📢"CRPS has the highest rated pain & we want the world to know it's name"📢
👉Learn more about CRPS & check out the shop too: www.conquercrps.com
#CRPS #CRPSAwareness #CRPSWarrior #RSD #ChronicPain #InvisibleIllness #NERVEmber #StrongerTogether
👉Learn more about CRPS & check out the shop too: www.conquercrps.com
#CRPS #CRPSAwareness #CRPSWarrior #RSD #ChronicPain #InvisibleIllness #NERVEmber #StrongerTogether
November 8, 2025 at 3:23 PM
📢"CRPS has the highest rated pain & we want the world to know it's name"📢
👉Learn more about CRPS & check out the shop too: www.conquercrps.com
#CRPS #CRPSAwareness #CRPSWarrior #RSD #ChronicPain #InvisibleIllness #NERVEmber #StrongerTogether
👉Learn more about CRPS & check out the shop too: www.conquercrps.com
#CRPS #CRPSAwareness #CRPSWarrior #RSD #ChronicPain #InvisibleIllness #NERVEmber #StrongerTogether
How Kindness Can Make Chronic Pain Easier! youtu.be/x51N0hOs1N8?... #ChronicPain, #CRPS, #PainMindset, #SelfCompassion, #PainEducation, #ChronicIllnessSupport, #Mindfulness, #Healing, #CommunitySupport #CRPSwarrior
How Kindness Can Make Chronic Pain Easier!
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
July 6, 2025 at 7:57 PM
How Kindness Can Make Chronic Pain Easier! youtu.be/x51N0hOs1N8?... #ChronicPain, #CRPS, #PainMindset, #SelfCompassion, #PainEducation, #ChronicIllnessSupport, #Mindfulness, #Healing, #CommunitySupport #CRPSwarrior
There are many painful symptoms a #CRPS patient experiences. One of them is Allodynia- which is pain due to a stimulus that doesn’t normally provoke pain, according to the National Library of Medicine. For more information, go to www.conquercrps.com. #crpswarrior #crpsarmy #crpsawareness 🧡🎗️🧡🎗️
April 21, 2025 at 6:32 PM
There are many painful symptoms a #CRPS patient experiences. One of them is Allodynia- which is pain due to a stimulus that doesn’t normally provoke pain, according to the National Library of Medicine. For more information, go to www.conquercrps.com. #crpswarrior #crpsarmy #crpsawareness 🧡🎗️🧡🎗️
I know this is missing things, but with only 300 characters at a time anyway so...
#FightHate
#DoctorWho
#AssassinsCreed
#LegendOfZelda #Zelda
#cats #rats
#CRPS #RSD #CRPSWarrior #disability
#StarTrek #StarWars #Babylon5
#druid #neopagan
#BrutalLegend
#FullmetalAlchemist
#MassEffect #Okami #Primal
#FightHate
#DoctorWho
#AssassinsCreed
#LegendOfZelda #Zelda
#cats #rats
#CRPS #RSD #CRPSWarrior #disability
#StarTrek #StarWars #Babylon5
#druid #neopagan
#BrutalLegend
#FullmetalAlchemist
#MassEffect #Okami #Primal
November 22, 2024 at 10:00 PM
I know this is missing things, but with only 300 characters at a time anyway so...
#FightHate
#DoctorWho
#AssassinsCreed
#LegendOfZelda #Zelda
#cats #rats
#CRPS #RSD #CRPSWarrior #disability
#StarTrek #StarWars #Babylon5
#druid #neopagan
#BrutalLegend
#FullmetalAlchemist
#MassEffect #Okami #Primal
#FightHate
#DoctorWho
#AssassinsCreed
#LegendOfZelda #Zelda
#cats #rats
#CRPS #RSD #CRPSWarrior #disability
#StarTrek #StarWars #Babylon5
#druid #neopagan
#BrutalLegend
#FullmetalAlchemist
#MassEffect #Okami #Primal
Yesterday, my daughter and I went to Sarasota to drop off my paintings at the Art Center of Sarasota. We couldn’t leave without seeing the ocean. I have a rare chronic condition called CRPS. I had been stuck in bed for days due to my pain. Seeing the ocean made me feel alive! 🩵💙💚 #crps #crpswarrior
August 7, 2025 at 12:25 PM
Yesterday, my daughter and I went to Sarasota to drop off my paintings at the Art Center of Sarasota. We couldn’t leave without seeing the ocean. I have a rare chronic condition called CRPS. I had been stuck in bed for days due to my pain. Seeing the ocean made me feel alive! 🩵💙💚 #crps #crpswarrior
What is CRPS?
🔸Complex
🔸Regional
🔸PAIN
🔸Syndrome
🎗️Learn More at www.conquercrps.com
#CRPS #CRPSAwareness #RSD #CRPSWarrior #CRPSAwarenessMonth #ChronicPain #StrongerTogether #NERVEmber
🔸Complex
🔸Regional
🔸PAIN
🔸Syndrome
🎗️Learn More at www.conquercrps.com
#CRPS #CRPSAwareness #RSD #CRPSWarrior #CRPSAwarenessMonth #ChronicPain #StrongerTogether #NERVEmber
November 2, 2025 at 12:26 PM
What is CRPS?
🔸Complex
🔸Regional
🔸PAIN
🔸Syndrome
🎗️Learn More at www.conquercrps.com
#CRPS #CRPSAwareness #RSD #CRPSWarrior #CRPSAwarenessMonth #ChronicPain #StrongerTogether #NERVEmber
🔸Complex
🔸Regional
🔸PAIN
🔸Syndrome
🎗️Learn More at www.conquercrps.com
#CRPS #CRPSAwareness #RSD #CRPSWarrior #CRPSAwarenessMonth #ChronicPain #StrongerTogether #NERVEmber
☕ Caffeine = Flare Trigger? youtu.be/POUnH8hoULM?... #burningnights #CRPS #flarecheckin #nocaffeine #dailyflaretips #Crpswarrior #painawareness #wagthedog #centralpainsyndrome #caffeinefree #mindfulhealing #billyandme #spooniecommunity #caffeinesensitivity #CRPScommunity #thelongpain
☕ Caffeine = Flare Trigger?
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
April 3, 2025 at 6:19 PM
A New Hope youtu.be/BseXoGVlVJI?...
via @YouTube
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #painrelief #chronicpain #mindfulness #pacing #neuromodulation #spinalcordstimulation #CBTtherapy #gradedmotorimagery
via @YouTube
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #painrelief #chronicpain #mindfulness #pacing #neuromodulation #spinalcordstimulation #CBTtherapy #gradedmotorimagery
A New Hope #crpsawareness #motivation #crpswarrior
YouTube video by Billy & Me
youtu.be
January 21, 2025 at 7:55 PM
I don’t have to get my Spinal Cord stimulator adjusted often but when I do, it’s because my pain is at 5,947 out of 10 #crps #crpswarrior #fyp #foryou #painsucks #chronicillness #chronicpain #warrior #strong #strength
January 20, 2025 at 10:41 PM
I don’t have to get my Spinal Cord stimulator adjusted often but when I do, it’s because my pain is at 5,947 out of 10 #crps #crpswarrior #fyp #foryou #painsucks #chronicillness #chronicpain #warrior #strong #strength
Fight Pain with Food! youtu.be/tVQrtwVrwSw?... ➜ Further Reading: bit.ly/Tipsoftheday
➜ Medical Disclaimer: Always refer to your pain specialist:
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #painrelief #nutritiontips #spoonie
➜ Medical Disclaimer: Always refer to your pain specialist:
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #painrelief #nutritiontips #spoonie
Fight Pain with Food!
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
March 30, 2025 at 6:24 PM
Fight Pain with Food! youtu.be/tVQrtwVrwSw?... ➜ Further Reading: bit.ly/Tipsoftheday
➜ Medical Disclaimer: Always refer to your pain specialist:
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #painrelief #nutritiontips #spoonie
➜ Medical Disclaimer: Always refer to your pain specialist:
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #painrelief #nutritiontips #spoonie
CRPS pain, no sleep, fatigue, brain fog, spasms, flares, pain, pain, pain= hard to concentrate. #crpslife #comquercrps #crpswarrior #chronicpain #chronicillness #crpsarmy #crpsawareness #rsd #crpssucks #crpsstrong #nevergiveup #findacure #raredisease
May 5, 2025 at 11:58 AM
CRPS pain, no sleep, fatigue, brain fog, spasms, flares, pain, pain, pain= hard to concentrate. #crpslife #comquercrps #crpswarrior #chronicpain #chronicillness #crpsarmy #crpsawareness #rsd #crpssucks #crpsstrong #nevergiveup #findacure #raredisease
Pain informs, not defines. youtu.be/RyNQLAh7Fo4?... via @YouTube #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #chronicpain #painawareness #painmanagement #invisibleillness #supportmatters #mindsetshift #braintraining #healingjourney
Pain informs, not defines.
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
February 12, 2025 at 6:09 PM
GUESS WHAT I DID IN PT TODAY!!!
Okay so I can only do this during PT or in my apartment but I'm walking around without the icky boot! I'm that much closer to being able to go back to doing what I love! #CRPSWarrior
Okay so I can only do this during PT or in my apartment but I'm walking around without the icky boot! I'm that much closer to being able to go back to doing what I love! #CRPSWarrior
December 12, 2024 at 9:50 PM
GUESS WHAT I DID IN PT TODAY!!!
Okay so I can only do this during PT or in my apartment but I'm walking around without the icky boot! I'm that much closer to being able to go back to doing what I love! #CRPSWarrior
Okay so I can only do this during PT or in my apartment but I'm walking around without the icky boot! I'm that much closer to being able to go back to doing what I love! #CRPSWarrior
CRPS pain is real, but food can help. Omega-3s, fruits, and turmeric fight inflammation. Small changes, big impact! Follow for more! youtube.com/shorts/7MpRl...
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection
#antiinflammatory #chronicpain
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection
#antiinflammatory #chronicpain
Food fuels your fight
YouTube video by Billy & Me
youtube.com
January 24, 2025 at 7:48 PM
CRPS pain is real, but food can help. Omega-3s, fruits, and turmeric fight inflammation. Small changes, big impact! Follow for more! youtube.com/shorts/7MpRl...
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection
#antiinflammatory #chronicpain
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection
#antiinflammatory #chronicpain
Spot patterns in your CRPS flares by tracking emotions.
youtube.com/shorts/l40lS...
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #painmanagement #chronicpainawareness #mentalhealthsupport #stressrelief #mindfulnessjournal #paincontrol
youtube.com/shorts/l40lS...
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #painmanagement #chronicpainawareness #mentalhealthsupport #stressrelief #mindfulnessjournal #paincontrol
The Game-Changing Approachfor Pai
YouTube video by Billy & Me
youtube.com
January 15, 2025 at 6:20 PM
Spot patterns in your CRPS flares by tracking emotions.
youtube.com/shorts/l40lS...
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #painmanagement #chronicpainawareness #mentalhealthsupport #stressrelief #mindfulnessjournal #paincontrol
youtube.com/shorts/l40lS...
#burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #painmanagement #chronicpainawareness #mentalhealthsupport #stressrelief #mindfulnessjournal #paincontrol
Food sensitivities can fuel inflammation. Track your meals & flares. Your body knows. Listen. youtu.be/xCVy9UN8FGE?... #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #chronicpain #antiinflammatory #foodasmedicine
Do Certain Foods Trigger More CRPS Flare Ups?
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
April 7, 2025 at 6:57 PM
Food sensitivities can fuel inflammation. Track your meals & flares. Your body knows. Listen. youtu.be/xCVy9UN8FGE?... #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #chronicpain #antiinflammatory #foodasmedicine
Small Actions? youtu.be/lQtWn6baFVI?... #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #productivity #selfcare #mentalhealth #chronicpain #mindset #progress #motivation #smallsteps #breakingtasks #wellness
Small Actions? burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain ##productivity
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
March 5, 2025 at 6:26 PM
Why Pain Doesn't Always Mean There's Physical Damage Inside youtu.be/JTfRvt8jw08?... #PainRehab #CRPSWarrior #ChronicIllnessSupport #PainNeuroscience #PainSucks #YouAreNotAlone #HealingJourney #MindBodyHealing #MentalHealthAndPain #PainAwareness #CRPSLife #DailyCoping #SmallSteps
Why Pain Doesn't Always Mean There's Physical Damage Inside
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
April 22, 2025 at 7:31 PM
Why Pain Doesn't Always Mean There's Physical Damage Inside youtu.be/JTfRvt8jw08?... #PainRehab #CRPSWarrior #ChronicIllnessSupport #PainNeuroscience #PainSucks #YouAreNotAlone #HealingJourney #MindBodyHealing #MentalHealthAndPain #PainAwareness #CRPSLife #DailyCoping #SmallSteps
Thank you. My wife has been a #CRPSWarrior for the last decade. It is my highest hope that there will be a cure in her lifetime, and yours.
November 18, 2024 at 12:02 PM
Thank you. My wife has been a #CRPSWarrior for the last decade. It is my highest hope that there will be a cure in her lifetime, and yours.
Sometimes I write. #CRPSAwareness The battle continues. 1.28.25 5:54 AM #CRPSWarrior
January 29, 2025 at 4:52 AM
Sometimes I write. #CRPSAwareness The battle continues. 1.28.25 5:54 AM #CRPSWarrior
Good morning. Today is Rare Disease Awareness Day. We're supposed to wear zebra stripes to show support. This shirt is as close as I can get, plus it directly shouts out CRPS for my wife.
#raredisease #rarediseaseday2024 #crpsawareness #crpswarrior #crps
#raredisease #rarediseaseday2024 #crpsawareness #crpswarrior #crps
February 29, 2024 at 12:21 PM
Good morning. Today is Rare Disease Awareness Day. We're supposed to wear zebra stripes to show support. This shirt is as close as I can get, plus it directly shouts out CRPS for my wife.
#raredisease #rarediseaseday2024 #crpsawareness #crpswarrior #crps
#raredisease #rarediseaseday2024 #crpsawareness #crpswarrior #crps
Being asked to be on Conquer CRPS’a podcast, Painfully Fabulous, was an absolute honor! Sharing my journey with #chronicpain #chronicillness I hope I can educate, inspire and help spread awareness. 🧡 #conquercrps #crpswarrior #crpsisreal #crpsstrong #nevergiveup #crpsawareness youu.be/grcRiQFUAzY
March 9, 2025 at 8:35 PM
Being asked to be on Conquer CRPS’a podcast, Painfully Fabulous, was an absolute honor! Sharing my journey with #chronicpain #chronicillness I hope I can educate, inspire and help spread awareness. 🧡 #conquercrps #crpswarrior #crpsisreal #crpsstrong #nevergiveup #crpsawareness youu.be/grcRiQFUAzY
Its no a Marathon... youtu.be/mkJp-NL2ZBw?... #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #ChronicPain #PacingMatters #PainManagement #CRPSAwareness #InvisibleIllness #ChronicIllness #ChronicPainRelief #PainSupport #AutoimmuneDisease
Its no a Marathon...
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
March 4, 2025 at 6:22 PM
Help! youtu.be/K5kSAE0ZlYU?... via @YouTube #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #chronicpain #painmanagement #spoonie #painwarrior #selfcare #askforhelp #youarenotalone #supportsystem #flaredays #CRPSsupport #strongertogether
Help!
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
January 31, 2025 at 7:15 PM
It’s okay to grieve your old life youtu.be/wrg5orU4OmU?... via @YouTube #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #ChronicPain #Resilience #MentalHealthMatters #PainAwareness #SupportAndStrength #LifeWithCRPS
It’s okay to grieve your old life #motivation #crpswarrior #painmanagement
YouTube video by The Long Pain - Mamaenga Roa
youtu.be
February 23, 2025 at 6:05 PM
It’s okay to grieve your old life youtu.be/wrg5orU4OmU?... via @YouTube #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #ChronicPain #Resilience #MentalHealthMatters #PainAwareness #SupportAndStrength #LifeWithCRPS