@survivorpoetscotland
@survivorpoet.bsky.social
Survivor and poet. Writing and thinking about trauma and recovery. Also living with ME/CFS, and Long Covid, and wishing for a cure. Lover of books, cats and kindness. Cross-stitch ninja. Scotland
Reposted by @survivorpoetscotland
'Each genetic signal is like an ‘X’ on a treasure map indicating roughly where the researchers should dig for treasure.'
Check out Simon McGrath’s blog to learn about the science behind the initial results: shorturl.at/hadjF
Check out Simon McGrath’s blog to learn about the science behind the initial results: shorturl.at/hadjF
August 7, 2025 at 4:23 PM
'Each genetic signal is like an ‘X’ on a treasure map indicating roughly where the researchers should dig for treasure.'
Check out Simon McGrath’s blog to learn about the science behind the initial results: shorturl.at/hadjF
Check out Simon McGrath’s blog to learn about the science behind the initial results: shorturl.at/hadjF
Reposted by @survivorpoetscotland
The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research.
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
August 7, 2025 at 9:20 AM
The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research.
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
A huge thanks to all our participants for giving their time, energy & DNA to the project.
Learn more about our findings: shorturl.at/XOVJ1
Please follow me on Instagram using the handle in the logo. Thanks 💜
June 25, 2025 at 1:44 AM
Please follow me on Instagram using the handle in the logo. Thanks 💜
Reposted by @survivorpoetscotland
Our evidence-based rebuttal to *that* BMJ opinion piece published last week.
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.
www.bmj.com/content/389/...
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.
www.bmj.com/content/389/...
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
www.bmj.com
May 21, 2025 at 1:15 PM
Our evidence-based rebuttal to *that* BMJ opinion piece published last week.
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.
www.bmj.com/content/389/...
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.
www.bmj.com/content/389/...
Reposted by @survivorpoetscotland
Dec 11: Prof Chris Ponting is #ThereForME! @cgatist.bsky.social leads @decodemestudy.bsky.social, the world’s largest ME genetic study.
“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”
“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”
December 11, 2024 at 9:00 AM
Dec 11: Prof Chris Ponting is #ThereForME! @cgatist.bsky.social leads @decodemestudy.bsky.social, the world’s largest ME genetic study.
“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”
“My Christmas wish for people with ME and Long Covid is: Many scientific breakthroughs – a ‘True Dawn’ bringing us much closer to effective therapies. Chris xx”
Reposted by @survivorpoetscotland
'Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal'
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
November 28, 2024 at 9:44 AM
'Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical scandal'
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
Article by Prof Chris Ponting, in The Conversation
Read the full article 👇
theconversation.com/ignored-blam...
#pwME #MECFS #MyalgicE #Covid #longCovid
@rthonwesstreeting.bsky.social
I have Long Covid and ME. Can you fund research & treatment please. I would love to go back to work, but no treatment means I struggle even to dress most days. Not being able to work is due to no treatment, not lack of support. PLEASE HELP. FUND RESEARCH INTO LC & ME
I have Long Covid and ME. Can you fund research & treatment please. I would love to go back to work, but no treatment means I struggle even to dress most days. Not being able to work is due to no treatment, not lack of support. PLEASE HELP. FUND RESEARCH INTO LC & ME
November 28, 2024 at 6:50 PM
@rthonwesstreeting.bsky.social
I have Long Covid and ME. Can you fund research & treatment please. I would love to go back to work, but no treatment means I struggle even to dress most days. Not being able to work is due to no treatment, not lack of support. PLEASE HELP. FUND RESEARCH INTO LC & ME
I have Long Covid and ME. Can you fund research & treatment please. I would love to go back to work, but no treatment means I struggle even to dress most days. Not being able to work is due to no treatment, not lack of support. PLEASE HELP. FUND RESEARCH INTO LC & ME
Reposted by @survivorpoetscotland
#ME is Wikipedia’s main page feature today. en.wikipedia.org/wiki/Main_Page
Wikipedia, the free encyclopedia
en.wikipedia.org
November 25, 2024 at 12:18 PM
#ME is Wikipedia’s main page feature today. en.wikipedia.org/wiki/Main_Page