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solveme.bsky.social
Solve M.E.
@solveme.bsky.social
630 followers 260 following 180 posts
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
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solveme.bsky.social
Solve M.E. @solveme.bsky.social · 9d
🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU
Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET
solveme.bsky.social
For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness.

This week’s focus: the Employee Retirement Income Security Act (ERISA).

Download our one-pager here:
solvecfs.org/wp-content/u...

#UnitedForME
A multicolored one-page document, "Supporting Loved Ones Through a Disability Insurance Claim ERISA 101 for ME/CFS Caregivers," contains legal tips for handling insurance disability claims, co-branded with logos from Solve M.E. and Kantor & Kantor, LLP.
November 11, 2025 at 6:50 PM
solveme.bsky.social
🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU
Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET
November 3, 2025 at 9:52 PM
solveme.bsky.social
🎓 Solve is proud to sponsor the IACC Case Competition at
University of Michigan Ross School of Business this Friday, Oct 31. Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more.

Registration (in-person or virtual) is free!

ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition hosted by University of Michigan Ross, focusing on infection-associated chronic conditions, October 31st, hybrid event.
October 27, 2025 at 10:39 PM
Reposted by Solve M.E.
solveme.bsky.social
The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms — shaping global campaigns for people with ME, a disease long neglected & stigmatized.

💻 Remote (UK or +/-3 hours of pacific time)
⏰ 14 hrs/wk

Apply by 10 Nov 2025 👉

worldmealliance.org/2025/10/were...
We're recruiting a new Head of Advocacy and Comms - World ME Alliance
We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested? About the Role Are you a strategic thinker who loves connecting peopl...
worldmealliance.org
October 20, 2025 at 6:29 PM
solveme.bsky.social
Medicare contractors want to restrict access to Peripheral Nerve Blocks like Stellate Ganglion Block (SGB), which some w/ #MECFS & #LongCOVID have just been starting to access and report early benefits from.
October 21, 2025 at 9:30 PM
solveme.bsky.social
The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms — shaping global campaigns for people with ME, a disease long neglected & stigmatized.

💻 Remote (UK or +/-3 hours of pacific time)
⏰ 14 hrs/wk

Apply by 10 Nov 2025 👉

worldmealliance.org/2025/10/were...
We're recruiting a new Head of Advocacy and Comms - World ME Alliance
We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested? About the Role Are you a strategic thinker who loves connecting peopl...
worldmealliance.org
October 20, 2025 at 6:29 PM
solveme.bsky.social
Watch the replay of our webinar on the unhide® Solve Together Unified Platform! Panelists from the Brain Inflammation Collaborative discuss the secure platform allowing patients to contribute data to support research across 30+ conditions.
youtu.be/Yssihztzw_w

Visit unhidenow.org to enroll.
Webinar recording promotional graphic titled “The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.” Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
October 15, 2025 at 5:05 PM
solveme.bsky.social
📢 Now enrolling for 30+ chronic conditions & patients of all ages! The Unified Platform is opening doors to pediatric participants (ages 2+), helping change how we understand chronic illness and brain inflammation across the lifespan.
unhidenow.org

#MECFS #LongCovid
Enrollment open for children and teens in a program tracking symptoms, connecting wearables, and supporting research for ages 2 and up.
October 14, 2025 at 8:04 PM
solveme.bsky.social
Register today for the @icancmeresearch.bsky.social online conference Nov. 4-6. The event was designed by people w/ #MECFS and the theme is “Nothing About Us Without Us.”

icancme.ca/research/202...
2025 ME Conference - ICanCME
icancme.ca
October 13, 2025 at 4:31 PM
solveme.bsky.social
A UK-based research team has developed a new blood-based assay, the EpiSwitch CFS test, that may prove very effective for diagnosing people with #MECFS. Read our summary of the study (published in the Journal of Translational Medicine) here:
ow.ly/UnXo50X9vyw
Unique Blood-based Test Holds Much Promise for Diagnosing People with ME/CFS - Solve ME/CFS Initiative
Dr. Dmitri Pchejetski, at the University of East Anglia Medical School (United Kingdom), has developed a new blood-based assay, the EpiSwitch CFS test, that may prove very effective for diagnosing peo...
ow.ly
October 10, 2025 at 12:02 AM
solveme.bsky.social
🎉It’s DAF Day 2025—a nationwide celebration of generosity through Donor-Advised Funds. Help make ME/CFS and Long Covid widely understood, diagnosable, and treatable. Join us and be part of the movement! 🧡
ow.ly/FNuU50X9pnb

#DAFDay2025 #MECFS #LongCovid #givingtogether
Bright orange background with text celebrating Donor-Advised Fund Day and encouraging gifts to support ME/CFS and Long Covid research by Solve M.E.
October 9, 2025 at 7:18 PM
solveme.bsky.social
ICYMI: Solve Ramsay Research Grant winner Dr. Jarred Younger explains the recent study by fellow Ramsay winner
Dr. Carmen Scheibenbogen
on the effect of #Mestinon (Pyridostigmine) on hand strength in #MECFS
ow.ly/YPzk50X8GYF

#MEAwarenessHour
074 - New study: Pyridostigmine may help ME/CFS muscle weakness
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
ow.ly
October 8, 2025 at 7:21 PM
solveme.bsky.social
📢Big thanks to advocate and caregiver Rebecca Groble (pictured right) and her friend for hosting a booth at their local Nurtured by Nature health fair. They handed out free educational literature to help raise awareness about #MECFS. 👏💙
#MEAwarenessHour
Two women sit outdoors at a table covered with a Solve M.E. banner.
October 8, 2025 at 7:20 PM
solveme.bsky.social
🎓 Solve is proud to sponsor the Oct 31 #IACC Case Competition at University of Michigan Ross School of Business! Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more. Registration (in-person or virtual) is free!
ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition at University of Michigan Ross, focusing on infection-associated chronic conditions like Long COVID and ME/CFS, held October 31st, hybrid format.
October 3, 2025 at 10:08 PM
solveme.bsky.social
The federal government has shut down, and the impacts are already being felt across systems and services our community depends on. Read our summary of the key areas of impact and tips on ways to stay connected:
solvecfs.org/government-s...
Solve M.E. logo above text about government shutdown impacts on ME/CFS, Long COVID, and IACCI communities in muted green on teal background.
October 3, 2025 at 9:32 PM
solveme.bsky.social
Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with #LongCovid for more than 2 years. We’re glad to see BioVie's trial continues to reflect patient + scientific input! Find a trial site near you:
addresslongcovid.com/sites
Person lying in bed with hand on forehead, illustrating fatigue and brain fog after COVID-19 illness.
October 1, 2025 at 7:00 PM
solveme.bsky.social
Patient voices were heard! The ADDRESS-LC trial on Bezisterim is now open to those who have been living with Long COVID for more than 2 years. We’re glad to see Biovie’s trial continues to reflect patient + scientific input!

Find a trial site near you: addresslongcovid.com/sites/
Study Sites | Address: Long COVID Clinical Study | BioVie Pharma
Study Sites near you! Learn more about participating in a clinical study of a Trial Drug to treat neurological symptoms of Long COVID.
addresslongcovid.com
September 23, 2025 at 10:29 PM
solveme.bsky.social
Check out this article on a London photo exhibition by Jeremy Jeff depicting life with #MECFS. The exhibition, presented by The ME Association, will be on display Sept. 24-28.

www.londonworld.com/community/th...

#MEAwarenessHour
Thought-provoking photography exhibition captures what it’s like to live with ME/CFS
‘Lives We Cannot Live’, a new and thought-provoking photographic exhibition by documentary film-maker and photographer Jeremy Jeffs, presented by The ME Association, will be on display at the iconic O...
www.londonworld.com
September 10, 2025 at 7:46 PM
solveme.bsky.social
Solve and partner organizations urge NIH leadership to include subgroup tracking and analysis for #MECFS (using IOM criteria), #POTS & other forms of #dysautonomia, and #MCAS in the RECOVER TLC trials.

Read our letter here:
ow.ly/CHME50WUcx1

#United4Me
photo of Emily Taylor (brown hair, glasses) with quote text: "Solve joined this call to NIH leadership because people with ME/CFS, Long Covid, and related illnesses like POTS and MCAS deserve research that truly reflects their realities. By ensuring clinical trials account for the differences among patients, we can accelerate discoveries that lead to real treatments and improved care. This is a moment of great responsibility, and we are committed to making sure science rises to meet the needs of millions still waiting for answers.”
September 9, 2025 at 8:45 PM
solveme.bsky.social
Solve is a proud sponsor of the virtual International #ChronicFatigueSyndrome / #MyalgicEncephalomyelitis (#IACFSME) 17th Research and Clinical Conference (Oct. 22-25), & will co-present a panel with our partners at Brain Inflammation Collaborative (BIC).

Register for IACFSME: ow.ly/mxz950WRARt
IACFS/ME Research and Clinical Conference, (virtual) Oct 22-25, 2025 On Oct. 23rd, Solve & the Brain Inflammation Collaborative (BIC) will co-present an IACFS/ME panel on our participant-centered digital health platform for ME, Long Covid, and related conditions. Join us to learn how digital tools can support inclusive research and real-world data collection. Register at IACFSME.ORG Proud Supporting Sponsor: Solve M.E. logo
September 4, 2025 at 11:40 PM
solveme.bsky.social
Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ Christy Jagdfeld & Megan L. Fitzgerald PhD (BIC) & Chris Nowak to learn how you can get involved.
Sign up: ow.ly/luTT50WGMXV
Webinar promotional graphic titled “The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.” Event date: Tuesday, October 14, 2025, at 3 pm PT / 6 pm ET. Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
September 4, 2025 at 6:43 PM
Reposted by Solve M.E.
meactnet.bsky.social
You are invited to join #MEAction for our latest Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK.

Register: us06web.zoom.us/meeting/regi...

More about Pillow Writers: pillowwriters.wordpress.com

#pwME #MECFS #spoonie #WritingCommunity #LongCovid #MyalgicE
Welcome! You are invited to join a meeting: Pillow Writers Salon 2025. After registering, you will receive a confirmation email about joining the meeting.
Join #MEAction for our exciting Pillow Writers’ Salon on Thursday, September 18th at 11am PT/2pm ET/7pm UK. This live Salon will feature readings by the authors of both comic and serious, stories, e...
us06web.zoom.us
September 4, 2025 at 4:17 PM
solveme.bsky.social
Happening today at 3pm PT / 6 pm ET.

You can still register at
ow.ly/ReIW50WApvO
solveme.bsky.social Solve M.E. @solveme.bsky.social · Aug 5
Register for our Thurs. September 4 webinar on the Solve ME/CFS Catalyst Award-winning study from the team at bsky.app/profile/simm..., "Targeting Autophagy: A Clinical Trial of Low-Dose Rapamycin for #MECFS, #LongCOVID, and #IACCIs."
Sign up here: ow.ly/ReIW50WApvO
Announcement for a clinical trial webinar on low-dose rapamycin targeting autophagy for ME/CFS, Long Covid, and IACCIS on September 4 at 3 pm PT/6 pm ET. Includes photos of Dr. C. Gunnar Gottschalk, Dr. Avik Roy, Dr. Stephanie Gratch, and Emily Taylor.
September 4, 2025 at 6:36 PM
solveme.bsky.social
Solve & @batemanhornecenter.bsky.social co-hosted a webinar series on Severe ME. In this ep. dedicated to removing barriers to research for people with #SevereME, sabrinapoirier.bsky.social‬ & @putrinolab.bsky.social discuss how patients are reshaping research.
Watch: https://ow.ly/xcAE50WNhXP
August 28, 2025 at 12:36 AM
solveme.bsky.social
Today, we join the #MECFS community in thanking Dr. Beth Unger for her years of dedication at the CDC. Her leadership helped protect the ME/CFS program, expand research, and elevate patient voices.
📄 Read our open letter of gratitude: ow.ly/Im0a50WGS3m
A teal blue graphic with white lettering adn orange and white decorative shapes reads, "Thank you message to Dr. Beth Unger for your years of service to the ME/CFS community. Your work at the CDC has helped protect vital programs, expand research, and keep patients' needs at the center. Read the open letter from our community -- link in bio."
August 15, 2025 at 9:51 PM