tornandfrayed.bsky.social
@tornandfrayed.bsky.social
Reposted by tornandfrayed.bsky.social
On International Day of People with #Disabilities, please note some disabilities are invisible
#Disability #invisibleillness #disabled #disabledpeople #IDPD #IDPD2025 #IDPD25
#Disability #invisibleillness #disabled #disabledpeople #IDPD #IDPD2025 #IDPD25
December 3, 2025 at 8:08 PM
On International Day of People with #Disabilities, please note some disabilities are invisible
#Disability #invisibleillness #disabled #disabledpeople #IDPD #IDPD2025 #IDPD25
#Disability #invisibleillness #disabled #disabledpeople #IDPD #IDPD2025 #IDPD25
Better late than never. #CleanTheAir
"Both Aneurin Bevan and Cwm Taf Morgannwg University Health Boards have announced the return of mandatory mask-wearing on their sites, echoing practices widely used during the COVID-19 pandemic"
www.walesonline.co.uk/news/wales-n...
#PublicHealth #LongCovid #Wales
@longcovidsupport.bsky.social
www.walesonline.co.uk/news/wales-n...
#PublicHealth #LongCovid #Wales
@longcovidsupport.bsky.social
December 3, 2025 at 9:38 AM
Better late than never. #CleanTheAir
Reposted by tornandfrayed.bsky.social
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
November 20, 2025 at 7:04 AM
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
Reposted by tornandfrayed.bsky.social
Really good to hear Stella Creasy on @newsagents.bsky.social saying students should be removed from immigration figures. Of course they should! And they make up a huge chunk of the figures - around half. They’re part of the success story of global Britain - coming here to get a great education.
"I know there are a lot of MPs who are deeply uncomfortable at the idea of frisking people at the border to see if we can remove their jewellery," says Stella Creasy.
"That's not the way we want to manage somebody who is a victim of torture"
www.thenewsagents.co.uk/article/labo...
"That's not the way we want to manage somebody who is a victim of torture"
www.thenewsagents.co.uk/article/labo...
Labour’s new immigration plan 'not progressive, or practical', says Stella Creasy | The News Agents
Home Secretary Shabana Mahmood has announced tough new measures to deter asylum seekers from attempting to enter the UK. Will her methods be enough, or is this simply an attempt to win back support…
www.thenewsagents.co.uk
November 17, 2025 at 7:09 PM
Really good to hear Stella Creasy on @newsagents.bsky.social saying students should be removed from immigration figures. Of course they should! And they make up a huge chunk of the figures - around half. They’re part of the success story of global Britain - coming here to get a great education.
Reposted by tornandfrayed.bsky.social
SUPERB and angrily unvarnished response, by former BBC chairman, Lord Patten.
"I don't think that we should allow ourselves to be bullied into thinking that the BBC is only any good, if it reflects the prejudice of the last person who shouted at it." ~AA
"I don't think that we should allow ourselves to be bullied into thinking that the BBC is only any good, if it reflects the prejudice of the last person who shouted at it." ~AA
November 10, 2025 at 6:40 PM
SUPERB and angrily unvarnished response, by former BBC chairman, Lord Patten.
"I don't think that we should allow ourselves to be bullied into thinking that the BBC is only any good, if it reflects the prejudice of the last person who shouted at it." ~AA
"I don't think that we should allow ourselves to be bullied into thinking that the BBC is only any good, if it reflects the prejudice of the last person who shouted at it." ~AA
Reposted by tornandfrayed.bsky.social
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
November 6, 2025 at 9:35 AM
‘If you’re disabled, you’re not ill.’
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
Sir Charlie Mayfield (author of the Keep Britain Working review)
This is who’s shaping UK disability employment policy. Shocking, he doesn’t even understand the basics.
I’m disabled because I’m chronically ill with #MECFS.
Reposted by tornandfrayed.bsky.social
He also champions the ‘biopsychosocial’ model - which has been discredited for ME/CFS and removed from NICE guidelines after causing harm.
Using this to shape work/welfare policy risks repeating the same devastating mistakes.
Using this to shape work/welfare policy risks repeating the same devastating mistakes.
November 6, 2025 at 9:35 AM
He also champions the ‘biopsychosocial’ model - which has been discredited for ME/CFS and removed from NICE guidelines after causing harm.
Using this to shape work/welfare policy risks repeating the same devastating mistakes.
Using this to shape work/welfare policy risks repeating the same devastating mistakes.
Reposted by tornandfrayed.bsky.social
For the first time, Berkeley's Trial By Error crowdfunding campaign has reached 50% of the goal right at the 15-day half-way point. Most times, it's at about a third at this point. If you'd like to donate, here's the link:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
October 23, 2025 at 10:45 AM
For the first time, Berkeley's Trial By Error crowdfunding campaign has reached 50% of the goal right at the 15-day half-way point. Most times, it's at about a third at this point. If you'd like to donate, here's the link:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
Reposted by tornandfrayed.bsky.social
Stephen Bush on the extraordinary draft legislation which Shadow Home Secretary Chris Philp, Matt Vickers, Katie Lam and backbench colleagues have proposed in parliament
It is a proposal that would seek to deport around 5% of the resident population, including over a quarter of a million with ILR
It is a proposal that would seek to deport around 5% of the resident population, including over a quarter of a million with ILR
October 23, 2025 at 10:58 AM
Stephen Bush on the extraordinary draft legislation which Shadow Home Secretary Chris Philp, Matt Vickers, Katie Lam and backbench colleagues have proposed in parliament
It is a proposal that would seek to deport around 5% of the resident population, including over a quarter of a million with ILR
It is a proposal that would seek to deport around 5% of the resident population, including over a quarter of a million with ILR
Reposted by tornandfrayed.bsky.social
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
www.benefitsandwork.co.uk
October 8, 2025 at 6:09 AM
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
Reposted by tornandfrayed.bsky.social
Eligibility for an NHS Covid booster has been HUGELY restricted this Autumn.
Studies show that both acute & long-term impacts of Covid are substantially WORSE than flu on almost every measure.
www.thelancet.com/journals/lan...
So why are the government offering so much LESS protection for Covid?
Studies show that both acute & long-term impacts of Covid are substantially WORSE than flu on almost every measure.
www.thelancet.com/journals/lan...
So why are the government offering so much LESS protection for Covid?
October 5, 2025 at 3:48 PM
Eligibility for an NHS Covid booster has been HUGELY restricted this Autumn.
Studies show that both acute & long-term impacts of Covid are substantially WORSE than flu on almost every measure.
www.thelancet.com/journals/lan...
So why are the government offering so much LESS protection for Covid?
Studies show that both acute & long-term impacts of Covid are substantially WORSE than flu on almost every measure.
www.thelancet.com/journals/lan...
So why are the government offering so much LESS protection for Covid?
Reposted by tornandfrayed.bsky.social
WHAT THE FUCK!
Tory Mayor Ben Houchen: That jew is a "useful idiot"
Tommy Robinson: "Woke jews" are ruining the UK
Home Secretary Shabana Mahmood : (Jewish) Zack Polanski isn't acting "British".
THEY DON'T CARE ABOUT JEWISH PEOPLE!
Tory Mayor Ben Houchen: That jew is a "useful idiot"
Tommy Robinson: "Woke jews" are ruining the UK
Home Secretary Shabana Mahmood : (Jewish) Zack Polanski isn't acting "British".
THEY DON'T CARE ABOUT JEWISH PEOPLE!
Politicians INSULT JEWS after Manchester Synagogue attack!
YouTube video by Femi - F Politics!
www.youtube.com
October 5, 2025 at 3:53 PM
WHAT THE FUCK!
Tory Mayor Ben Houchen: That jew is a "useful idiot"
Tommy Robinson: "Woke jews" are ruining the UK
Home Secretary Shabana Mahmood : (Jewish) Zack Polanski isn't acting "British".
THEY DON'T CARE ABOUT JEWISH PEOPLE!
Tory Mayor Ben Houchen: That jew is a "useful idiot"
Tommy Robinson: "Woke jews" are ruining the UK
Home Secretary Shabana Mahmood : (Jewish) Zack Polanski isn't acting "British".
THEY DON'T CARE ABOUT JEWISH PEOPLE!
Reposted by tornandfrayed.bsky.social
Vicars, grannies, blind people, those in wheelchairs all being physically carried away by police, one at a time after their rights are read… All for holding a placard.
…instead of the police being used to stop rape, burglary, domestic violence and theft. This farce has to break, surely.
…instead of the police being used to stop rape, burglary, domestic violence and theft. This farce has to break, surely.
October 5, 2025 at 4:45 PM
Vicars, grannies, blind people, those in wheelchairs all being physically carried away by police, one at a time after their rights are read… All for holding a placard.
…instead of the police being used to stop rape, burglary, domestic violence and theft. This farce has to break, surely.
…instead of the police being used to stop rape, burglary, domestic violence and theft. This farce has to break, surely.
Reposted by tornandfrayed.bsky.social
This is the time when these three truths need repeating over and over:
1. Racism is inexcusable.
2. Migrants are equal humans to non-migrants.
3. The right to protest is fundamental to democracy.
1. Racism is inexcusable.
2. Migrants are equal humans to non-migrants.
3. The right to protest is fundamental to democracy.
October 5, 2025 at 5:04 PM
This is the time when these three truths need repeating over and over:
1. Racism is inexcusable.
2. Migrants are equal humans to non-migrants.
3. The right to protest is fundamental to democracy.
1. Racism is inexcusable.
2. Migrants are equal humans to non-migrants.
3. The right to protest is fundamental to democracy.
Reposted by tornandfrayed.bsky.social
Life is too short to spend it in fear or worry but also meaningless if we just don’t care. It’s a tough balance so may be striving to achieve it is the point.
September 16, 2025 at 7:07 AM
Life is too short to spend it in fear or worry but also meaningless if we just don’t care. It’s a tough balance so may be striving to achieve it is the point.
Reposted by tornandfrayed.bsky.social
We must unite against those who seek to divide us.
September 15, 2025 at 7:16 PM
We must unite against those who seek to divide us.
The Conservative party has again refused to explain why it is warning of a “spiralling” benefits bill when spending on social security is stable… and has been for years.
#Conservatives #DisabilityBenefits
www.disabilitynewsservice.com/tories-say-b...
#Conservatives #DisabilityBenefits
www.disabilitynewsservice.com/tories-say-b...
Tories say benefits bill is spiralling, but again refuse to comment on official stats that show it’s really not
The Conservative party has again refused to explain why it is warning of a “spiralling” benefits bill when spending on social security is stable… and has been for years. For the second time in two …
www.disabilitynewsservice.com
September 14, 2025 at 2:49 PM
Reposted by tornandfrayed.bsky.social
Professor Catastrophe - Simon Wessely
Part One - The Wessely Files
longcovidadvocacy.substack.com
September 13, 2025 at 11:37 AM
Reposted by tornandfrayed.bsky.social
A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill
IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦
Via @davetuller1.bsky.social
IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦
Via @davetuller1.bsky.social
Trial By Error: "Mass Psychogenic Illness" at Heathrow Airport--NOT! | Virology Blog
By David Tuller, DrPH On Monday afternoon, a bunch of people in Terminal 4 at Heathrow, London’s biggest airport, reported feeling ill. The reports led to c ...
virology.ws
September 12, 2025 at 8:48 PM
A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill
IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦
Via @davetuller1.bsky.social
IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦
Via @davetuller1.bsky.social
Reposted by tornandfrayed.bsky.social
Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.
August 6, 2025 at 5:52 PM
Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.
Reposted by tornandfrayed.bsky.social
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
August 4, 2025 at 5:23 PM
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
Reposted by tornandfrayed.bsky.social
Thrilled to see this announced.
Also: The communication from the @decodemestudy.bsky.social team has been fantastic throughout and this is another instance of communicating excellently with #pwME.
#MEscience #LCscience #MEcfs #MyalgicE #LongCovid
Also: The communication from the @decodemestudy.bsky.social team has been fantastic throughout and this is another instance of communicating excellently with #pwME.
#MEscience #LCscience #MEcfs #MyalgicE #LongCovid
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
We're letting you know the timing in advance so you can pace beforehand.
Thank you to our participants & supporters.
August 4, 2025 at 5:28 PM
Thrilled to see this announced.
Also: The communication from the @decodemestudy.bsky.social team has been fantastic throughout and this is another instance of communicating excellently with #pwME.
#MEscience #LCscience #MEcfs #MyalgicE #LongCovid
Also: The communication from the @decodemestudy.bsky.social team has been fantastic throughout and this is another instance of communicating excellently with #pwME.
#MEscience #LCscience #MEcfs #MyalgicE #LongCovid
Reposted by tornandfrayed.bsky.social
DecodeME: “X marks the spot where ME/CFS biology can be discovered”
“DecodeME looked at the DNA of 15,579 people with an ME/CFS diagnosis…the analysis revealed eight genetic ‘signals’ for ME/CFS from the nine million variants studied”
#DecodeME
www.decodeme.org.uk/x-marks-the-...
“DecodeME looked at the DNA of 15,579 people with an ME/CFS diagnosis…the analysis revealed eight genetic ‘signals’ for ME/CFS from the nine million variants studied”
#DecodeME
www.decodeme.org.uk/x-marks-the-...
X marks the spot where ME/CFS biology can be discovered - DecodeME
06 August 2025 Scientists, people with ME/CFS, and their charities came together to create DecodeME, the world’s biggest ME/CFS study – and its results are striking. 18,000 people with ME/CFS gave the...
www.decodeme.org.uk
August 6, 2025 at 6:18 PM
DecodeME: “X marks the spot where ME/CFS biology can be discovered”
“DecodeME looked at the DNA of 15,579 people with an ME/CFS diagnosis…the analysis revealed eight genetic ‘signals’ for ME/CFS from the nine million variants studied”
#DecodeME
www.decodeme.org.uk/x-marks-the-...
“DecodeME looked at the DNA of 15,579 people with an ME/CFS diagnosis…the analysis revealed eight genetic ‘signals’ for ME/CFS from the nine million variants studied”
#DecodeME
www.decodeme.org.uk/x-marks-the-...
Reposted by tornandfrayed.bsky.social
Independent: “The key genetic difference ME sufferers have from others – and what it means”
‘Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease’
#DecodeME
www.independent.co.uk/life-style/h...
‘Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease’
#DecodeME
www.independent.co.uk/life-style/h...
The key genetic difference ME sufferers have from others – and what it means
Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease
www.independent.co.uk
August 6, 2025 at 6:20 PM
Independent: “The key genetic difference ME sufferers have from others – and what it means”
‘Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease’
#DecodeME
www.independent.co.uk/life-style/h...
‘Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease’
#DecodeME
www.independent.co.uk/life-style/h...
Reposted by tornandfrayed.bsky.social
New press release: "Key genetic differences found in people with ME/CFS"
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
August 6, 2025 at 6:20 PM
New press release: "Key genetic differences found in people with ME/CFS"
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
www.ed.ac.uk/news/key-gen...
"At least two of the genetic signals relate to how the body responds to infection"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME