ALK Positive Inc.
@alkpositive.bsky.social
Patient-driven organization seeking a cure and working to improve patients' quality of life and life expectancy worldwide.
In this clip from Cancer Nurses Today, Dr. Ken Culver shares how nurses help people with lung cancer navigate treatment and decisions.
At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.
At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.
January 22, 2026 at 1:46 PM
In this clip from Cancer Nurses Today, Dr. Ken Culver shares how nurses help people with lung cancer navigate treatment and decisions.
At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.
At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.
✨ Together, we did something extraordinary. ✨
Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide.
Every gift fuels hope, research, and connection.
From the bottom of our hearts—thank you. 💙
#Grateful
Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide.
Every gift fuels hope, research, and connection.
From the bottom of our hearts—thank you. 💙
#Grateful
January 16, 2026 at 4:45 PM
✨ Together, we did something extraordinary. ✨
Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide.
Every gift fuels hope, research, and connection.
From the bottom of our hearts—thank you. 💙
#Grateful
Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide.
Every gift fuels hope, research, and connection.
From the bottom of our hearts—thank you. 💙
#Grateful
🌟 Watch Our First ALKtALK of 2026!
Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...
Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...
January 15, 2026 at 1:30 PM
🌟 Watch Our First ALKtALK of 2026!
Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...
Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...
What does progress look like for the ALK-positive community?
At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancer—bringing science, real-world patient insight, and unmet needs directly to industry and researchers.
At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancer—bringing science, real-world patient insight, and unmet needs directly to industry and researchers.
January 14, 2026 at 6:01 PM
What does progress look like for the ALK-positive community?
At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancer—bringing science, real-world patient insight, and unmet needs directly to industry and researchers.
At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancer—bringing science, real-world patient insight, and unmet needs directly to industry and researchers.
💙 We’re feeling the love.
In-person tickets for the 2026 ALK+ Summit are sold out.
You can still join the waitlist or attend live virtually — with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are.
secure.qgiv.com/for/2026alks...
In-person tickets for the 2026 ALK+ Summit are sold out.
You can still join the waitlist or attend live virtually — with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are.
secure.qgiv.com/for/2026alks...
January 13, 2026 at 9:45 PM
💙 We’re feeling the love.
In-person tickets for the 2026 ALK+ Summit are sold out.
You can still join the waitlist or attend live virtually — with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are.
secure.qgiv.com/for/2026alks...
In-person tickets for the 2026 ALK+ Summit are sold out.
You can still join the waitlist or attend live virtually — with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are.
secure.qgiv.com/for/2026alks...
Meet Sara J. 💙
A facilitator of our Multilingual Chat / Charla Multilingüe, a welcoming space for patients & caregivers worldwide—where language is never a barrier to belonging.
📅 Jan 13, 3 PM ET
🔗 Link in bio
#StrongerTogether
A facilitator of our Multilingual Chat / Charla Multilingüe, a welcoming space for patients & caregivers worldwide—where language is never a barrier to belonging.
📅 Jan 13, 3 PM ET
🔗 Link in bio
#StrongerTogether
January 13, 2026 at 12:33 AM
Meet Sara J. 💙
A facilitator of our Multilingual Chat / Charla Multilingüe, a welcoming space for patients & caregivers worldwide—where language is never a barrier to belonging.
📅 Jan 13, 3 PM ET
🔗 Link in bio
#StrongerTogether
A facilitator of our Multilingual Chat / Charla Multilingüe, a welcoming space for patients & caregivers worldwide—where language is never a barrier to belonging.
📅 Jan 13, 3 PM ET
🔗 Link in bio
#StrongerTogether
👑 Dr. Alice Shaw returns to ALKtALK
🗓 Sunday, Jan 11, 2026 | 7pm ET
A global leader in ALK-positive research, Dr. Shaw shares the latest science—including an emerging MTAP deletion clinical trial—and what it could mean for future treatment.
💬 Live Q&A
🗓 Sunday, Jan 11, 2026 | 7pm ET
A global leader in ALK-positive research, Dr. Shaw shares the latest science—including an emerging MTAP deletion clinical trial—and what it could mean for future treatment.
💬 Live Q&A
January 9, 2026 at 9:45 PM
👑 Dr. Alice Shaw returns to ALKtALK
🗓 Sunday, Jan 11, 2026 | 7pm ET
A global leader in ALK-positive research, Dr. Shaw shares the latest science—including an emerging MTAP deletion clinical trial—and what it could mean for future treatment.
💬 Live Q&A
🗓 Sunday, Jan 11, 2026 | 7pm ET
A global leader in ALK-positive research, Dr. Shaw shares the latest science—including an emerging MTAP deletion clinical trial—and what it could mean for future treatment.
💬 Live Q&A
We're honored to see ALK Positive’s grant supporting Dr. Alice Shaw’s research at Dana-Farber featured in Dana-Farber Impact Magazine. Funding MTAP research in ALK+ lung cancer to drive better outcomes for patients worldwide.
📖 alkpositive.org/blog/alk-pos...
📖 alkpositive.org/blog/alk-pos...
January 9, 2026 at 3:00 PM
We're honored to see ALK Positive’s grant supporting Dr. Alice Shaw’s research at Dana-Farber featured in Dana-Farber Impact Magazine. Funding MTAP research in ALK+ lung cancer to drive better outcomes for patients worldwide.
📖 alkpositive.org/blog/alk-pos...
📖 alkpositive.org/blog/alk-pos...
📣 Only 18 in-person tickets left for the 2026 ALK+ Summit!
Once those are gone, we’ll move to the waitlist and continue welcoming everyone to join us live virtually. Joining us virtually is free and includes live sessions, Q&As, interactive moments, and prize opportunities. We hope you can join us
Once those are gone, we’ll move to the waitlist and continue welcoming everyone to join us live virtually. Joining us virtually is free and includes live sessions, Q&As, interactive moments, and prize opportunities. We hope you can join us
January 7, 2026 at 11:37 PM
📣 Only 18 in-person tickets left for the 2026 ALK+ Summit!
Once those are gone, we’ll move to the waitlist and continue welcoming everyone to join us live virtually. Joining us virtually is free and includes live sessions, Q&As, interactive moments, and prize opportunities. We hope you can join us
Once those are gone, we’ll move to the waitlist and continue welcoming everyone to join us live virtually. Joining us virtually is free and includes live sessions, Q&As, interactive moments, and prize opportunities. We hope you can join us
Booking your trip to the 2026 ALK Positive Summit? ✈️
Use Health Care Fares to save on flights and give back — they donate $10 to ALK Positive for every ticket booked.
👉 Book here: healthcarefares.com/en
#ALKPositive #ALKSummit #GiveBack
Use Health Care Fares to save on flights and give back — they donate $10 to ALK Positive for every ticket booked.
👉 Book here: healthcarefares.com/en
#ALKPositive #ALKSummit #GiveBack
January 6, 2026 at 10:45 PM
Booking your trip to the 2026 ALK Positive Summit? ✈️
Use Health Care Fares to save on flights and give back — they donate $10 to ALK Positive for every ticket booked.
👉 Book here: healthcarefares.com/en
#ALKPositive #ALKSummit #GiveBack
Use Health Care Fares to save on flights and give back — they donate $10 to ALK Positive for every ticket booked.
👉 Book here: healthcarefares.com/en
#ALKPositive #ALKSummit #GiveBack
2026 ALK+ Summit registration is open!
Join us July 24–26 in Washington, D.C. (or virtually) to learn from ALK-experienced physicians and researchers, take part in live Q&As, and connect with the ALK-positive community.
Register now: secure.qgiv.com/for/2026alks...
Join us July 24–26 in Washington, D.C. (or virtually) to learn from ALK-experienced physicians and researchers, take part in live Q&As, and connect with the ALK-positive community.
Register now: secure.qgiv.com/for/2026alks...
January 5, 2026 at 12:45 PM
2026 ALK+ Summit registration is open!
Join us July 24–26 in Washington, D.C. (or virtually) to learn from ALK-experienced physicians and researchers, take part in live Q&As, and connect with the ALK-positive community.
Register now: secure.qgiv.com/for/2026alks...
Join us July 24–26 in Washington, D.C. (or virtually) to learn from ALK-experienced physicians and researchers, take part in live Q&As, and connect with the ALK-positive community.
Register now: secure.qgiv.com/for/2026alks...
They’re still here — 10+ years later.
This moment was made possible by donors like you. Right now, every gift is matched through Dec. 31 to fund research, education, and support.
Help us reach our annual goal.
secure.qgiv.com/for/alkposit...
This moment was made possible by donors like you. Right now, every gift is matched through Dec. 31 to fund research, education, and support.
Help us reach our annual goal.
secure.qgiv.com/for/alkposit...
December 30, 2025 at 12:00 AM
They’re still here — 10+ years later.
This moment was made possible by donors like you. Right now, every gift is matched through Dec. 31 to fund research, education, and support.
Help us reach our annual goal.
secure.qgiv.com/for/alkposit...
This moment was made possible by donors like you. Right now, every gift is matched through Dec. 31 to fund research, education, and support.
Help us reach our annual goal.
secure.qgiv.com/for/alkposit...
🚨 $10,000 MATCH CHALLENGE 🚨
Every donation made before December 31 is DOUBLED.
Your support fuels research, education, and real hope for the ALK-positive community.
✨ Give today. Make it count twice. secure.qgiv.com/for/am-ml/
Every donation made before December 31 is DOUBLED.
Your support fuels research, education, and real hope for the ALK-positive community.
✨ Give today. Make it count twice. secure.qgiv.com/for/am-ml/
December 19, 2025 at 8:45 PM
🚨 $10,000 MATCH CHALLENGE 🚨
Every donation made before December 31 is DOUBLED.
Your support fuels research, education, and real hope for the ALK-positive community.
✨ Give today. Make it count twice. secure.qgiv.com/for/am-ml/
Every donation made before December 31 is DOUBLED.
Your support fuels research, education, and real hope for the ALK-positive community.
✨ Give today. Make it count twice. secure.qgiv.com/for/am-ml/
Now Streaming: ALKtALK Replay 🎥
Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancer’s PowerRD 2 Cure ALK+ Lung TeamLab.
▶️ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?...
#ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime
Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancer’s PowerRD 2 Cure ALK+ Lung TeamLab.
▶️ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?...
#ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime
December 19, 2025 at 5:04 PM
Now Streaming: ALKtALK Replay 🎥
Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancer’s PowerRD 2 Cure ALK+ Lung TeamLab.
▶️ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?...
#ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime
Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancer’s PowerRD 2 Cure ALK+ Lung TeamLab.
▶️ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?...
#ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime
🎥 Replay now: Your Holiday Toolkit on ALKtALK available on YouTube
Dr. Karen Schurgin shares honest, compassionate guidance on navigating holiday emotions, setting boundaries, managing expectations, and supporting loved ones while caring for yourself.
Dr. Karen Schurgin shares honest, compassionate guidance on navigating holiday emotions, setting boundaries, managing expectations, and supporting loved ones while caring for yourself.
December 18, 2025 at 5:47 PM
🎥 Replay now: Your Holiday Toolkit on ALKtALK available on YouTube
Dr. Karen Schurgin shares honest, compassionate guidance on navigating holiday emotions, setting boundaries, managing expectations, and supporting loved ones while caring for yourself.
Dr. Karen Schurgin shares honest, compassionate guidance on navigating holiday emotions, setting boundaries, managing expectations, and supporting loved ones while caring for yourself.
When Colin was diagnosed with ALK+ cancer, the odds of reaching 5 years were just 2 in 100. Nearly 10 years later, he’s here because clinical trials made today’s treatments possible.
Trials don’t just help participants. They help all of us.
alkpositive.org/clinical-trials
#MoreResearchMoreTime
Trials don’t just help participants. They help all of us.
alkpositive.org/clinical-trials
#MoreResearchMoreTime
December 17, 2025 at 4:47 PM
When Colin was diagnosed with ALK+ cancer, the odds of reaching 5 years were just 2 in 100. Nearly 10 years later, he’s here because clinical trials made today’s treatments possible.
Trials don’t just help participants. They help all of us.
alkpositive.org/clinical-trials
#MoreResearchMoreTime
Trials don’t just help participants. They help all of us.
alkpositive.org/clinical-trials
#MoreResearchMoreTime
Clinical trials are beginning to focus on early-stage ALK+ lung cancer.
Read more to see which trials are open and what they’re studying.
alkpositive.org/blog/clinica...
Read more to see which trials are open and what they’re studying.
alkpositive.org/blog/clinica...
December 16, 2025 at 5:00 PM
Clinical trials are beginning to focus on early-stage ALK+ lung cancer.
Read more to see which trials are open and what they’re studying.
alkpositive.org/blog/clinica...
Read more to see which trials are open and what they’re studying.
alkpositive.org/blog/clinica...
Now open: an independent medical education grant from Pfizer + ALK Positive supporting people with advanced ALK+ NSCLC and care partners.
Focus: ALK therapy prep, side-effect management & shared decision tools.
Apply by Feb 18, 2026:
alkpositive.org/blog/alk-pos...
Focus: ALK therapy prep, side-effect management & shared decision tools.
Apply by Feb 18, 2026:
alkpositive.org/blog/alk-pos...
December 15, 2025 at 4:31 PM
Now open: an independent medical education grant from Pfizer + ALK Positive supporting people with advanced ALK+ NSCLC and care partners.
Focus: ALK therapy prep, side-effect management & shared decision tools.
Apply by Feb 18, 2026:
alkpositive.org/blog/alk-pos...
Focus: ALK therapy prep, side-effect management & shared decision tools.
Apply by Feb 18, 2026:
alkpositive.org/blog/alk-pos...
If you thought 2025 was special… just wait. 💙
2026 ALK+ Summit registration is opening soon — you're not going to want to miss out on this one.
#ALKSummit
2026 ALK+ Summit registration is opening soon — you're not going to want to miss out on this one.
#ALKSummit
December 14, 2025 at 5:01 PM
If you thought 2025 was special… just wait. 💙
2026 ALK+ Summit registration is opening soon — you're not going to want to miss out on this one.
#ALKSummit
2026 ALK+ Summit registration is opening soon — you're not going to want to miss out on this one.
#ALKSummit
Good news for ALK+ patients: Cigna Healthcare now covers ALUNBRIG® (brigatinib) as of 10/1/25, bringing coverage to ~99% of commercial lives.
Co-pay assistance may be available for eligible patients: www.takedaoncologycopay.com
Co-pay assistance may be available for eligible patients: www.takedaoncologycopay.com
December 13, 2025 at 5:00 PM
Good news for ALK+ patients: Cigna Healthcare now covers ALUNBRIG® (brigatinib) as of 10/1/25, bringing coverage to ~99% of commercial lives.
Co-pay assistance may be available for eligible patients: www.takedaoncologycopay.com
Co-pay assistance may be available for eligible patients: www.takedaoncologycopay.com
ALK Positive Inc. is proud to announce the 2025 AACR–ALK Positive Lung Cancer Research Fellowship grantee: Alice Tzeng, MD, PhD (Dana-Farber). Her research explores why resistance to lorlatinib develops—and how we can overcome it to drive more durable treatments.
alkpositive.org/blog/alk-pos...
alkpositive.org/blog/alk-pos...
December 12, 2025 at 10:15 PM
ALK Positive Inc. is proud to announce the 2025 AACR–ALK Positive Lung Cancer Research Fellowship grantee: Alice Tzeng, MD, PhD (Dana-Farber). Her research explores why resistance to lorlatinib develops—and how we can overcome it to drive more durable treatments.
alkpositive.org/blog/alk-pos...
alkpositive.org/blog/alk-pos...
This Sunday (Dec 14), Jesse Boehm returns to #ALKtALK with updates on Break Through Cancer's PowerRD 2 Cure ALK+ Lung Cancer TeamLab.
Join live for the latest progress + Q&A.
#ALKPositive #LungCancerResearch #MoreResearchMoreTime
Join live for the latest progress + Q&A.
#ALKPositive #LungCancerResearch #MoreResearchMoreTime
December 12, 2025 at 1:30 PM
This Sunday (Dec 14), Jesse Boehm returns to #ALKtALK with updates on Break Through Cancer's PowerRD 2 Cure ALK+ Lung Cancer TeamLab.
Join live for the latest progress + Q&A.
#ALKPositive #LungCancerResearch #MoreResearchMoreTime
Join live for the latest progress + Q&A.
#ALKPositive #LungCancerResearch #MoreResearchMoreTime
Get ready — 2026 ALK Positive Summit registration opens soon! 🔬✨
Join us in Washington, D.C. for the latest research, expert Q&A, and science that empowers your ALK+ journey.
#ALKSummit #RegistrationOpeningSoon
Join us in Washington, D.C. for the latest research, expert Q&A, and science that empowers your ALK+ journey.
#ALKSummit #RegistrationOpeningSoon
December 11, 2025 at 11:32 PM
Get ready — 2026 ALK Positive Summit registration opens soon! 🔬✨
Join us in Washington, D.C. for the latest research, expert Q&A, and science that empowers your ALK+ journey.
#ALKSummit #RegistrationOpeningSoon
Join us in Washington, D.C. for the latest research, expert Q&A, and science that empowers your ALK+ journey.
#ALKSummit #RegistrationOpeningSoon
We proudly introduced the Colin Barton Spirit of Courage Award at the ALK Summit — celebrating a leader whose vision, advocacy, and impact have transformed ALK Positive and fueled hope for patients. 💙
Read More: alkpositive.org/blog/the-col...
Read More: alkpositive.org/blog/the-col...
December 9, 2025 at 3:30 PM
We proudly introduced the Colin Barton Spirit of Courage Award at the ALK Summit — celebrating a leader whose vision, advocacy, and impact have transformed ALK Positive and fueled hope for patients. 💙
Read More: alkpositive.org/blog/the-col...
Read More: alkpositive.org/blog/the-col...
This Sunday @ 7pm ET on ALKtALK: Dr. Karen Schurgin returns to help patients and caregivers navigate the holidays with honesty, compassion, and strength.
Join us for real talk, grounding tools, and Q&A.
Join us for real talk, grounding tools, and Q&A.
December 5, 2025 at 8:00 PM
This Sunday @ 7pm ET on ALKtALK: Dr. Karen Schurgin returns to help patients and caregivers navigate the holidays with honesty, compassion, and strength.
Join us for real talk, grounding tools, and Q&A.
Join us for real talk, grounding tools, and Q&A.