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bmtinfonet.bsky.social
BMT InfoNet
@bmtinfonet.bsky.social
Trusted nonprofit offering education, research updates, and community for patients, caregivers, and clinicians in stem cell transplant, CAR T-cell therapy, and GVHD. Advancing knowledge, survivorship, and collaboration in cellular therapy.
Find joy in creativity this holiday season 💛

Join BMT InfoNet & Twist Out Cancer for an Art Therapy Workshop on Nov 17 at 8 pm ET.
We’ll make Gratitude Cards together—no art experience needed! 🎨

Register: bmtinfonet.org/event/art-th...

#BMTInfoNet #ArtTherapy #CreativeHealing #CancerSupport
November 5, 2025 at 3:12 PM
Rare story: donor matched twice (1 in 430 odds for even one)

First recipient thriving—met in person 2024. Second gained 7 precious months with family

Why Theresa Lundowski would do it again in a heartbeat: bmtinfonet.org/story/donor-...

Join: my.nmdp.org/s/join

#BeTheMatch #StemCellDonor
October 31, 2025 at 8:24 PM
Sexual health after transplant or CAR-T is rarely discussed—but it matters.

Dr. Catalina Lawsin and survivor Loriana Hernández-Aldama break the silence about pain, desire, and rediscovering intimacy after treatment.

🎥 Link in comments

#BMTInfoNet #SexualHealth #SurvivorshipCare #CARTTherapy
October 25, 2025 at 10:18 PM
The @leukemiaresearch.bsky.social is hosting a free webinar for patients & caregivers on Oct 27: Your Care Team.

Learn how your hospital team members collaborate to support your care journey.

Register: leukemiarf.org/patients/webinars/your-care-team/

#BMTInfoNet #CareTeam #CancerSupport
October 23, 2025 at 6:07 PM
Pulmonary GVHD update from Dr. Cheng (Fred Hutch)

- 20% of transplant survivors develop BOS
- Often asymptomatic early—routine PFTs essential
- FAM+LABA protocol + new therapies (Jakafi, Rezurock)
- Survival improved 40%→70% with earlier detection

Watch: bmtinfonet.org/video/graft-...

#BMTInfoNet
October 23, 2025 at 4:54 PM
Managing infection after transplant & CAR-T therapy.

Dr. Gowri Satyanarayana (Northside Hospital Atlanta) covers prevention, vaccines & GVHD care.

🎥 Watch: bmtinfonet.org/video/managi...

#BMTInfoNet #Transplant #CARTTherapy #InfectionControl
October 21, 2025 at 8:32 PM
🎧 Listen up … Something new is coming from BMT InfoNet.

Stay tuned — you’ll want to hear this for yourself.

#BMTInfoNet #ComingSoon
October 20, 2025 at 1:01 AM
Reminder! Our live CAR T-Cell Therapy Webinar is next week — Tuesday, Oct 21 at 7PM ET.

Learn from leading experts what to expect before, during, and after CAR T treatment — and submit up to 3 questions when you register!

🔗 Register now: bmtinfonet.org/event/ask-ca...

#CARTcell #BMTInfoNet
October 17, 2025 at 2:58 PM
🦴 Bone health is a key part of life after transplant.

Dr. Angeliki Stamatouli from VCU Massey Cancer Center explains how to detect bone loss early, strengthen your bones, and prevent fractures.

🎥 bmtinfonet.org/video/bone-h...

#BoneHealth #TransplantSurvivor #OsteoporosisAwareness #CancerRecovery
October 10, 2025 at 8:56 PM
BMT InfoNet invites your patients to a free live webinar with leading CAR T-cell therapy experts.

Encourage your patients and caregivers to register and submit their questions in advance!

🗓 Tuesday, October 21
🕖 7:00 PM ET
🔗 bmtinfonet.org/event/ask-ca...
October 1, 2025 at 11:51 PM
📣 Just a week away:

Join Drs. Trent Wang and Evan Chen on Sept 29 for a free leukemia survivorship webinar focused on post-treatment care after chemotherapy, CAR T, or stem cell transplant.

For patients and caregivers navigating life after treatment.

🕛 12PM CT | 🔗 leukemiarf.org/patients/webinars
September 22, 2025 at 4:31 PM
😴 Trouble sleeping after transplant or CAR T? You’re not alone.

Dr. Rina Fox explains:
✔️ 5 common sleep disorders
✔️ Causes like meds, pain & stress
✔️ Proven solutions: CBT-I, mindfulness & light therapy

💜 Watch here or read the transcript: bmtinfonet.org/video/sleep-...

#BMTInfoNet #SleepHealth
September 18, 2025 at 12:32 AM
Vision changes after transplant?

It could be ocular GVHD — a common but underrecognized complication.

Dr. Katie Luo shares what to watch for and how to protect your eyes.

🎥 Watch the video or read the transcript: bmtinfonet.org/video/graft-...

#OcularGVHD #VisionSupport #GVHD
September 9, 2025 at 9:34 PM
Is age a barrier to cancer treatment?

Dr. Amelia Langston says no.

🎥 In 26 minutes, learn why fitness, resilience, and support matter more than age for transplant and CAR T outcomes.

Watch or Read Transcript: bmtinfonet.org/video/transp...

#CAR_T #StemCellTransplant #BMTInfoNet #CancerTreatment
September 3, 2025 at 2:44 AM
Health care professionals:

BMT InfoNet’s Resource Hub offers free tools to help you:
• Educate patients & caregivers
• Connect families with financial & psychosocial support
• Keep program directories current
• Access CEU training for mental health providers

bmtinfonet.org/medical-prof...
August 28, 2025 at 6:28 PM
Living with chronic GVHD can be isolating. That’s why BMT InfoNet is launching online support groups this September for patients, caregivers, parents, and young adults.

These groups are professionally facilitated and offer a safe, supportive space to connect.

PreReg: bmtinfonet.org/support-grou...
August 26, 2025 at 5:29 PM
‘Live and love like there’s no tomorrow.’

Michael’s Survivor Story is one of gratitude, resilience, and the friendships he gained along the way. A reminder that even in life’s toughest battles, new doors can open.

📺 Watch his story: bmtinfonet.org/story/multip...

#SurvivorStory #BMTCommunity
August 22, 2025 at 6:44 PM
BMT InfoNet + Find Empathy have launched a CEU course (7 CEUs) tailored for mental health providers working with transplant & CAR T survivors.

Help expand empathetic care—please share this with a provider.

bmtinfonet.org/stem-cell-tr...
August 19, 2025 at 2:35 AM
Our free 6-week online writing workshop for stem cell transplant & CAR T-cell recipients/caregivers (starts Sept. 17) is full — but you can join the wait list!
Sept. 17–Oct. 22, 2025 · Zoom

Wait list: bmtinfonet.org/event/writin...

#BMT #CancerSurvivorship #WritingForHealing #OncologySupport
August 13, 2025 at 10:34 PM
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May 11, 2025 at 10:15 AM
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May 9, 2025 at 10:16 AM
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May 8, 2025 at 10:16 AM
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May 7, 2025 at 2:41 PM
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May 7, 2025 at 10:15 AM
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May 5, 2025 at 10:16 AM