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Tom Kindlon

@tomkindlon.bsky.social

Exciting to see this 🔥

Specialised care for severely affected ME/CFS patients

Free:
www.tandfonline.com/doi/full/10....

Would be great to have such facilities in countries around the world. Approach is very different from the (inappropriate/dangerous) rehab/BPS approach

#MEcfs #SevereME #PwME

ABSTRACTIntroduction: A specialised care unit for severely and very severelyill ME/CFS patients opened in 2021. The results from the first 3 yearsare reported.Methods: People with ME/CFS who were diagnosed according tothe Canadian Consensus Criteria, who are aged 18 or above withsevere or very severe ME/CFS according to the UK NICEguidelines, are eligible to stay at Røysumtunet. The study designis a retrospective review of medical records.Results: Between June 2021 and June 2024, 24 ME/CFS patients, 20women and 4 men with a confirmed diagnosis of ME, wereadmitted to the unit for stays of at least 3 months. Seventeenwere very severely affected and 7 were severely affected. Agesranged from 18 to 68 years, with mean (SD) 37.5 (12.8) years.Seven patients showed significant improvement (p < 0.01), andfive others showed some improvement. In total 50% improved (p< 0.01). Patients who improved were borderline significantlyyounger than those who did not, with a mean age of 30.3 (SD12.6) years compared to 39.8 (SD 11.8) years (p = 0.06). The meanduration of disease was 2.3 (1.3) years for those who improvedversus 6.7 (3.9) years for those who did not improve (p < 0.05).Conclusion: This is the first report of a specialised care unit for themost severely ill ME/CFS patients. Fifty per cent of patients showedsignificant or partial improvement. The mechanisms behind theseimprovements are discussed but require further exploration infuture studies.

October 1, 2025 at 6:54 PM

Dr Arghya Sarkhel

@drarghyasarkhel.bsky.social

Day 2 at #RCPsych2025 began mindfully—connecting senses & movement to nurture calm & emotional regulation. Grateful for this experiential session, aligning with #NICEguidelines, to thrive in healthcare’s challenges. #Psychiatry #Wellbeing #Mindfulness #Gratitude

June 25, 2025 at 12:20 AM

Nutriri

@nutriri.bsky.social

#MeasureHealthNotWeight had fun today making a #Nutriri' video to share that #TheLancet and #NICEguidelines are in
agreement that higher weight is being over-diagnosed and over-treated and that #WeightStigma is a major barrier to health and healthcare

January 25, 2025 at 6:55 PM

UKABIF

@ukabif.bsky.social

📣 FIND OUT MORE ABOUT OUR 2025 SUMMIT! 📣

👉 Secure your place at the UKABIF Summit today as places are booking up extremely fast: ukabif.org.uk/page/Summit2...

#UKABIF2025 #Neurorehabilitation #NICEguidelines #Neurology #BrainInjury
#AcquiredBrainInjury

September 29, 2025 at 6:22 PM

sarah boothby

@swastrosarah.bsky.social

Natasha Devon's team has made contact. Schedule yet to be finalised.
#ME #LongCovid #Lyme #MentalHealth #MedicalMisogyny #DecodeME #Research #MillionsMissing #NICEGuidelines #NHS #StandardOperatingProcedures #BioPsychoSocial #FearOfTheNew

August 9, 2025 at 9:18 AM

Prof Joseph F Hayes

@jfhayes.bsky.social

Will new #NICEguidelines be enough to give #lithium the place it deserves in clinical practice?

November 21, 2024 at 3:47 PM

ACP-UK

@acp-uk.bsky.social

A pleasure to have @felicitas_rost speaking on 'Psychotherapy in the Era of Evidence-Based Practice:
Why it’s time for a Sea-Change for NICE Guideline Developments'
#ACPUKconf #psychotherapy #clinicalpsychologyuk #niceguidelines