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Restless Sands
@restlesssands.bsky.social
Myalgic Encephalomyelitis 🔰

Patient advocate 🔰

Championing biological science over dogma 🔰

International Consensus Criterion #ICC 🔰

90% homebound to manage moderate ME. Acute onset, post viral 2012 🔰
Particularly with energy limiting conditions, mobility devices are often used by ambulatory people.
I’ve got legs, they just don’t take me very far without massive repercussions from Post Exertional Neuroimmune Exhaustion.
#MyalgicEncephalomyelitis
#InternationalConsensesCriteria
May 28, 2025 at 9:05 PM
We have a letter urging Dr. Bhattacharya to allocate $50 million to fund the ME/CFS Research Roadmap.

Sign our new letter now: bit.ly/MEcfsRoadmap

#MEAwarenessMonth #bringMEoutoftheshadows
#MyalgicEncephalomyelitis
May 8, 2025 at 4:47 AM
Here they are, proud of their evil work.
May 6, 2025 at 9:06 AM
May 3, 2025 at 1:07 PM
The Bio psychosocial model has left the BIO out of the picture for a very long time. Vested interests… a picture speaks a thousand words. This is the UK mob whose influence has infected many countries.
January 14, 2025 at 8:49 PM
On the seventh day of illness
My ME gave to me
New Facebook friends
Who really comprehend
No more condescends
From my now ex-local GP

By Bill Clayton

/end
December 13, 2024 at 7:55 PM
It’s time for our annual sing song !

ME.rry Christmas !

On the first day of illness
My ME gave to me
A shrug from my local GP

On the second day of illness
My ME gave to me
A shed load of pain
A bog for a brain
And a shrug from my local GP
/1
December 13, 2024 at 7:53 PM
It can be very frightening when you depend on a mobility device and it fails. Enormous gratitude to a very kind stranger who assisted me when my scooter broke down. He pushed it home safely and a neighbour stopped to give me a ride.
November 29, 2024 at 7:49 AM
UK focused article on the biopsychosocial model of disability resulting in #MyalgicEncephalomyelitis & now #LongCovid having no appropriate medical pathways to care.

www.scottishlegal.com/articles/dav...
November 28, 2024 at 2:34 AM
Thanks for posting. We wonder why these inappropriate & harmful recommendations persist? Shamefully, eminence is winning over evidence. This picture speaks a thousand words. The reach is far with like minded groups in various countries. Education & knowledge is the best way we can protect ourselves.
November 26, 2024 at 1:37 AM
I wish to share (with author’s permission) more depth on this article.
November 22, 2024 at 9:38 AM
This picture says a thousand words. The origin of the psych dogma. So frustrating, it’s been holding back research & preventing appropriate care of ME patients for decades. Now this legacy is harming Long Covid patients. It’s horrendous.
November 15, 2024 at 5:33 AM