Thank you for your generous donations for @pkuireland €570 raised for new #PKU projects such as the development of our new community website to support children and adults with PKU and their families. We also had the opportunity to help raise awareness at this fun event🙏🏃‍♂️

If you are a family member of someone with #PKU on the island of Ireland, your voice matters. Link to access 👉
dcusciencehealth.qualtrics.com/jfe/form/SV_...

📢 PLEASE RESHARE TO HELP US REACH MORE FAMILIES

#InternationalPKUDay2025 #CommunityDriven #ResearchThatMatters

Delicious 😋 #Vitaflo #ProteinFree ice cream with 6 simple ingredients. Grateful for the gift of an ice cream maker that makes it just the right consistency! 🍨🍦

Privileged to learn, network and contribute @ERDERA_org #TeddyKids training in Athens on behalf of @RAiNAllIreland to promising young #RareDisease researchers from across Europe.

#BuildingLeadersNotFollowers #RareDisease #Research #Collaboration

Honored to represent
@PKU_Ireland at the Vitaflo Metabolic Family Conference 2025, one of the largest gatherings of Ireland's metabolic community in recent years. Heartfelt thanks to Amy, Claire, Suzie, Elisa, Neil and the Vitaflo team for organising such an outstanding event.

Delighted to celebrate #RareDiseaseDay2025 with families at Ashe Memorial Hall in Tralee, Ireland. Special thanks to Kerry County Council and Mayor of Tralee @mikeysheehy.bsky.social and Cllr Angie Bailey for supporting the event. #LightUp4RD #RareDiseaseAwareness

Best wishes for a Happy and Healthy Christmas and New Year from our family to yours.

#Fate #Gingerbread #LowProtein

@PKU_Ireland continue to wait for HTA decision on #Palynziq for #PKU 3 yrs after full submission to
@INFO_NCPE

So grateful Colm, Emer, Chloe, David for highlighting the frustration felt by so many of us in the PKU community.
#IndividualisedCare #LifeLongCare