Sarcoma Patient Advocacy Global Network (SPAGN)
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sarcomapatients.bsky.social
Sarcoma Patient Advocacy Global Network (SPAGN)
@sarcomapatients.bsky.social
A global network of Sarcoma patient advocacy groups, working together, making a difference! Learn more at www.sarcoma-patients.org.
In our final video from the #KnowYourNormal series: Maggie Cameron of The EHE Foundation tells her story of how her sarcoma diagnosis was discovered while undergoing routine scans for a different medical condition!

#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
July 30, 2025 at 10:01 AM
Janet's daughter was 12 years old and she noticed her limping. They thought she simply tripped over a root. But when home remedies didn't reduce the swelling, they sought further answers. This is their story.
July 29, 2025 at 2:04 PM
Namuwonge's first symptom was an unexplained swelling on her right leg. She had never heard of sarcoma before her diagnosis. Hear her story and follow the Uganda Alliance of Patients’ Organizations(UAPO) for more!

#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
July 29, 2025 at 8:02 AM
Kamil of the Polish Sarcoma and Melanoma Patients Association was lucky. His doctor immediately recognized the warning signs in his x-ray, and referred him to an oncologist straight away. He was diagnosed with sarcoma 2 weeks later.

#KnowYourNormal
#SarcomaSignsAndSymptoms
#SarcomaAwarenessMonth
July 28, 2025 at 11:36 AM
Angelika Sandakly of INFO SARCOMES shares the story of her son's first symptom that led to his sarcoma diagnosis.

hashtag#KnowYourNormal
hashtag#SarcomaSignsAndSymptoms
hashtag#SarcomaAwarenessMonth
July 28, 2025 at 11:24 AM
Rare, but never alone. Tonight, we light up the world for sarcoma.

#SarcomaAwarenessMonth
July 25, 2025 at 12:02 PM
Annie of the National Leiomyosarcoma Foundation (NLMSF) shares her experience as a caregiver to an LMS patient, her husband, Dr. Mitch Achee.

#KnowYourNormal #SarcomaAwarenessMonth2025
July 23, 2025 at 2:02 PM
Marloes found a lump in her breast and expected breast cancer. A quick referral and specialized testing identified that she was in fact a Phyllodes sarcoma patient. Hear her story.

#KnowYourNormal #SarcomaAwarenessMonth2025
July 23, 2025 at 10:01 AM
Sandeep is a Ewing Sarcoma patient whose first symptoms appeared at age 12. It took him 3 years and multiple physicians to get a correct diagnosis. Today he has transformed sarcoma diagnosis and care for rural patients in India. Learn more at: digiswasthya.org

#KnowYourNormal #SarcomaAwarenessMonth
July 21, 2025 at 3:36 PM
As a teenager, Kurt noticed a painful lump on his leg during football practice. His mom made him get it checked out. Soon after he was diagnosed with osteosarcoma. That began his journey to becoming a sarcoma surgeon and scientist decades later. Hear his story.

#SarcomaAwarenessMonth
July 21, 2025 at 8:01 AM