SCOTT
@rrms-sucks.bsky.social
Tattooed | RRMS dx2006 | Never give up
Pinned
SCOTT
@rrms-sucks.bsky.social
· 11d
New account.... previous got messy, clean slate!
Enquiry about #AHSCT, #PIRA and arriving at a #HyperbaricOxygen Chamber over the next 72hrs. Oh yeah and I'll work a little bit too! Busy week ahead with many questions and hopefully some answers as well #MS
December 7, 2025 at 9:09 PM
Enquiry about #AHSCT, #PIRA and arriving at a #HyperbaricOxygen Chamber over the next 72hrs. Oh yeah and I'll work a little bit too! Busy week ahead with many questions and hopefully some answers as well #MS
Reposted by SCOTT
THIS!
"You seem happier"
Thanks, I deleted all my emails and went to look at birds instead.
Thanks, I deleted all my emails and went to look at birds instead.
December 7, 2025 at 11:57 AM
THIS!
This is evidence, if I needed it, to get back on the ale! 🍺 2 years of no alcohol, so far, has been easy really, but I do like single malt and real ale. Thanks for sharing! 😁
Alcohol & Multiple Sclerosis: Can You Drink? youtu.be/mmDyu_GT3aI?...
Alcohol & Multiple Sclerosis: Can You Drink?
YouTube video by Dr. Brandon Beaber
youtu.be
December 4, 2025 at 5:57 PM
This is evidence, if I needed it, to get back on the ale! 🍺 2 years of no alcohol, so far, has been easy really, but I do like single malt and real ale. Thanks for sharing! 😁
#MS yearly scoring:
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
December 4, 2025 at 5:32 PM
#MS yearly scoring:
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
2024 was hell
2025 has been a marked improvement
2026.... I WILL finally complete the ultra marathon I was meant to in 2023.... I bet myself! 🏃 💪🏼👊🏼😂
#LetsDoThis #NeverGiveUp
Just breathe slowly & deeply. Take it all in and let it go slowly. Most helpful for so many people.
A fog-clearing trick:
Stand up → roll your shoulders → inhale deeply → exhale slowly.
This increases oxygen + resets your sensory system.
Fog often lifts in under 60 seconds.
Stand up → roll your shoulders → inhale deeply → exhale slowly.
This increases oxygen + resets your sensory system.
Fog often lifts in under 60 seconds.
December 2, 2025 at 3:52 PM
Just breathe slowly & deeply. Take it all in and let it go slowly. Most helpful for so many people.
ENT moved another 2 months on. That's now almost 6 months waiting for a #dysphonia diagnosis! #MS side effects and conclusions are still waiting, I just want to be able to breathe and speak normally again!! It ain't much!! 🤦🏻♂️🤬
December 1, 2025 at 8:32 PM
ENT moved another 2 months on. That's now almost 6 months waiting for a #dysphonia diagnosis! #MS side effects and conclusions are still waiting, I just want to be able to breathe and speak normally again!! It ain't much!! 🤦🏻♂️🤬
Reposted by SCOTT
This video on effective rest was, for me, a bit of a light bulb moment. I had not divided my fatigue or rest into categories of sensory, emotional, cognitive, social. I am hoping this might be a game changer. www.youtube.com/watch?v=e8OX...
What is Rest?
YouTube video by The Audio Visual Suite
www.youtube.com
November 29, 2025 at 11:25 AM
This video on effective rest was, for me, a bit of a light bulb moment. I had not divided my fatigue or rest into categories of sensory, emotional, cognitive, social. I am hoping this might be a game changer. www.youtube.com/watch?v=e8OX...
Reposted by SCOTT
Epstein-Barr virus and multiple sclerosis: A mechanism comes into focus
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Epstein-Barr virus and multiple sclerosis: A mechanism comes into focus
Infection with Epstein-Barr virus (EBV) is associated with multiple sclerosis (MS) but the role that the virus plays in MS is not clear. Recent public…
www.sciencedirect.com
November 28, 2025 at 7:04 PM
Epstein-Barr virus and multiple sclerosis: A mechanism comes into focus
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Reposted by SCOTT
#MS_Selfie Newsletter - Bad news: another negative remyelination trial
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
Bad news: another negative remyelination trial
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them.
gavingiovannoni.substack.com
November 26, 2025 at 2:22 PM
#MS_Selfie Newsletter - Bad news: another negative remyelination trial
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
Bad news is unavoidable; what is important is to reflect on the news, learn lessons, adjust hypotheses or formulate new ones and move forward testing them. => gavingiovannoni.substack.com/p/bad-news-a...
New account.... previous got messy, clean slate!
November 27, 2025 at 4:51 PM
New account.... previous got messy, clean slate!