StriveForFive
@striveforfive.bsky.social
StriveForFive is a campaign to bring HOPE to stage 4 cancer.
Steve Clark was diagnosed with stage 4 in 2013 and has developed a series of free resources based on his experience and that of thousands of people he’s supported over the years.
Steve Clark was diagnosed with stage 4 in 2013 and has developed a series of free resources based on his experience and that of thousands of people he’s supported over the years.
Sharing a fond memory - in 2014, a year after being diagnosed with stage 4 bowel cancer, I passed the Budokon MMA red belt
This shows that A DIAGNOSIS OF STAGE 4 CANCER DOESN’T HAVE TO BE THE END OF YOUR LIFE, IT CAN BE THE REASON TO START LIVING IT!
This shows that A DIAGNOSIS OF STAGE 4 CANCER DOESN’T HAVE TO BE THE END OF YOUR LIFE, IT CAN BE THE REASON TO START LIVING IT!
October 20, 2025 at 8:02 AM
Sharing a fond memory - in 2014, a year after being diagnosed with stage 4 bowel cancer, I passed the Budokon MMA red belt
This shows that A DIAGNOSIS OF STAGE 4 CANCER DOESN’T HAVE TO BE THE END OF YOUR LIFE, IT CAN BE THE REASON TO START LIVING IT!
This shows that A DIAGNOSIS OF STAGE 4 CANCER DOESN’T HAVE TO BE THE END OF YOUR LIFE, IT CAN BE THE REASON TO START LIVING IT!
ne thing about being a patient engagement consultant and patient advocate who is living life with a serious disease, is that I have to jump through certain hoops every now and again, and regular CT scans are part of this.
However I've never had a CT with pomp and circumstance!
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However I've never had a CT with pomp and circumstance!
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September 17, 2025 at 8:13 PM
ne thing about being a patient engagement consultant and patient advocate who is living life with a serious disease, is that I have to jump through certain hoops every now and again, and regular CT scans are part of this.
However I've never had a CT with pomp and circumstance!
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However I've never had a CT with pomp and circumstance!
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I love being able to champion change for patients by using my patient advocate experience & my pharma expertise. I’m grateful to @AdelphiGroup for inviting me to be part of such a challenging and forward-focussed session in Manchester last week.
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#RepresentingPatients
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#RepresentingPatients
September 17, 2025 at 8:05 PM
I love being able to champion change for patients by using my patient advocate experience & my pharma expertise. I’m grateful to @AdelphiGroup for inviting me to be part of such a challenging and forward-focussed session in Manchester last week.
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#RepresentingPatients
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#RepresentingPatients
I'm excited to be presenting "Effective Clinical Communication is Crucial for Patient Empowerment" at next month's conference, it looks like a great two day programme
For more information on the conference: patient-empowerment.com
#PatientEmpowerment25
#RepresentingPatients
For more information on the conference: patient-empowerment.com
#PatientEmpowerment25
#RepresentingPatients
August 6, 2025 at 9:47 AM
I'm excited to be presenting "Effective Clinical Communication is Crucial for Patient Empowerment" at next month's conference, it looks like a great two day programme
For more information on the conference: patient-empowerment.com
#PatientEmpowerment25
#RepresentingPatients
For more information on the conference: patient-empowerment.com
#PatientEmpowerment25
#RepresentingPatients
Proud to have been involved in the GOOD PATIENT PARTNERSHIP GUIDE, a great initiative to encourage pharma to work with patients to help improve health literacy - critically important to help set patients up for treatment success
precisionaq.com/en-gb/good-pat… #RepresentingPatientsts
precisionaq.com/en-gb/good-pat… #RepresentingPatientsts
July 22, 2025 at 1:55 PM
Proud to have been involved in the GOOD PATIENT PARTNERSHIP GUIDE, a great initiative to encourage pharma to work with patients to help improve health literacy - critically important to help set patients up for treatment success
precisionaq.com/en-gb/good-pat… #RepresentingPatientsts
precisionaq.com/en-gb/good-pat… #RepresentingPatientsts
Sometimes I have to remind myself that “living life with stage 4 cancer” is about LIVING LIFE!
Last week I took Tommy on a little tour visiting family & friends then had a few days in the Peak District
Great adventure
#Stage4
#stage4cancer
#LivingLifeWithCancer
Last week I took Tommy on a little tour visiting family & friends then had a few days in the Peak District
Great adventure
#Stage4
#stage4cancer
#LivingLifeWithCancer
July 21, 2025 at 8:21 PM
Sometimes I have to remind myself that “living life with stage 4 cancer” is about LIVING LIFE!
Last week I took Tommy on a little tour visiting family & friends then had a few days in the Peak District
Great adventure
#Stage4
#stage4cancer
#LivingLifeWithCancer
Last week I took Tommy on a little tour visiting family & friends then had a few days in the Peak District
Great adventure
#Stage4
#stage4cancer
#LivingLifeWithCancer
What a great experience - spent Thursday and Friday in Harrogate with @cancerresearchuk.org for their ALL FELLOWS meeting - an opportunity to meet and network with talented cancer researchers from across the UK.
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#CRUKAllFellows
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#CRUKAllFellows
July 8, 2025 at 7:02 AM
What a great experience - spent Thursday and Friday in Harrogate with @cancerresearchuk.org for their ALL FELLOWS meeting - an opportunity to meet and network with talented cancer researchers from across the UK.
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#CRUKAllFellows
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#CRUKAllFellows
Here’s a new app giving access to the only bespoke, managed mobile database of bowel disease related research - could be a useful tool for any colorectal cancer patients looking for active studies.
Great initiative from Bowel Research UK and Acpgbi
bowelresearchuk.org/trialsapp/
Great initiative from Bowel Research UK and Acpgbi
bowelresearchuk.org/trialsapp/
July 2, 2025 at 6:24 PM
Here’s a new app giving access to the only bespoke, managed mobile database of bowel disease related research - could be a useful tool for any colorectal cancer patients looking for active studies.
Great initiative from Bowel Research UK and Acpgbi
bowelresearchuk.org/trialsapp/
Great initiative from Bowel Research UK and Acpgbi
bowelresearchuk.org/trialsapp/
Being in a clinical trial can gain access to the latest treatments and help us all learn more about medicines in development.
The big challenge is often finding out about them - that’s where this site is excellent, best I’ve found:
clinicaltrials.gov
The big challenge is often finding out about them - that’s where this site is excellent, best I’ve found:
clinicaltrials.gov
June 8, 2025 at 12:41 PM
Being in a clinical trial can gain access to the latest treatments and help us all learn more about medicines in development.
The big challenge is often finding out about them - that’s where this site is excellent, best I’ve found:
clinicaltrials.gov
The big challenge is often finding out about them - that’s where this site is excellent, best I’ve found:
clinicaltrials.gov
This afternoon I had great fun recording a podcast as part of Chris Nichols’ series called “About Time”, we talked about Strive for Five and Beyond & so much more!
You can find the series here, it's a great listen: open.spotify.com/show/4hPwWq5...
You can find the series here, it's a great listen: open.spotify.com/show/4hPwWq5...
June 7, 2025 at 5:20 AM
This afternoon I had great fun recording a podcast as part of Chris Nichols’ series called “About Time”, we talked about Strive for Five and Beyond & so much more!
You can find the series here, it's a great listen: open.spotify.com/show/4hPwWq5...
You can find the series here, it's a great listen: open.spotify.com/show/4hPwWq5...
I also want to take the fear away from the disease - let’s stop calling it “the big C”, that gives it power.
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May 24, 2025 at 3:37 PM
I also want to take the fear away from the disease - let’s stop calling it “the big C”, that gives it power.
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12 years ago today I was diagnosed with stage 4 bowel (colorectal) cancer
When I was told “it’s spread to your liver and both lungs” I thought my life was over, but thanks to great medical & surgical care, and the support of my incredible friends and family, I’M STILL HERE!
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When I was told “it’s spread to your liver and both lungs” I thought my life was over, but thanks to great medical & surgical care, and the support of my incredible friends and family, I’M STILL HERE!
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May 24, 2025 at 3:37 PM
12 years ago today I was diagnosed with stage 4 bowel (colorectal) cancer
When I was told “it’s spread to your liver and both lungs” I thought my life was over, but thanks to great medical & surgical care, and the support of my incredible friends and family, I’M STILL HERE!
1/6
When I was told “it’s spread to your liver and both lungs” I thought my life was over, but thanks to great medical & surgical care, and the support of my incredible friends and family, I’M STILL HERE!
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Two sides of Wednesday -what a difference!
Started with my CT. I’m allergic to the contrast so I have to be on cetirizine and steroids, which ramps up the anxiety. Had to revisit the importance of the tip on coping with SCANXIETY (attached for anyone going through this)
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Started with my CT. I’m allergic to the contrast so I have to be on cetirizine and steroids, which ramps up the anxiety. Had to revisit the importance of the tip on coping with SCANXIETY (attached for anyone going through this)
1/3
May 24, 2025 at 2:09 PM
Two sides of Wednesday -what a difference!
Started with my CT. I’m allergic to the contrast so I have to be on cetirizine and steroids, which ramps up the anxiety. Had to revisit the importance of the tip on coping with SCANXIETY (attached for anyone going through this)
1/3
Started with my CT. I’m allergic to the contrast so I have to be on cetirizine and steroids, which ramps up the anxiety. Had to revisit the importance of the tip on coping with SCANXIETY (attached for anyone going through this)
1/3
Thank you to all the amazing nurses who’ve done so much to help me on my cancer journey over the past 11 years - I literally wouldn’t be here without you.
Thank you to all the nurses, what you do makes a real difference, we all appreciate you.
#InternationalNursesDay
Thank you to all the nurses, what you do makes a real difference, we all appreciate you.
#InternationalNursesDay
May 13, 2025 at 5:13 AM
Thank you to all the amazing nurses who’ve done so much to help me on my cancer journey over the past 11 years - I literally wouldn’t be here without you.
Thank you to all the nurses, what you do makes a real difference, we all appreciate you.
#InternationalNursesDay
Thank you to all the nurses, what you do makes a real difference, we all appreciate you.
#InternationalNursesDay
“The Prevention Revolution in your Healthcare” was the bold title of our expert panel yesterday afternoon at the #Anthropy25 meeting at Eden Project in Cornwall.
The whole discussion will be captured and condensed into a paper which will be published soon, watch this space!
The whole discussion will be captured and condensed into a paper which will be published soon, watch this space!
March 28, 2025 at 4:48 PM
“The Prevention Revolution in your Healthcare” was the bold title of our expert panel yesterday afternoon at the #Anthropy25 meeting at Eden Project in Cornwall.
The whole discussion will be captured and condensed into a paper which will be published soon, watch this space!
The whole discussion will be captured and condensed into a paper which will be published soon, watch this space!
I’m already feeling inspired and #Anthropy25 has only just started!
I’m at the Eden Project for the next few days & presenting in the session “The Prevention Revolution in Your Healthcare” where I’ll be representing the patient perspective
#RepresentingPatients
I’m at the Eden Project for the next few days & presenting in the session “The Prevention Revolution in Your Healthcare” where I’ll be representing the patient perspective
#RepresentingPatients
March 26, 2025 at 11:32 AM
I’m already feeling inspired and #Anthropy25 has only just started!
I’m at the Eden Project for the next few days & presenting in the session “The Prevention Revolution in Your Healthcare” where I’ll be representing the patient perspective
#RepresentingPatients
I’m at the Eden Project for the next few days & presenting in the session “The Prevention Revolution in Your Healthcare” where I’ll be representing the patient perspective
#RepresentingPatients
I was so grateful to receive this heartwarming message about the recent Podcast I recorded. So glad it’s of help.
You can hear the full episode here: player.captivate.fm/episode/74678f…
This is what we talked about (we covered a lot in 20 minutes):
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You can hear the full episode here: player.captivate.fm/episode/74678f…
This is what we talked about (we covered a lot in 20 minutes):
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March 3, 2025 at 1:10 PM
I was so grateful to receive this heartwarming message about the recent Podcast I recorded. So glad it’s of help.
You can hear the full episode here: player.captivate.fm/episode/74678f…
This is what we talked about (we covered a lot in 20 minutes):
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You can hear the full episode here: player.captivate.fm/episode/74678f…
This is what we talked about (we covered a lot in 20 minutes):
1/3
I’ve learned so much at the Patient Centricity & Collaboration World Congress in London. So many inspirational people from patient advocacy, pharma companies and communication / education / research companies all in one place with one goal - to improve healthcare!
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March 1, 2025 at 7:56 PM
I’ve learned so much at the Patient Centricity & Collaboration World Congress in London. So many inspirational people from patient advocacy, pharma companies and communication / education / research companies all in one place with one goal - to improve healthcare!
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Wow, only two weeks to the Patient Centricity World Congress in London.
Very excited to be part of the opening panel. We’ll be discussing “Effective patient engagement essential for defining outcomes that are truly reflective of what matters most to patients”
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Very excited to be part of the opening panel. We’ll be discussing “Effective patient engagement essential for defining outcomes that are truly reflective of what matters most to patients”
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February 12, 2025 at 2:49 PM
Wow, only two weeks to the Patient Centricity World Congress in London.
Very excited to be part of the opening panel. We’ll be discussing “Effective patient engagement essential for defining outcomes that are truly reflective of what matters most to patients”
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Very excited to be part of the opening panel. We’ll be discussing “Effective patient engagement essential for defining outcomes that are truly reflective of what matters most to patients”
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Yesterday was #WorldCancerDay, it's a chance to share what I learned from a group of cancer patients. This can be summarised in 4 areas & 2 themes
4 areas Research-Access-Care-Support
2 themes: patients need the SCIENCE, & equally important are the so called SOFT SKILLS
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4 areas Research-Access-Care-Support
2 themes: patients need the SCIENCE, & equally important are the so called SOFT SKILLS
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February 5, 2025 at 8:39 PM
Yesterday was #WorldCancerDay, it's a chance to share what I learned from a group of cancer patients. This can be summarised in 4 areas & 2 themes
4 areas Research-Access-Care-Support
2 themes: patients need the SCIENCE, & equally important are the so called SOFT SKILLS
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4 areas Research-Access-Care-Support
2 themes: patients need the SCIENCE, & equally important are the so called SOFT SKILLS
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Wishing a very happy Christmas to everyone who follows Strive for Five.
Instead of Christmas cards I’ve made a donation to Cancer Research UK to help support their essential work.
@cancerresearchuk.org
Instead of Christmas cards I’ve made a donation to Cancer Research UK to help support their essential work.
@cancerresearchuk.org
December 21, 2024 at 8:05 PM
Wishing a very happy Christmas to everyone who follows Strive for Five.
Instead of Christmas cards I’ve made a donation to Cancer Research UK to help support their essential work.
@cancerresearchuk.org
Instead of Christmas cards I’ve made a donation to Cancer Research UK to help support their essential work.
@cancerresearchuk.org
Being told we have to wait for the next scan before treatment can start feels crazy - I've experienced this a few times
In my blog I discuss why doctors opt for "watch & wait" instead of zapping straight away
Hope it helps
Big hugs
www.striveforfive.org/why-do-we-ha...
In my blog I discuss why doctors opt for "watch & wait" instead of zapping straight away
Hope it helps
Big hugs
www.striveforfive.org/why-do-we-ha...
December 17, 2024 at 9:27 PM
Being told we have to wait for the next scan before treatment can start feels crazy - I've experienced this a few times
In my blog I discuss why doctors opt for "watch & wait" instead of zapping straight away
Hope it helps
Big hugs
www.striveforfive.org/why-do-we-ha...
In my blog I discuss why doctors opt for "watch & wait" instead of zapping straight away
Hope it helps
Big hugs
www.striveforfive.org/why-do-we-ha...
Great to meet with my MP @mattrodda.bsky.social with @cancerresearchuk.org
We discussed factors affecting cancer including risk factors and treatments, & the second reading of the Tobacco and Vapes Bill
It’s good to know my MP is committed to helping people affected by cancer.
#SmokeFreeUK
We discussed factors affecting cancer including risk factors and treatments, & the second reading of the Tobacco and Vapes Bill
It’s good to know my MP is committed to helping people affected by cancer.
#SmokeFreeUK
November 27, 2024 at 7:53 PM
Great to meet with my MP @mattrodda.bsky.social with @cancerresearchuk.org
We discussed factors affecting cancer including risk factors and treatments, & the second reading of the Tobacco and Vapes Bill
It’s good to know my MP is committed to helping people affected by cancer.
#SmokeFreeUK
We discussed factors affecting cancer including risk factors and treatments, & the second reading of the Tobacco and Vapes Bill
It’s good to know my MP is committed to helping people affected by cancer.
#SmokeFreeUK