The Rare Disease Data Repository
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d-ba.bsky.social
d-ba.bsky.social
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Marian
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Ellumigen
Ellumigen
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Pulmonary Hypertension Association
Pulmonary Hypertension Association
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American Epilepsy Society
American Epilepsy Society
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CURE Epilepsy
CURE Epilepsy
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Research Elements
Research Elements
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I Quit Smoking 🚭 📚 🐕
I Quit Smoking 🚭 📚 🐕
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Shams
Shams
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European Centre for Disease Prevention and Control
European Centre for Disease Prevention and Control
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Institute of Genetics and Cancer
Institute of Genetics and Cancer
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Caitie Horan
Caitie Horan
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rareLife solutions
rareLife solutions
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Leber's Congenital Amaurosis
Leber's Congenital Amaurosis
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Suheyl O.
Suheyl O.
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Michael Ben-Yehuda
Michael Ben-Yehuda
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Junior Einsteins Science Club®
Junior Einsteins Science Club®
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Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
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Hope S. Holman
Hope S. Holman
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@YaleEMD
@YaleEMD
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Marital Madness
Marital Madness
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The MED13L Foundation
The MED13L Foundation
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Shared Umbrellas
Shared Umbrellas
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PhenoTips
PhenoTips
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Chaplain Connect
Chaplain Connect
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livewhereyouare.bsky.social
livewhereyouare.bsky.social
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K. H. Vaughan, Ph.D.
K. H. Vaughan, Ph.D.
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James Crowe
James Crowe
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Nautigen
Nautigen
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Amkg
Amkg
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Dale B
Dale B
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Ana Pogoutse
Ana Pogoutse
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Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
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CozyandCoolApparel.com
CozyandCoolApparel.com
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jacobybahamas.bsky.social
jacobybahamas.bsky.social
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HanaChronicler 🇨🇦
HanaChronicler 🇨🇦
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Renegade Research
Renegade Research
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Crystal M Williams
Crystal M Williams
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Theresa Whitlock-Wild
Theresa Whitlock-Wild
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November Oscar Whiskey
November Oscar Whiskey
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Philandra Costello
Philandra Costello
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Deutsche Gesellschaft für Neurogastroenterologie & Motilität
Deutsche Gesellschaft für Neurogastroenterologie & Motilität
@dgnm.bsky.social
Bluetools Project
Bluetools Project
@bluetools-project.eu
Dare to be Rare
Dare to be Rare
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Neckel Lab
Neckel Lab
@neckellab.bsky.social
Alison Buttenheim
Alison Buttenheim
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Prof Anne-Marie Russell💜💚🎗
Prof Anne-Marie Russell💜💚🎗
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Berit Lange
Berit Lange
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