Was a custard cream haha! Top tier biscuit for energy 🙌

Thanks so much Tamar! 🙏🙏 how are you doing atm??? It’s been ages since we last crossed paths! 🙌

This remains one of the best things I’ve written about what it *feels* like living with chronic fatigue.

Luckily I don’t have it as bad as when I wrote that. But I do have relapses & I don’t have the same energy I used to have, that I’m always grieving for.

smizz.wordpress.com/2014/06/14/d...

I can tell you tho, that there is a HUGE difference between being alive & FEELING alive.

& if you don’t know what that means, then you have the greatest privilege of all. Decent health & access.

It is not laziness.
It is not a lack of willpower.
It is not something that can be "fixed" with a better attitude, or sheer determination.

It is work—hard, unrelenting work to exist in a world that was not built with you in mind. And often in a body that can feel quite hostile.

It is grief & resilience intertwined, an endless balancing act between pushing through & self-preservation. And I never get the balance right.

It is an experience that reshapes everything—your body, your future, the way you move through the world.

It is waking up every day knowing that pain, fatigue, or symptoms beyond your control will dictate what you can and cannot do. And a lot of people around you will not understand this.

I’ve written about it here on my Substack:

smizz.substack.com/p/the-echo-o...