Learned loads @lungcancereurope.bsky.social AGM, like: My behaviour style is different in advocacy from my employed work. Cannot crochet. “Chemo brain” is real & applies to cancer generally. Much more. Grateful for the unexpected LuCE Patient Advocate Award. Thank you LuCE family for all.

Telling people you have cancer is one of the worst parts. It makes it real in those early days when you are only coming to terms yourself.

Probably telling the kids is the worst convo of all. Appreciate this conversation w/ @younglungcancer.bsky.social as part of @oncogenecancer.bsky.social #LCSM

In 2021 I assumed my cough was from allergies & my chest pressure was work stress.

It was stage 4 #lungcancer. An x-ray & biomarker testing saved my life. Had no idea that anyone can get lung cancer.

📺 interview from @younglungcancer.bsky.social 👉https://youtu.be/S50UEv81kS0?si=rixipm5FYbvOmpNx 🤍

As my friend and fellow @alkpositive.bsky.social Board Member Summer Farmen says at @iaslc.bsky.social #TTLC25:

We are your reminders of why quality of life matters and why we can’t be complacent even in the face of great clinical trial data.

🤍👏👏

#LCSM @sunonmyhip.bsky.social

One of the hazards of having stage 4 #cancer (in my case lung cancer) is you get a lot of well-intentioned, unsolicited advice. My best advice has come from other patients & books. Here are some words that have stayed with me.

What about our @thankscancer.bsky.social fam? Which words have stayed?

Grateful for all the amazing people you meet in patient advocacy: dedicated researchers/clinicians & patients w stage 4 disease who give their personal time.

While we may face an uncertain future, & one that looks different, am grateful to the wonderful people walking alongside us 🤍

#HappyNewYear