AM
September is Dystonia awareness month. Next month we will be posting lots of posts about childhood Dystonia.

Parent who is syruggling and need support ? our facebook group offers private parent to parent support.

www.facebook.com/share/g/1BDS...

#Dystonia #Dystoniaawareness #childhooddystonia
August 13, 2025 at 9:08 AM
Dystonia a parents guide

Brand new 12 page guide aimed at parents from parents with a child with a Dystonia diagnosis. First 4 pages are below you can view and download full guide here:
cdauk.org

Please share 💙

#Dystonia #childhooddystonia #whatisdystonia #dystoniaawareness
April 27, 2025 at 8:11 AM