SEDSConnective
@sedsconnective.org
The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA DYSLEXIA EDS HSD pain
Chair @JGjanegreenmbe.bsky.social
Patron @bendybrain DrzakSpiritos
Web: www.sedsconnective.org
Link: https://linktr.ee/SEDSConnective
Chair @JGjanegreenmbe.bsky.social
Patron @bendybrain DrzakSpiritos
Web: www.sedsconnective.org
Link: https://linktr.ee/SEDSConnective
Misusing language about neurodivergence has happened in the past.
To keep doing it is linguistically oppressive in action just as it is with race, gender or religion.
To keep doing it is linguistically oppressive in action just as it is with race, gender or religion.
November 11, 2025 at 9:06 AM
Misusing language about neurodivergence has happened in the past.
To keep doing it is linguistically oppressive in action just as it is with race, gender or religion.
To keep doing it is linguistically oppressive in action just as it is with race, gender or religion.
#AntiBullyingWeek 2025! This years theme is “Power for Good" - organised by the Anti-Bullying Alliance (ABA) this week is all about empowering everyone to use their power to support others!
November 10, 2025 at 8:00 AM
#AntiBullyingWeek 2025! This years theme is “Power for Good" - organised by the Anti-Bullying Alliance (ABA) this week is all about empowering everyone to use their power to support others!
'Who' s Avoiding what?'
British Psychological Society Annual Conference 2025 Monday 10th November
Education Additional Needs Unmet Needs EBSA Neurodivergence
#edpsych #cpsych @BPSOfficial #education #AN #EBSA
British Psychological Society Annual Conference 2025 Monday 10th November
Education Additional Needs Unmet Needs EBSA Neurodivergence
#edpsych #cpsych @BPSOfficial #education #AN #EBSA
November 7, 2025 at 5:47 PM
'Who' s Avoiding what?'
British Psychological Society Annual Conference 2025 Monday 10th November
Education Additional Needs Unmet Needs EBSA Neurodivergence
#edpsych #cpsych @BPSOfficial #education #AN #EBSA
British Psychological Society Annual Conference 2025 Monday 10th November
Education Additional Needs Unmet Needs EBSA Neurodivergence
#edpsych #cpsych @BPSOfficial #education #AN #EBSA
It’s #TrusteesWeek! 💙 We want to say a huge thank you to all of our incredible Trustees for everything they do. A huge thank you to Kelly Harris one of our incredible trustees who also helps to run our free monthly support meetings in Brighton - we cannot thank you enough for all that you do!
November 7, 2025 at 2:41 PM
It’s #TrusteesWeek! 💙 We want to say a huge thank you to all of our incredible Trustees for everything they do. A huge thank you to Kelly Harris one of our incredible trustees who also helps to run our free monthly support meetings in Brighton - we cannot thank you enough for all that you do!
It’s #TrusteesWeek! 💙
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special shout-out to Areeba our Physiotherapist FCP who also helps run our free monthly support meetings - your dedication makes such a differenc
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special shout-out to Areeba our Physiotherapist FCP who also helps run our free monthly support meetings - your dedication makes such a differenc
November 6, 2025 at 8:00 AM
It’s #TrusteesWeek! 💙
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special shout-out to Areeba our Physiotherapist FCP who also helps run our free monthly support meetings - your dedication makes such a differenc
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special shout-out to Areeba our Physiotherapist FCP who also helps run our free monthly support meetings - your dedication makes such a differenc
It’s #TrusteesWeek! 💙
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special mention to Sonal, our Press & Media Comms and volunteer Trustee, who also leads our amazing team of volunteers!
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special mention to Sonal, our Press & Media Comms and volunteer Trustee, who also leads our amazing team of volunteers!
November 5, 2025 at 8:00 AM
It’s #TrusteesWeek! 💙
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special mention to Sonal, our Press & Media Comms and volunteer Trustee, who also leads our amazing team of volunteers!
We want to say a huge thank you to all of our incredible Trustees for everything they do to guide and support SEDSConnective.
A special mention to Sonal, our Press & Media Comms and volunteer Trustee, who also leads our amazing team of volunteers!
The ADHD & Women Summit!
Our Chair Jane Green MBE, spoke on “Brain Body Burnout - Your Body Is Talking, But Can You Hear It?”
Thank you Seed Talks for hosting such a fantastic event!
@jgjanegreenmbe.bsky.social
Our Chair Jane Green MBE, spoke on “Brain Body Burnout - Your Body Is Talking, But Can You Hear It?”
Thank you Seed Talks for hosting such a fantastic event!
@jgjanegreenmbe.bsky.social
November 3, 2025 at 6:50 PM
The ADHD & Women Summit!
Our Chair Jane Green MBE, spoke on “Brain Body Burnout - Your Body Is Talking, But Can You Hear It?”
Thank you Seed Talks for hosting such a fantastic event!
@jgjanegreenmbe.bsky.social
Our Chair Jane Green MBE, spoke on “Brain Body Burnout - Your Body Is Talking, But Can You Hear It?”
Thank you Seed Talks for hosting such a fantastic event!
@jgjanegreenmbe.bsky.social
📢SEDSConnective Newsletter! Sign up as a member and subscribe to our monthly newsletter!
Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. 🎉
➡️Sign up here: www.sedsconnective.org - scroll to the bottom of the page to sign up!
Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. 🎉
➡️Sign up here: www.sedsconnective.org - scroll to the bottom of the page to sign up!
October 29, 2025 at 12:50 PM
📢SEDSConnective Newsletter! Sign up as a member and subscribe to our monthly newsletter!
Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. 🎉
➡️Sign up here: www.sedsconnective.org - scroll to the bottom of the page to sign up!
Be the first to hear our exclusive news, exciting updates as well as opportunities to take part in events and projects. 🎉
➡️Sign up here: www.sedsconnective.org - scroll to the bottom of the page to sign up!
Last chance to get tickets! Seed Talks presents The ADHD & Women Summit - London
With our chair Jane Greenmbe SedsConnective and many others on November 1st.
Jane will be speaking on body brains burnout - Your Body is Talking But Can You Hear It?
Grab yours here: ow.ly/MgLx50XaFkQ
With our chair Jane Greenmbe SedsConnective and many others on November 1st.
Jane will be speaking on body brains burnout - Your Body is Talking But Can You Hear It?
Grab yours here: ow.ly/MgLx50XaFkQ
October 24, 2025 at 3:26 PM
Last chance to get tickets! Seed Talks presents The ADHD & Women Summit - London
With our chair Jane Greenmbe SedsConnective and many others on November 1st.
Jane will be speaking on body brains burnout - Your Body is Talking But Can You Hear It?
Grab yours here: ow.ly/MgLx50XaFkQ
With our chair Jane Greenmbe SedsConnective and many others on November 1st.
Jane will be speaking on body brains burnout - Your Body is Talking But Can You Hear It?
Grab yours here: ow.ly/MgLx50XaFkQ
Just over 1 week to go until the @ehlersdanlos.bsky.social Society EDS ECHO Summit: Mental Health!
With our chair @jgjanegreenmbe.bsky.social
🎟️ Register now (or apply for a scholarship) at www.ehlers-danlos.com/eds-echo-sum... “
With our chair @jgjanegreenmbe.bsky.social
🎟️ Register now (or apply for a scholarship) at www.ehlers-danlos.com/eds-echo-sum... “
October 24, 2025 at 2:28 PM
Just over 1 week to go until the @ehlersdanlos.bsky.social Society EDS ECHO Summit: Mental Health!
With our chair @jgjanegreenmbe.bsky.social
🎟️ Register now (or apply for a scholarship) at www.ehlers-danlos.com/eds-echo-sum... “
With our chair @jgjanegreenmbe.bsky.social
🎟️ Register now (or apply for a scholarship) at www.ehlers-danlos.com/eds-echo-sum... “
Victoria Beckham has disclosed her self-diagnoses of dyslexia and dyscalculia while speaking on Call Her Daddy podcast where she discussed her new Netflix documentary. We know how creativity can be such a powerful strength within neurodivergence and how the struggles can present to others ♾️
October 22, 2025 at 10:47 PM
Victoria Beckham has disclosed her self-diagnoses of dyslexia and dyscalculia while speaking on Call Her Daddy podcast where she discussed her new Netflix documentary. We know how creativity can be such a powerful strength within neurodivergence and how the struggles can present to others ♾️
Invisible Disabilities Awareness Week!
We want to highlight the links between mental health & physical health. As the foremost charity supporting neurodivergence, hypermobility +, we know that invisible disabilities often affect both mind & body & awareness is the first step toward understanding 💙
We want to highlight the links between mental health & physical health. As the foremost charity supporting neurodivergence, hypermobility +, we know that invisible disabilities often affect both mind & body & awareness is the first step toward understanding 💙
October 22, 2025 at 12:24 PM
Invisible Disabilities Awareness Week!
We want to highlight the links between mental health & physical health. As the foremost charity supporting neurodivergence, hypermobility +, we know that invisible disabilities often affect both mind & body & awareness is the first step toward understanding 💙
We want to highlight the links between mental health & physical health. As the foremost charity supporting neurodivergence, hypermobility +, we know that invisible disabilities often affect both mind & body & awareness is the first step toward understanding 💙
So important🙏 but did you see this study ?
October 20, 2025 at 11:14 PM
So important🙏 but did you see this study ?
#MCASawareness
#Mastocytosis is rare and has 2 main types: cutaneous & systemic. This is different from mcas.
For MCAS Mast cells ( type of immune cell) are found throughout body tissues, particularly near blood vessels, nerves, and surfaces exposed to the external environment
#Mastocytosis is rare and has 2 main types: cutaneous & systemic. This is different from mcas.
For MCAS Mast cells ( type of immune cell) are found throughout body tissues, particularly near blood vessels, nerves, and surfaces exposed to the external environment
October 20, 2025 at 11:13 PM
#MCASawareness
#Mastocytosis is rare and has 2 main types: cutaneous & systemic. This is different from mcas.
For MCAS Mast cells ( type of immune cell) are found throughout body tissues, particularly near blood vessels, nerves, and surfaces exposed to the external environment
#Mastocytosis is rare and has 2 main types: cutaneous & systemic. This is different from mcas.
For MCAS Mast cells ( type of immune cell) are found throughout body tissues, particularly near blood vessels, nerves, and surfaces exposed to the external environment
Anxiety has so many connotations and physiologically related to dysautonomia POTS hypermobility. Then of course data shows neurodivergence too
October 16, 2025 at 10:08 PM
Anxiety has so many connotations and physiologically related to dysautonomia POTS hypermobility. Then of course data shows neurodivergence too
Language with our chair @jgjanegreenmbe.bsky.social ♾️🦓
October 15, 2025 at 10:42 AM
Language with our chair @jgjanegreenmbe.bsky.social ♾️🦓
Today is #WorldMentalHealthDay
If you’re looking for free mental health support, help is available 💚
Our partners at UOK offer local, confidential and free resources for anyone who needs to talk or find guidance.
Visit www.uok.org.uk to learn more!
#WMHD2025 #UOKBrightonHove
If you’re looking for free mental health support, help is available 💚
Our partners at UOK offer local, confidential and free resources for anyone who needs to talk or find guidance.
Visit www.uok.org.uk to learn more!
#WMHD2025 #UOKBrightonHove
October 10, 2025 at 11:30 AM
Today is #WorldMentalHealthDay
If you’re looking for free mental health support, help is available 💚
Our partners at UOK offer local, confidential and free resources for anyone who needs to talk or find guidance.
Visit www.uok.org.uk to learn more!
#WMHD2025 #UOKBrightonHove
If you’re looking for free mental health support, help is available 💚
Our partners at UOK offer local, confidential and free resources for anyone who needs to talk or find guidance.
Visit www.uok.org.uk to learn more!
#WMHD2025 #UOKBrightonHove
As today is World Mental Health Day, we are proud to be partners with UOK Brighton and Hove www.uok.org.uk 🙏
October 10, 2025 at 9:47 AM
As today is World Mental Health Day, we are proud to be partners with UOK Brighton and Hove www.uok.org.uk 🙏
We’ve been asked to share this autistic survey !
Are you autistic
18 or over?
Do you want to feed back on your care over the last 12 months?
OR
a radiographer experience of radiography or radiotherapy as a patient
20-minute, online, anonymous survey
For autistic adults
tinyurl.com/5x89thpb
Are you autistic
18 or over?
Do you want to feed back on your care over the last 12 months?
OR
a radiographer experience of radiography or radiotherapy as a patient
20-minute, online, anonymous survey
For autistic adults
tinyurl.com/5x89thpb
October 9, 2025 at 6:27 PM
We’ve been asked to share this autistic survey !
Are you autistic
18 or over?
Do you want to feed back on your care over the last 12 months?
OR
a radiographer experience of radiography or radiotherapy as a patient
20-minute, online, anonymous survey
For autistic adults
tinyurl.com/5x89thpb
Are you autistic
18 or over?
Do you want to feed back on your care over the last 12 months?
OR
a radiographer experience of radiography or radiotherapy as a patient
20-minute, online, anonymous survey
For autistic adults
tinyurl.com/5x89thpb
3 years ago!
You can find the education paper here 👉 www.tandfonline.com/.../10.../13...
@jgjanegreenmbe.bsky.social @bendybrain.bsky.social
You can find the education paper here 👉 www.tandfonline.com/.../10.../13...
@jgjanegreenmbe.bsky.social @bendybrain.bsky.social
October 8, 2025 at 4:18 PM
3 years ago!
You can find the education paper here 👉 www.tandfonline.com/.../10.../13...
@jgjanegreenmbe.bsky.social @bendybrain.bsky.social
You can find the education paper here 👉 www.tandfonline.com/.../10.../13...
@jgjanegreenmbe.bsky.social @bendybrain.bsky.social
“Why did that hurt so much?”
Others might say you’re overreacting.
But they don’t see the storm inside.
www.sedsconnective.org/post/rejecti...
Others might say you’re overreacting.
But they don’t see the storm inside.
www.sedsconnective.org/post/rejecti...
October 7, 2025 at 4:50 AM
“Why did that hurt so much?”
Others might say you’re overreacting.
But they don’t see the storm inside.
www.sedsconnective.org/post/rejecti...
Others might say you’re overreacting.
But they don’t see the storm inside.
www.sedsconnective.org/post/rejecti...
A big health study looked at how common a condition called hypermobility Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) is in transgender and genderdiverse or gender expansive (TGD) people compared to cisgender people www.sedsconnective.org/research
Tabernacki et al (2025)
Tabernacki et al (2025)
October 6, 2025 at 3:29 PM
A big health study looked at how common a condition called hypermobility Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) is in transgender and genderdiverse or gender expansive (TGD) people compared to cisgender people www.sedsconnective.org/research
Tabernacki et al (2025)
Tabernacki et al (2025)
October 1, 2025 at 3:10 PM
SEDSConnective were delighted to open the Gofalwyr Ceredigion Carers Connecting Carers conference events at Prifysgol Aberystwyth University.
It was a great event and @jgjanegreenmbe.bsky.social has kindly offered to do a free online one event as well so no one will miss out! 🦓♾️
It was a great event and @jgjanegreenmbe.bsky.social has kindly offered to do a free online one event as well so no one will miss out! 🦓♾️
September 30, 2025 at 2:30 PM
SEDSConnective were delighted to open the Gofalwyr Ceredigion Carers Connecting Carers conference events at Prifysgol Aberystwyth University.
It was a great event and @jgjanegreenmbe.bsky.social has kindly offered to do a free online one event as well so no one will miss out! 🦓♾️
It was a great event and @jgjanegreenmbe.bsky.social has kindly offered to do a free online one event as well so no one will miss out! 🦓♾️
Autism study
Does your autistic/ neurodivergent child have trouble sleeping ? ✅
2-15 years and under a Dingley consultant? ✅✅
Email r.varghese@reading.ac.uk for more information or use the flyer
Does your autistic/ neurodivergent child have trouble sleeping ? ✅
2-15 years and under a Dingley consultant? ✅✅
Email r.varghese@reading.ac.uk for more information or use the flyer
September 27, 2025 at 12:32 PM
Autism study
Does your autistic/ neurodivergent child have trouble sleeping ? ✅
2-15 years and under a Dingley consultant? ✅✅
Email r.varghese@reading.ac.uk for more information or use the flyer
Does your autistic/ neurodivergent child have trouble sleeping ? ✅
2-15 years and under a Dingley consultant? ✅✅
Email r.varghese@reading.ac.uk for more information or use the flyer