Angelman Syndrome Foundation
@angelmanfoundation.bsky.social
The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We e
Our guaranteed entry spots for the 2026 Bank of America Chicago Marathon are now OPEN! Join the Windy City Angels, the ASF running team.
We'll celebrate 10 years of the team and you can help us reach a milestone of $1 million raised to support
👉 Details: angelman.org/events/chica...
We'll celebrate 10 years of the team and you can help us reach a milestone of $1 million raised to support
👉 Details: angelman.org/events/chica...
November 4, 2025 at 12:08 AM
Our guaranteed entry spots for the 2026 Bank of America Chicago Marathon are now OPEN! Join the Windy City Angels, the ASF running team.
We'll celebrate 10 years of the team and you can help us reach a milestone of $1 million raised to support
👉 Details: angelman.org/events/chica...
We'll celebrate 10 years of the team and you can help us reach a milestone of $1 million raised to support
👉 Details: angelman.org/events/chica...
We’re proud to share that many of the nation’s best hospitals by U.S. News & World Report are where ASF Clinics exist. We can attest that ASF Clinics deliver exceptional care, advance clinical trials, and support individuals with Angelman syndrome every day.
August 25, 2025 at 9:35 PM
We’re proud to share that many of the nation’s best hospitals by U.S. News & World Report are where ASF Clinics exist. We can attest that ASF Clinics deliver exceptional care, advance clinical trials, and support individuals with Angelman syndrome every day.
Was so happy that our son got to meet his hero’s in the angelman space! @benphilpott.bsky.social
July 24, 2025 at 3:59 PM
Was so happy that our son got to meet his hero’s in the angelman space! @benphilpott.bsky.social
Today marks the start of the 2025 ASF/Dup15q Research Symposium—a gathering of some of the brightest scientists, clinicians, and industry leaders from around the world.
This closed-door meeting is designed to foster open, collaborative conversations about the latest research and breakthroughs in AS
This closed-door meeting is designed to foster open, collaborative conversations about the latest research and breakthroughs in AS
July 24, 2025 at 3:22 PM
Today marks the start of the 2025 ASF/Dup15q Research Symposium—a gathering of some of the brightest scientists, clinicians, and industry leaders from around the world.
This closed-door meeting is designed to foster open, collaborative conversations about the latest research and breakthroughs in AS
This closed-door meeting is designed to foster open, collaborative conversations about the latest research and breakthroughs in AS
Save The Date!
July 14, 2025 at 2:53 PM
Save The Date!
We’re excited to announce the launch of our new website at angelman.org! 🎉 Our updated site features easy navigation and filters that help you find the resources, clinics, research, and support you need on any device. Check it out!➡️ angelman.org
June 26, 2025 at 9:40 PM
We’re excited to announce the launch of our new website at angelman.org! 🎉 Our updated site features easy navigation and filters that help you find the resources, clinics, research, and support you need on any device. Check it out!➡️ angelman.org
Reposted by Angelman Syndrome Foundation
Kaitlin in Sacramento is LOVING her Bunch Bike - but her son, who has some adaptive needs, keeps unbuckling his seatbelt.
Called our friends at Seatbelt Planet, found a locking buckle used on amusement park rides. Now we're offering this option for all families thru our adaptive equipment program!
Called our friends at Seatbelt Planet, found a locking buckle used on amusement park rides. Now we're offering this option for all families thru our adaptive equipment program!
June 9, 2025 at 4:55 PM
Kaitlin in Sacramento is LOVING her Bunch Bike - but her son, who has some adaptive needs, keeps unbuckling his seatbelt.
Called our friends at Seatbelt Planet, found a locking buckle used on amusement park rides. Now we're offering this option for all families thru our adaptive equipment program!
Called our friends at Seatbelt Planet, found a locking buckle used on amusement park rides. Now we're offering this option for all families thru our adaptive equipment program!
ASF-funded research is fueling real progress. 💥 Over the past 20 years, ASF has invested $16 million into 138+ research grants, leading to breakthroughs in gene therapy, ASO treatments, and seizure management for Angelman syndrome.
🔗 Find your walk and join us: angelman.org/strong
🔗 Find your walk and join us: angelman.org/strong
May 14, 2025 at 8:10 PM
ASF-funded research is fueling real progress. 💥 Over the past 20 years, ASF has invested $16 million into 138+ research grants, leading to breakthroughs in gene therapy, ASO treatments, and seizure management for Angelman syndrome.
🔗 Find your walk and join us: angelman.org/strong
🔗 Find your walk and join us: angelman.org/strong
The annual ASF Newsletter is arriving in mailboxes! 📬 Didn’t get yours? Make sure you're on the list by joining the ASF Contact Registry: www.angelman.org/about/contactregistry.
Check out the digital version of the newsletter here: sholink.to/082ab024. 💙
Check out the digital version of the newsletter here: sholink.to/082ab024. 💙
March 24, 2025 at 9:43 PM
The annual ASF Newsletter is arriving in mailboxes! 📬 Didn’t get yours? Make sure you're on the list by joining the ASF Contact Registry: www.angelman.org/about/contactregistry.
Check out the digital version of the newsletter here: sholink.to/082ab024. 💙
Check out the digital version of the newsletter here: sholink.to/082ab024. 💙
T-shirt deadline closes on Friday. Make sure you register today. www.angelman.org/strong/
March 19, 2025 at 9:52 PM
T-shirt deadline closes on Friday. Make sure you register today. www.angelman.org/strong/
Join us this May for Angelman Strong, a nationwide event at 40+ locations. Together we'll make an impact for the Angelman syndrome community! 🌟
Plus, sign up by March 21 to guarantee your Angelman Strong t-shirt. 👕💙
Be part of something powerful!
Sign up now! 👉 www.angelman.org/strong
Plus, sign up by March 21 to guarantee your Angelman Strong t-shirt. 👕💙
Be part of something powerful!
Sign up now! 👉 www.angelman.org/strong
March 11, 2025 at 9:50 PM
Join us this May for Angelman Strong, a nationwide event at 40+ locations. Together we'll make an impact for the Angelman syndrome community! 🌟
Plus, sign up by March 21 to guarantee your Angelman Strong t-shirt. 👕💙
Be part of something powerful!
Sign up now! 👉 www.angelman.org/strong
Plus, sign up by March 21 to guarantee your Angelman Strong t-shirt. 👕💙
Be part of something powerful!
Sign up now! 👉 www.angelman.org/strong
The Spring ASF Newsletter will hit mailboxes (in the US) in March. Do we have your address? Have you moved or recently received an Angelman syndrome diagnosis?
Complete our Contact Registry to make sure you're on our mailing list.
👉 www.angelman.org/about/contactregistry
Complete our Contact Registry to make sure you're on our mailing list.
👉 www.angelman.org/about/contactregistry
February 20, 2025 at 9:06 PM
The Spring ASF Newsletter will hit mailboxes (in the US) in March. Do we have your address? Have you moved or recently received an Angelman syndrome diagnosis?
Complete our Contact Registry to make sure you're on our mailing list.
👉 www.angelman.org/about/contactregistry
Complete our Contact Registry to make sure you're on our mailing list.
👉 www.angelman.org/about/contactregistry
We are just 15 days away from our 2025 AS Congressional Advocacy Day!
ASF and FAST are preparing for this important day and we wanted to share with the community the legislative priorities
Read Priorities: www.angelman.org/articles/advocacy-in-current-environment
ASF and FAST are preparing for this important day and we wanted to share with the community the legislative priorities
Read Priorities: www.angelman.org/articles/advocacy-in-current-environment
February 18, 2025 at 8:39 PM
We are just 15 days away from our 2025 AS Congressional Advocacy Day!
ASF and FAST are preparing for this important day and we wanted to share with the community the legislative priorities
Read Priorities: www.angelman.org/articles/advocacy-in-current-environment
ASF and FAST are preparing for this important day and we wanted to share with the community the legislative priorities
Read Priorities: www.angelman.org/articles/advocacy-in-current-environment
It's #InternationalAngelmanDay. Let's spread the word, raise awareness & create a more inclusive world. 🌎💙
#angelmanday2025 #AngelmanSyndromeAwareness #AngelmanStrong #angelmansyndrom
#angelmanday2025 #AngelmanSyndromeAwareness #AngelmanStrong #angelmansyndrom
February 15, 2025 at 1:08 PM
It's #InternationalAngelmanDay. Let's spread the word, raise awareness & create a more inclusive world. 🌎💙
#angelmanday2025 #AngelmanSyndromeAwareness #AngelmanStrong #angelmansyndrom
#angelmanday2025 #AngelmanSyndromeAwareness #AngelmanStrong #angelmansyndrom
Encoded Therapeutics announced an update on their Angelman syndrome miRNA program indicating that IND-enabling studies have been initiated for their investigational gene therapy candidate (ETX201) to support a potential filing in 2026 to begin testing in humans. Learn more: bit.ly/4hHsD0z
February 13, 2025 at 11:12 PM
Encoded Therapeutics announced an update on their Angelman syndrome miRNA program indicating that IND-enabling studies have been initiated for their investigational gene therapy candidate (ETX201) to support a potential filing in 2026 to begin testing in humans. Learn more: bit.ly/4hHsD0z
⭐Get your discount before it's gone! 💰Register for Angelman Strong today and receive $5 off all fees. No location near you? Register for the Virtual location.
Plus, every individual with AS registered is entered to win a Fat Head. 😀
Find details and locations: www.angelman.org/strong
Plus, every individual with AS registered is entered to win a Fat Head. 😀
Find details and locations: www.angelman.org/strong
February 12, 2025 at 12:22 AM
⭐Get your discount before it's gone! 💰Register for Angelman Strong today and receive $5 off all fees. No location near you? Register for the Virtual location.
Plus, every individual with AS registered is entered to win a Fat Head. 😀
Find details and locations: www.angelman.org/strong
Plus, every individual with AS registered is entered to win a Fat Head. 😀
Find details and locations: www.angelman.org/strong
Family and friends!!!
It’s that time again! The 2025 Angelman Strong Walk is coming, and we would LOVE for you to join us as we walk for Jackson and all individuals living with Angelman syndrome! 💙
it’s not just a walk, it’s a movement.
support.angelman.org/indianapolis...
It’s that time again! The 2025 Angelman Strong Walk is coming, and we would LOVE for you to join us as we walk for Jackson and all individuals living with Angelman syndrome! 💙
it’s not just a walk, it’s a movement.
support.angelman.org/indianapolis...
February 3, 2025 at 2:56 PM
Family and friends!!!
It’s that time again! The 2025 Angelman Strong Walk is coming, and we would LOVE for you to join us as we walk for Jackson and all individuals living with Angelman syndrome! 💙
it’s not just a walk, it’s a movement.
support.angelman.org/indianapolis...
It’s that time again! The 2025 Angelman Strong Walk is coming, and we would LOVE for you to join us as we walk for Jackson and all individuals living with Angelman syndrome! 💙
it’s not just a walk, it’s a movement.
support.angelman.org/indianapolis...
15 ways in 15 days to spread awareness for international Angelman syndrome day on the 15th! www.angelman.org/wp-content/u...
February 1, 2025 at 12:24 PM
15 ways in 15 days to spread awareness for international Angelman syndrome day on the 15th! www.angelman.org/wp-content/u...
Join is
January 29, 2025 at 10:46 PM
Join is