#𝗿𝗮𝗿𝗲𝗔𝗡𝗗
From Friday's haul I was pleased to see Rustyback on a wall in Suffolk where it's rareand now two recorders have confirmed that the planted fern next to the Abbey in Bury was indeed Himalayan Maidenhair. Sorry to say neither of these seem to have reached the USA!
February 4, 2024 at 8:26 PM
Today is Rare Disease Day. I have a rare disease that is called Kabuki Syndrome. @kabukisyndrome.bsky.social
#rareand #raredisesaseday #kabukisyndrome #disabilityadvocate
February 28, 2025 at 10:36 PM
𝗢𝗻 𝘁𝗵𝗶𝘀 𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗗𝗮𝘆, we are empowering our global community to share their #𝗿𝗮𝗿𝗲𝗔𝗡𝗗 stories, showcasing the resilience of those living with Kabuki syndrome. People with Kabuki syndrome are rare AND SO MUCH MORE. Learn more, use our toolkit & join our collaborative network: bit.ly/KSFToolkit
February 28, 2025 at 4:33 PM