Alex Mac BCyA
@alexmac06.bsky.social
A cool dude with severe Quad Cerebral Palsy/SEN.
Justgiving Young Fundraiser Of The Year 2019, #MDANT, Gold Blue Peter badge & BCyA 2022.
Mum @karenmac10.bsky.social tweets4me!
https://www.justgiving.com/page/alexmac2025
Justgiving Young Fundraiser Of The Year 2019, #MDANT, Gold Blue Peter badge & BCyA 2022.
Mum @karenmac10.bsky.social tweets4me!
https://www.justgiving.com/page/alexmac2025
Had my trip to Manchester yesterday to @lthanwordsfest.bsky.social to see the very lovely Miss @claregrogan.bsky.social who was brilliant!!!! Loved the songs and I got my photo 😍❤️
November 16, 2025 at 10:38 AM
Had my trip to Manchester yesterday to @lthanwordsfest.bsky.social to see the very lovely Miss @claregrogan.bsky.social who was brilliant!!!! Loved the songs and I got my photo 😍❤️
Very excited!!! I’m off to Manchester soon to @lthanwordsfest.bsky.social to see the lovely @claregrogan.bsky.social ❤️ Hopefully I’ll get a better picture than last time I said Hello!!! 🤦🏻♂️
November 15, 2025 at 11:35 AM
Very excited!!! I’m off to Manchester soon to @lthanwordsfest.bsky.social to see the lovely @claregrogan.bsky.social ❤️ Hopefully I’ll get a better picture than last time I said Hello!!! 🤦🏻♂️
Still not quite 100% from last weeks hospital fun but got some hard work done this afternoon 💪
Couldn’t get my legs to work for me but my arms were better than usual & I did some good rolling too #BeMoreAlex #ConductiveEducation
Couldn’t get my legs to work for me but my arms were better than usual & I did some good rolling too #BeMoreAlex #ConductiveEducation
August 15, 2025 at 3:05 PM
Still not quite 100% from last weeks hospital fun but got some hard work done this afternoon 💪
Couldn’t get my legs to work for me but my arms were better than usual & I did some good rolling too #BeMoreAlex #ConductiveEducation
Couldn’t get my legs to work for me but my arms were better than usual & I did some good rolling too #BeMoreAlex #ConductiveEducation
Mum’s done a bit of hand therapy for #buttonybear so he’s now got a matching hand splint & bandage like mine!!!! #Twins
July 31, 2025 at 2:24 PM
Mum’s done a bit of hand therapy for #buttonybear so he’s now got a matching hand splint & bandage like mine!!!! #Twins
Todays exciting entertainment was a trip to dressings clinic to unwrap my hand for the 1st time!!!
I’ve now got straight fingers, 3 big wires sticking out, a wound healing nicely & a big blood blister🤦🏻♂️
Now got a lighter splint for 6 weeks till the wires come out #BeforeAndAfter
I’ve now got straight fingers, 3 big wires sticking out, a wound healing nicely & a big blood blister🤦🏻♂️
Now got a lighter splint for 6 weeks till the wires come out #BeforeAndAfter
July 30, 2025 at 7:31 PM
Todays exciting entertainment was a trip to dressings clinic to unwrap my hand for the 1st time!!!
I’ve now got straight fingers, 3 big wires sticking out, a wound healing nicely & a big blood blister🤦🏻♂️
Now got a lighter splint for 6 weeks till the wires come out #BeforeAndAfter
I’ve now got straight fingers, 3 big wires sticking out, a wound healing nicely & a big blood blister🤦🏻♂️
Now got a lighter splint for 6 weeks till the wires come out #BeforeAndAfter
Feeling a bit better after some gentle exercises with #ConnectionsNeuro this afternoon
Thank you for all your lovely messages, I’ll catch up with them properly once Mum has caught up on some sleep…I’ve been keeping her busier than usual this week! 😉…#TiredMum #2DaysPostOp
Thank you for all your lovely messages, I’ll catch up with them properly once Mum has caught up on some sleep…I’ve been keeping her busier than usual this week! 😉…#TiredMum #2DaysPostOp
July 25, 2025 at 7:12 PM
Feeling a bit better after some gentle exercises with #ConnectionsNeuro this afternoon
Thank you for all your lovely messages, I’ll catch up with them properly once Mum has caught up on some sleep…I’ve been keeping her busier than usual this week! 😉…#TiredMum #2DaysPostOp
Thank you for all your lovely messages, I’ll catch up with them properly once Mum has caught up on some sleep…I’ve been keeping her busier than usual this week! 😉…#TiredMum #2DaysPostOp
Next few days is all about paracetamol and managing my pain.
Didn't sleep very well as my hand hurts but Mum says it'll be worth it
But at least I'm at home!!!
Back next week to get the dressing and splint changed.....
Didn't sleep very well as my hand hurts but Mum says it'll be worth it
But at least I'm at home!!!
Back next week to get the dressing and splint changed.....
July 24, 2025 at 11:23 AM
Next few days is all about paracetamol and managing my pain.
Didn't sleep very well as my hand hurts but Mum says it'll be worth it
But at least I'm at home!!!
Back next week to get the dressing and splint changed.....
Didn't sleep very well as my hand hurts but Mum says it'll be worth it
But at least I'm at home!!!
Back next week to get the dressing and splint changed.....
The end of my 17 yrs at school is coming up fast 😢.. it was our Leavers Prom tonight so smart gear on, leave Mum & dad at home & it was party time!!!
Worn out now from too much dancing 🕺!!!
Worn out now from too much dancing 🕺!!!
July 17, 2025 at 8:31 PM
The end of my 17 yrs at school is coming up fast 😢.. it was our Leavers Prom tonight so smart gear on, leave Mum & dad at home & it was party time!!!
Worn out now from too much dancing 🕺!!!
Worn out now from too much dancing 🕺!!!
It’s been a sad day today…my last session RainbowHubNW before I head off to college in September 😢
I’ll be forever grateful for the help they’ve given me & the skills they’ve taught me over the last 17 yrs!!
They gave me a lovely send off this morning🌈 🦸🏻♂️ 😎🎁 #BeMoreAlex
I’ll be forever grateful for the help they’ve given me & the skills they’ve taught me over the last 17 yrs!!
They gave me a lovely send off this morning🌈 🦸🏻♂️ 😎🎁 #BeMoreAlex
July 15, 2025 at 7:32 PM
It’s been a sad day today…my last session RainbowHubNW before I head off to college in September 😢
I’ll be forever grateful for the help they’ve given me & the skills they’ve taught me over the last 17 yrs!!
They gave me a lovely send off this morning🌈 🦸🏻♂️ 😎🎁 #BeMoreAlex
I’ll be forever grateful for the help they’ve given me & the skills they’ve taught me over the last 17 yrs!!
They gave me a lovely send off this morning🌈 🦸🏻♂️ 😎🎁 #BeMoreAlex
Its half term so Mum’s lined up loads of appointments for me 🤦🏻♂️😂
Today was my 1st visit to @thewaltoncentre.bsky.social as they take over care for my Baclofen pump from @alderhey.nhs.uk …& thats me now fully at adult hospitals
Sad to leave Alder Hey who’ve looked after me since I was 6mths old😢
Today was my 1st visit to @thewaltoncentre.bsky.social as they take over care for my Baclofen pump from @alderhey.nhs.uk …& thats me now fully at adult hospitals
Sad to leave Alder Hey who’ve looked after me since I was 6mths old😢
May 27, 2025 at 5:28 PM
Its half term so Mum’s lined up loads of appointments for me 🤦🏻♂️😂
Today was my 1st visit to @thewaltoncentre.bsky.social as they take over care for my Baclofen pump from @alderhey.nhs.uk …& thats me now fully at adult hospitals
Sad to leave Alder Hey who’ve looked after me since I was 6mths old😢
Today was my 1st visit to @thewaltoncentre.bsky.social as they take over care for my Baclofen pump from @alderhey.nhs.uk …& thats me now fully at adult hospitals
Sad to leave Alder Hey who’ve looked after me since I was 6mths old😢
⭐️ Woohoo!!! THANK YOU EVERYBODY!!! ⭐️
My email has been very busy telling me that I’ve hit my target & passed it, I can relax now!! You are all amazing & so very kind!!! 🙏🙏🙏😎🌈 #BeMoreAlex
My email has been very busy telling me that I’ve hit my target & passed it, I can relax now!! You are all amazing & so very kind!!! 🙏🙏🙏😎🌈 #BeMoreAlex
May 25, 2025 at 5:13 PM
⭐️ Woohoo!!! THANK YOU EVERYBODY!!! ⭐️
My email has been very busy telling me that I’ve hit my target & passed it, I can relax now!! You are all amazing & so very kind!!! 🙏🙏🙏😎🌈 #BeMoreAlex
My email has been very busy telling me that I’ve hit my target & passed it, I can relax now!! You are all amazing & so very kind!!! 🙏🙏🙏😎🌈 #BeMoreAlex
Well, as an Award Winning Fundraiser, this is a bit embarrassing…I’ve only managed 70% of my target for this years #RainbowRamble 😢
THANK YOU to everyone who has already supported me, but a bit more would be nice😉…I have a reputation to uphold!!!! 🙏
www.justgiving.com/page/alexmac...
THANK YOU to everyone who has already supported me, but a bit more would be nice😉…I have a reputation to uphold!!!! 🙏
www.justgiving.com/page/alexmac...
May 24, 2025 at 11:35 AM
Well, as an Award Winning Fundraiser, this is a bit embarrassing…I’ve only managed 70% of my target for this years #RainbowRamble 😢
THANK YOU to everyone who has already supported me, but a bit more would be nice😉…I have a reputation to uphold!!!! 🙏
www.justgiving.com/page/alexmac...
THANK YOU to everyone who has already supported me, but a bit more would be nice😉…I have a reputation to uphold!!!! 🙏
www.justgiving.com/page/alexmac...
We love flat square parcels in this house…the latest fab album from Rio18 arrived yesterday❤️😎 🙏#CarwynEllisAndRio18
#HighlyRecommendedByAlex😎
#HighlyRecommendedByAlex😎
May 24, 2025 at 11:32 AM
We love flat square parcels in this house…the latest fab album from Rio18 arrived yesterday❤️😎 🙏#CarwynEllisAndRio18
#HighlyRecommendedByAlex😎
#HighlyRecommendedByAlex😎
Bit of an emotional day today on my last ever visit to @alderhey.nhs.uk 😢…a lot of memories there, some bad & scary but mostly good-I’ve been very well looked after over the last 19 years,
but it’s time to move to adult hospitals now😳
Had to pay the Tin Man a final visit😎 #BeMoreAlex
but it’s time to move to adult hospitals now😳
Had to pay the Tin Man a final visit😎 #BeMoreAlex
May 14, 2025 at 4:48 PM
Bit of an emotional day today on my last ever visit to @alderhey.nhs.uk 😢…a lot of memories there, some bad & scary but mostly good-I’ve been very well looked after over the last 19 years,
but it’s time to move to adult hospitals now😳
Had to pay the Tin Man a final visit😎 #BeMoreAlex
but it’s time to move to adult hospitals now😳
Had to pay the Tin Man a final visit😎 #BeMoreAlex
Busy day today…a trip up the motorway past this on the way to an assessment day for what will hopefully be my brilliant new college from September🤞🤞🤞Could be seeing this a lot more in the future!!! 😎 #BeMoreAlex #CarryOnLearning
May 12, 2025 at 4:21 PM
Busy day today…a trip up the motorway past this on the way to an assessment day for what will hopefully be my brilliant new college from September🤞🤞🤞Could be seeing this a lot more in the future!!! 😎 #BeMoreAlex #CarryOnLearning
Please RT my tweet below & help my #Fundraising for this year 😁🌈👨🏻🦽 @justgiving.bsky.social links below 🙏😎 #BeMoreAlex
We did it!!! It was a bit hot 🥵☀️ walking along the country roads but we made it round!!!
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻🦽🚶🏻♂️🚶🏻♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex
👉 justgiving.com/page/alexmac2025
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻🦽🚶🏻♂️🚶🏻♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex
👉 justgiving.com/page/alexmac2025
May 10, 2025 at 8:01 PM
Please RT my tweet below & help my #Fundraising for this year 😁🌈👨🏻🦽 @justgiving.bsky.social links below 🙏😎 #BeMoreAlex
We did it!!! It was a bit hot 🥵☀️ walking along the country roads but we made it round!!!
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻🦽🚶🏻♂️🚶🏻♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex
👉 justgiving.com/page/alexmac2025
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻🦽🚶🏻♂️🚶🏻♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex
👉 justgiving.com/page/alexmac2025
May 10, 2025 at 1:47 PM
We did it!!! It was a bit hot 🥵☀️ walking along the country roads but we made it round!!!
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻🦽🚶🏻♂️🚶🏻♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex
👉 justgiving.com/page/alexmac2025
I really enjoyed laughing at Mum @karenmac10.bsky.social 😂
That’s another medal to add to my collection 👍😎🏅👨🏻🦽🚶🏻♂️🚶🏻♀️
#CharityWalk #RainbowHubNW #RainbowRamble #BeMoreAlex
👉 justgiving.com/page/alexmac2025
It’s #RainbowRamble Day with everyone from @rainbowhubnw !!! And we’re raring to go….5/6 miles here we come 😳 to raise valuable funds for this amazing charity #MumsAchesAndPains🤦🏻♂️ #BeMoreAlex 👇 🙏 🌈😎👨🏻🦽🚶🏻♂️🚶🏻♀️
justgiving.com/page/alexmac2025
justgiving.com/page/alexmac2025
May 10, 2025 at 9:04 AM
It’s #RainbowRamble Day with everyone from @rainbowhubnw !!! And we’re raring to go….5/6 miles here we come 😳 to raise valuable funds for this amazing charity #MumsAchesAndPains🤦🏻♂️ #BeMoreAlex 👇 🙏 🌈😎👨🏻🦽🚶🏻♂️🚶🏻♀️
justgiving.com/page/alexmac2025
justgiving.com/page/alexmac2025
Oh yes!!!!!
Such a fabulous addition to our #Louder2025 programme!
Join CLARE GROGAN in conversation... and there may well be some musical treats for our ears to boot too!
Saturday 15th November, 2pm at The Innside, Manchester.
All tickets & info here: tinyurl.com/4k6byp7f
Join CLARE GROGAN in conversation... and there may well be some musical treats for our ears to boot too!
Saturday 15th November, 2pm at The Innside, Manchester.
All tickets & info here: tinyurl.com/4k6byp7f
May 3, 2025 at 10:45 AM
Oh yes!!!!!
This year is turning good for music, done Primal Scream, got #TheBluebells in August and Mum’s just sorted me a ticket to see @claregrogan.bsky.social at @lthanwordsfest.bsky.social in November!! Can’t wait!!! 😎 🎶 #BeMoreAlex
May 3, 2025 at 10:45 AM
This year is turning good for music, done Primal Scream, got #TheBluebells in August and Mum’s just sorted me a ticket to see @claregrogan.bsky.social at @lthanwordsfest.bsky.social in November!! Can’t wait!!! 😎 🎶 #BeMoreAlex
No school today but for a good reason this time, my Auntie was getting married!!
All suited & booted, we headed off to Blackpool on a lovely day for it!!
All suited & booted, we headed off to Blackpool on a lovely day for it!!
May 1, 2025 at 5:11 PM
No school today but for a good reason this time, my Auntie was getting married!!
All suited & booted, we headed off to Blackpool on a lovely day for it!!
All suited & booted, we headed off to Blackpool on a lovely day for it!!
They let us go home so mum & dad could keep a close eye on me overnight as there were still no beds at 10:30pm We went back to see the urologist this morning & he said all was now good so they didn’t keep me in 🙌
Hope I get back to school tomorrow🤞#WhatAWeekend🤦🏻♂️
Hope I get back to school tomorrow🤞#WhatAWeekend🤦🏻♂️
Soooooo…. After a day spent in 2 A&Es (we needed urology so had to go back to Preston hospital), we’ve got another nights stay to look forward to 🤦🏻♀️
as the Drs just want to keep an eye on his fluid levels overnight #AnotherNightOfNoSleep
( I swear this kid was sent to try me 😂)
as the Drs just want to keep an eye on his fluid levels overnight #AnotherNightOfNoSleep
( I swear this kid was sent to try me 😂)
April 29, 2025 at 7:36 PM
They let us go home so mum & dad could keep a close eye on me overnight as there were still no beds at 10:30pm We went back to see the urologist this morning & he said all was now good so they didn’t keep me in 🙌
Hope I get back to school tomorrow🤞#WhatAWeekend🤦🏻♂️
Hope I get back to school tomorrow🤞#WhatAWeekend🤦🏻♂️
Reposted by Alex Mac BCyA
Thanks everyone got your messages, @alexmac06.bsky.social finally got a bed in A&E at about 1am…had tests, seen some drs waiting for more drs… oh and he’s still wide awake!!!! Mind you I won’t get much sleep in a chair anyway 🤦🏻♀️ #ICantGetNoSleep
Well we hadn’t planned to be in A&E with Alex this evening.. he should have been at respite 😢 #LongWait #StressedParents
April 26, 2025 at 2:26 AM
Thanks everyone got your messages, @alexmac06.bsky.social finally got a bed in A&E at about 1am…had tests, seen some drs waiting for more drs… oh and he’s still wide awake!!!! Mind you I won’t get much sleep in a chair anyway 🤦🏻♀️ #ICantGetNoSleep
I’m home!!! The lovely bowel surgeon came to see me & sorted out my pseudo obstruction so all good, for now anyway!!! Looking forward to sleeping in my own quiet bed tonight
Just got to get back up to speed with my food & I’m good to go 👍😎
Just got to get back up to speed with my food & I’m good to go 👍😎
We have smiles!!! 😍
After a night of no sleep, we’re waiting on results of a CT scan of his bowels to see what happens next…. 🤞🤞🤞🤞🤞 nothing serious!!! @alexmac06.bsky.social
After a night of no sleep, we’re waiting on results of a CT scan of his bowels to see what happens next…. 🤞🤞🤞🤞🤞 nothing serious!!! @alexmac06.bsky.social
April 26, 2025 at 8:39 PM
I’m home!!! The lovely bowel surgeon came to see me & sorted out my pseudo obstruction so all good, for now anyway!!! Looking forward to sleeping in my own quiet bed tonight
Just got to get back up to speed with my food & I’m good to go 👍😎
Just got to get back up to speed with my food & I’m good to go 👍😎
Had a nice trip over to Yorkshire on Sunday to see my Grandma & Grandad. Went for a walk, saw some lambs & the canal 😎
April 23, 2025 at 7:19 PM
Had a nice trip over to Yorkshire on Sunday to see my Grandma & Grandad. Went for a walk, saw some lambs & the canal 😎