🦋 Dr @go-daniel.bsky.social has just finished an amazing Meet the Doctor session full of great questions and discussions!
💜 A huge thank you to Dr Daniel Guimarães de Oliveira for his outstanding support and full dedication throughout our #LupusConvention. You went the extra mile!
💜 A huge thank you to Dr Daniel Guimarães de Oliveira for his outstanding support and full dedication throughout our #LupusConvention. You went the extra mile!
October 5, 2025 at 3:30 PM
🦋 Dr @go-daniel.bsky.social has just finished an amazing Meet the Doctor session full of great questions and discussions!
💜 A huge thank you to Dr Daniel Guimarães de Oliveira for his outstanding support and full dedication throughout our #LupusConvention. You went the extra mile!
💜 A huge thank you to Dr Daniel Guimarães de Oliveira for his outstanding support and full dedication throughout our #LupusConvention. You went the extra mile!
💜 It’s official — our #LupusConvention 2025 is now open!
Our Chair Jeanette Andersen kicked things off with an inspiring message under this year’s theme: “Every Voice Matters.”
✨ We’re thrilled to see so many delegates from across Europe joining us in person!
Our Chair Jeanette Andersen kicked things off with an inspiring message under this year’s theme: “Every Voice Matters.”
✨ We’re thrilled to see so many delegates from across Europe joining us in person!
October 4, 2025 at 8:02 AM
💜 It’s official — our #LupusConvention 2025 is now open!
Our Chair Jeanette Andersen kicked things off with an inspiring message under this year’s theme: “Every Voice Matters.”
✨ We’re thrilled to see so many delegates from across Europe joining us in person!
Our Chair Jeanette Andersen kicked things off with an inspiring message under this year’s theme: “Every Voice Matters.”
✨ We’re thrilled to see so many delegates from across Europe joining us in person!
🚨 We all have biases.
🌟 At #LupusConvention, Andreas Panteli from Lupus Suisse invites us to recognise them — and to step beyond them, so we can better understand, represent and support the lupus community.
🌈 What an amazing session!
🌟 At #LupusConvention, Andreas Panteli from Lupus Suisse invites us to recognise them — and to step beyond them, so we can better understand, represent and support the lupus community.
🌈 What an amazing session!
October 4, 2025 at 2:46 PM
🚨 We all have biases.
🌟 At #LupusConvention, Andreas Panteli from Lupus Suisse invites us to recognise them — and to step beyond them, so we can better understand, represent and support the lupus community.
🌈 What an amazing session!
🌟 At #LupusConvention, Andreas Panteli from Lupus Suisse invites us to recognise them — and to step beyond them, so we can better understand, represent and support the lupus community.
🌈 What an amazing session!
🖼️ The Poster Tour begins at our #LupusConvention!
💜 Our members showcase their projects, sharing ideas and experiences from across Europe — and our Youth Group presents a thought-provoking poster on Sex & Lupus
💜 Our members showcase their projects, sharing ideas and experiences from across Europe — and our Youth Group presents a thought-provoking poster on Sex & Lupus
October 4, 2025 at 4:04 PM
🖼️ The Poster Tour begins at our #LupusConvention!
💜 Our members showcase their projects, sharing ideas and experiences from across Europe — and our Youth Group presents a thought-provoking poster on Sex & Lupus
💜 Our members showcase their projects, sharing ideas and experiences from across Europe — and our Youth Group presents a thought-provoking poster on Sex & Lupus
🩺Important message from Dr Maarten Limper: “New is not necessarily better.”
With new options like CAR-T emerging, it’s key to remember that old doesn’t mean outdated or worse: established treatments bring years of experience & safety data. The more, the better!
#LupusConvention
With new options like CAR-T emerging, it’s key to remember that old doesn’t mean outdated or worse: established treatments bring years of experience & safety data. The more, the better!
#LupusConvention
October 4, 2025 at 8:12 AM
🩺Important message from Dr Maarten Limper: “New is not necessarily better.”
With new options like CAR-T emerging, it’s key to remember that old doesn’t mean outdated or worse: established treatments bring years of experience & safety data. The more, the better!
#LupusConvention
With new options like CAR-T emerging, it’s key to remember that old doesn’t mean outdated or worse: established treatments bring years of experience & safety data. The more, the better!
#LupusConvention
🌳 Yesterday, our tree showed Lupus Europe’s achievements.
🌈 Today, our members added theirs — and it’s now full of life.
✨ What a beautiful symbol of everything we can achieve together as one strong, connected lupus community across Europe!
#LupusConvention
🌈 Today, our members added theirs — and it’s now full of life.
✨ What a beautiful symbol of everything we can achieve together as one strong, connected lupus community across Europe!
#LupusConvention
October 5, 2025 at 2:19 PM
🌳 Yesterday, our tree showed Lupus Europe’s achievements.
🌈 Today, our members added theirs — and it’s now full of life.
✨ What a beautiful symbol of everything we can achieve together as one strong, connected lupus community across Europe!
#LupusConvention
🌈 Today, our members added theirs — and it’s now full of life.
✨ What a beautiful symbol of everything we can achieve together as one strong, connected lupus community across Europe!
#LupusConvention
💜Last day of our #LupusConvention!
Giuseppe Turchetti from ERN ReCONNET joins us to discuss the ongoing collaboration with Lupus Europe to build a more structured, coordinated, patient-centred approach to lupus care, & a joint project on the economic cost of lupus.
😃Stay tuned!
Giuseppe Turchetti from ERN ReCONNET joins us to discuss the ongoing collaboration with Lupus Europe to build a more structured, coordinated, patient-centred approach to lupus care, & a joint project on the economic cost of lupus.
😃Stay tuned!
October 6, 2025 at 7:48 AM
💜Last day of our #LupusConvention!
Giuseppe Turchetti from ERN ReCONNET joins us to discuss the ongoing collaboration with Lupus Europe to build a more structured, coordinated, patient-centred approach to lupus care, & a joint project on the economic cost of lupus.
😃Stay tuned!
Giuseppe Turchetti from ERN ReCONNET joins us to discuss the ongoing collaboration with Lupus Europe to build a more structured, coordinated, patient-centred approach to lupus care, & a joint project on the economic cost of lupus.
😃Stay tuned!
Day 3 of @LupusEurope #lupusconvention and this morning Alida will be presenting from @LUPUSUK
November 21, 2024 at 8:26 PM
Day 3 of @LupusEurope #lupusconvention and this morning Alida will be presenting from @LUPUSUK
🇧🇪 Spotlight on Lupus Belgium!
At our #LupusConvention, ASBL Lupus Erythematosus Association showcased inspiring initiatives empowering people living with lupus. From yoga & therapeutic workshops to their magazine Le Lien & new website!
👏 Congratulations for your amazing work!
At our #LupusConvention, ASBL Lupus Erythematosus Association showcased inspiring initiatives empowering people living with lupus. From yoga & therapeutic workshops to their magazine Le Lien & new website!
👏 Congratulations for your amazing work!
October 27, 2025 at 4:03 PM
🇧🇪 Spotlight on Lupus Belgium!
At our #LupusConvention, ASBL Lupus Erythematosus Association showcased inspiring initiatives empowering people living with lupus. From yoga & therapeutic workshops to their magazine Le Lien & new website!
👏 Congratulations for your amazing work!
At our #LupusConvention, ASBL Lupus Erythematosus Association showcased inspiring initiatives empowering people living with lupus. From yoga & therapeutic workshops to their magazine Le Lien & new website!
👏 Congratulations for your amazing work!
Today the theme was all out volunteering at #lupusconvention . I worked in a workshop about code of conduct which was led by @LittleSomers @LupusEurope
November 21, 2024 at 8:26 PM
Today the theme was all out volunteering at #lupusconvention . I worked in a workshop about code of conduct which was led by @LittleSomers @LupusEurope
💜 In a #LupusConvention themed “Every Voice Matters,” our Youth Group couldn’t be missing!
🙌 During their session, they shared key challenges that call for a youth-specific space and showed how young voices can bring fresh perspectives and drive change into lupus care
🙌 During their session, they shared key challenges that call for a youth-specific space and showed how young voices can bring fresh perspectives and drive change into lupus care
October 5, 2025 at 11:25 AM
💜 In a #LupusConvention themed “Every Voice Matters,” our Youth Group couldn’t be missing!
🙌 During their session, they shared key challenges that call for a youth-specific space and showed how young voices can bring fresh perspectives and drive change into lupus care
🙌 During their session, they shared key challenges that call for a youth-specific space and showed how young voices can bring fresh perspectives and drive change into lupus care
🇮🇸 Spotlight on Lupus Iceland!
At our #LupusConvention, Lupus Iceland's poster showed why patient orgs are essential: they identify unmet needs & work towards practical solutions.
Did you know they import sun protection products, like hats & sunscreen, not sold in Iceland? 😍
At our #LupusConvention, Lupus Iceland's poster showed why patient orgs are essential: they identify unmet needs & work towards practical solutions.
Did you know they import sun protection products, like hats & sunscreen, not sold in Iceland? 😍
November 4, 2025 at 4:51 PM
🇮🇸 Spotlight on Lupus Iceland!
At our #LupusConvention, Lupus Iceland's poster showed why patient orgs are essential: they identify unmet needs & work towards practical solutions.
Did you know they import sun protection products, like hats & sunscreen, not sold in Iceland? 😍
At our #LupusConvention, Lupus Iceland's poster showed why patient orgs are essential: they identify unmet needs & work towards practical solutions.
Did you know they import sun protection products, like hats & sunscreen, not sold in Iceland? 😍
‼️ Men with lupus face unique challenges that deserve attention.
Andreas Panteli presents a poster on Men and Lupus, highlighting the importance of recognising their specific needs and experiences.
👀 Stay tuned for our upcoming Patient Panel for Men!
#LupusConvention
Andreas Panteli presents a poster on Men and Lupus, highlighting the importance of recognising their specific needs and experiences.
👀 Stay tuned for our upcoming Patient Panel for Men!
#LupusConvention
October 4, 2025 at 4:07 PM
‼️ Men with lupus face unique challenges that deserve attention.
Andreas Panteli presents a poster on Men and Lupus, highlighting the importance of recognising their specific needs and experiences.
👀 Stay tuned for our upcoming Patient Panel for Men!
#LupusConvention
Andreas Panteli presents a poster on Men and Lupus, highlighting the importance of recognising their specific needs and experiences.
👀 Stay tuned for our upcoming Patient Panel for Men!
#LupusConvention
😃 Dr @go-daniel.bsky.social explores now how social determinants of health —income, education, geography, health literacy & stigma—shape lupus outcomes from diagnosis to long-term care.
Based on our joint review, co-authored by patients & clinicians https://t.co/OXq9YGUddD
#LupusConvention
Based on our joint review, co-authored by patients & clinicians https://t.co/OXq9YGUddD
#LupusConvention
October 4, 2025 at 11:30 AM
😃 Dr @go-daniel.bsky.social explores now how social determinants of health —income, education, geography, health literacy & stigma—shape lupus outcomes from diagnosis to long-term care.
Based on our joint review, co-authored by patients & clinicians https://t.co/OXq9YGUddD
#LupusConvention
Based on our joint review, co-authored by patients & clinicians https://t.co/OXq9YGUddD
#LupusConvention
Factors like diagnosis delay, organ damage, age, disease activity, flares & socioeconomic status can have an impact on direct costs of lupus.
Economic evaluation should include direct, indirect & intangible costs, according to Giuseppe Turchetti from ERN ReCONNET
#LupusConvention
Economic evaluation should include direct, indirect & intangible costs, according to Giuseppe Turchetti from ERN ReCONNET
#LupusConvention
October 6, 2025 at 7:59 AM
Factors like diagnosis delay, organ damage, age, disease activity, flares & socioeconomic status can have an impact on direct costs of lupus.
Economic evaluation should include direct, indirect & intangible costs, according to Giuseppe Turchetti from ERN ReCONNET
#LupusConvention
Economic evaluation should include direct, indirect & intangible costs, according to Giuseppe Turchetti from ERN ReCONNET
#LupusConvention
🇮🇹 Spotlight on Gruppo Italiano LES!
🌸At our #LupusConvention, our Italian member organisation showcased inspiring initiatives to improve lupus care & awareness. From monthly live broadcasts with lupus experts to supporting clinics & campaigns like Your Voice Matters & SLE is More
🌸At our #LupusConvention, our Italian member organisation showcased inspiring initiatives to improve lupus care & awareness. From monthly live broadcasts with lupus experts to supporting clinics & campaigns like Your Voice Matters & SLE is More
November 11, 2025 at 5:04 PM
🇮🇹 Spotlight on Gruppo Italiano LES!
🌸At our #LupusConvention, our Italian member organisation showcased inspiring initiatives to improve lupus care & awareness. From monthly live broadcasts with lupus experts to supporting clinics & campaigns like Your Voice Matters & SLE is More
🌸At our #LupusConvention, our Italian member organisation showcased inspiring initiatives to improve lupus care & awareness. From monthly live broadcasts with lupus experts to supporting clinics & campaigns like Your Voice Matters & SLE is More
💜 It’s time for the parallel workshops at our #LupusConvention 2025!
🗣️Delegates are working in groups to share ideas, experiences and solutions around this year’s theme: Every Voice Matters.
Such an enriching moment of exchange and learning from each other!
🗣️Delegates are working in groups to share ideas, experiences and solutions around this year’s theme: Every Voice Matters.
Such an enriching moment of exchange and learning from each other!
October 4, 2025 at 1:28 PM
💜 It’s time for the parallel workshops at our #LupusConvention 2025!
🗣️Delegates are working in groups to share ideas, experiences and solutions around this year’s theme: Every Voice Matters.
Such an enriching moment of exchange and learning from each other!
🗣️Delegates are working in groups to share ideas, experiences and solutions around this year’s theme: Every Voice Matters.
Such an enriching moment of exchange and learning from each other!
Early start as I head to Lisbon for @LupusEurope #lupusconvention . Really looking forward to meeting and learning lots from colleagues across Europe!
November 21, 2024 at 8:26 PM
Early start as I head to Lisbon for @LupusEurope #lupusconvention . Really looking forward to meeting and learning lots from colleagues across Europe!
🤩 Dr Maarten Limper takes the stage at our #LupusConvention!
✅ From new #EULAR, ACR & KDIGO lupus nephritis guidelines to advances like anifrolumab & CAR-T, he shows how far science has come — & the key role of European Reference Networks in connecting expertise across borders
✅ From new #EULAR, ACR & KDIGO lupus nephritis guidelines to advances like anifrolumab & CAR-T, he shows how far science has come — & the key role of European Reference Networks in connecting expertise across borders
October 4, 2025 at 8:10 AM
🤩 Dr Maarten Limper takes the stage at our #LupusConvention!
✅ From new #EULAR, ACR & KDIGO lupus nephritis guidelines to advances like anifrolumab & CAR-T, he shows how far science has come — & the key role of European Reference Networks in connecting expertise across borders
✅ From new #EULAR, ACR & KDIGO lupus nephritis guidelines to advances like anifrolumab & CAR-T, he shows how far science has come — & the key role of European Reference Networks in connecting expertise across borders
💁♀️ Our Chair Jeanette Andersen leads the HTA Summit Introduction at #LupusConvention 2025!
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
October 4, 2025 at 2:37 PM
💁♀️ Our Chair Jeanette Andersen leads the HTA Summit Introduction at #LupusConvention 2025!
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
💜 We are so proud of our members!
This Poster Tour at our #LupusConvention shows the creativity, commitment & synergies of our national member groups.
🦋 From running events to patient education projects, this session is proof of the incredible potential of patient advocates!
This Poster Tour at our #LupusConvention shows the creativity, commitment & synergies of our national member groups.
🦋 From running events to patient education projects, this session is proof of the incredible potential of patient advocates!
October 4, 2025 at 4:05 PM
💜 We are so proud of our members!
This Poster Tour at our #LupusConvention shows the creativity, commitment & synergies of our national member groups.
🦋 From running events to patient education projects, this session is proof of the incredible potential of patient advocates!
This Poster Tour at our #LupusConvention shows the creativity, commitment & synergies of our national member groups.
🦋 From running events to patient education projects, this session is proof of the incredible potential of patient advocates!
At our #LupusConvention, our Czech member organisation impressed us with an inspiring poster showcasing their wide range of initiatives for people with lupus. From psychological support to exercise, they cover it all!
Congratulations, & keep it up!
Congratulations, & keep it up!
October 20, 2025 at 2:07 PM
At our #LupusConvention, our Czech member organisation impressed us with an inspiring poster showcasing their wide range of initiatives for people with lupus. From psychological support to exercise, they cover it all!
Congratulations, & keep it up!
Congratulations, & keep it up!
As I get ready to leave Lisbon after a wonderful few days at @LupusEurope #lupusconvention my reflection is that volunteers are the backbone of the #lupus movement. Without patients, families, drs, researchers we would not see the great improvements for lupus care across Europe!
November 21, 2024 at 8:26 PM
As I get ready to leave Lisbon after a wonderful few days at @LupusEurope #lupusconvention my reflection is that volunteers are the backbone of the #lupus movement. Without patients, families, drs, researchers we would not see the great improvements for lupus care across Europe!
Day 1 of #lupusconvention complete. So many ideas shared over dinner. Delegates from Russia, Norway, Germany, Netherlands, Belgium and Italy. Really looking forward to day 2.
November 21, 2024 at 8:26 PM
Day 1 of #lupusconvention complete. So many ideas shared over dinner. Delegates from Russia, Norway, Germany, Netherlands, Belgium and Italy. Really looking forward to day 2.