Rare Genomics Institute
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raregenomics.bsky.social
Rare Genomics Institute
@raregenomics.bsky.social
Rare Genomics Institute (RG) is a 501(c)3 non-profit organization committed to filling the unmet needs of patients and families affected by rare diseases.

https://www.raregenomics.org/
February 28th is Rare Disease Day! This global movement raises awareness for rare diseases and highlights the urgent need for more research, innovation, and advocacy.

At Rare Genomics Institute, we connect families with genomic experts to help push for faster, more precise diagnoses.
March 2, 2025 at 1:51 AM
💜 We’re counting down to Rare Disease Day on February 28, 2025! Over 300 million people worldwide live with a rare disease—yet many still lack a diagnosis and treatment.

At @RareGenomics, we’re committed to empowering families with genomic insights and expert connections.

#RareDiseaseAwareness
February 19, 2025 at 2:23 AM
🌟 Hi, we are Rare Genomics Institute (RG), a 501-(c)3 non-profit with the mission to empower rare disease patients and their families by connecting them with cutting-edge genetic research, resources, and a supportive global community.

We’re thrilled to bring our journey to BlueSky! 💙✨ Follow us!
December 11, 2024 at 2:32 AM