Yvonne Diaz
banner
yvonnediaz.bsky.social
Yvonne Diaz
@yvonnediaz.bsky.social
Comms professional, mum to twin teenage sons & a dog. Living with stage 4 ALK lung cancer. Advocate for research for those living with lung cancer & those who no longer have a voice.

Co-founder & Chair, Oncogene Cancer Research
Board member, ALK Positive
This morning’s DeLLphi presentation @myesmo.bsky.social brings so much hope to our #lungcancer community. Love seeing fresh hope for those with small cell lung cancer. #ESMO25
October 18, 2025 at 7:49 AM
Lung cancer is increasingly being diagnosed in younger, fit women with no smoking history - like Sarah & Becca.

As Drs Cecilia Pompili & Alex Georgiou say, we need greater awareness, & more research so that women are seen, heard, and diagnosed sooner.

theguardian.com/society/2025/s…#lcsmsm
September 16, 2025 at 9:04 AM
Promising signals from the ALEK-B ph 2 trial: combining alectinib w bevacizumab achieved 97.1% 12-mo PFS & median PFS of 39.6 months in ALK+ #NSCLC. Intracranial control also notably strong.

Could this combo help overcome resistance in more aggressive ALK variants?
#research #lungcancer
May 18, 2025 at 11:30 AM
Dr @narjustflorezmd.bsky.social doesn’t shy away from tough, taboo topics. @lungevity.bsky.social #HopeSummit, she led a powerful convo on how cancer affects identity, relationships, intimacy & sexual health. Her message: you deserve care, pleasure & to feel whole.

Great party favours

#LCSM
May 6, 2025 at 6:30 PM
Learned loads @lungcancereurope.bsky.social AGM, like: My behaviour style is different in advocacy from my employed work. Cannot crochet. “Chemo brain” is real & applies to cancer generally. Much more. Grateful for the unexpected LuCE Patient Advocate Award. Thank you LuCE family for all.
April 13, 2025 at 4:18 PM
Telling people you have cancer is one of the worst parts. It makes it real in those early days when you are only coming to terms yourself.

Probably telling the kids is the worst convo of all. Appreciate this conversation w/ @younglungcancer.bsky.social as part of @oncogenecancer.bsky.social #LCSM
April 6, 2025 at 11:52 AM
Fears of progression are always there lurking in the background for those of us on #lungcancer TKIs no matter how well they’re working now. Great info from Dr @lungoncdoc.bsky.social on the how, why & things to do. Research and new options can’t come fast enough. #LCSM @cancergrace.bsky.social
March 15, 2025 at 5:35 PM
Great fishing 🎣 analogy from Dr @ludabazhenovamd.bsky.social on the use of liquid biopsies at the @cancergrace.bsky.social Patient Forum: If a liquid biopsy doesn’t turn up any biomarkers it doesn’t mean there aren’t any fish in the sea.

Important to continue w tissue testing. #LCSM
March 15, 2025 at 5:03 PM
In 2021 I assumed my cough was from allergies & my chest pressure was work stress.

It was stage 4 #lungcancer. An x-ray & biomarker testing saved my life. Had no idea that anyone can get lung cancer.

📺 interview from @younglungcancer.bsky.social 👉https://youtu.be/S50UEv81kS0?si=rixipm5FYbvOmpNx 🤍
March 14, 2025 at 8:19 AM
Professor @drjnaidoo.bsky.social welcomed to the #BTOG25 stage as a Lung Cancer Legend & doesn’t disappoint. Lots of discussion on how we turn discussions on Small Cell Lung Cancer on its head. Lots of optimism in #SCLC coming from new standards & future treatments. #LCSM
March 5, 2025 at 1:00 PM
Packed house at #BTOG25’s SC lung cancer session

Dr @stephenvliu.bsky.social talks of need to ID those that do/don’t derive benefit, find biomarkers, review optimal sequencing & better understand evolving biology of #SCLC. Describes SCLC in ppl w no/light smoking history.

#LCSM @btog.bsky.social
March 5, 2025 at 12:59 PM
Speed to diagnosis is key for ppl w #lungcancer- many of us are diagnosed at stage 4 when unwell.

Great talk from Sandi Deans @nhsenglandldn.bsky.social Genomics at #BTOG25, illustrating the ideal pathway to reach the 14-day turnaround target in UK. Good to see ctDNA here
#LCSM @btog.bsky.social
March 4, 2025 at 9:35 AM
As my friend and fellow @alkpositive.bsky.social Board Member Summer Farmen says at @iaslc.bsky.social #TTLC25:

We are your reminders of why quality of life matters and why we can’t be complacent even in the face of great clinical trial data.

🤍👏👏

#LCSM @sunonmyhip.bsky.social
February 21, 2025 at 1:55 PM
One of the hazards of having stage 4 #cancer (in my case lung cancer) is you get a lot of well-intentioned, unsolicited advice. My best advice has come from other patients & books. Here are some words that have stayed with me.

What about our @thankscancer.bsky.social fam? Which words have stayed?
January 25, 2025 at 1:47 PM
Research from @roswellpark.bsky.social finds diabetes drug Metformin appears to fight lung cancer, but only in overweight or obese patients.

Launching phase 2 trial to see if metformin could prevent #lungcancer in overweight or obese people who are at high risk

www.roswellpark.org/cancertalk/2....
January 1, 2025 at 3:25 PM
Grateful for all the amazing people you meet in patient advocacy: dedicated researchers/clinicians & patients w stage 4 disease who give their personal time.

While we may face an uncertain future, & one that looks different, am grateful to the wonderful people walking alongside us 🤍

#HappyNewYear
December 31, 2024 at 7:27 PM
“Why are we listening to men & not women?” asks Dr @narjustflorezmd.bsky.social of @florezlab.bsky.social

This question & the increase in #lungcancer diagnoses among younger women vs men are the genesis for the #HearHer campaign.

Read more & help us change this👇
healio.com/news/hematolog…#LCSMSM
December 22, 2024 at 1:38 PM