We are starting this channel at the end of our long, traumatic journey—6 weeks after Shoo's 4th surgery (and 4th ENT). This doctor is the one who actually listened to us, allowed me to advocate for a procedure I had learned about in my support group (which is the only way to test a special needs toddler who cannot comply with a single intervention or exam for sleep apnea), unexpectedly found the problem, and the solution, and fixed it on the spot. She changed our lives forever. Knowing how many other parents are still on this nightmarish journey because of the online support group I'm in, and knowing how many holes in the system need to be fixed, I recorded audio of our appointment, during which I asked every single question I could think to ask: -How could we have caught this sooner? -Why did no one else catch it? -Why did so many doctors not believe me? -What things could other parents say to their doctors when coming up against similar issues, especially with regard to getting treatment for special needs children, or children whose sleep apnea is still prevalent even after T&A removal? -What should I put in the letter I'm sending to every doctor who came across our path and failed to help? We will do only one more video for this channel, in which we will layout the entire timeline of events, from birth to diagnosis, which took 3.5 years, 50+ doctor's visits, 4 surgeries, 4 ENTs, a pulmonologist, 2 airway dentists, 2 myofascial therapists, 2 pediatricians, an online support group, and 1 desperate mama who wouldn't stop until her little one could breathe. I can't tell you how many countless hours I've spent desperately googling in the middle of the night, at my wit's end, with a screaming baby who can't stay asleep or get into a deep sleep...almost ever. There are VERY few anwers for anyone on the pediatric sleep apnea journey, and it often involves a ton of medical gaslighting. Then, if your child is autistic or has complex medical needs, there is NO protocol to guide you. We were left out to suffer by specialist after specialist. Our hope is that this channel reaches that googling, tired parent, and changes their journey. --- If you appreciate this video or would like to donate to our healing journey, visit bit.ly/airwayforshoo. We are using this money to pay for all the various therapies Shoo needs to heal the damage that's been done, his future airway dental treatment, and more.

As many of you know, we have been on an unbearably long journey t… Jessica Levity Daylover needs your support for Help Lucius Sol Find His Breath And His Rest