Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story.
#KnowYourNormal #SarcomaAwarenessMonth2025
#KnowYourNormal #SarcomaAwarenessMonth2025
July 23, 2025 at 10:01 AM
Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story.
#KnowYourNormal #SarcomaAwarenessMonth2025
#KnowYourNormal #SarcomaAwarenessMonth2025
Share the moment you first thought, “This isn’t normal.”
Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.
#SarcomaAwarenessMonth2025 #KnowYourNormal
Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.
#SarcomaAwarenessMonth2025 #KnowYourNormal
July 3, 2025 at 5:36 AM
Share the moment you first thought, “This isn’t normal.”
Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.
#SarcomaAwarenessMonth2025 #KnowYourNormal
Maybe you found a painless lump, noticed night‑time bone pain, or something was simply *off*. What made you trust your instincts & seek answers. Your story could save others months of uncertainty.
#SarcomaAwarenessMonth2025 #KnowYourNormal
🎗️ What does quality of life mean during and after radiotherapy for sarcoma?
In a new interview, SPAGN speaks with Dr. Siyer Roohani, a radiation oncologist based in Berlin who just concluded a research project in Toronto.
Read more: ➡️ bit.ly/SPAGNblog_QoL
#SarcomaAwarenessMonth2025
In a new interview, SPAGN speaks with Dr. Siyer Roohani, a radiation oncologist based in Berlin who just concluded a research project in Toronto.
Read more: ➡️ bit.ly/SPAGNblog_QoL
#SarcomaAwarenessMonth2025
How to improve quality of life during and after radiotherapy? Sarcoma practice and research in large university clinics in Toronto and Berlin - SPAGN - Sarcoma Patient Advocacy Global Network
The winner of this year’s research grant of the German Sarcoma Foundation, Dr. Siyer Roohani, decided to go to Canada to deepen his sarcoma expertise. A soon-to-be radiation oncology specialist for sa...
bit.ly
July 4, 2025 at 4:39 PM
🎗️ What does quality of life mean during and after radiotherapy for sarcoma?
In a new interview, SPAGN speaks with Dr. Siyer Roohani, a radiation oncologist based in Berlin who just concluded a research project in Toronto.
Read more: ➡️ bit.ly/SPAGNblog_QoL
#SarcomaAwarenessMonth2025
In a new interview, SPAGN speaks with Dr. Siyer Roohani, a radiation oncologist based in Berlin who just concluded a research project in Toronto.
Read more: ➡️ bit.ly/SPAGNblog_QoL
#SarcomaAwarenessMonth2025
Annie of the National Leiomyosarcoma Foundation (NLMSF) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee.
#KnowYourNormal #SarcomaAwarenessMonth2025
#KnowYourNormal #SarcomaAwarenessMonth2025
July 23, 2025 at 2:02 PM
Annie of the National Leiomyosarcoma Foundation (NLMSF) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee.
#KnowYourNormal #SarcomaAwarenessMonth2025
#KnowYourNormal #SarcomaAwarenessMonth2025
Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛
#SarcomaAwarenessMonth2025 #RareButNotAlone
#SarcomaAwarenessMonth2025 #RareButNotAlone
July 24, 2025 at 8:00 AM
Look back on your sarcoma journey and think of the people who never let you walk alone. Tag them and share one thing they did that carried you through. SPAGN’s member groups across the globe create a support network for thousands.💛
#SarcomaAwarenessMonth2025 #RareButNotAlone
#SarcomaAwarenessMonth2025 #RareButNotAlone
Wilker is an #LMS patient from Brazil, an oncology pharmacist and an advocate w/Sarcomunicandonos America Latina. Today he shares the story of his journey to his diagnosis and the emotional toll that led him into patient advocacy.
#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday
#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday
July 15, 2025 at 1:32 PM
Wilker is an #LMS patient from Brazil, an oncology pharmacist and an advocate w/Sarcomunicandonos America Latina. Today he shares the story of his journey to his diagnosis and the emotional toll that led him into patient advocacy.
#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday
#SarcomaAwarenessMonth2025 #KnowYourNormal #LMSawarenessday
We #wearyellow to show our solidarity with everyone impacted by #sarcoma. Whether you are a patient or a caregiver, know that you are not alone in your journey.
#SarcomaAwarenessMonth2025 #PatientAdvocacy
#SarcomaAwarenessMonth2025 #PatientAdvocacy
July 9, 2025 at 5:51 PM
We #wearyellow to show our solidarity with everyone impacted by #sarcoma. Whether you are a patient or a caregiver, know that you are not alone in your journey.
#SarcomaAwarenessMonth2025 #PatientAdvocacy
#SarcomaAwarenessMonth2025 #PatientAdvocacy
If a lump is growing, even if painless, ask for imaging. If bone or soft-tissue pain wakes you at night or lingers longer than a month, push for an answer. These red flags can lead you to a critical early diagnosis.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
July 22, 2025 at 9:01 AM
If a lump is growing, even if painless, ask for imaging. If bone or soft-tissue pain wakes you at night or lingers longer than a month, push for an answer. These red flags can lead you to a critical early diagnosis.
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
Our friends at @curesarcoma.bsky.social have coordinated the #LightUpForSarcoma campaign for years. Now, it's going global. Join our members & post a photo of local landmarks and homes lit up with yellow to bring awareness to these rare cancers. You are not alone.
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
July 25, 2025 at 8:00 AM
Our friends at @curesarcoma.bsky.social have coordinated the #LightUpForSarcoma campaign for years. Now, it's going global. Join our members & post a photo of local landmarks and homes lit up with yellow to bring awareness to these rare cancers. You are not alone.
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
HEALTH CARE PROVIDERS: Don’t dismiss it. Learn the red flags for potential sarcoma & help your patients get clear answers, quickly.
Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
July 19, 2025 at 9:00 AM
HEALTH CARE PROVIDERS: Don’t dismiss it. Learn the red flags for potential sarcoma & help your patients get clear answers, quickly.
Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
Primary care is often the only window to intercept sarcoma early. Commit to “no non‑answers.”
#SarcomaAwarenessMonth2025 #SarcomaSignsAndSymptoms
Sarcomas can be isolating, but you are not alone. Three tips:
1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers
2️⃣ Join patient support groups on social media
3️⃣ Share your story, what questions to ask, and what worked for you.
#SarcomaAwarenessMonth2025
1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers
2️⃣ Join patient support groups on social media
3️⃣ Share your story, what questions to ask, and what worked for you.
#SarcomaAwarenessMonth2025
July 26, 2025 at 9:00 AM
Sarcomas can be isolating, but you are not alone. Three tips:
1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers
2️⃣ Join patient support groups on social media
3️⃣ Share your story, what questions to ask, and what worked for you.
#SarcomaAwarenessMonth2025
1️⃣ Find a patient support group near you at bit.ly/SPAGNmembers
2️⃣ Join patient support groups on social media
3️⃣ Share your story, what questions to ask, and what worked for you.
#SarcomaAwarenessMonth2025
We have lots of stories to share this month! Here's a sneak peek of what's to come. Hear their stories, share your own, and spread the word!
#SarcomaAwarenessMonth2025
#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth2025
#KnowYourNormal
#SarcomaSignsAndSymptoms
July 2, 2025 at 2:45 AM
We have lots of stories to share this month! Here's a sneak peek of what's to come. Hear their stories, share your own, and spread the word!
#SarcomaAwarenessMonth2025
#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth2025
#KnowYourNormal
#SarcomaSignsAndSymptoms
Dr. Roohani shares how sarcoma care must center the whole person. Treatment success is not just about tumor control. It is also about supporting long-term health, dignity, and daily life after cancer.
#SarcomaAwarenessMonth2025 #Sarcoma #PatientAdvocacy
#SarcomaAwarenessMonth2025 #Sarcoma #PatientAdvocacy
July 4, 2025 at 4:39 PM
Dr. Roohani shares how sarcoma care must center the whole person. Treatment success is not just about tumor control. It is also about supporting long-term health, dignity, and daily life after cancer.
#SarcomaAwarenessMonth2025 #Sarcoma #PatientAdvocacy
#SarcomaAwarenessMonth2025 #Sarcoma #PatientAdvocacy
Trek woensdag iets geels aan, maak een selfie en tag ons!
💛 Toon je steun aan sarcoompatiënten.
Samen laten we zien: jij bent niet alleen.
#cumcura #sarcomapatients #SarcomaAwarenessMonth #SarcomaAwarenessMonth2025 #SAM2025
💛 Toon je steun aan sarcoompatiënten.
Samen laten we zien: jij bent niet alleen.
#cumcura #sarcomapatients #SarcomaAwarenessMonth #SarcomaAwarenessMonth2025 #SAM2025
July 5, 2025 at 9:46 PM
Trek woensdag iets geels aan, maak een selfie en tag ons!
💛 Toon je steun aan sarcoompatiënten.
Samen laten we zien: jij bent niet alleen.
#cumcura #sarcomapatients #SarcomaAwarenessMonth #SarcomaAwarenessMonth2025 #SAM2025
💛 Toon je steun aan sarcoompatiënten.
Samen laten we zien: jij bent niet alleen.
#cumcura #sarcomapatients #SarcomaAwarenessMonth #SarcomaAwarenessMonth2025 #SAM2025
Tasha of @curesarcoma.bsky.social had a sore throat that refused to go away. They ruled out COVID and strep before a lump began to grow. Guess how many doctors she had to see before she got a diagnosis? Watch and find out.
#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma
#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma
July 14, 2025 at 12:32 PM
Tasha of @curesarcoma.bsky.social had a sore throat that refused to go away. They ruled out COVID and strep before a lump began to grow. Guess how many doctors she had to see before she got a diagnosis? Watch and find out.
#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma
#SarcomaAwarenessMonth2025 #KnowYourNormal #rhabdomyosarcoma
Drop that selfie in yellow 🟡! Let’s fill up the feed with sunshine so no sarcoma patient feels alone. Tag #SarcomaAwarenessMonth2025 and tell us who you’re wearing yellow for.
#WearYellowWednesday #SarcomaAwareness
#WearYellowWednesday #SarcomaAwareness
July 9, 2025 at 5:53 PM
Drop that selfie in yellow 🟡! Let’s fill up the feed with sunshine so no sarcoma patient feels alone. Tag #SarcomaAwarenessMonth2025 and tell us who you’re wearing yellow for.
#WearYellowWednesday #SarcomaAwareness
#WearYellowWednesday #SarcomaAwareness
#Sarcomas are rare cancers with 100+ subtypes, and the initial symptoms can surprise you. Join us thru July for a journey through the sarcoma experience, and learn about the global sarcoma community that is working together, making a difference!
#SarcomaAwarenessMonth2025
2/2
#SarcomaAwarenessMonth2025
2/2
July 2, 2025 at 2:23 AM
#Sarcomas are rare cancers with 100+ subtypes, and the initial symptoms can surprise you. Join us thru July for a journey through the sarcoma experience, and learn about the global sarcoma community that is working together, making a difference!
#SarcomaAwarenessMonth2025
2/2
#SarcomaAwarenessMonth2025
2/2
The first place you go when something isn't "normal" is usually your family doctor. But few Primary Care Providers can recognize the signs of sarcomas. #KnowYourNormal: Even if your doctor doesn’t suspect a serious illness, listen to your body & insist on clear answers.
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
July 2, 2025 at 2:51 AM
The first place you go when something isn't "normal" is usually your family doctor. But few Primary Care Providers can recognize the signs of sarcomas. #KnowYourNormal: Even if your doctor doesn’t suspect a serious illness, listen to your body & insist on clear answers.
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
July is #SarcomaAwarenessMonth2025. Wear something yellow today 7/9 to show your support! #CanSky
July 9, 2025 at 9:15 AM
July is #SarcomaAwarenessMonth2025. Wear something yellow today 7/9 to show your support! #CanSky
Next Wednesday we’ll flood feeds with yellow to show sarcoma fighters they’re seen. Snap something yellow 🟡, tag us, and let’s paint timelines bright!
#SarcomaAwarenessMonth2025 #PatientAdvocate #Sarcoma
#SarcomaAwarenessMonth2025 #PatientAdvocate #Sarcoma
July 2, 2025 at 4:19 PM
Next Wednesday we’ll flood feeds with yellow to show sarcoma fighters they’re seen. Snap something yellow 🟡, tag us, and let’s paint timelines bright!
#SarcomaAwarenessMonth2025 #PatientAdvocate #Sarcoma
#SarcomaAwarenessMonth2025 #PatientAdvocate #Sarcoma
Constant or recurring pain is a sign that something is not normal. Don't settle for half answers. Ask for all the tests you need to get a clear diagnosis and a path forward.
Many thanks to Kelli of Sarcoma Cancer Ireland for sharing their family's story!
#SarcomaAwarenessMonth2025
Many thanks to Kelli of Sarcoma Cancer Ireland for sharing their family's story!
#SarcomaAwarenessMonth2025
July 7, 2025 at 7:19 AM
Constant or recurring pain is a sign that something is not normal. Don't settle for half answers. Ask for all the tests you need to get a clear diagnosis and a path forward.
Many thanks to Kelli of Sarcoma Cancer Ireland for sharing their family's story!
#SarcomaAwarenessMonth2025
Many thanks to Kelli of Sarcoma Cancer Ireland for sharing their family's story!
#SarcomaAwarenessMonth2025
Early symptoms of PEComa may include:
• A lump or swelling
• Ongoing bloating or pressure
• Pain in the belly or pelvis
• Irregular bleeding
• Chest pain or cough
• Fatigue or unexplained weight loss
#SarcomaAwarenessMonth2025
2/3
• A lump or swelling
• Ongoing bloating or pressure
• Pain in the belly or pelvis
• Irregular bleeding
• Chest pain or cough
• Fatigue or unexplained weight loss
#SarcomaAwarenessMonth2025
2/3
July 12, 2025 at 1:36 PM
Early symptoms of PEComa may include:
• A lump or swelling
• Ongoing bloating or pressure
• Pain in the belly or pelvis
• Irregular bleeding
• Chest pain or cough
• Fatigue or unexplained weight loss
#SarcomaAwarenessMonth2025
2/3
• A lump or swelling
• Ongoing bloating or pressure
• Pain in the belly or pelvis
• Irregular bleeding
• Chest pain or cough
• Fatigue or unexplained weight loss
#SarcomaAwarenessMonth2025
2/3
Dr. Mitch of National Leiomyosarcoma Foundation was having a normal day until the sudden onset of his symptoms after working out. A rush to the ER led to a biopsy that revealed #leiomyosarcoma. You #KnowYourNormal, if something is wrong don't brush it off. Get it checked!
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
July 2, 2025 at 6:33 AM
Dr. Mitch of National Leiomyosarcoma Foundation was having a normal day until the sudden onset of his symptoms after working out. A rush to the ER led to a biopsy that revealed #leiomyosarcoma. You #KnowYourNormal, if something is wrong don't brush it off. Get it checked!
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
We are stronger together. SPAGN is a network of nearly 70 national patient advocacy groups specializing in different subtypes of sarcomas. Do you represent a sarcoma advocacy group? Visit bit.ly/SPAGNmembers to learn more about membership.
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
July 29, 2025 at 11:01 AM
We are stronger together. SPAGN is a network of nearly 70 national patient advocacy groups specializing in different subtypes of sarcomas. Do you represent a sarcoma advocacy group? Visit bit.ly/SPAGNmembers to learn more about membership.
#SarcomaAwarenessMonth2025
#SarcomaAwarenessMonth2025
Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story.
#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma
#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma
July 14, 2025 at 3:32 PM
Christina's son Dylan told her his shoulder hurt after falling down at school. They went straight to the ER for an evaluation. That evening, she got a really unusual call from the doctor. Hear her story.
#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma
#SarcomaAwarenessMonth2025 #KnowYourNormal #osteosarcoma