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bmtinfonet.bsky.social
BMT InfoNet
@bmtinfonet.bsky.social
Trusted nonprofit offering education, research updates, and community for patients, caregivers, and clinicians in stem cell transplant, CAR T-cell therapy, and GVHD. Advancing knowledge, survivorship, and collaboration in cellular therapy.
New Episode — Thrive! | Episode Three

Bone health is an underrecognized aspect of survivorship after stem cell transplant and CAR T-cell therapy.

🎧 Apple Podcasts
podcasts.apple.com/us/podcast/t...
▶️ YouTube
youtu.be/XzDKUFOzU7Q

#ThrivePodcast #BoneHealth #CancerSurvivorship #CellularTherapy #BMT
January 22, 2026 at 4:41 PM
Episode Two of Thrive! is now available.

This episode focuses on the immune system after stem cell transplant and CAR T-cell therapy, plus news updates.

🎧 Listen to the full episode on your preferred platform.
Feedback welcome at thrive@bmtinfonet.org.

Links in replies 👇
January 16, 2026 at 7:56 PM
How are new strategies improving prevention and treatment of #GVHD after HCT?

Watch this on-demand activity featuring insights from @DrZackDeFilipp, @hamiltkyb & Dr. Amandeep Salhotra—produced with @peerview.bsky.social #ASH25 #MedEd

🔗 bit.ly/4apt6Un
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January 8, 2026 at 5:32 PM
This clip is the opening of Episode One of Thrive! — a new podcast from BMT InfoNet.

The first episode explores cognitive changes that some people experience after stem cell transplant or CAR T-cell therapy, including changes in memory and focus

🎧 The full episode available now

Links in replies 👇
January 8, 2026 at 4:38 PM
As we look ahead to the New Year, BMT InfoNet remains committed to informing, empowering, and supporting patients, caregivers, and survivors navigating treatment and recovery.

See you in the New Year, and we will continue our work — Together.

🔗 bmtinfonet.org/donate-today
December 31, 2025 at 4:50 PM
Ending the year together, with gratitude for the community that supports BMT InfoNet’s work.

Your support helps ensure patients, caregivers, and survivors have access to trusted information and meaningful support through treatment and recovery.

🔗 bmtinfonet.org/donate-today
December 29, 2025 at 9:11 PM
BMT InfoNet is offering a professionally facilitated online support group for spouses and partners of adults living with chronic GVHD.

🗓 Begins Jan 6, 2026
💻 Online via Zoom

Pre-register here:
bmtinfonet.org/form/pre-reg...

#SpouseCaregiver #ChronicGVHD #GVHD #CaregiverSupport
December 27, 2025 at 10:40 PM
Our GVHD Alliance partner nbmtLINK is hosting a one-hour Power Panel on GVHD symptoms on January 5, 2026.

An educational resource for those who’ve undergone a stem cell transplant, caregivers, and loved ones.

👉 Learn more and register:
www.nbmtlink.org/symptom-sign...
December 18, 2025 at 3:58 PM
Living with chronic GVHD can feel isolating — but support is available.

Adults with chronic graft-versus-host disease are invited to pre-register for our professionally facilitated online support group starting in 2026.

🔗 bmtinfonet.org/form/gvhd-su...

#GVHD #TransplantSurvivor #SupportMatters
December 17, 2025 at 5:22 PM
Introducing Thrive!—A new podcast from BMT InfoNet sharing timely information, expert insights. For patients and professionals.

🎧 Short, weekly episodes (15–20 minutes)
📅 First full episode launches January 6

Listen to the trailer and follow on your preferred podcast platform.

Links in comments.
December 16, 2025 at 5:47 PM
Learn the latest advances in GVHD care at ASH 2025. Join BMT InfoNet and PeerView Live on December 5 at 7:30 AM EST for a session on emerging therapies, patient perspectives, and strategies to improve post-transplant outcomes.

Register here:
bit.ly/2025-GVHD-T

#ASH25 #GVHD
November 14, 2025 at 9:17 PM
Find joy in creativity this holiday season 💛

Join BMT InfoNet & Twist Out Cancer for an Art Therapy Workshop on Nov 17 at 8 pm ET.
We’ll make Gratitude Cards together—no art experience needed! 🎨

Register: bmtinfonet.org/event/art-th...

#BMTInfoNet #ArtTherapy #CreativeHealing #CancerSupport
November 5, 2025 at 3:12 PM
Rare story: donor matched twice (1 in 430 odds for even one)

First recipient thriving—met in person 2024. Second gained 7 precious months with family

Why Theresa Lundowski would do it again in a heartbeat: bmtinfonet.org/story/donor-...

Join: my.nmdp.org/s/join

#BeTheMatch #StemCellDonor
October 31, 2025 at 8:24 PM
Sexual health after transplant or CAR-T is rarely discussed—but it matters.

Dr. Catalina Lawsin and survivor Loriana Hernández-Aldama break the silence about pain, desire, and rediscovering intimacy after treatment.

🎥 Link in comments

#BMTInfoNet #SexualHealth #SurvivorshipCare #CARTTherapy
October 25, 2025 at 10:18 PM
The @leukemiaresearch.bsky.social is hosting a free webinar for patients & caregivers on Oct 27: Your Care Team.

Learn how your hospital team members collaborate to support your care journey.

Register: leukemiarf.org/patients/webinars/your-care-team/

#BMTInfoNet #CareTeam #CancerSupport
October 23, 2025 at 6:07 PM
Pulmonary GVHD update from Dr. Cheng (Fred Hutch)

- 20% of transplant survivors develop BOS
- Often asymptomatic early—routine PFTs essential
- FAM+LABA protocol + new therapies (Jakafi, Rezurock)
- Survival improved 40%→70% with earlier detection

Watch: bmtinfonet.org/video/graft-...

#BMTInfoNet
October 23, 2025 at 4:54 PM
Managing infection after transplant & CAR-T therapy.

Dr. Gowri Satyanarayana (Northside Hospital Atlanta) covers prevention, vaccines & GVHD care.

🎥 Watch: bmtinfonet.org/video/managi...

#BMTInfoNet #Transplant #CARTTherapy #InfectionControl
October 21, 2025 at 8:32 PM
🎧 Listen up … Something new is coming from BMT InfoNet.

Stay tuned — you’ll want to hear this for yourself.

#BMTInfoNet #ComingSoon
October 20, 2025 at 1:01 AM
Reminder! Our live CAR T-Cell Therapy Webinar is next week — Tuesday, Oct 21 at 7PM ET.

Learn from leading experts what to expect before, during, and after CAR T treatment — and submit up to 3 questions when you register!

🔗 Register now: bmtinfonet.org/event/ask-ca...

#CARTcell #BMTInfoNet
October 17, 2025 at 2:58 PM
🦴 Bone health is a key part of life after transplant.

Dr. Angeliki Stamatouli from VCU Massey Cancer Center explains how to detect bone loss early, strengthen your bones, and prevent fractures.

🎥 bmtinfonet.org/video/bone-h...

#BoneHealth #TransplantSurvivor #OsteoporosisAwareness #CancerRecovery
October 10, 2025 at 8:56 PM
BMT InfoNet invites your patients to a free live webinar with leading CAR T-cell therapy experts.

Encourage your patients and caregivers to register and submit their questions in advance!

🗓 Tuesday, October 21
🕖 7:00 PM ET
🔗 bmtinfonet.org/event/ask-ca...
October 1, 2025 at 11:51 PM
📣 Just a week away:

Join Drs. Trent Wang and Evan Chen on Sept 29 for a free leukemia survivorship webinar focused on post-treatment care after chemotherapy, CAR T, or stem cell transplant.

For patients and caregivers navigating life after treatment.

🕛 12PM CT | 🔗 leukemiarf.org/patients/webinars
September 22, 2025 at 4:31 PM
😴 Trouble sleeping after transplant or CAR T? You’re not alone.

Dr. Rina Fox explains:
✔️ 5 common sleep disorders
✔️ Causes like meds, pain & stress
✔️ Proven solutions: CBT-I, mindfulness & light therapy

💜 Watch here or read the transcript: bmtinfonet.org/video/sleep-...

#BMTInfoNet #SleepHealth
September 18, 2025 at 12:32 AM
Vision changes after transplant?

It could be ocular GVHD — a common but underrecognized complication.

Dr. Katie Luo shares what to watch for and how to protect your eyes.

🎥 Watch the video or read the transcript: bmtinfonet.org/video/graft-...

#OcularGVHD #VisionSupport #GVHD
September 9, 2025 at 9:34 PM
Is age a barrier to cancer treatment?

Dr. Amelia Langston says no.

🎥 In 26 minutes, learn why fitness, resilience, and support matter more than age for transplant and CAR T outcomes.

Watch or Read Transcript: bmtinfonet.org/video/transp...

#CAR_T #StemCellTransplant #BMTInfoNet #CancerTreatment
September 3, 2025 at 2:44 AM