rareLife solutions
@rarelife-solutions.bsky.social
We offer a broad suite of services to improve drug development and commercialization for rare disease industry and families. As a full-service rare scientific agency, we deliver tailored, innovative solutions to meet each client’s unique needs.
We're grateful for our family, friends, and the rare disease community that inspires us every day. rareLife solutions wishes you a Thanksgiving full of comfort, joy, and meaningful moments.
#HappyThanksgiving #WeKnowRare #CareAboutRare #RareDiseaseAwareness #ForUsItsPersonal
#HappyThanksgiving #WeKnowRare #CareAboutRare #RareDiseaseAwareness #ForUsItsPersonal
November 27, 2025 at 3:08 PM
We're grateful for our family, friends, and the rare disease community that inspires us every day. rareLife solutions wishes you a Thanksgiving full of comfort, joy, and meaningful moments.
#HappyThanksgiving #WeKnowRare #CareAboutRare #RareDiseaseAwareness #ForUsItsPersonal
#HappyThanksgiving #WeKnowRare #CareAboutRare #RareDiseaseAwareness #ForUsItsPersonal
Breakthroughs in rare disease start with strong science. At rareLife, we help medical affairs teams build scientific platforms that clarify complex conditions, align stakeholders, and drive meaningful progress.
Learn more: www.rarelifesolutions.com
#RareDisease #SciComms #MedPubs
Learn more: www.rarelifesolutions.com
#RareDisease #SciComms #MedPubs
November 20, 2025 at 7:02 PM
Breakthroughs in rare disease start with strong science. At rareLife, we help medical affairs teams build scientific platforms that clarify complex conditions, align stakeholders, and drive meaningful progress.
Learn more: www.rarelifesolutions.com
#RareDisease #SciComms #MedPubs
Learn more: www.rarelifesolutions.com
#RareDisease #SciComms #MedPubs
On #WorldSanfilippoDay we honor those affected by Sanfilippo syndrome—a rare disease known as childhood Alzheimer’s where a genetic defect leads to buildup of toxins in the brain & early death. rareLife is dedicated to advancing treatments & improving outcomes for the rare community.
#WeKnowRare
#WeKnowRare
November 16, 2025 at 3:02 PM
On #WorldSanfilippoDay we honor those affected by Sanfilippo syndrome—a rare disease known as childhood Alzheimer’s where a genetic defect leads to buildup of toxins in the brain & early death. rareLife is dedicated to advancing treatments & improving outcomes for the rare community.
#WeKnowRare
#WeKnowRare
Attending #ISMPPAcademy 2025 in Boston?
Join Hugh Bartlett, CMPP, Senior Director, Solutions Development at rareLife on November 14 for “Pharma–Agency Partnerships: Evolving Roles, Shared Goals.”
Connect with Hugh via Whova to chat about #RareDisease innovation!
#WeKnowRare #ForUsItsPersonal
Join Hugh Bartlett, CMPP, Senior Director, Solutions Development at rareLife on November 14 for “Pharma–Agency Partnerships: Evolving Roles, Shared Goals.”
Connect with Hugh via Whova to chat about #RareDisease innovation!
#WeKnowRare #ForUsItsPersonal
November 13, 2025 at 5:04 PM
Attending #ISMPPAcademy 2025 in Boston?
Join Hugh Bartlett, CMPP, Senior Director, Solutions Development at rareLife on November 14 for “Pharma–Agency Partnerships: Evolving Roles, Shared Goals.”
Connect with Hugh via Whova to chat about #RareDisease innovation!
#WeKnowRare #ForUsItsPersonal
Join Hugh Bartlett, CMPP, Senior Director, Solutions Development at rareLife on November 14 for “Pharma–Agency Partnerships: Evolving Roles, Shared Goals.”
Connect with Hugh via Whova to chat about #RareDisease innovation!
#WeKnowRare #ForUsItsPersonal
Caregivers play a vital role in all aspects of the rare patient journey, yet they're often overlooked. At rareLife, we intentionally collaborate with them and develop meaningful partnerships to advance disease understanding.
Learn more about our work: www.rarelifesolutions.com
#PlugInToCare
Learn more about our work: www.rarelifesolutions.com
#PlugInToCare
November 5, 2025 at 5:05 PM
Caregivers play a vital role in all aspects of the rare patient journey, yet they're often overlooked. At rareLife, we intentionally collaborate with them and develop meaningful partnerships to advance disease understanding.
Learn more about our work: www.rarelifesolutions.com
#PlugInToCare
Learn more about our work: www.rarelifesolutions.com
#PlugInToCare
Today is #WorldHPPDay!
#Hypophosphatasia is a rare genetic disorder that weakens bones and teeth, leading to deformities, fractures, premature tooth loss, and pain.
At rareLife, we bridge science and patient stories to drive better outcomes.
Learn more: www.rarelifesolutions.com
#WeKnowRare
#Hypophosphatasia is a rare genetic disorder that weakens bones and teeth, leading to deformities, fractures, premature tooth loss, and pain.
At rareLife, we bridge science and patient stories to drive better outcomes.
Learn more: www.rarelifesolutions.com
#WeKnowRare
October 30, 2025 at 4:05 PM
Today is #WorldHPPDay!
#Hypophosphatasia is a rare genetic disorder that weakens bones and teeth, leading to deformities, fractures, premature tooth loss, and pain.
At rareLife, we bridge science and patient stories to drive better outcomes.
Learn more: www.rarelifesolutions.com
#WeKnowRare
#Hypophosphatasia is a rare genetic disorder that weakens bones and teeth, leading to deformities, fractures, premature tooth loss, and pain.
At rareLife, we bridge science and patient stories to drive better outcomes.
Learn more: www.rarelifesolutions.com
#WeKnowRare
It's #WorldAmyloidosisDay2025!
Amyloidosis stems from abnormal protein buildup that can cause organ failure, affecting the heart, kidneys, liver, spleen, & nervous system.
At rareLife, we bridge science & patient stories to drive better outcomes. contactus@rarelifesolutions.com
#ForUsItsPersonal
Amyloidosis stems from abnormal protein buildup that can cause organ failure, affecting the heart, kidneys, liver, spleen, & nervous system.
At rareLife, we bridge science & patient stories to drive better outcomes. contactus@rarelifesolutions.com
#ForUsItsPersonal
October 26, 2025 at 2:02 PM
It's #WorldAmyloidosisDay2025!
Amyloidosis stems from abnormal protein buildup that can cause organ failure, affecting the heart, kidneys, liver, spleen, & nervous system.
At rareLife, we bridge science & patient stories to drive better outcomes. contactus@rarelifesolutions.com
#ForUsItsPersonal
Amyloidosis stems from abnormal protein buildup that can cause organ failure, affecting the heart, kidneys, liver, spleen, & nervous system.
At rareLife, we bridge science & patient stories to drive better outcomes. contactus@rarelifesolutions.com
#ForUsItsPersonal
#EBAwarenessWeek is Oct. 25-31—a time to support the thousands living with #EpidermolysisBullosa, a painful & often fatal disorder affecting about 1 in 20,000 births in the US.
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#EBWeek #WeFightEB
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#EBWeek #WeFightEB
October 25, 2025 at 2:02 PM
#EBAwarenessWeek is Oct. 25-31—a time to support the thousands living with #EpidermolysisBullosa, a painful & often fatal disorder affecting about 1 in 20,000 births in the US.
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#EBWeek #WeFightEB
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#EBWeek #WeFightEB
Medical affairs success starts with strategy. rareLife brings expertise in rare diseases and proven experience facilitating strategic workshops that move ideas into action. Let’s partner to shape what’s next.
Learn more: contactus@rarelifesolutions.com
#WeKnowRare #MedPubs #SciComms
Learn more: contactus@rarelifesolutions.com
#WeKnowRare #MedPubs #SciComms
October 14, 2025 at 2:05 PM
Medical affairs success starts with strategy. rareLife brings expertise in rare diseases and proven experience facilitating strategic workshops that move ideas into action. Let’s partner to shape what’s next.
Learn more: contactus@rarelifesolutions.com
#WeKnowRare #MedPubs #SciComms
Learn more: contactus@rarelifesolutions.com
#WeKnowRare #MedPubs #SciComms
Everything’s different in rare. Scientific communications should be, too. At rareLife, we’re more than scientists, writers, & strategists. We’re rare moms, caregivers, & carriers developing content that educates, motivates, & drives meaningful change.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
October 7, 2025 at 2:05 PM
Everything’s different in rare. Scientific communications should be, too. At rareLife, we’re more than scientists, writers, & strategists. We’re rare moms, caregivers, & carriers developing content that educates, motivates, & drives meaningful change.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
October is #NiemannPickAwareness Month—a time to highlight the strength & voices of the Niemann-Pick community.
This rare genetic disease affects fat processing & can harm the brain, liver & lungs.
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
This rare genetic disease affects fat processing & can harm the brain, liver & lungs.
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
October 1, 2025 at 2:06 PM
October is #NiemannPickAwareness Month—a time to highlight the strength & voices of the Niemann-Pick community.
This rare genetic disease affects fat processing & can harm the brain, liver & lungs.
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
This rare genetic disease affects fat processing & can harm the brain, liver & lungs.
rareLife bridges science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
September 30 is #RareCancerDay! rareLife solutions is proud to stand with @NORD_rare and the Rare Cancer Coalition to raise awareness and support for those impacted by rare cancers. Join the zebra herd: https://bit.ly/RCD-23
#RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal
#RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal
September 30, 2025 at 4:05 PM
September 30 is #RareCancerDay! rareLife solutions is proud to stand with @NORD_rare and the Rare Cancer Coalition to raise awareness and support for those impacted by rare cancers. Join the zebra herd: https://bit.ly/RCD-23
#RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal
#RareDiseaseAwareness #WeKnowRare #ForUsItsPersonal
World Mitochondrial Disease Week is Sept 15–21.
Mito affects 1 in 5000 & is linked to Alzheimer’s, Parkinson’s, diabetes, heart disease & more.
rareLife supports #WorldMitoWeek by bridging science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#DecodeTheMitoPuzzle
Mito affects 1 in 5000 & is linked to Alzheimer’s, Parkinson’s, diabetes, heart disease & more.
rareLife supports #WorldMitoWeek by bridging science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#DecodeTheMitoPuzzle
September 15, 2025 at 2:05 PM
World Mitochondrial Disease Week is Sept 15–21.
Mito affects 1 in 5000 & is linked to Alzheimer’s, Parkinson’s, diabetes, heart disease & more.
rareLife supports #WorldMitoWeek by bridging science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#DecodeTheMitoPuzzle
Mito affects 1 in 5000 & is linked to Alzheimer’s, Parkinson’s, diabetes, heart disease & more.
rareLife supports #WorldMitoWeek by bridging science & patient stories to drive better outcomes.
contactus@rarelifesolutions.com
#DecodeTheMitoPuzzle
Sept 7 is #WorldDuchenneAwarenessDay.
About 1 in 5000 boys is born with DMD, a rare genetic disorder that weakens muscles over time, affecting movement, breathing, & the heart. rareLife helps drive awareness, promote research, & support treatment innovation.
contactus@rarelifesolutions.com
#WDAD2025
About 1 in 5000 boys is born with DMD, a rare genetic disorder that weakens muscles over time, affecting movement, breathing, & the heart. rareLife helps drive awareness, promote research, & support treatment innovation.
contactus@rarelifesolutions.com
#WDAD2025
September 7, 2025 at 1:02 PM
Sept 7 is #WorldDuchenneAwarenessDay.
About 1 in 5000 boys is born with DMD, a rare genetic disorder that weakens muscles over time, affecting movement, breathing, & the heart. rareLife helps drive awareness, promote research, & support treatment innovation.
contactus@rarelifesolutions.com
#WDAD2025
About 1 in 5000 boys is born with DMD, a rare genetic disorder that weakens muscles over time, affecting movement, breathing, & the heart. rareLife helps drive awareness, promote research, & support treatment innovation.
contactus@rarelifesolutions.com
#WDAD2025
September is #SickleCellAwarenessMonth.
About 100,000 Americans live with SCD, a rare, chronic condition where red blood cells harden into a sickle shape, causing severe pain and fatigue.
Reach out to rareLife to learn how we can help: contactus@rarelifesolutions.com
#SickleCellMatters
About 100,000 Americans live with SCD, a rare, chronic condition where red blood cells harden into a sickle shape, causing severe pain and fatigue.
Reach out to rareLife to learn how we can help: contactus@rarelifesolutions.com
#SickleCellMatters
September 4, 2025 at 4:05 PM
September is #SickleCellAwarenessMonth.
About 100,000 Americans live with SCD, a rare, chronic condition where red blood cells harden into a sickle shape, causing severe pain and fatigue.
Reach out to rareLife to learn how we can help: contactus@rarelifesolutions.com
#SickleCellMatters
About 100,000 Americans live with SCD, a rare, chronic condition where red blood cells harden into a sickle shape, causing severe pain and fatigue.
Reach out to rareLife to learn how we can help: contactus@rarelifesolutions.com
#SickleCellMatters
In rare, everything’s different. Your medical publications should be, too. At rareLife, we’re more than scientists, writers, & strategists. We’re rare moms, caregivers, & carriers designing publications that reflect rare urgency, complexity & humanity.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
August 26, 2025 at 7:35 PM
In rare, everything’s different. Your medical publications should be, too. At rareLife, we’re more than scientists, writers, & strategists. We’re rare moms, caregivers, & carriers designing publications that reflect rare urgency, complexity & humanity.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
August is SMA Awareness Month—a time to spotlight the strength, needs, and voices of the SMA community.
Learn how you can get involved or attend an event: https://loom.ly/-gGpEJs
Let’s raise awareness, amplify stories, and stand together.
#SMAawarenessmonth #WeKnowRare #ForUsItsPersonal
Learn how you can get involved or attend an event: https://loom.ly/-gGpEJs
Let’s raise awareness, amplify stories, and stand together.
#SMAawarenessmonth #WeKnowRare #ForUsItsPersonal
August 1, 2025 at 4:05 PM
August is SMA Awareness Month—a time to spotlight the strength, needs, and voices of the SMA community.
Learn how you can get involved or attend an event: https://loom.ly/-gGpEJs
Let’s raise awareness, amplify stories, and stand together.
#SMAawarenessmonth #WeKnowRare #ForUsItsPersonal
Learn how you can get involved or attend an event: https://loom.ly/-gGpEJs
Let’s raise awareness, amplify stories, and stand together.
#SMAawarenessmonth #WeKnowRare #ForUsItsPersonal
Everything’s different in rare. Scientific communications should be, too. At rareLife, we’re more than scientists, writers, & strategists. We’re rare moms, caregivers, & carriers developing content that educates, motivates, & drives meaningful change.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
July 29, 2025 at 7:02 PM
Everything’s different in rare. Scientific communications should be, too. At rareLife, we’re more than scientists, writers, & strategists. We’re rare moms, caregivers, & carriers developing content that educates, motivates, & drives meaningful change.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
In rare, everything’s different. Your medical publications should be, too. At rareLife, we’re more than scientists, writers & strategists. We’re rare moms, caregivers & carriers designing programs that reflect rare’s urgency, complexity & humanity.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
July 22, 2025 at 4:05 PM
In rare, everything’s different. Your medical publications should be, too. At rareLife, we’re more than scientists, writers & strategists. We’re rare moms, caregivers & carriers designing programs that reflect rare’s urgency, complexity & humanity.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
In rare, everything’s different. Your scientific communications should be, too. At rareLife, we're more than scientists, writers & strategists. We're rare moms, caregivers & carriers designing programs that reflect rare's urgency, complexity & humanity.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
July 1, 2025 at 8:30 PM
In rare, everything’s different. Your scientific communications should be, too. At rareLife, we're more than scientists, writers & strategists. We're rare moms, caregivers & carriers designing programs that reflect rare's urgency, complexity & humanity.
contactus@rarelifesolutions.com
#RareDisease
contactus@rarelifesolutions.com
#RareDisease
We think rare. We live rare. We are rare med comms.
With expertise across 65+ rare & oncology indications, we unite strategy, science & storytelling to improve drug development—for industry & families.
We’re creatives, caregivers, scientists & patients—connected by purpose.
#WeKnowRare #MedCommsDay
With expertise across 65+ rare & oncology indications, we unite strategy, science & storytelling to improve drug development—for industry & families.
We’re creatives, caregivers, scientists & patients—connected by purpose.
#WeKnowRare #MedCommsDay
June 25, 2025 at 2:07 PM
We think rare. We live rare. We are rare med comms.
With expertise across 65+ rare & oncology indications, we unite strategy, science & storytelling to improve drug development—for industry & families.
We’re creatives, caregivers, scientists & patients—connected by purpose.
#WeKnowRare #MedCommsDay
With expertise across 65+ rare & oncology indications, we unite strategy, science & storytelling to improve drug development—for industry & families.
We’re creatives, caregivers, scientists & patients—connected by purpose.
#WeKnowRare #MedCommsDay
At rareLife, we’re SMEs & authors. In our latest paper with Pfizer, Digital Science, & a patient/advocate author, we explored rare disease literature.
📚 Read the paper here: www.tandfonline.com/doi/full/10....
Open access is up, but PLSPs & rare content remain limited. It’s time to drive change!
📚 Read the paper here: www.tandfonline.com/doi/full/10....
Open access is up, but PLSPs & rare content remain limited. It’s time to drive change!
June 3, 2025 at 3:44 PM
At rareLife, we’re SMEs & authors. In our latest paper with Pfizer, Digital Science, & a patient/advocate author, we explored rare disease literature.
📚 Read the paper here: www.tandfonline.com/doi/full/10....
Open access is up, but PLSPs & rare content remain limited. It’s time to drive change!
📚 Read the paper here: www.tandfonline.com/doi/full/10....
Open access is up, but PLSPs & rare content remain limited. It’s time to drive change!