Shevi
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radicalchick24.bsky.social
Shevi
@radicalchick24.bsky.social
Disabled former special collections archival processor and historian. ME/CFS and POTS since '04, Long COVID since '23, Chronic Migraine,
Connective Tissue Disorder, CSF leak, etc. 😷 Mask up! COVID isn't over! ♿️

She/Her
There will be cats 🐈‍⬛️
Pinned
Hi! I'm Shevi. I'm gonna be posting a lot on #disability and #chronicillness. I've had #mecfs #pots and a whole host of unpleasant co-morbidities since 2004. I've had #longcovid for a year. I'm married to an infectious disease researcher. We take masking and infection mitigation extremely 1/2
Reposted by Shevi
I believe no one should be traveling to the U.S. right now, but an extra word of warning to those with disabilities or reliant on medications.

If you’re detained, you may not be able to access the care you need.

With my health I wouldn’t last 24 hours in a detention camp. Don’t risk it.
March 13, 2025 at 4:55 AM
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Another unvaccinated child dies from measles, a fully preventable disease, and only the second child to die from measles in the US in the past 22 years
March 6, 2025 at 10:02 PM
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Also worth paying attention to this on research involving animals.

acrobat.adobe.com/id/urn:aaid:...
February 28, 2025 at 6:47 PM
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Sharing these numbers because I wasn't aware of them myself. In the US:

* 1 in 5 unvaccinated people who get measles are hospitalized

* 1 in 20 children with measles get pneumonia

* 1 to 3 in 1000 die

If you're not immune, close contact with an infected person gives you measles 90% of the time
Measles – NFID
Measles is a highly contagious respiratory disease that can result in severe, sometimes permanent, complications including pneumonia, seizures, brain damage, and even death
www.nfid.org
February 26, 2025 at 8:18 PM
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The first measles death in the US in a decade -- the tragic, preventable death of a child whose parents chose not to protect them with vaccination -- should spark an immediate nation-wide campaign to ensure all children are protected against preventable diseases. Anything less is unconscionable.
February 26, 2025 at 7:36 PM
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My PI let us know today that the study section she was on had been cancelled - and she's certainly not alone. I don't know if this hold on the FR is circumventing the letter of the law or simply the spirit, but either way it's like a plastic bag over the head of American research science.
Federal Register hold makes ‘end run’ around court pause on NIH funding freeze
NIH-related updates to the Federal Register, which are required for the scheduling of study sections and advisory councils, are on hold indefinitely, according to an email reviewed by <i>The Transmitt...
www.thetransmitter.org
February 19, 2025 at 10:17 PM
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Just boosting the love for the VEC - I've been working with them for a while now and they do phenomenal work!! Important to have good sources for critical information in the current climate.
The Vaccine Education Center has complete, trustworthy, and up-to-date information about vaccines for parents, doctors, and everyone else. They are a member of the WHO Vaccine Safety Net and a safe and credible source for information about vaccines.

#vaccines #rfkjr #vax
Vaccine Education Center
The Vaccine Education Center at Children's Hospital of Philadelphia provides complete, up-to-date and reliable information about vaccines to parents and healthcare professionals.
www.chop.edu
February 18, 2025 at 1:58 PM
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This commission statement refers to people with Autism, ADHD, asthma, auto-immune disease, and chronic illness as a “dire threat to the American people and our way of life”.

This is a manifesto against disability.

This is the language of eugenics.
Establishing the President's Make America Healthy Again Commission
By the authority vested in me as President by the Constitution and the laws of the United States of America, it is hereby ordered: Section 1.
www.whitehouse.gov
February 17, 2025 at 9:21 PM
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their brilliant work and a reminder to everyone who is studying, treating or experiencing a PEM:
PEM IS NOT A CHOICE.
PEM IS NOT DECONDITIONING.
PEM IS NOT ‘EFFORT PREFERENCE’ .
PEM is a physiological disease process.
PEM occurs in bodies that are experiencing metabolic
4/
February 12, 2025 at 2:22 PM
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it as a crucial bread crumb in developing a more detailed
understanding of the pathobiology of PEM. Unfortunately, too often in science, we see that people with old ideas, big egos, power and privilege find curiosity and fresh ideas threatening to their chokehold on a field. 2/
February 12, 2025 at 2:22 PM
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Here is the pre-RFK vaccination schedule for your kids. Please download it before he is confirmed and changes/deletes it.

Give it to your pediatrician and say this is the schedule you want your kids on.

Making this my pinned post.
February 4, 2025 at 9:01 PM
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Executive wants to frame the NIH indirects cut as $4B in savings.

But given that NIH returns $2.5 on every $1 investment, this would actually cost US economy a net $6 BILLION (per year!). Not to mention the human costs of wrecking education and research sectors and the communities they serve.
Direct Economic Contributions
NIH directly supports the economy through investments in research institutions and job formation.
www.nih.gov
February 8, 2025 at 3:08 AM
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Children’s Hospital of Pennsylvania has indirect rate of 70%, but they probably didn’t want to list that atop Harvard because defunding a children’s hospital might be perceived as problematic.

This is devastating
These overhead rates are negotiated. Lowering it unilaterally to 15% is another way to destroy science in the US. Can’t wait to see what’s next.
February 8, 2025 at 12:55 AM
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American science and medicine has been thrown into chaos and uncertainty over the past week. Here are some stories to get up to speed. 1/12
January 28, 2025 at 3:58 AM
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NIH staff learned Wednesday that any public presentations at conferences or meetings must now be cleared by a presidential appointee. They can attend conferences virtually, if there's no additional cost to the dept. And the travel agency contracted to book reservations has been cut off.
SCOOP: National Institutes of Health ordered by Trump admin to enact 'immediate and indefinite' travel suspension
"If staff aren’t able to travel, clinical trials will likely have to be put on hold," a source tells The Handbasket.
www.thehandbasket.co
January 22, 2025 at 10:53 PM
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No study section...no grant reviews
No grant reviews...no grants awarded
No grants awarded...no research
No research...no functional NIH
All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.
January 22, 2025 at 9:21 PM
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eugenics leads to fascism

if you gleefully ripped off your mask when you were lied to that the pandemic is over (spoiler: it’s not), you own this, too

disabled people told you where this was headed over and over and over and over and over and over and over and over and over. you didn’t listen.
people keep tagging me in fuck around and find out content like I haven’t been talking about how pandemics lead to fascism since 2020.

The “find out” portion isn’t just for everyone who doesn’t consider themself a liberal—it’s for them too.

Haven’t masked in 4 years? FAAFO.
January 22, 2025 at 7:13 PM
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Remember when the pandemic began and everyone started accommodating remote work? Everyone began showing brand new movies and live concerts streaming? Disabled people had been fighting for this for decades. Now it’s all taken away. It’s not that they can’t accommodate us, they just don’t want to.
January 18, 2025 at 8:14 PM
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You do not have to consume every single tiny piece of bad news in order to be a good person. It’s ok to miss things. Traumatizing yourself isn’t the same as activism. Bearing witness to the point that you’re paralyzed with fear and horror and fury isn’t going to help us get through this.
Remember their goal is to terrorize us. And social media is a fantastic way to spread terror. We don’t have to help them.
Based on the vibes of my timeline today I’m feeling like the next two weeks are probably gonna be a really good time to reduce social media use as much as possible. Because YIKES.
January 17, 2025 at 5:06 PM
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Los Angeles Mayor Karen Bass is bragging about distributing N95 masks. Yet, just 6 months ago Bass proposed a ban on masks in LA.
January 14, 2025 at 7:26 PM
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If you are a HCW and you are not wearing a mask at work right now, what the hell is wrong with you?

Please tell us.
#medsky
January 12, 2025 at 4:14 PM
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N95 masks protect against wildfire smoke, airborne viruses, and more. They are an essential public health tool. Like condoms and many other public health tools, the government should make N95 masks free and easily accessible to the public throughout the year.
January 11, 2025 at 9:58 PM
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How to protect your health from wildfire smoke:

Evacuate if active fire is too close

Wear a high quality mask with headstraps; N95s are great, P100s are most protective

Stay indoors, and close your windows and doors

Run air purifiers on high to filter smoke that seeps inside
January 8, 2025 at 7:31 PM
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Possibly the best clap back against ignorant antivaxxers.
January 5, 2025 at 4:04 PM
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Hey, democrats? I don’t want to hear the words “solidarity” or “inclusion” if you mean “except with disabled people during a pandemic.” You are adults and you can wear a mask to the grocery store and not infect anyone this year.
Today is a good day to start masking again if you stopped. 😷

COVID-19, RSV, flu & more are spreading.

In addition, we are fighting against mask bans in NY and other places. Wearing a mask is a great way to show solidarity and show support for being able to wear a mask.
January 5, 2025 at 5:52 PM