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solveme.bsky.social
Solve M.E.
@solveme.bsky.social
620 followers 260 following 180 posts
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
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solveme.bsky.social
For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness.

This week’s focus: the Employee Retirement Income Security Act (ERISA).

Download our one-pager here:
solvecfs.org/wp-content/u...

#UnitedForME
A multicolored one-page document, "Supporting Loved Ones Through a Disability Insurance Claim ERISA 101 for ME/CFS Caregivers," contains legal tips for handling insurance disability claims, co-branded with logos from Solve M.E. and Kantor & Kantor, LLP.
November 11, 2025 at 6:50 PM
solveme.bsky.social
🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU
Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET
November 3, 2025 at 9:52 PM
solveme.bsky.social
🎓 Solve is proud to sponsor the IACC Case Competition at
University of Michigan Ross School of Business this Friday, Oct 31. Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more.

Registration (in-person or virtual) is free!

ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition hosted by University of Michigan Ross, focusing on infection-associated chronic conditions, October 31st, hybrid event.
October 27, 2025 at 10:39 PM
solveme.bsky.social
Even if you don’t have Medicare, this could affect your care as private insurers frequently follow Medicare’s lead.
📬 Details on how to make a public comment here:
solvecfs.org/speak-up-to-...
Action alert from Solve M.E. reads: Medicare alert: Coverage for emerging ME/CFS treatment at risk. 5 out of 7 medicare contractors (MACS) have proposed denying coverage for peripheral nerve block treatments such as stellate ganglion blocks. these procedures have been helping people with ME/CFS and Long Covid. Comment deadline: November 8th, 2025.
October 21, 2025 at 9:30 PM
solveme.bsky.social
Watch the replay of our webinar on the unhide® Solve Together Unified Platform! Panelists from the Brain Inflammation Collaborative discuss the secure platform allowing patients to contribute data to support research across 30+ conditions.
youtu.be/Yssihztzw_w

Visit unhidenow.org to enroll.
Webinar recording promotional graphic titled “The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.” Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
October 15, 2025 at 5:05 PM
solveme.bsky.social
📢 Now enrolling for 30+ chronic conditions & patients of all ages! The Unified Platform is opening doors to pediatric participants (ages 2+), helping change how we understand chronic illness and brain inflammation across the lifespan.
unhidenow.org

#MECFS #LongCovid
Enrollment open for children and teens in a program tracking symptoms, connecting wearables, and supporting research for ages 2 and up.
October 14, 2025 at 8:04 PM
solveme.bsky.social
🎉It’s DAF Day 2025—a nationwide celebration of generosity through Donor-Advised Funds. Help make ME/CFS and Long Covid widely understood, diagnosable, and treatable. Join us and be part of the movement! 🧡
ow.ly/FNuU50X9pnb

#DAFDay2025 #MECFS #LongCovid #givingtogether
Bright orange background with text celebrating Donor-Advised Fund Day and encouraging gifts to support ME/CFS and Long Covid research by Solve M.E.
October 9, 2025 at 7:18 PM
solveme.bsky.social
📢Big thanks to advocate and caregiver Rebecca Groble (pictured right) and her friend for hosting a booth at their local Nurtured by Nature health fair. They handed out free educational literature to help raise awareness about #MECFS. 👏💙
#MEAwarenessHour
Two women sit outdoors at a table covered with a Solve M.E. banner.
October 8, 2025 at 7:20 PM
solveme.bsky.social
🎓 Solve is proud to sponsor the Oct 31 #IACC Case Competition at University of Michigan Ross School of Business! Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more. Registration (in-person or virtual) is free!
ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition at University of Michigan Ross, focusing on infection-associated chronic conditions like Long COVID and ME/CFS, held October 31st, hybrid format.
October 3, 2025 at 10:08 PM
solveme.bsky.social
The federal government has shut down, and the impacts are already being felt across systems and services our community depends on. Read our summary of the key areas of impact and tips on ways to stay connected:
solvecfs.org/government-s...
Solve M.E. logo above text about government shutdown impacts on ME/CFS, Long COVID, and IACCI communities in muted green on teal background.
October 3, 2025 at 9:32 PM
solveme.bsky.social
Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with #LongCovid for more than 2 years. We’re glad to see BioVie's trial continues to reflect patient + scientific input! Find a trial site near you:
addresslongcovid.com/sites
Person lying in bed with hand on forehead, illustrating fatigue and brain fog after COVID-19 illness.
October 1, 2025 at 7:00 PM
solveme.bsky.social
Solve and partner organizations urge NIH leadership to include subgroup tracking and analysis for #MECFS (using IOM criteria), #POTS & other forms of #dysautonomia, and #MCAS in the RECOVER TLC trials.

Read our letter here:
ow.ly/CHME50WUcx1

#United4Me
photo of Emily Taylor (brown hair, glasses) with quote text: "Solve joined this call to NIH leadership because people with ME/CFS, Long Covid, and related illnesses like POTS and MCAS deserve research that truly reflects their realities. By ensuring clinical trials account for the differences among patients, we can accelerate discoveries that lead to real treatments and improved care. This is a moment of great responsibility, and we are committed to making sure science rises to meet the needs of millions still waiting for answers.”
September 9, 2025 at 8:45 PM
solveme.bsky.social
Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), & will co-present a panel with our partners at Brain Inflammation Collaborative (BIC).

Register for IACFSME: ow.ly/mxz950WRARt
IACFS/ME Research and Clinical Conference, (virtual) Oct 22-25, 2025 On Oct. 23rd, Solve & the Brain Inflammation Collaborative (BIC) will co-present an IACFS/ME panel on our participant-centered digital health platform for ME, Long Covid, and related conditions. Join us to learn how digital tools can support inclusive research and real-world data collection. Register at IACFSME.ORG Proud Supporting Sponsor: Solve M.E. logo
September 4, 2025 at 11:40 PM
solveme.bsky.social
Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved.
Sign up: ow.ly/luTT50WGMXV
Webinar promotional graphic titled “The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.” Event date: Tuesday, October 14, 2025, at 3 pm PT / 6 pm ET. Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
September 4, 2025 at 6:43 PM
solveme.bsky.social
Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social‬ & @putrinolab.bsky.social discuss how patients are reshaping research.
Watch: https://ow.ly/xcAE50WNhXP
August 28, 2025 at 12:36 AM
solveme.bsky.social
Today, we join the #MECFS community in thanking Dr. Beth Unger for her years of dedication at the CDC. Her leadership helped protect the ME/CFS program, expand research, and elevate patient voices.
📄 Read our open letter of gratitude: ow.ly/Im0a50WGS3m
A teal blue graphic with white lettering adn orange and white decorative shapes reads, "Thank you message to Dr. Beth Unger for your years of service to the ME/CFS community. Your work at the CDC has helped protect vital programs, expand research, and keep patients' needs at the center. Read the open letter from our community -- link in bio."
August 15, 2025 at 9:51 PM
solveme.bsky.social
Pt. 2 of the Severe #MECFS Webinar Series co-hosted by
@batemanhornecenter.bsky.social + Solve. The session covers legal planning for those with severe ME & their caregivers. Topics include SSDI, SSI, POA, guardianship & more.
ow.ly/mGAP50WGMBf
#SevereMEAwareness #DisabilityRights
August 15, 2025 at 7:06 PM
solveme.bsky.social
The unhide® + Solve Together Unified Platform makes clinical research simple. Join from anywhere, pick the studies you want, track symptoms, and complete surveys—all on
your phone or computer. Your voice. Your platform. Let’s unhide, together.

www.unhidenow.org
August 14, 2025 at 12:37 AM
solveme.bsky.social
In this video, Solve M.E. Lived Experience Taskforce (LET) member Hollis Mickey talks about why it’s important that the language of blame be avoided when discussing #SevereME.

#UnitedForME #SevereMEDay
August 8, 2025 at 9:06 PM
solveme.bsky.social
On Aug. 8, we mark #SevereMEDay & raise awareness by elevating the experiences of those impacted. We also share free educational resources to help people understand the impact of #SevereME.

Learn more here:
ow.ly/KBjQ50WCcMh

#UnitedForME #LearnFromME
Graphic with teal background and white font reads: August 8 Severe ME Day Resources and Educational Materials
August 8, 2025 at 6:05 PM
solveme.bsky.social
What if your body couldn’t bear light, sound, movement — or even touch? Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years. For people living with Very Severe ME, this isn’t a metaphor — it’s reality. 🧵
August 8, 2025 at 3:55 PM
solveme.bsky.social
In honor of #SevereMEDay (Aug. 8), we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard.
#SevereME #LearnFromME @batemanhornecenter.bsky.social @openmedf.bsky.social @meactnet.bsky.social
Simple graphic with logos from Bateman Horne Center, Solve ME/CFS Initiative, Open Medicine Foundation, and MEAction at the top. Text underneath reads: “Together, we’re amplifying Severe ME voices with one united hashtag: #UnitedForME.”
August 7, 2025 at 5:46 PM
solveme.bsky.social
Register for our Thurs. September 4 webinar on the Solve ME/CFS Catalyst Award-winning study from the team at bsky.app/profile/simm..., "Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for #MECFS, #LongCOVID, and #IACCIs."
Sign up here: ow.ly/ReIW50WApvO
Announcement for a clinical trial webinar on low-dose rapamycin targeting autophagy for ME/CFS, Long Covid, and IACCIS on September 4 at 3 pm PT/6 pm ET. Includes photos of Dr. C. Gunnar Gottschalk, Dr. Avik Roy, Dr. Stephanie Gratch, and Emily Taylor.
August 5, 2025 at 10:27 PM
solveme.bsky.social
This #SevereME Awareness Month, we recognize those living with the most severe & isolating form of #MECFS. Solve & @batemanhornecenter.bsky.social co-hosted a
4-part series on caregiving, legal planning, treatment, and research.

Watch Pt. 1 on Caregiving:
ow.ly/6CUn50WAoW4

#UnitedForME
August 5, 2025 at 9:57 PM
solveme.bsky.social
A new Journal of Immunology study co-authored by @virusesimmunity.bsky.social (@yaleschoolofmed.bsky.social) distinguishes groups of people with #MECFS based on blood-plasma & cerebrospinal fluid proteins and has implications for causes, symptoms, & treatments. Read our summary:
ow.ly/rtO850Wwsyx
A square graphic with the Solve M.E. orange and green double helix icon includes a background image of a scientific lab overlayed with bold black text that reads "Study by Dr. Akiko Iwasaki & Team Examines ME/CFS Subgroups Based on Cerebrospinal Fluid and Blood Plasma Proteins. Read our summary."
July 29, 2025 at 10:24 PM