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restlesssands.bsky.social
Restless Sands
@restlesssands.bsky.social
Myalgic Encephalomyelitis 🔰

Patient advocate 🔰

Championing biological science over dogma 🔰

International Consensus Criterion #ICC 🔰

90% homebound to manage moderate ME. Acute onset, post viral 2012 🔰
International Consensus Criteria ICC with the International Consensus Primer ICP best define myalgic encephalomyelitis. All other definitions are too broad.
June 1, 2025 at 11:15 AM
CFS was ME originally, then high jacked for several decades… a long and shocking history here 🥸
June 1, 2025 at 11:13 AM
Particularly with energy limiting conditions, mobility devices are often used by ambulatory people.
I’ve got legs, they just don’t take me very far without massive repercussions from Post Exertional Neuroimmune Exhaustion.
#MyalgicEncephalomyelitis
#InternationalConsensesCriteria
May 28, 2025 at 9:05 PM
Here they are, proud of their evil work.
May 6, 2025 at 9:06 AM
Great work! Love the giant postcard too.
February 18, 2025 at 3:56 AM