ADHD Pathfinding
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adhdpathfinding.org.uk
ADHD Pathfinding
@adhdpathfinding.org.uk
Working towards a society where ADHD is understood, supported, and never a barrier to thriving

medium.com/adhd-pathfinding
Over the last six months we’ve been in discovery.

We’ve listened, published in the open and convened across the system to understand how ADHD care actually works, and where it doesn’t.

This post looks back on that first phase, and why we’re now ready to move from discovery into delivery in 2026.
ADHD Pathfinding: From Discovery to Delivery
What we’ve learned from a year of listening, publishing, and convening, and why we’re moving into delivery next
medium.com
December 22, 2025 at 11:15 AM
Weeknote 23 is live.

We’re shifting from discovery to delivery in 2026!

- A draft ADHD Service Standard
- A small guidance and navigation service
- Test-and-learn approaches in line with Taskforce recs

We’ll also be building design capability to support this work.
More on roles in the new year.
ADHD Pathfinding Weeknote #23
19 December 2025 — Moving from discovery to delivery
medium.com
December 19, 2025 at 2:59 PM
We’ve published our response to the ADHD Taskforce report.

One big win: it calls for a “single front door” for ADHD care, helping replace today’s fragmented pathways.

With a new review now underway, it’s vital this progress isn’t paused.

Test-and-learn pilots can move this forward safely.
ADHD Taskforce Part 2: A strong foundation, but who will deliver it?
A deep dive into what the final report gets right, where gaps remain, and what’s needed to turn recommendations into real change
medium.com
December 16, 2025 at 9:38 AM
Weeknote 22 is live.

We’ve closed our survey and shared topline insights.

Consistent patterns: fragile pathways, repeated assessments, long waits and a heavy emotional toll. More soon.

We also cover NHS England’s new ADHD payment consultation and the opportunities and risks it presents.
ADHD Pathfinding Weeknote #22
12 December 2025 — Closing one chapter, preparing for the next
medium.com
December 12, 2025 at 5:23 PM
Reposted by ADHD Pathfinding
The ADHD Taskforce published its final report recently. The recommendations are strong, but delivery is still undefined.

Now that the Taskforce has disbanded, who takes this forward?
We’ve published our full analysis.

What’s solid, what’s missing, and why momentum can’t stall now.
ADHD Taskforce Part 2: A strong foundation, but who will deliver it?
A deep dive into what the final report gets right, where gaps remain, and what’s needed to turn recommendations into real change
medium.com
December 5, 2025 at 1:40 PM
Weeknote 21 is live!

This week we published our full response to the ADHD Taskforce Report: Clear recommendations but unclear ownership or next steps. Yet the Taskforce has disbanded and the government has announced another review.

We also did Q1 planning and started mapping our next phase.
ADHD Pathfinding Weeknote #21
5 December 2025 — From Taskforce to test-and-learn: what comes next
himalmandalia.medium.com
December 5, 2025 at 5:13 PM
The ADHD Taskforce published its final report recently. The recommendations are strong, but delivery is still undefined.

Now that the Taskforce has disbanded, who takes this forward?
We’ve published our full analysis.

What’s solid, what’s missing, and why momentum can’t stall now.
ADHD Taskforce Part 2: A strong foundation, but who will deliver it?
A deep dive into what the final report gets right, where gaps remain, and what’s needed to turn recommendations into real change
medium.com
December 5, 2025 at 1:40 PM
Reposted by ADHD Pathfinding
This was such good fun. How I do love a good producty nerd out 🤓
@adhdpathfinding.org.uk Q1 planning! Thank you @sianmurrayhuynh.bsky.social! Got John there in the background too and forgot to take photo before @jacattell.bsky.social left. Some exciting announcements soon!
December 4, 2025 at 3:46 PM
Calling for help from our community!

We’re making a full list of existing guidance on ADHD diagnosis to build our service prototype. Can you help? If you know of any:

- Resources
- Documents
- Websites
- Other guidance

Please email us on adhdpathfinding@googlegroups.com.

Thank you in advance.
December 1, 2025 at 12:27 PM
Weeknote 20 is live.

- End-of-year social locked in for 8th Jan
- Work continues on our ADHD Taskforce Part 2 response
- Quarterly planning, fika, and show-and-tells
- @sianmurrayhuynh.bsky.social and team holding the fort with @himal.bsky.social in Kazakhstan

Read it here.
ADHD Pathfinding Weeknote #20
ADHD Pathfinding Weeknote #20
medium.com
November 28, 2025 at 3:51 PM
Weeknote 19 is live.

- @sianmurrayhuynh.bsky.social has published our first roadmap draft
- @himal.bsky.social has connected with @jackgoulder.bsky.social
- Lots of reading, including from Himal at the UN in Nepal

Read it here.
ADHD Pathfinding Weeknote #19
21 November 2025 — New connections and clarity
medium.com
November 21, 2025 at 5:30 PM
Weeknote 18 is out.

- ADHD Taskforce report part 2: we're going deeper to write a full and comprehensive response.

- Team resilience tested and passed (@himal.bsky.social in Cambodia, @sianmurrayhuynh.bsky.social holding the fort)

- Call to participate in ADHD research studies

Read it here.
ADHD Pathfinding Weeknote #18
14 November 2025 — Analysis, resilience, and advocacy
medium.com
November 14, 2025 at 4:09 PM
Weeknote 17 is out.

ADHD Taskforce Part 2 has landed. Good recommendations (waiting times, higher NHS priority) but no clear ownership and accountability.

Also this week:
- Working on visual map of ADHD landscape
- Updated vision board live
- First team fika happened today!

Read it here.
ADHD Pathfinding Weeknote #17
7 November 2025 — Picking up where the Taskforce ends
medium.com
November 7, 2025 at 3:42 PM
The ADHD Taskforce report is finally out.

We called what it needed to contain a month ago: national standards, fair shared care, real ownership.

First look: some movement, still too many gaps.

Reports don’t fix systems. Continuity does.

Read the report here www.england.nhs.uk/publication/...
NHS England » Report of the independent ADHD Taskforce
NHS England » Report of the independent ADHD Taskforce
www.england.nhs.uk
November 6, 2025 at 1:28 PM
The ADHD Taskforce full report is expected to land today. We already covered what we expect to see in it and how we will benchmark.
The ADHD Taskforce promised its final report this summer.

Summer is over. No report. Every delay means more children waiting, adults cut off from treatment, families left managing bureaucracy instead of care.

We can’t wait. So we’ve drafted what’s missing.
ADHD Taskforce Report Part 2: Still Waiting
Summer has ended, but the final report still hasn’t appeared
medium.com
November 6, 2025 at 9:06 AM
Reposted by ADHD Pathfinding
@adhdpathfinding.org.uk planning with @sianmurrayhuynh.bsky.social, our service owner!
November 4, 2025 at 3:46 PM
The final barrier from our ADHD Awareness Month campaign: lack of national ownership, accountability, and strategy.

Without this, barriers stay stuck locally.

Our blog post explains why national ownership is the only way to change the system.

Read it here.
31 Days, 31 Barriers to ADHD Care
What ADHD Awareness Month taught us
medium.com
November 4, 2025 at 10:17 AM
ADHD Awareness Month 2025 finished yesterday.

We shared one systemic barrier a day. That’s 31 barriers over 31 days showing how ADHD care in England is fragmented, and what needs to change.

We also published a post summarising what we learned and what’s next.

🧵 below are all 31 posts.
31 Days, 31 Barriers to ADHD Care
What ADHD Awareness Month taught us
medium.com
November 1, 2025 at 9:11 AM
Weeknote #16 is out.

We've wrapped up ADHD Awareness Month and published all 31 systemic barriers. The biggest? No national ownership or strategy for ADHD.

This week:

- Ellie's story on BBC News
- New connections including NHS Digital Prevention
- Community fika launching 7th Nov

Read it here.
ADHD Pathfinding Weeknote #16
31 October 2025 — Turning insight into impact
medium.com
October 31, 2025 at 1:53 PM
The last day of ADHD Awareness Month!

We’ve shared one systemic barrier a day and saved the biggest till last: A lack of national ownership, accountability and strategy for ADHD.

We’ve also published a post summarising the month’s findings.

📅 Part of ADHD Awareness Month. Day 31 of 31
31 Days, 31 Barriers to ADHD Care
What ADHD Awareness Month taught us
medium.com
October 31, 2025 at 8:38 AM
Parents are often warned that ADHD meds are “controlled drugs” and “very strong.”

That framing breeds fear instead of understanding. These medications are safe and effective when properly prescribed but stigma still shapes care decisions.

📅 Part of ADHD Awareness Month. Day 30 of 31
October 30, 2025 at 8:22 AM
NHS ADHD cost models assume daily dosing at the same level for years.

But many people use flexible or “as needed” dosing. That misunderstanding inflates budgets and limits access to treatment that fits real life.

📅 Part of ADHD Awareness Month. Day 29 of 31
October 29, 2025 at 9:05 AM
We’ve published our WIP vision board.
It maps how we turn our vision into services that help people now by putting users, needs, and strategy onto a single page.

View it here: www.canva.com/design/DAG2g...

Does it resonate? Share your feedback here or on adhdpathfinding@googlegroups.com
October 28, 2025 at 10:14 AM
The NHS doesn’t capture the real costs of untreated ADHD: from accidents to unemployment to mental health crises.

Without data, ADHD looks expensive to treat but cheap to ignore. In reality the opposite is true.

📅 Part of ADHD Awareness Month. Day 28 of 31
October 28, 2025 at 8:20 AM
Some areas fund ADHD Locally Commissioned Services, but the budgets are so small they can’t train staff or sustain delivery.

These schemes look good on paper, but collapse in practice. Another postcode lottery in action.

📅 Part of ADHD Awareness Month. Day 27 of 31
October 27, 2025 at 8:21 AM