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acejointhealth.bsky.social
Arthritis Consumer Experts & JointHealth™ Programs
@acejointhealth.bsky.social
120 followers 58 following 190 posts
JointHealth™ — Your science-based source for easy-to-read arthritis info on treatments, research, and health policy. Visit us at www.jointhealth.org

Follow us on Facebook: facebook.com/ACEJointHealth
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acejointhealth.bsky.social
JointHealth™ express - New blog post from #JointJourneys, life with arthritis by Carrie: What moves you?

Comment & let us know what moves you!

Read now: bit.ly/JointJourney...

@schroeder-uhn.bsky.social @arthritispower.bsky.social @physioktbroker.bsky.social @acr-journals.bsky.social
What moves you? - Joint Journeys
In her latest blog, Carrie shares what keeps her moving in the rainy and wet season.
bit.ly
November 26, 2025 at 10:08 PM
acejointhealth.bsky.social
JointHealth™ express - Capsule 298 de #ArthritisAtHome – Corrélation entre l’exposition aux particules fines et l’apparition d’une maladie auto-immune systémique.

Visionner maintenant: arthritisathome.jointhealth.org?p=6618&lang=fr

#lupus @lupuschat.bsky.social @fibroandlupus.bsky.social
November 21, 2025 at 12:02 AM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 298 – Relationship between exposure to fine particles and the onset of systemic autoimmune disease.

Watch now: arthritisathome.jointhealth.org?p=6617

#CRArthritis @schroeder-uhn.bsky.social @arthritispower.bsky.social @mcgill.ca @jrheumatol.bsky.social
November 21, 2025 at 12:02 AM
acejointhealth.bsky.social
JointHealth™ express - Capsule 297 de #ArthritisAtHome - Coût de l’arthrite juvénile pour les patients et leurs familles.

Visionner maintenant: arthritisathome.jointhealth.org?p=6601&lang=fr

#CRArthritis #arthritejuvénile

@inesss.qc.ca
@arthritispower.bsky.social
@schroeder-uhn.bsky.social
Capsule 297 de « À la maison avec l’arthrite » - Coût de l’arthrite juvénile pour les patients et leurs familles | Arthritis At Home
Cette capsule de « À la maison avec l’arthrite » met en vedette la Dre Deborah Marshall, professeure de sciences de la santé communautaire à la Faculté de médecine Cumming de l’Université de Calgary.
arthritisathome.jointhealth.org
November 13, 2025 at 4:17 PM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 297 – Cost of juvenile arthritis to patients and families.

Watch now: arthritisathome.jointhealth.org?p=6600

#juvenilearthritis #JIA #CRArthritis

@arthritispower.bsky.social
@schroeder-uhn.bsky.social
@lupuschat.bsky.social
@inesss.qc.ca
Arthritis At Home 297 – Cost of juvenile arthritis to patients and families | Arthritis At Home
This episode of Arthritis At Home features Dr. Deborah Marshall, Professor at the Cumming School of Medicine in the Department of Community Health Sciences at the University of Calgary.
arthritisathome.jointhealth.org
November 13, 2025 at 4:16 PM
acejointhealth.bsky.social
Today, we remember.
On this Remembrance Day, we honour the courage, sacrifice, and service of those who fought — and continue to serve — for peace and freedom.

May we never forget their legacy.

#LestWeForget #RemembranceDay
November 11, 2025 at 10:25 PM
acejointhealth.bsky.social
JointHealth™ express - Demande de rétroaction de patients prenant du roflumilast (Zoryve®) pour le traitement du psoriasis en plaques: bit.ly/JHECDAPatien...

#psoriasisenplaques #ACEAdvocacy
Demande de rétroaction de patients prenant du roflumilast (Zoryve®) pour le traitement du psoriasis en plaques - Arthritis News
Si vous souffrez de psoriasis en plaques ou si vous prodiguez des soins à une personne atteinte de cette maladie, nous aimerions connaître votre avis!
bit.ly
November 11, 2025 at 5:08 PM
acejointhealth.bsky.social
JointHealth™ express - Call for patient input on roflumilast (Zoryve®) for plaque psoriasis. Send your input to feedback@jointhealth.org.

Learn more: bit.ly/JHECDAPatien...

#patientinput #plaquepsoriasis
Call for patient input on roflumilast (Zoryve®) for plaque psoriasis - Arthritis News
If you are a patient or caregiver of someone living with plaque psoriasis, we want to hear from you!
bit.ly
November 11, 2025 at 5:08 PM
acejointhealth.bsky.social
What good is a breakthrough medication if you can’t afford it? Patent manipulation can keep medication prices artificially high. For patients who can’t afford them, high costs force many to skip or ration their medication.

Learn more: advocacy.jointhealth.org/patients-and...

#PatientsandPatents
November 10, 2025 at 4:00 PM
acejointhealth.bsky.social
Do you have joint #pain?

The Talk to Your Doctor About Joint Pain Handout aims to improve the quality of life for people with arthritis, including their physical activity, sleep, mental health, relationships & work life.

Download here: jointhealth.org/pdfs/TalkDoc...

#NPAW2025
November 7, 2025 at 4:27 PM
acejointhealth.bsky.social
JointHealth™ express - Capsule 296 de #ArthritisAtHome – Médecine sportive dans le traitement de l’arthrite juvénile idiopathique et transcription assistée par intelligence artificielle.

arthritisathome.jointhealth.org?p=6590&lang=fr

#arthritejuvénile

@schroeder-uhn.bsky.social
Capsule 296 de « À la maison avec l’arthrite » – Médecine sportive dans le traitement de l’arthrite juvénile idiopathique et transcription assistée par intelligence artificielle | Arthritis At Home
Cette capsule de « À la maison avec l’arthrite » met en vedette le Dr Tommy Gerschman, rhumatologue pédiatrique exerçant à North Vancouver, en Colombie-Britannique.
arthritisathome.jointhealth.org
November 6, 2025 at 4:59 PM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 296 – Sports medicine in juvenile idiopathic arthritis and artificial intelligence scribing.

Watch now: arthritisathome.jointhealth.org?p=6589

#AI #JIA

@arthritispower.bsky.social
@schroeder-uhn.bsky.social
Arthritis At Home 296 – Sports medicine in juvenile idiopathic arthritis and artificial intelligence scribing | Arthritis At Home
This episode of Arthritis At Home Dr. Tommy Gerschman, a pediatric rheumatologist based in North Vancouver, British Columbia.
arthritisathome.jointhealth.org
November 6, 2025 at 4:58 PM
acejointhealth.bsky.social
JointHealth™ express - Let BC PharmaCare hear Your Voice on upadacitinib (Rinvoq®) for the treatment of giant cell arteritis.

Learn more: bit.ly/JHEBCYourVoi...

#GCA #patientinput

@arthritistrainees.bsky.social
@arthritisdietitian.bsky.social
@inesss.qc.ca
@arthritispower.bsky.social
Let BC PharmaCare hear Your Voice on upadacitinib (Rinvoq®) for the treatment of giant cell arteritis - Arthritis News
BC PharmaCare is looking for your input on upadacitinib (Rinvoq®) for the treatment of giant cell arteritis.
bit.ly
November 5, 2025 at 3:05 PM
acejointhealth.bsky.social
JointHealth™ express - Let BC PharmaCare hear Your Voice on roflumilast cream (Zoryve®) for the treatment of atopic dermatitis in patients 6 years of age and older.

Learn more: bit.ly/JHEBCYourVoi...

#patientinput

@arthritispower.bsky.social
@schroeder-uhn.bsky.social
@lupuschat.bsky.social
Let BC PharmaCare hear Your Voice on roflumilast cream (Zoryve®) for the treatment of atopic dermatitis in patients 6 years of age and older - Arthritis News
BC PharmaCare is looking for your input on roflumilast cream (Zoryve®) for the treatment of atopic dermatitis in patients 6 years of age and older.
bit.ly
November 4, 2025 at 4:55 PM
acejointhealth.bsky.social
It’s National Pain Awareness Week.

The direct and indirect cost of pain in Canada is $40.3B per year? Implementing Government of Canada's Health Action Plan can reduce the toll of pain. Track its progress here: PainCanada.ca/actionplan #NPAW2025

@schroeder-uhn.bsky.social
@inesss.qc.ca
November 3, 2025 at 3:07 PM
acejointhealth.bsky.social
A patent is a form of legal protection that gives a pharmaceutical manufacturer the exclusive right to sell an original-brand medication for a period of time.

Learn more: advocacy.jointhealth.org/patients-and...

#Patientsandpatents
@arthritisdietitian.bsky.social
@arthritispower.bsky.social
November 2, 2025 at 5:15 PM
acejointhealth.bsky.social
JointHealth™ express - Capsule 295 de #ArthritisAtHome – Fiche-rapport 2025 sur les médicaments contre l’arthrite du comité ACE.

Visionner maintenant: arthritisathome.jointhealth.org?p=6578&lang=fr

#ACEAdvocacy @arthritistrainees.bsky.social @arthritisdietitian.bsky.social @inesss.qc.ca
Capsule 295 de « À la maison avec l’arthrite » – Fiche-rapport 2025 sur les médicaments contre l’arthrite du comité ACE | Arthritis At Home
Cette capsule de « À la maison avec l’arthrite » met en vedette Cheryl Koehn, présidente du comité ACE, et Kelly Lendvoy, vice-président chargé des communications et des affaires publiques, également ...
arthritisathome.jointhealth.org
October 30, 2025 at 5:16 PM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 295 – 2025 ACE Report Card on #Arthritis Medication Coverage.

Watch now: arthritisathome.jointhealth.org?p=6576

#ACEAdvocacy #ArthritisActionPlan @arthritispower.bsky.social @schroeder-uhn.bsky.social @lupuschat.bsky.social @fibroandlupus.bsky.social
Arthritis At Home 295 – 2025 ACE Report Card on Arthritis Medication Coverage | Arthritis At Home
This episode of Arthritis At Home features ACE President, Cheryl Koehn, and VP of Communications and Public Affairs, Kelly Lendvoy.
arthritisathome.jointhealth.org
October 30, 2025 at 5:15 PM
acejointhealth.bsky.social
JointHealth™ express - New blog post from Joint Journeys, life with arthritis by Carrie: Wander lust.

She talks about her determination to have time for reflection & rest on her #vanlife journey: bit.ly/JointJourney...

#RA #JointJourneys @arthritispower.bsky.social @arthritisdietitian.bsky.social
Wander lust - Joint Journeys
In her latest blog, Carries talks about her determination to have time for reflection, rejuvenation, connection, and rest on her vanlife journey.
bit.ly
October 29, 2025 at 4:43 PM
acejointhealth.bsky.social
JointHealth™ express - Living with #Lupus in 🇨🇦? We want to hear from you: surveymonkey.com/r/ACELCNatio...

The Survey gives people an opportunity to share their unique experiences & ideas for improving care.

#ACR25 @schroeder-uhn.bsky.social @lupuschat.bsky.social @acr-journals.bsky.social
National Survey on Lupus
Arthritis Consumer Experts (ACE), in partnership with Lupus Canada, has launched the National Lupus Survey to learn directly from people living with lupus about their care experiences, challenges, and...
surveymonkey.com
October 28, 2025 at 11:36 PM
acejointhealth.bsky.social
JointHealth™ express - The 10th Annual Patients Redefining the Future of Health Care in Canada Summit is happening Nov.25 - 27, 2025.

Click here to register for free: bit.ly/PatientsRede...

@schroeder-uhn.bsky.social @arthritispower.bsky.social @acr-journals.bsky.social @patientled.bsky.social
October 23, 2025 at 12:16 AM
Reposted by Arthritis Consumer Experts & JointHealth™ Programs
jrheumatol.bsky.social
Panorama

The Stars Align: The Incredible Discovery Story of VEXAS

📖 doi.org/10.3899/jrhe...
@columbiauniversity.bsky.social

#VEXASSyndrome #Rheumatology
October 21, 2025 at 4:19 PM
Reposted by Arthritis Consumer Experts & JointHealth™ Programs
acr-journals.bsky.social
Comparing agreement between prescription claims and self-reported medication use in the Australian Rheumatology Association Database showed moderate to high agreement. Poorer physical function & worse overall health may affect reliability of self-reported med data

ACROR
doi.org/10.1002/acr2...
Agreement Between Self-Reported Antirheumatic Medications and Pharmaceutical Claims in an Australian Inflammatory Arthritis Cohort. A graphical abstract
October 21, 2025 at 4:27 PM
acejointhealth.bsky.social
JointHealth™ express - Invitation to Digestive Cancers Europe’s “Patents: Empowering advocates through knowledge” webinar on November 6, 2025.

Click here to register: bit.ly/DiCEPatentWe...

#MakingAccessHappen #PatientsandPatents
@schroeder-uhn.bsky.social @acr-journals.bsky.social
Patents: Empowering Advocates Through Knowledge
bit.ly
October 21, 2025 at 4:45 PM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 294 – Metabolic stress remodelling systemic sclerosis (scleroderma). Watch now: arthritisathome.jointhealth.org?p=6545

#CRArthritis @arthritispower.bsky.social @sclerodermastrong.bsky.social @schroeder-uhn.bsky.social @jarproject.bsky.social
Arthritis At Home 294 – Metabolic stress remodelling systemic sclerosis (scleroderma) | Arthritis At Home
This episode of Arthritis At Home Ms. Lamia Khan, a PhD Candidate in the Rheumatology Division of the Department of Medicine in the University of Alberta.
arthritisathome.jointhealth.org
October 16, 2025 at 5:26 PM