Patients with neurofibromatosis type 1 (NF-1) need care that evolves with them. Read Aaron Baum's story to learn how a new adult clinic at @ucsfhealth.bsky.social helps #AYA patients manage the symptoms of this lifelong genetic condition: tiny.ucsf.edu/AwfrQM
#NFAwarenessMonth #neurofibromatosis

The proposed Continuing Resolution bill, up for vote today, cuts the Congressionally Directed Medical Research Program (CDMRP) by 57%. CDMRP is one of our nation’s most important investments in med research including #cancer (pediatric, #nf ), #autism, #substanceabuse, #chronicpain

Our latest paper on CRISPR-enabled epigenetic editing in glioblastoma is out in @neuroonc.bsky.social! academic.oup.com/neuro-oncolo...

Moment of Zen: When your newly diagnosed #GBM patient starting therapy today on a clinical trial brings you lemons from their yard in rural Northern California - “When life gives you lemons, you just roll with it.” Our patients are our best teachers.

Today was a heavy day - spoke to my #DIPG family about their child’s progression and then spoke to a younger (for adult world, that is) #GBM patient who has not yet started therapy despite our team’s outreach & came in with progression. Trying to hold space today for our patients and families.

Congrats to @ucsfhealth.bsky.social neuro-oncologist Susan Chang, MD, FASCO for receiving a 2025 @capilanou.bsky.social Alumni Award of Excellence! 🎉 The Relevance Award recognizes her renowned career as a physician, researcher, and mentor:
www.capilanou.ca/about-capu/g...
@ucsfcancer.bsky.social

I have friends/family who don't understand why I'm "so upset over politics". The thing is, I've worked & lived all my life for beliefs that are now being attacked--that science moves us forward, that education leads to opportunity, that kindness can outdo bigotry, & that diversity is celebrated.