Rare by Design
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rarebydesign.bsky.social
Rare by Design
@rarebydesign.bsky.social
Grassroots nonprofit creating awareness of inclusion, representation and living life positively for #PWD and #RareDiseases along with their families. Founded by @Kegottsleben.bsky.social.
Did you know our Founder and Executive Director walked in a New York Fashion Show back in 2016 with Runway of Dreams? That experience inspired her to bring a similar event to Sioux Falls, South Dakota.

She had never seen anyone with her rare disease walk a runway…
So she became the first.
September 15, 2025 at 6:44 PM
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For the past 2 yrs, we’ve celebrated Disability Empowerment Month with impactful outdoor billboard campaigns across Sioux Falls, SD, highlighting the power of disability visibility. This year, we’re proud to continue the tradition—with a fresh addition. Alongside our outdoor billboards, we’ve
July 14, 2025 at 9:17 PM
Only 2 weeks left to send us your films!

Committee member Max Hofer is here to answer questions on how to submit.

Still have questions? Comment below & we’ll answer. Follow us for more!

See submission link: filmfreeway.com/TheFilmFesti...

#TheFilmFestival #RBDTheFilmFestival #InclusionIsAlwaysIn
June 15, 2025 at 4:00 PM
Are you ready?!

Our team has been working hard on planning for our 2025 #TheStyleShow! And we seriously can’t wait to have all our models work the runway. If you haven’t gotten your ticket(s)…get them soon. You don’t want to miss out.

Ticket(s) can be found by heading to thestyleshow.org.
March 23, 2025 at 3:58 AM